Why #WeAreNotWaiting—Motivations and Self-Reported Outcomes Among Users of Open-source Automated Insulin Delivery Systems: Multinational Survey

Journals

1. Pfiester E, Braune K, Thieffry A, Ballhausen H, Gajewska K, O'Donnell S. Costs and underuse of insulin and diabetes supplies: Findings from the 2020 T1International cross-sectional web-based survey. Diabetes Research and Clinical Practice 2021;179:108996 View
2. Bukhari K, Malek R. Open-source automated insulin delivery systems for the management of type 1 diabetes during pregnancy. BMJ Case Reports 2021;14(9):e243522 View
3. Tornincasa V, Dixon D, Le Masne Q, Martin B, Arnaud L, van Dommelen P, Koledova E. Integrated Digital Health Solutions in the Management of Growth Disorders in Pediatric Patients Receiving Growth Hormone Therapy: A Retrospective Analysis. Frontiers in Endocrinology 2022;13 View
4. Thabit H, Lal R, Leelarathna L. Automated insulin dosing systems: Advances after a century of insulin. Diabetic Medicine 2021;38(12) View
5. Jansky B, Langstrup H. Device activism and material participation in healthcare: retracing forms of engagement in the #WeAreNotWaiting movement for open-source closed-loop systems in type 1 diabetes self-care. BioSocieties 2022 View
6. Patel R, Crabtree T, Taylor N, Langeland L, Gazis A, Mendis B, Wilmot E, Idris I. Safety and effectiveness of do‐it‐yourself artificial pancreas system compared with continuous subcutaneous insulin infusions in combination with free style libre in people with type 1 diabetes. Diabetic Medicine 2022;39(5) View
7. Braune K, Lal R, Petruželková L, Scheiner G, Winterdijk P, Schmidt S, Raimond L, Hood K, Riddell M, Skinner T, Raile K, Hussain S. Open-source automated insulin delivery: international consensus statement and practical guidance for health-care professionals. The Lancet Diabetes & Endocrinology 2022;10(1):58 View
8. O'Donnell S, Cooper D, Chen Y, Ballhausen H, Lewis D, Froment T, Anna Gajewska K, Tappe A, Skinner T, Cleal B, Braune K. Barriers to uptake of Open-Source automated insulin delivery Systems: Analysis of socioeconomic factors and perceived challenges of adults with type 1 diabetes from the OPEN survey. Diabetes Research and Clinical Practice 2023;197:110235 View
9. Schipp J, Skinner T, Holloway E, Scibilia R, Langstrup H, Speight J, Hendrieckx C. ‘We’re all on the same team’. Perspectives on the future of artificial pancreas systems by adults in Australia with type 1 diabetes using open‐source technologies: A qualitative study. Diabetic Medicine 2022;39(5) View
10. Mewes D, Wäldchen M, Knoll C, Raile K, Braune K. Variability of Glycemic Outcomes and Insulin Requirements Throughout the Menstrual Cycle: A Qualitative Study on Women With Type 1 Diabetes Using an Open-Source Automated Insulin Delivery System. Journal of Diabetes Science and Technology 2022:193229682210801 View
11. Knoll C, Schipp J, O'Donnell S, Wäldchen M, Ballhausen H, Cleal B, Gajewska K, Raile K, Skinner T, Braune K. Quality of life and psychological well-being among children and adolescents with diabetes and their caregivers using open-source automated insulin delivery systems: Findings from a multinational survey. Diabetes Research and Clinical Practice 2023;196:110153 View
12. Speight J, Choudhary P, Wilmot E, Hendrieckx C, Forde H, Cheung W, Crabtree T, Millar B, Traviss‐Turner G, Hill A, Ajjan R. Impact of glycaemic technologies on quality of life and related outcomes in adults with type 1 diabetes: A narrative review. Diabetic Medicine 2023;40(1) View
13. de Wit M, Gajewska K, Goethals E, McDarby V, Zhao X, Hapunda G, Delamater A, DiMeglio L. ISPAD Clinical Practice Consensus Guidelines 2022: Psychological care of children, adolescents and young adults with diabetes. Pediatric Diabetes 2022;23(8):1373 View
14. Knoll C, Peacock S, Wäldchen M, Cooper D, Aulakh S, Raile K, Hussain S, Braune K. Real‐world evidence on clinical outcomes of people with type 1 diabetes using open‐source and commercial automated insulin dosing systems: A systematic review. Diabetic Medicine 2022;39(5) View
15. Morrison A, Chong K, Senior P, Lam A, Palumbo P. A scoping review of Do-It-Yourself Automated Insulin Delivery system (DIY AID) use in people with type 1 diabetes. PLOS ONE 2022;17(8):e0271096 View
16. Morrison A, Chong K, Lai V, Farnsworth K, Senior P, Lam A. Improved Glycemia and Quality of Life Among Loop Users: Analysis of Real-world Data From a Single Center. JMIR Diabetes 2022;7(4):e40326 View
17. Vallis M, Holt R. User‐driven open‐source artificial pancreas systems and patient‐reported outcomes: A missed opportunity?. Diabetic Medicine 2022;39(5) View
18. Huhndt A, Chen Y, O’Donnell S, Cooper D, Ballhausen H, Gajewska K, Froment T, Wäldchen M, Lewis D, Raile K, Skinner T, Braune K. Barriers to Uptake of Open-Source Automated Insulin Delivery Systems: Analysis of Socioeconomic Factors and Perceived Challenges of Caregivers of Children and Adolescents With Type 1 Diabetes From the OPEN Survey. Frontiers in Clinical Diabetes and Healthcare 2022;3 View
19. Braune K, Krug N, Knoll C, Ballhausen H, Thieffry A, Chen Y, O'Donnell S, Raile K, Cleal B. Emotional and Physical Health Impact in Children and Adolescents and Their Caregivers Using Open-source Automated Insulin Delivery: Qualitative Analysis of Lived Experiences. Journal of Medical Internet Research 2022;24(7):e37120 View
20. Crabtree T, Choudhary P, Lumb A, Hammond P, McLay A, Campbell F, Ng S, Wilmot E, Hussain S. Association of British Clinical Diabetologists, Diabetes Technology Network UK and Association of Children’s Diabetes Clinicians Survey of UK Healthcare Professional Attitudes Towards Open-Source Automated Insulin Delivery Systems. Diabetes Therapy 2022;13(2):341 View
21. Forlenza G, Lal R. Current Status and Emerging Options for Automated Insulin Delivery Systems. Diabetes Technology & Therapeutics 2022;24(5):362 View
22. Braune K, Knoll C, Cooper D. Open-Source-Systeme zur automatisierten Insulinabgabe. Die Diabetologie 2022;18(8):875 View