This paper is in the following e-collection/theme issue:

Digital Health Reviews (1724) Participatory Medicine & E-Patients (873) Disabilities (157) Children and Youth with Disabilities (67)

Published on in Vol 24, No 12 (2022): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/37972, first published .
Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review

Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review

Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review

Authors of this article:

Oliver Gruebner1, 2 Author Orcid Image ;   Afua van Haasteren3 Author Orcid Image ;   Anna Hug1 Author Orcid Image ;   Suzanne Elayan4 Author Orcid Image ;   Martin Sykora4 Author Orcid Image ;   Emiliano Albanese3 Author Orcid Image ;   John Naslund5 Author Orcid Image ;   Markus Wolf6 Author Orcid Image ;   Marta Fadda3 Author Orcid Image ;   Michael von Rhein7 Author Orcid Image
Article Authors Cited by (19) Tweetations (5) Metrics

Journals

  1. Hsu P, Chen R. Analyzing the Mechanisms by Which Digital Platforms Influence Family-School Partnerships among Parents of Young Children. Sustainability 2023;15(24):16708 View
  2. Apps J, Webb S, Hutton E. Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs. British Journal of Occupational Therapy 2024;87(7):452 View
  3. Stormont M, Cahill M, Long B, Adkins D, Long A, Daskalakes D, Gooden C, Russell C. Libraries: Spaces for Belonging, Support, and Partnerships. Young Exceptional Children 2024;27(2):78 View
  4. Kim R, Park H, Shinn J, Kim H. Expectations and concerns regarding medical advertisements via large commercial medical platform advertising companies: a legal perspective. Cardiovascular Prevention and Pharmacotherapy 2024;6(2):48 View
  5. Gruebner O, Elayan S, Sykora M, Wolf M, von Rhein M, Fadda M. Pediatric Neuromuscular Diseases and Psychosocial Wellbeing: Why We Also Need to Invest in Digital Platforms. International Journal of Public Health 2024;69 View
  6. Ahmed H, Thrishulamurthy C. Evaluating ChatGPT's efficacy and readability to common pediatric ophthalmology and strabismus-related questions. European Journal of Ophthalmology 2025;35(2):466 View
  7. Madalı-Kafes B, Alkan Ş, Kara S, Torun B, Kara H. Health literacy and eHealth literacy in caregivers of students with special education needs: a cross-sectional survey study. International Journal of Developmental Disabilities 2025:1 View
  8. Wilson M, O’Connor B, Drake M, Scheinberg A, Imms C, Babic R, Hui D, Charalambous G, Knight S. Feasibility of a goal sharing digital platform designed to empower children with disability and their families: A qualitative, pre-implementation study. DIGITAL HEALTH 2025;11 View
  9. Peng R, Chang J, Zhu Y, Feng H, Cao Z. Unlocking the Power of Peer Support in Digital Use and Digital Health Interventions for Older Adults: A Scoping Review. Journal of Advanced Nursing 2025 View
  10. dos Santos M, Andrade F, Cruz de Souza M, Gerzson L, Kobus-Bianchini K, Meireles A. Analysis of Commercial Instagram Content on Pediatric Neurological Physiotherapy Interventions and Products in Brazil. Physical & Occupational Therapy In Pediatrics 2025;45(5):818 View
  11. Meglič A, Lisec A. Paediatric Palliative Care in Clinical Practice: Ethical Issues in Advance Care Planning and End‐of‐Life Decisions. Journal of Evaluation in Clinical Practice 2025;31(3) View
  12. Manganello J, Murray R, Lo W, Chiang S, Guan M, Klassen A, Leader A, Hill L, Massey P. Differences in HPV Vaccine Information Usefulness and Understanding Between Parents With and Without a Child with Special Healthcare Needs. Maternal and Child Health Journal 2025;29(5):686 View
  13. Sleem S, Khayyat M. The role of digital transformation in enhancing support and care for families of people with disabilities in Saudi Arabia and Egypt: Current realities, challenges, and strategies for improvement. International Journal of ADVANCED AND APPLIED SCIENCES 2025;12(4):116 View
  14. Delgama D, Galvin K, Gray K, Leigh J. Caring for a child with a cochlear implant: A narrative review of the challenges, needs, and potential digital options for parents of children with cochlear implants. Cochlear Implants International 2025;26(3):179 View
  15. Sulino-Gonçalves M, Lima R, Jardim F, Okido A, Cassemiro L, Nascimento L, Jerez-Molina C, Maia E, Melo E, Lopes-Júnior L. Social support for family caregivers of children and youth with special health care needs for home care: a scoping review. Revista da Escola de Enfermagem da USP 2025;59 View
  16. Sulino-Gonçalves M, Lima R, Jardim F, Okido A, Cassemiro L, Nascimento L, Jerez-Molina C, Maia E, Melo E, Lopes-Júnior L. Apoyo social para cuidadores familiares de niños y jóvenes con necesidades especiales de atención médica para el cuidado domiciliario: una revisión de alcance. Revista da Escola de Enfermagem da USP 2025;59 View
  17. Mailloux A, Dinet J, Filloux J, Lanuel Y. Understanding the Real Needs and Expectations of French Patients with Amelogenesis Imperfecta Through Facebook Content: A Qualitative Thematic Analysis. Healthcare 2025;13(21):2740 View
  18. Juel A, Larsen J, Egilsdóttir E, Morthorst B, Buus N, Fleischer E, Winsløv J, Hawton K, Nordentoft M, Erlangsen A. Web-Based Psychoeducation for Parents of Adolescents With Suicide Attempts. Crisis 2025 View

Conference Proceedings

  1. Bogush D, Koronthaly D, Hubbard K, Sharmin M, Ahmed S. 2025 IEEE 49th Annual Computers, Software, and Applications Conference (COMPSAC). “There’s Competition Even Among the Parents of Neurodiverse Children” - Understanding the Dynamics of Social Support Groups for Parents of Autistic Children View