Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/45002, first published .
Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Journals

  1. Pronicki Ł, Czech M, Gujski M, Boguszewska N. Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens. Healthcare 2023;11(20):2714 View
  2. Hulin A, Guiraud É, Lawarée J, Langlois L. Le partage et la mise en commun des données de santé : quels enjeux pour un objectif d’innovation sociale responsable ?. Éthique publique 2023;(vol. 25, n° 1) View
  3. Verbeke K, Jain C, Shpendi A, Borry P. Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study. Neuroethics 2024;17(1) View
  4. Bilodeau E, Cumyn A, Ménard J, Barton A, Dault R, Ethier J. Utilisations secondaires des données de santé : impacts de la transparence. Canadian Journal of Bioethics 2024;7(2-3):118 View
  5. Riou C, El Azzouzi M, Hespel A, Guillou E, Coatrieux G, Cuggia M. Ensuring General Data Protection Regulation Compliance and Security in a Clinical Data Warehouse From a University Hospital: Implementation Study. JMIR Medical Informatics 2025;13:e63754 View
  6. Jackson B, Kaplan B, Schreiber R, DeMuro P, Nichols-Johnson V, Ozeran L, Solomonides A, Koppel R. Ethical Dimensions of Clinical Data Sharing by U.S. Health Care Organizations for Purposes beyond Direct Patient Care: Interviews with Health Care Leaders. Applied Clinical Informatics 2025;16(01):090 View
  7. Jackson B, Rashidi H, Lennerz J, de Baca M. Ethical and Regulatory Perspectives on Generative Artificial Intelligence in Pathology. Archives of Pathology & Laboratory Medicine 2025;149(2):123 View
  8. Woodbury R, Beans J, Hiratsuka V. Trusted partners, community priorities, and data protections: requirements for precision medicine research with Alaska Native peoples. Journal of Community Genetics 2025;16(3):311 View
  9. van den Akker O, Thibault R, Ioannidis J, Schorr S, Strech D. Transparency in the secondary use of health data: assessing the status quo of guidance and best practices. Royal Society Open Science 2025;12(3) View
  10. Goodings A, Fadahunsi K, Tarn D, Lutomski J, Chhor A, Shiely F, Henn P, O'Donoghue J. Determinants of Continuous Smartwatch Use and Data-Sharing Preferences with Physicians, Public Health Authorities, and Private Companies: A Cross-Sectional Survey of Smartwatch Users (Preprint). Journal of Medical Internet Research 2024 View