This paper is in the following e-collection/theme issue:

Digital Health Reviews (1531) Clinical Informatics (1165) Surveillance Systems (493)

Published on in Vol 25 (2023)

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/44641, first published .
The Minimum Data Set for Rare Diseases: Systematic Review

The Minimum Data Set for Rare Diseases: Systematic Review

The Minimum Data Set for Rare Diseases: Systematic Review

Authors of this article:

Filipe Andrade Bernardi1, 2 Author Orcid Image ;   Bibiana Mello de Oliveira2, 3, 4 Author Orcid Image ;   Diego Bettiol Yamada1, 2 Author Orcid Image ;   Milena Artifon2, 3 Author Orcid Image ;   Amanda Maria Schmidt2, 3 Author Orcid Image ;   Victória Machado Scheibe2, 3, 5 Author Orcid Image ;   Domingos Alves1, 2 Author Orcid Image ;   Têmis Maria Félix2, 3 Author Orcid Image
Article Authors Cited by (12) Tweetations (4) Metrics
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JMIR Publications JMIR Publications @jmirpub

New in JMIR: The Minimum Data Set for Rare #Diseases: Systematic Review https://t.co/YjlFMr82mR https://t.co/avviQJtsLd

3:27 PM · Jul 27, 2023

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Journal of Medical Internet Research Journal of Medical Internet Research @JMIR_

RT @jmirpub: New in JMIR: The Minimum Data Set for Rare #Diseases: Systematic Review https://t.co/YjlFMr82mR https://t.co/avviQJtsLd

3:28 PM · Jul 27, 2023

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champs champs @kejr35778464

The Minimum Data Set for Rare Diseases: Systematic Review https://t.co/ZZJoUFY2sE Learn more about mucopolysaccharidosis mucolipidosis and mannosidosis at https://t.co/N51qqoQ1fm #champs #mps #mukopolysaccharidose #mannosidose #mukolipidose #mpssymposium2024com #mps2024com https://t.co/Rw4ZHmZuLG

8:28 AM · Jul 31, 2023

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Dongxue Dongxue @DongxueHWang

The study highlights the difficulties in standardizing and categorizing findings from MDSs for RD because of the varying structures used in different studies. The Minimum Data Set for Rare Diseases: Systematic Review https://t.co/ts0SiaFGHz

8:39 PM · Aug 28, 2023

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