Initiatives, Concepts, and Implementation Practices of the Findable, Accessible, Interoperable, and Reusable Data Principles in Health Data Stewardship: Scoping Review

Journals

1. Wright R, Makris K, Natsiavas P, Fennell T, Rushing B, Wilson A, Adamu Y, Adar S, Adebamowo C, Akhtari F, Argos M, Arunachalam S, Baumert B, Beglarian E, Berger K, Bhutani J, Cai L, Calafat A, Chao M, Chatziioannou A, Cheng Q, Chung M, Clark R, Hubal E, Cooke M, Costello E, Cui Y, Dierickx E, Dolinoy D, Du X, Folle A, Gao P, Gaulke C, Giebelhaus R, Goodrich J, Grafanaki K, Gullapalli R, Habre R, Hanson H, Harari H, Hart J, He J, Holmes P, Hood D, House J, Hu H, Hu C, James P, Jankowska M, Ji H, Kannan S, Konstantinou C, Lai Y, Langston M, Lasalle J, Liang D, Liao J, Luo J, Manz K, Miller G, Motsinger-Reif A, Ouidir M, Page G, Pan S, Parker G, Paul K, Peluso A, Penning T, Pierce B, Prajapati N, Quintana P, Rajasekar A, Ramesh A, Ruden D, Rushing B, Schmitt C, Schüssler-Fiorenza Rose S, Shah R, Shahriar M, Soares L, Soliman G, Stanek L, States J, Stingone J, Irizarry S, Sun Y, Teitelbaum S, Tong A, Vijayakumar N, Walker R, Wang Y, Whyte K, Wu L, Wu K, Yuan X, Zhang Q, Zhang X, Zhang K, Zhao N. A long and winding road: culture change on data sharing in exposomics. Exposome 2024;4(1) View
2. Waltemath D, Beyan O, Crameri K, Dedié A, Gierend K, Gröber P, Inau E, Michaelis L, Reinecke I, Sedlmayr M, Thun S, Krefting D. FAIRe Gesundheitsdaten im nationalen und internationalen Datenraum. Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz 2024;67(6):710 View
3. Raza S, Ghuge S, Ding C, Dolatabadi E, Pandya D. FAIR Enough: Develop and Assess a FAIR-Compliant Dataset for Large Language Model Training?. Data Intelligence 2024;6(2):559 View
4. Lamer A, Popoff B, Delange B, Doutreligne M, Chazard E, Marcilly R, Priou S, Quindroit P. Barriers encountered with clinical data warehouses: Recommendations from a focus group. Computer Methods and Programs in Biomedicine 2024;256:108404 View
5. Inau E, Dedié A, Anastasova I, Schick R, Zdravomyslov Y, Fröhlich B, Birkenfeld A, Hrabě de Angelis M, Roden M, Zeleke A, Preusse M, Waltemath D. The Journey to a FAIR CORE DATA SET for Diabetes Research in Germany. Scientific Data 2024;11(1) View
6. Bossenko I, Randmaa R, Piho G, Ross P. Interoperability of health data using FHIR Mapping Language: transforming HL7 CDA to FHIR with reusable visual components. Frontiers in Digital Health 2024;6 View
7. Taddese A, Addis A, Tam B. Data stewardship and curation practices in AI-based genomics and automated microscopy image analysis for high-throughput screening studies: promoting robust and ethical AI applications. Human Genomics 2025;19(1) View
8. Inau E, Radke D, Bird L, Westphal S, Ittermann T, Schäfer C, Nauck M, Zeleke A, Schmidt C, Waltemath D. Semantic enrichment of Pomeranian health study data using LOINC and WHO-FIC terminology mapping principles. JAMIA Open 2025;8(2) View
9. Vondikakis I, Politi E, Goulis D, Dimitrakopoulos G, Georgoulis M, Saltaouras G, Kontogianni M, Brisimi T, Logothetis M, Kakoulidis H, Prasinos M, Anastasiou A, Kakkos I, Vellidou E, Matsopoulos G, Koutsouris D. Integrated Framework for Managing Childhood Obesity Based on Biobanks, AI Tools and Methods, and Serious Games. Electronics 2025;14(10):2053 View
10. Reato F, Ivziku D, Lommi M, Bresil A, Andreotti A, D’Angelo C, Gorli M, Picozzi M, Carcano G. Transversal Competencies in Operating Room Nurses: A Hierarchical Task Analysis. Nursing Reports 2025;15(6):200 View
11. Zafar I, Unar A, Khan N, Abalkhail A, Jamal A. Molecular biology in the exabyte era: Taming the data deluge for biological revelation and clinical transformation. Computational Biology and Chemistry 2025;119:108535 View
12. Hellstrand M, Raghothama J, Meijer S. FAIR for whom? A reality check on the state of FAIR research data management in a collaborative research project. Big Data & Society 2025;12(2) View
13. Nyangiwe N. The role of computational materials science in achieving sustainable development goals: A review. Next Research 2025;2(3):100692 View
14. Hussein J, Workneh T, Kassim A, Ntsowe K, Melesse S, El-Mesery H. A review on the impact of big data analytics in transforming agricultural practices, food processing, and preservation strategies. Applied Food Research 2025;5(2):101234 View
15. Chehab C, Yao X, Heald J, Lathrop S, Hussein H, Michaels M. Opportunities and Challenges in Using Artificial Intelligence in Guideline Development and Implementation. Clinical and Public Health Guidelines 2025;2(4) View
16. Saavedra L, Christopher M, Illei D, Kral A, Ray B, Zibbell J, Wagner K, Borquez A, Jordan A, Seal D, Cerdá M, Mackesy-Amiti M, Wilson J, Pho M, Behrends C, Hassan H, Tomko C, Oga E, Cance J. Advancing research on strategies to reduce drug use and overdose-related harms: a community informed approach to establishing common data elements. Harm Reduction Journal 2025;22(S1) View
17. Cerda-Cosme R, Mendez E. Scoping review on research data in Spain: Academic output and developing trends. The Journal of Academic Librarianship 2025;51(6):103151 View
18. Abdullah I, Khan S, Hassan F. Gut–Brain Axis and Perioperative Gut Microbiome in Postoperative Cognitive Dysfunction: Implications for Neurosurgical Patients. Medical Sciences 2025;13(4):236 View
19. Gao H, Murray J, Shreeve J. A Computational Renaissance in High-Energy Density Materials (HEDMs) Research. Chemical Reviews 2025;125(21):10342 View
20. Osaghale L. Adaptive and Time-Sensitive Machine Learning Framework for Precision Therapy in Nontuberculous Mycobacterium Infections. European Journal of Medical and Health Research 2025;3(6):87 View
21. Poenaru E, Dugăeşescu M, Poenaru C, Andrei-Bitere I, Băicoianu-Niţescu L, Constantin T, Zugravu A, Bitel B, Constantin M, Stoleru S. Perspectives on Research and Personalized Healthcare in the Context of Federated FAIR Data Based on an Exploratory Study by Medical Researchers. Data 2025;10(11):187 View

Books/Policy Documents

1. Vayyala R. Data Governance, DevSecOps, and Advancements in Modern Software. View

Conference Proceedings

1. Diaz-de-Arcaya J, Garcia-Perez A, Bonilla L, Miñón R, Torre-Bastida A. 2025 10th International Conference on Smart and Sustainable Technologies (SpliTech). Data Harmonization as a Keystone for Data Spaces: Challenges, Techniques, and Future Trends View
2. Ziran Z, Muzi F, Piras G, Arman A, Mecella M. 2025 21st International Conference on Intelligent Environments (IE). Supporting Energy Consumption Prediction: A Sustainable Approach View