Initiatives, Concepts, and Implementation Practices of the Findable, Accessible, Interoperable, and Reusable Data Principles in Health Data Stewardship: Scoping Review

Journals

1. Wright R, Makris K, Natsiavas P, Fennell T, Rushing B, Wilson A, Adamu Y, Adar S, Adebamowo C, Akhtari F, Argos M, Arunachalam S, Baumert B, Beglarian E, Berger K, Bhutani J, Cai L, Calafat A, Chao M, Chatziioannou A, Cheng Q, Chung M, Clark R, Hubal E, Cooke M, Costello E, Cui Y, Dierickx E, Dolinoy D, Du X, Folle A, Gao P, Gaulke C, Giebelhaus R, Goodrich J, Grafanaki K, Gullapalli R, Habre R, Hanson H, Harari H, Hart J, He J, Holmes P, Hood D, House J, Hu H, Hu C, James P, Jankowska M, Ji H, Kannan S, Konstantinou C, Lai Y, Langston M, Lasalle J, Liang D, Liao J, Luo J, Manz K, Miller G, Motsinger-Reif A, Ouidir M, Page G, Pan S, Parker G, Paul K, Peluso A, Penning T, Pierce B, Prajapati N, Quintana P, Rajasekar A, Ramesh A, Ruden D, Rushing B, Schmitt C, Schüssler-Fiorenza Rose S, Shah R, Shahriar M, Soares L, Soliman G, Stanek L, States J, Stingone J, Irizarry S, Sun Y, Teitelbaum S, Tong A, Vijayakumar N, Walker R, Wang Y, Whyte K, Wu L, Wu K, Yuan X, Zhang Q, Zhang X, Zhang K, Zhao N. A long and winding road: culture change on data sharing in exposomics. Exposome 2024;4(1) View
2. Waltemath D, Beyan O, Crameri K, Dedié A, Gierend K, Gröber P, Inau E, Michaelis L, Reinecke I, Sedlmayr M, Thun S, Krefting D. FAIRe Gesundheitsdaten im nationalen und internationalen Datenraum. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2024;67(6):710 View
3. Raza S, Ghuge S, Ding C, Dolatabadi E, Pandya D. FAIR Enough: Develop and Assess a FAIR-Compliant Dataset for Large Language Model Training?. Data Intelligence 2024;6(2):559 View
4. Lamer A, Popoff B, Delange B, Doutreligne M, Chazard E, Marcilly R, Priou S, Quindroit P. Barriers encountered with clinical data warehouses: Recommendations from a focus group. Computer Methods and Programs in Biomedicine 2024;256:108404 View
5. Inau E, Dedié A, Anastasova I, Schick R, Zdravomyslov Y, Fröhlich B, Birkenfeld A, Hrabě de Angelis M, Roden M, Zeleke A, Preusse M, Waltemath D. The Journey to a FAIR CORE DATA SET for Diabetes Research in Germany. Scientific Data 2024;11(1) View
6. Bossenko I, Randmaa R, Piho G, Ross P. Interoperability of health data using FHIR Mapping Language: transforming HL7 CDA to FHIR with reusable visual components. Frontiers in Digital Health 2024;6 View
7. Taddese A, Addis A, Tam B. Data stewardship and curation practices in AI-based genomics and automated microscopy image analysis for high-throughput screening studies: promoting robust and ethical AI applications. Human Genomics 2025;19(1) View
8. Inau E, Radke D, Bird L, Westphal S, Ittermann T, Schäfer C, Nauck M, Zeleke A, Schmidt C, Waltemath D. Semantic enrichment of Pomeranian health study data using LOINC and WHO-FIC terminology mapping principles. JAMIA Open 2025;8(2) View
9. Vondikakis I, Politi E, Goulis D, Dimitrakopoulos G, Georgoulis M, Saltaouras G, Kontogianni M, Brisimi T, Logothetis M, Kakoulidis H, Prasinos M, Anastasiou A, Kakkos I, Vellidou E, Matsopoulos G, Koutsouris D. Integrated Framework for Managing Childhood Obesity Based on Biobanks, AI Tools and Methods, and Serious Games. Electronics 2025;14(10):2053 View

Books/Policy Documents

1. Vayyala R. Data Governance, DevSecOps, and Advancements in Modern Software. View