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Dying in Darkness: Deviations From Data Sharing Ethics in the US Public Health System and the Data Genocide of American Indian and Alaska Native Communities

Cason D Schmit, Meghan Curry O’Connell, Sarah Shewbrooks, Charles Abourezk, Fallon J Cochlin, Megan Doerr, Hye-Chung Kum

J Med Internet Res 2025;27:e70983

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Assessing Privacy Vulnerabilities in Genetic Data Sets: Scoping Review

Mara Thomas, Nuria Mackes, Asad Preuss-Dodhy, Thomas Wieland, Markus Bundschus

JMIR Bioinform Biotech 2024;5:e54332

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Approaches to Research Ethics in Health Research on YouTube: Systematic Review

Joshua P Tanner, Courtney Takats, Hannah Stuart Lathan, Amy Kwan, Rachel Wormer, Diana Romero, Heidi E Jones

J Med Internet Res 2023;25:e43060

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Data Quality– and Utility-Compliant Anonymization of Common Data Model–Harmonized Electronic Health Record Data: Protocol for a Scoping Review

Gaetan Kamdje Wabo, Fabian Prasser, Kerstin Gierend, Fabian Siegel, Thomas Ganslandt

JMIR Res Protoc 2023;12:e46471

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Privacy-Preserving Anonymity for Periodical Releases of Spontaneous Adverse Drug Event Reporting Data: Algorithm Development and Validation

Jie-Teng Wang, Wen-Yang Lin

JMIR Med Inform 2021;9(10):e28752

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Exploring the Privacy-Preserving Properties of Word Embeddings: Algorithmic Validation Study

Mohamed Abdalla, Moustafa Abdalla, Graeme Hirst, Frank Rudzicz

J Med Internet Res 2020;22(7):e18055

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Why Do Data Users Say Health Care Data Are Difficult to Use? A Cross-Sectional Survey Study

Ho Heon Kim, Bora Kim, Segyeong Joo, Soo-Yong Shin, Hyo Soung Cha, Yu Rang Park

J Med Internet Res 2019;21(8):e14126

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Privacy-Preserving Record Grouping and Consent Management Based on a Public-Private Key Signature Scheme: Theoretical Analysis and Feasibility Study

Stephan M Jonas, Simon Siewert, Cord Spreckelsen

J Med Internet Res 2019;21(4):e12300

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Digital Trespass: Ethical and Terms-of-Use Violations by Researchers Accessing Data From an Online Patient Community

Emil Chiauzzi, Paul Wicks

J Med Internet Res 2019;21(2):e11985

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