This paper is in the following e-collection/theme issue:

Digital Health Reviews (1291) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (576) Consumer & Patient Education and Shared-Decision Making (680) Participatory Medicine & E-Patients (774) Clinical Informatics (1028)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/45002, first published .
Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review

Authors of this article:

Annabelle Cumyn1, 2 Author Orcid Image ;   Jean-Frédéric Ménard2, 3 Author Orcid Image ;   Adrien Barton2, 4 Author Orcid Image ;   Roxanne Dault2 Author Orcid Image ;   Frédérique Lévesque2 Author Orcid Image ;   Jean-François Ethier1, 2 Author Orcid Image
Article Authors Cited by (4) Tweetations (3) Metrics

Journals

  1. Pronicki Ł, Czech M, Gujski M, Boguszewska N. Awareness, Attitudes and Willingness to Donate Biological Samples to a Biobank: A Survey of a Representative Sample of Polish Citizens. Healthcare 2023;11(20):2714 View
  2. Hulin A, Guiraud É, Lawarée J, Langlois L. Le partage et la mise en commun des données de santé : quels enjeux pour un objectif d’innovation sociale responsable ?. Éthique publique 2023;(vol. 25, n° 1) View
  3. Verbeke K, Jain C, Shpendi A, Borry P. Safeguarding Users of Consumer Mental Health Apps in Research and Product Improvement Studies: an Interview Study. Neuroethics 2024;17(1) View
  4. Bilodeau E, Cumyn A, Ménard J, Barton A, Dault R, Ethier J. Utilisations secondaires des données de santé : impacts de la transparence. Canadian Journal of Bioethics 2024;7(2-3):118 View