This paper is in the following e-collection/theme issue:

Digital Health Reviews (1289) Registered Report (561) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1641)

Published on in Vol 23, No 5 (2021): May

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/25736, first published .
The Use of Social Media for Health Research Purposes: Scoping Review

The Use of Social Media for Health Research Purposes: Scoping Review

The Use of Social Media for Health Research Purposes: Scoping Review

Authors of this article:

Charline Bour1 Author Orcid Image ;   Adrian Ahne2, 3 Author Orcid Image ;   Susanne Schmitz4 Author Orcid Image ;   Camille Perchoux5 Author Orcid Image ;   Coralie Dessenne1 Author Orcid Image ;   Guy Fagherazzi1 Author Orcid Image
Article Authors Cited by (29) Tweetations (11) Metrics

Journals

  1. Ziehfreund S, Tizek L, Zink A. Websearch-Daten als Gesundheitsdaten?. Der Hautarzt 2022;73(1):53 View
  2. Park S, Suh Y. A Comprehensive Analysis of COVID-19 Vaccine Discourse by Vaccine Brand on Twitter in Korea: Topic and Sentiment Analysis. Journal of Medical Internet Research 2023;25:e42623 View
  3. Gao Y, Chen X, Zhang W, Wang Q, Liu J, Zhou L. Online Ethnography for People With Chronic Conditions: Scoping Review. Journal of Medical Internet Research 2022;24(11):e37941 View
  4. Tsaltskan V, Nguyen K, Eaglin C, Holers V, Deane K, Firestein G. Comparison of Web‐Based Advertising and a Social Media Platform as Recruitment Tools for Underserved and Hard‐to‐Reach Populations in Rheumatology Clinical Research. ACR Open Rheumatology 2022;4(7):623 View
  5. Titova J, Cottis G, Allman‐Farinelli M. Using social media analysis to study population dietary behaviours: A scoping review. Journal of Human Nutrition and Dietetics 2023;36(3):875 View
  6. Hamamoto R, Koyama T, Kouno N, Yasuda T, Yui S, Sudo K, Hirata M, Sunami K, Kubo T, Takasawa K, Takahashi S, Machino H, Kobayashi K, Asada K, Komatsu M, Kaneko S, Yatabe Y, Yamamoto N. Introducing AI to the molecular tumor board: one direction toward the establishment of precision medicine using large-scale cancer clinical and biological information. Experimental Hematology & Oncology 2022;11(1) View
  7. Kanchan S, Gaidhane A. Social Media Role and Its Impact on Public Health: A Narrative Review. Cureus 2023 View
  8. Fagherazzi G, Bour C, Ahne A. Emulating a virtual digital cohort study based on social media data as a complementary approach to traditional epidemiology: When, what for, and how?. Diabetes Epidemiology and Management 2022;7:100085 View
  9. Déguilhem A, Malaab J, Talmatkadi M, Renner S, Foulquié P, Fagherazzi G, Loussikian P, Marty T, Mebarki A, Texier N, Schuck S. Identifying Profiles and Symptoms of Patients With Long COVID in France: Data Mining Infodemiology Study Based on Social Media. JMIR Infodemiology 2022;2(2):e39849 View
  10. Ashford M, Camacho M, Jin C, Eichenbaum J, Ulbricht A, Alaniz R, Van De Mortel L, Sorce J, Aaronson A, Parmar S, Flenniken D, Fockler J, Truran D, Mackin R, Rivera Mindt M, Morlett‐Paredes A, González H, Mayeda E, Weiner M, Nosheny R. Digital culturally tailored marketing for enrolling Latino participants in a web‐based registry: Baseline metrics from the Brain Health Registry. Alzheimer's & Dementia 2023;19(5):1714 View
  11. Bour C, Ahne A, Aguayo G, Fischer A, Marcic D, Kayser P, Fagherazzi G. Global diabetes burden: analysis of regional differences to improve diabetes care. BMJ Open Diabetes Research & Care 2022;10(5):e003040 View
  12. Wilson A, Lehmann C, Saleh S, Hanna J, Medford R. Social media: A new tool for outbreak surveillance. Antimicrobial Stewardship & Healthcare Epidemiology 2021;1(1) View
  13. Girardi A, Singh N, Boyd C. Using Social Media in Health Care Research Should Proceed With Caution. Comment on “The Use of Social Media for Health Research Purposes: Scoping Review”. Journal of Medical Internet Research 2022;24(1):e35286 View
  14. Hrincu V, An Z, Joseph K, Jiang Y, Robillard J, Rosen A. Dementia Research on Facebook and Twitter: Current Practice and Challenges. Journal of Alzheimer's Disease 2022;90(2):447 View
  15. Bour C, Ahne A, Aguayo G, Fischer A, Marcic D, Kayser P, Fagherazzi G. Global Diabetes Burden: Analysis of Regional Differences to Improve Diabetes Care. SSRN Electronic Journal 2022 View
  16. Dos Anjos T, Dos Passos J, Serafim J, Lima A, Novaz K, Angelo R. COMUNICADOR – USO DO INSTAGRAM COMO FERRAMENTA DE EDUCAÇÃO EM DOR: ANÁLISE DAS MÉTRICAS ALCANÇADAS. REVISTA FOCO 2023;16(5):e1780 View
  17. Neris R, Papathanassoglou E, Leite A, Garcia-Vivar C, DeMontigny F, Nascimento L. Five tips for conducting remote qualitative data collection in COVID times: theoretical and pragmatic considerations. Revista da Escola de Enfermagem da USP 2023;57 View
  18. Ejem D, Wechsler S, Gallups S, Khalidi S, Coffee-Dunning J, Montgomery A, Stevens C, Keene K, Rocque G, Chamberlin M, Hegel M, Azuero A, Pisu M, Ellis D, Ingram S, Lawhon V, Gilbert T, Morrissette K, Morency J, Thorp K, Codini M, Newman R, Echols J, Cloyd D, dos Anjos S, Muse C, Goedeken S, Laws K, Herbert J, Bakitas M, Lyons K. Enhancing Efficiency and Reach Using Facebook to Recruit Breast Cancer Survivors for a Telephone-Based Supportive Care Randomized Trial During the COVID-19 Pandemic. JCO Oncology Practice 2023;19(11):1020 View
  19. Ayadi H, Bour C, Fischer A, Ghoniem M, Fagherazzi G. The Long COVID experience from a patient's perspective: a clustering analysis of 27,216 Reddit posts. Frontiers in Public Health 2023;11 View
  20. Lim A, Marcellus L. Riding the wave: A grounded theory of transplant transition in adolescents and youth adults. Health Care Transitions 2023;1:100019 View
  21. Arillotta D, Floresta G, Guirguis A, Corkery J, Catalani V, Martinotti G, Sensi S, Schifano F. GLP-1 Receptor Agonists and Related Mental Health Issues; Insights from a Range of Social Media Platforms Using a Mixed-Methods Approach. Brain Sciences 2023;13(11):1503 View
  22. Lyons N, Redding A, Susick L, Leydet E, Tyra M, Santarossa S. Using New Age Recruitment Methods. International Journal of Social Media and Online Communities 2023;15(1):1 View
  23. Fu J, Li C, Zhou C, Li W, Lai J, Deng S, Zhang Y, Guo Z, Wu Y. Methods for Analyzing the Contents of Social Media for Health Care: Scoping Review. Journal of Medical Internet Research 2023;25:e43349 View
  24. Smith M, Grohmann D, Trivedi D. Use of social media in recruiting young people to mental health research: a scoping review. BMJ Open 2023;13(11):e075290 View
  25. O'Connor K, Golder S, Weissenbacher D, Klein A, Magge A, Gonzalez-Hernandez G. Methods and Annotated Data Sets Used to Predict the Gender and Age of Twitter Users: Scoping Review. Journal of Medical Internet Research 2024;26:e47923 View
  26. Awan A, Gonzalez A, Sharma M. A Neoteric Approach toward Social Media in Public Health Informatics: A Narrative Review of Current Trends and Future Directions. Information 2024;15(5):276 View
  27. Bour C, Elbeji A, De Giovanni L, Ahne A, Fagherazzi G. ALTRUIST: A Python Package to Emulate a Virtual Digital Cohort Study Using Social Media Data. IEEE Transactions on Big Data 2024;10(4):568 View
  28. Ball C, Watkins S, Fahrion A, Morales M, McDonald A, Vogel E, Kim M. “Do all bisexuals have this power?”: An exploratory study of “crippling nicotine addiction,” identity, and other emergent themes in vaping messages on QueerTok. SSM - Qualitative Research in Health 2024;6:100471 View
  29. Okonkwo O, Rivera Mindt M, Ashford M, Conti C, Strong J, Raman R, Donohue M, Nosheny R, Flenniken D, Miller M, Diaz A, Soto A, Ances B, Beigi M, Doraiswamy P, Duara R, Farlow M, Grossman H, Mintzer J, Reist C, Rogalski E, Sabbagh M, Salloway S, Schneider L, Shah R, Petersen R, Aisen P, Weiner M. A Protocol for the Inclusion of Minoritized Persons in Alzheimer Disease Research From the ADNI3 Diversity Taskforce. JAMA Network Open 2024;7(8):e2427073 View