This paper is in the following e-collection/theme issue:

E-Health / Health Services Research and New Models of Care (542) Peer-to-Peer Support and Online Communities (652) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1666)

Published on in Vol 24, No 12 (2022): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/42084, first published .
Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

Perspectives of Rare Disease Social Media Group Participants on Engaging With Genetic Counselors: Mixed Methods Study

Authors of this article:

Megan Yabumoto1 Author Orcid Image ;   Emily Miller2 Author Orcid Image ;   Anoushka Rao2 Author Orcid Image ;   Holly K Tabor2, 3 Author Orcid Image ;   Kelly E Ormond1, 2, 4 Author Orcid Image ;   Meghan C Halley2 Author Orcid Image
Article Authors Cited by (7) Tweetations (4) Metrics

Megan Yabumoto   1 , MSc ;   Emily Miller   2 , BA ;   Anoushka Rao   2 ;   Holly K Tabor   2, 3 , PhD ;   Kelly E Ormond   1, 2, 4 , MSc ;   Meghan C Halley   2 , MPH, PhD

1 Department of Genetics, Stanford University School of Medicine, Stanford, CA, United States

2 Stanford Center for Biomedical Ethics, Stanford University School of Medicine, Stanford, CA, United States

3 Department of Medicine, Stanford University School of Medicine, Stanford, CA, United States

4 Health Ethics and Policy Lab, Department of Health Sciences and Technology, Swiss Federal Institute of Technology (Eidgenössische Technische Hochschule Zurich), Zurich, Switzerland

Corresponding Author:

  • Meghan C Halley, MPH, PhD
  • Stanford Center for Biomedical Ethics
  • Stanford University School of Medicine
  • 300 Pasteur Drive
  • Stanford, CA, 94305
  • United States
  • Phone: 1 414-745-9381
  • Email: mhalley@stanford.edu