This paper is in the following e-collection/theme issue:

Ethics, Privacy, and Legal Issues (479) Fitness Trackers and Smart Pedometers/Accelerometers (561) Wearable Devices and Sensors (888) Security and Privacy of mHealth and uHealth (124) Crowdsourcing and Mechanical Turks (98) mHealth in a Clinical Setting (615) Mobile Health (mhealth) (2939) Consumer & Patient Education and Shared-Decision Making (679)

Published on in Vol 23, No 11 (2021): November

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/23059, first published .
Fitness Tracker Information and Privacy Management: Empirical Study

Fitness Tracker Information and Privacy Management: Empirical Study

Fitness Tracker Information and Privacy Management: Empirical Study

Authors of this article:

Mohamed Abdelhamid1 Author Orcid Image
Article Authors Cited by (4) Tweetations (3) Metrics

    Original Paper

    Department of Information Systems, California State University, Long Beach, Long Beach, CA, United States

    Corresponding Author:

    Mohamed Abdelhamid, PhD

    Department of Information Systems

    California State University, Long Beach

    1250 N Bellflower Blvd

    Long Beach, CA, 90840

    United States

    Phone: 1 5629852361

    Email: mohamed.abdelhamid@csulb.edu


    Background: Fitness trackers allow users to collect, manage, track, and monitor fitness-related activities, such as distance walked, calorie intake, sleep quality, and heart rate. Fitness trackers have become increasingly popular in the past decade. One in five Americans use a device or an app to track their fitness-related activities. These devices generate massive and important data that could help physicians make better assessments of their patients’ health if shared with health providers. This ultimately could lead to better health outcomes and perhaps even lower costs for patients. However, sharing personal fitness information with health care providers has drawbacks, mainly related to the risk of privacy loss and information misuse.

    Objective: This study investigates the influence of granting users granular privacy control on their willingness to share fitness information.

    Methods: The study used 270 valid responses collected from Mtrurkers through Amazon Mechanical Turk (MTurk). Participants were randomly assigned to one of two groups. The conceptual model was tested using structural equation modeling (SEM). The dependent variable was the intention to share fitness information. The independent variables were perceived risk, perceived benefits, and trust in the system.

    Results: SEM explained about 60% of the variance in the dependent variable. Three of the four hypotheses were supported. Perceived risk and trust in the system had a significant relationship with the dependent variable, while trust in the system was not significant.

    Conclusions: The findings show that people are willing to share their fitness information if they have granular privacy control. This study has practical and theoretical implications. It integrates communication privacy management (CPM) theory with the privacy calculus model.

    J Med Internet Res 2021;23(11):e23059

    doi:10.2196/23059

    Keywords

    privacy; information sharing; fitness trackers; wearable devices 


    Background

    Fitness trackers are wearable devices that allow people to monitor and track activities and information related to fitness, such as distance walked and calories consumed. Fitness trackers can be stand-alone devices or integrated within a smartwatch. The device is usually connected to a mobile app that allows users to manage information and use the features of the app. The first functional fitness tracker was invented in the mid-1960s [1]. However, the rise of fitness trackers and wearable devices started about a decade ago. The first Fitbit was released in 2012 [2], and the first Apple watch was revealed in 2014 [3]. Since then, fitness trackers and wearable devices have become increasingly popular. A recent Pew Research Center study reported that 21% of Americans regularly use fitness trackers or smartwatches [4]. Similarly, in 2019, Gallup reported that more than one in four Americans use an app or device to track fitness-related activities [5].

    People use fitness trackers for various reasons, but ultimately, the main reason is to get fit or maintain health [6,7]. The device/app helps users stay motivated and allows them to track progress and stay informed [8]. In recent years, many people have started seeking a healthier lifestyle and adopted technologies that motivated them to keep track of their goals [9]. This trend is largely adopted by millennials; some even called the millennials “the wellness generation” [10].

    Information collected by fitness trackers and maintained by their respective systems, if shared with health care providers, could provide wider benefits to users. Sharing personal fitness data with health care providers allows physicians to better understand their patients’ health lifestyle, health issues, and potential health problems. This further allows physicians to provide early recommendations and make better health assessments that could help people avoid health problems. In general, sharing personal fitness information with health care institutions may benefit individuals in many ways, such as better health outcomes and reduced cost. Researchers are starting to predict a future that encourages patients to share fitness data with their providers [11]. Another possible benefit of sharing fitness data is to conduct scientific research that could improve the health outcomes for the general public.

    However, the use of technology and the sharing of personal fitness data may result in negative consequences, mainly related to privacy and security [12]. For example, loss of privacy may result from a breach of security in a health care institution. More than 93% of health care institutions have been victims of a data breach in the past 5 years [13].

    This study investigates the influence of implementing granular privacy control on users’ intention to share their fitness information and whether it could lead to higher user engagement in sharing fitness data. In addition, the paper investigates the motivation of individuals, captured by the privacy calculus, to share fitness information. This research provides several important contributions to the field. First, it contributes to theory by integrating communication privacy management (CPM) theory with the privacy calculus model [14]. Second, the paper provides practical and theoretical insights into how to address barriers to fitness information sharing by suggesting flexible sharing mechanisms that mitigate the impact of perceived privacy risk.

    Theoretical Background and Hypothesis Development

    Privacy in eHealth

    The diffusion of health-tracking apps and devices is growing rapidly in the United States, both in terms of the number of people that are active end users and also in terms of the functionalities and features of the apps and devices that are currently available. Fitness and health-tracking apps are expected to have many benefits for the users, such as motivation and fitness aspiration [15]. However, with digitization come the risks of privacy and security breaches [16,17]. People’s behavior with regard to sharing personal health information is negatively influenced by concerns over their privacy [18,19]. Individual-centered privacy research found that individuals are concerned about the collection, handling, and possible unauthorized access of their private information [18].

    Research on health information sharing summarizes that risks of privacy invasion and information violations are drawbacks of sharing [20]. This means that individuals are hesitant to share personal health information because of possible privacy risks. Although sharing is beneficial in many cases, the risks may outweigh the benefits, and thus risk can drive adoption [18]. Therefore, granular privacy control mechanisms for information sharing may motivate individuals to share more of their fitness information. Cavusoglu et al [21] found that in the social media context, granular control motivates users to share more information because they control with whom they share information. This research covers the gap by testing for the impact of a more granular privacy control in sharing fitness tracker information.

    Information Sharing

    One body of literature focused on the sharing of health-related information via online and electronic sources. Prior research suggests that privacy concerns are the central obstacle to sharing of information [18,22,23]. Simon et al [24] identified privacy and security issues and lack of benefits as the main barriers to sharing of personal information.

    Angst and Agarwal [18] confirmed that privacy concerns reduce the likelihood of sharing health information. Weitzman et al [25] found that patients with sensitive information are less likely to share their health information with health care providers. Likewise, Zulman et al [26] confirmed that willingness to share health information is influenced by the type of information. Bansal and Gefen [23] reported that the sensitivity of information influences individuals’ decisions to share that online.

    The key factors in sharing health information include the benefits of obtaining feedback related to potential health issues. According to Dimitropoulos et al [27], most people realize the benefits of sharing health information. However, they need to adapt to and manage the way their information is shared. Although Ancker et al [28] found that most respondents believe that sharing health information improves the quality of care.

    Privacy Calculus Model

    Information sharing and privacy have always been supplementary [29,30]. Therefore, the theoretical model of this research is guided by the privacy calculus model [14]. Studies in various contexts have used the privacy calculus model [31]. For example, Kim et al [32] used the privacy calculus model to investigate people’s willingness to provide personal information in the context of the internet of things (IoT). They found that perceived benefits are a strong motivator in sharing private information. Likewise, Fox [33] investigated the influence of privacy calculus variables on individuals’ intention to adopt mobile health technologies. The paper finds a stronger influence of benefits compared to risks and concerns. Abdelhamid et al [34], when examining factors associated with the sharing of health information, found that privacy is the biggest barrier to sharing.

    The privacy calculus model is a good fit for this study because it deals with information sharing in scenarios where risk and benefits of sharing are involved. However, the privacy calculus model does not incorporate granular control of information into the model. Thus, this research integrates CPM, which incorporates control of information, with privacy calculus, which deals with risks and benefits. Therefore, the overall model covers the three key factors of this research: granular control, risks, and benefits.

    This research adopts the theory by:

    1. Applying the theory in the context of fitness trackers and wearable devices
    2. Integrating CPM theory with the privacy calculus model
    CPM

    CPM theory describes the rationale behind an individual’s choice to disclose or withhold private information [35].

    The principles state that people believe they are the ultimate owners of their private information and that people have the right to control the course of their private information. Thus, people believe they have the right to choose with whom to share information. CPM also argues that people believe that stakeholders accessing an individual’s shared information will follow current and future privacy rules. In addition, CPM debates that violated privacy rules will result in negative consequences, including mistrust and uncertainty. Petronio [35] underlined that CPM was developed to help users make necessary alterations to systems when faced with the issue of privacy.

    According to the breach data reported to the Department of Health Human Services, the number of unauthorized access/disclosure breaches tripled in 2017 versus 2012 [36]. Dhopeshwarkar et al [37] noted that most people want to know who is viewing their information. Angst et al [38] suggested that institutional factors and IT investments affect the likelihood of breaches in health care organizations. This research investigates the impact of a more granular privacy control on the intention to share data related to fitness activities with health care providers. Figure 1 shows the conceptual model of this study.

    ‎
    Figure 1. Conceptual model. H: Hypothesis.
    View this figure
    Privacy Control

    When faced with a choice, individuals typically choose the option with the premier value after assessing likely risks [39]. In the context of fitness and health and from an individual perspective, there may be a desire to protect specific fitness information from certain providers or users. Caine and Hanania [40] suggested that people prefer to share particular health-related information with specific recipients.

    The definition of privacy refers to the right that people have in choosing the information they want to share and with whom to share it [41]. Information control and information disclosure have a positive relationship in various contexts [42,43]. For instance, Cavusoglu et al [21] examined the causal effect of granting Facebook users more control on information-sharing behavior. They found that privacy control increases the open release of information. In other words, when the sharing decision is universal, people might not share some information with anyone. That is mainly because some people want to prevent others from seeing that information. As a result, the decision led to withholding the information from everyone. However, when individuals are given more control over their information, they will share some information with some people.

    In addition, Slovic [44] found that on average, individuals are ready to take more risks when they are in control. The paper suggested that improved control increases an individual’s willingness to participate in that behavior. Likewise, Brandimarte et al [45] reported that individuals are more willing to reveal sensitive information when they have more control over what is being shared.

    The first hypothesis of this study is as follows:

    Hypothesis 1: Granular privacy control will yield a higher intention to share fitness information with health care providers.

    Perceived Risk

    The concept of perceived risk has been studied in many contexts in which individuals may face a risky decision. A considerable number of studies have established the link between perceived risk and information disclosure, in general [46-48]. Dinev and Hart [14] defined perceived risk as the perceived risk of unprincipled behavior related to the sharing of personal information. In the context of fitness tracker information, the risk includes selling the information to a third party, misuse, and unauthorized sharing. In 2015, the National Telecommunications and Information Assurance (NTIA) surveyed approximately 40,000 participants [49]. The report stated that more than 50% of users had limited their online activities due to concerns about the privacy of their information.

    The second hypothesis of this study is as follows:

    Hypothesis 2: Perceived risk will have a negative influence on the intention to share fitness information with health care providers.

    Perceived Benefits

    When people face a decision that involves sharing of private fitness information, they usually assess the risks and benefits of sharing to make an informed decision. Many benefits result from sharing fitness information with health care providers. Some of those benefits directly influence the individuals sharing the fitness information. For example, fitness information can help doctors make better health assessments with regard to the person sharing the information. This allows doctors to make better recommendations. The individual may then benefit from better health outcomes, in general.

    In the context of fitness, perceived benefit is defined as the perceived value that individuals attach to sharing personal fitness information with health care providers. In general, perceived benefits have been associated with information sharing in various contexts, including health care [50]. For example, Wang et al [51] reported that patients find that improved health care quality and convenience are among the benefits of sharing personal health information. Likewise, Zhang et al [52] found that sharing health information in online communities is associated with benefits for users. They argue that in online communities, the benefits are informational and emotional support. Morris et al [53] proposed a design of a mobile information-sharing system for emergency rooms. They found that sharing can be beneficial for physicians in terms of reducing information-seeking time and stress. This could result in better care for patients. As a result of sharing, patients may be able to avoid a serious problem.

    The third hypothesis of this study is as follows:

    Hypothesis 3: Perceived benefits will have a positive influence on the intention to share fitness information with health care providers.

    Trust in a System

    Trust in a system is defined as the extent to which individuals are confident that systems will handle their information securely and reliably [14]. The prior literature has established a positive relationship between trust in a system and engagement with the system [54,55]. The perception of trust can be linked with the system itself or with the system’s capability to protect information from people who breach the system to misuse information. The perspective of information misuse escalates when private fitness information is exchanged from one system to another. Gefen et al [56] state that the relationship between trust in a system and the intention to use that system becomes more significant when engagement includes the possibility of risk consequences.

    The fourth hypothesis of this study is as follows:

    Hypothesis 4: Trust in the system will have a positive influence on the intention to share fitness information with health care providers.


    Data Collection

    This study uses scenario-based survey data collection through Amazon Mechanical Turk (MTurk). A survey-based approach has been used in many studies in the context of health care IT to understand individuals’ perceptions related to information sharing [18,20]. This study aims to understand individuals’ perception and intentions as they relate to sharing fitness tracker information. Thus, a survey-based study is adequate. Many studies in the health care field have used Amazon MTurk to collect data [57]. Online data collection is relevant to this study for many reasons. First, fitness trackers are used by the general public and not restricted to a certain occupation or demographic. Second, most people in the United States have regular access to the internet [58]. Third, online data collection, compared with convenience sampling, allows for reaching participants outside the researcher’s geographic area.

    Participants were asked to participate in a study related to fitness tracker information. After reading the consent form, the participants were asked to start the survey. The first question asks participants whether they have owned a fitness tracker. The survey ended for those who indicated they did not own a fitness tracker. The participants were paid USD 0.50 for completing the survey. The participants were randomly assigned to one of two groups (granular or universal). Under the granular privacy scenario, the participants were exposed to a scenario where they could select what fitness information to share and with whom. Next, they were asked how likely they are to share the information under such a scenario. In universal sharing, the participants were told that they could not exclude specific information from sharing. Next, they were asked to indicate their sharing intentions under this scenario. All participants answered the same questions related to independent and control variables. Control variables were sex and prior privacy invasion, included to follow the design of Angst et al [18], within the health care context.

    Data Summary

    The final data analysis included 270 valid and complete responses. The participants had to answer questions related to the independent variables, as shown in Figure 1. Next, each participant was exposed to one of two sharing settings. Finally, the participants indicated their intention to share their fitness information with health care providers, depending on the sharing setting to which they were exposed. Qualtrics settings allowed for random assignment, while keeping the number of participants in the two groups similar. In total, 137 participants were assigned to the granular privacy sharing option (select what fitness information to disclose and share and whom to share it with), and 133 were assigned to the universal sharing option (share all personal fitness information with all providers). Of the 270 participants, 77.8% (n=211) were male, and the rest (22.2%, n=59) were female. The majority of the participants were between the age of 25 and 34 years (163 participants), the second-largest group was 35-44 years old (39 participants), 33 participants were between the age of 18 and 24 years, 21 participants were between the age of 45 and 54 years, and 14 participants were 55 years old or older.

    Measurement Model Assessment

    SAS software version 9.4 was used to decode the data, and IBM AMOS version 25 was used to run the analysis. Confirmatory factor analyses were used to evaluate the measurement model (Table 1) using all 270 participants. All variables in this study were adapted from prior research (see Table A1 of Multimedia Appendix 1 for measurement items). All latent variables were measured on a 5-point Likert scale. The results of the measurement model showed a good fit [59]. All factor loadings for the latent variables were relatively strong and significant. The comparative fit index (CFI)=.964, root-mean-square error of approximation (RMSEA)=.059, Tucker-Lewis index (TLI)=.953, and χ2/df=1.724. These results provided evidence of the validity of the constructs.

    Table 1. Measurement model.
    Latent variableItemLoadingsCorrected item–total correlationConstruct reliabilityVariable inflation factor
    Intention to share (dependent variable)INT_10.820.7300.863NAa
    INT_20.7820.702
    INT_30.8670.778
    Perceived riskPR_10.8040.6190.7641.047
    PR_20.6330.550
    PR_30.7180.612
    Perceived benefitsPB_10.70.6160.7581.003
    PB_20.690.577
    PB_30.7530.576
    Trust in the systemTR_10.7330.5450.7211.029
    TR_20.5910.511
    TR_30.7120.569
    Prior experience with privacy invasion (control)PI_10.8470.7470.8501.015
    PI_20.7850.699
    PI_30.7940.710

    aNA: not available.

    The reliability of constructs was assessed by calculating the composite reliability (CR). The reliability scores for all constructs in the conceptual model exceeded the threshold of 0.7, which indicates strong reliability. The CR scores ranged from 0.721 to 0.863 (see Table 1). In addition, the corrected item–total correlation for each item was calculated based on the construct to which it belonged. All values exceeded the minimum cutoff of 0.5 [60]. Furthermore, the variance inflation factor (VIF) was calculated for each of the independent variables in the measurement model to check for multicollinearity. All VIF values were way below the threshold score of 10. Therefore, there was no evidence for the existence of multicollinearity between variables in this study.


    SEM Results

    Figure 2 shows the results of structural equation modeling (SEM). The model explained 60.4% of the variance (R2) in the intention to share.

    ‎
    Figure 2. SEM results. CFI: comparative fit index; RMSEA: root-mean-square error of approximation; SEM: structural equation modeling; TLI: Tucker-Lewis index.
    View this figure

    Granular Privacy Control

    Hypothesis 1 states that increased control results in a higher intention to share. Findings supported this result. The path coefficient for granular privacy control was positive and significant (βGPC=.36, P<.001), indicating that granular privacy control yields a higher willingness to share personal fitness-related information with health care providers.

    Perceived Risk

    Hypothesis 2 proposes a positive relationship between negative perceived risk and the intention to share fitness information. The results provided evidence to support this hypothesis (βPR=–.17, P=.027), which confirms the impact of the possible risk that involves sharing information via systems and with others.

    Perceived Benefits

    Hypothesis 3 argues that perceived benefits will yield a higher intention to share fitness information with health care providers. The estimate for this relationship was positive and significant (βPB=.53, P<.001), which provides support for the hypothesis. The magnitude of the influence was the highest among all variables, which confirms the importance of benefits for individuals to be willing to share their fitness information.

    Trust in a System

    Finally, hypothesis 4 states that trust in the system will have a positive influence on the intention to share personal fitness information with health care providers. However, the results did not provide support for this hypothesis. The estimate was positive but not significant. Thus, trust does not seem to be an issue or a barrier to information sharing in this context. Prior invasion of privacy and sex were used as control variables. It is expected that individuals’ perceptions are influenced by the prior invasion of privacy. Both variables were positively significant.


    Principal Findings

    Privacy calculus theory highlights that people weigh benefits and risks when making decisions related to sharing or disclosing personal information. This research finds that both risk and benefits have a significant influence on the intention to share fitness data (see Figure 2). These findings are similar to the findings of other research in the health care and cybersecurity context [18,51]. However, the benefits of sharing are more influential compared to the risks, at least in this sample. This result is positive for health care providers, researchers, and those who need the information to improve population health. User benefits include improved health care quality, more accurate information, more convenience, and better communication. In addition, people who share their fitness information with health care providers may be able to avoid serious problems by allowing the providers to detect problems early. This could result in avoiding increases in health insurance premiums for individuals who share their information.

    Cavusoglu et al [21] showed that granular privacy control motivates Facebook users to share more content because they are able to control the content they can share and with whom they can share it. This is in line with the results of this research that show that granular privacy control could motivate people to share their fitness tracker information. Prior research [18,20] has shown that sharing health-related information is perceived by individuals to be risky. The results of this study confirm that sharing fitness information is also perceived to be risky. However, the benefits seem to outweigh the risks.

    In addition, this paper integrated CPM with the privacy calculus model. CPM defines the motivation behind individuals’ choice to share or withhold private information. In this paper, participants were randomly assigned to scenarios (granular and universal sharing). Findings showed that granting people greater privacy control acts as a persuasive mechanism to motivate more people to participate in sharing their fitness information. Thus, individuals can engage in behaviors that may improve their well-being, while taking actions to protect their private data. This is an implication for policymakers to enforce granular privacy sharing settings that will allow individuals to participate in such systems and, in turn, observe better health outcomes. In addition, a higher participation rate will allow those applications to be sustainable as they enable more people to benefit from the system.

    Trust in the system does not have a significant relationship with fitness information sharing. This finding requires further investigation because it goes against the hypothesis and previous research as it relates to information sharing. However, several explanations are plausible. For example, in this era, most people use apps and systems all the time. Thus, the concept of general trust in the system starts to vanish as systems become part of our daily work and personal routines.

    Limitations and Future Work

    This study had several limitations. First, the dependent variable was the intention to share fitness information with health care providers and not actual behavior. However, previous studies have indicated that intention is a strong predictor of actual behavior [61]. Another limitation was that the data were collected online through Amazon MTurk. This could also be associated with selection bias. However, many studies in the health care field have used online data collection methods. In addition, after the COVID-19 situation, online data collection is expected to become more prominent. Furthermore, the integration of fitness apps and systems of health care providers has not been adopted yet, at least not on a large scale. Future work will focus on other aspects of application design and privacy and security settings.

    Conclusion and Contribution

    The findings of this study have many implications for practice and the literature. Individuals, generally, choose to share specific information with specific health care providers. Viewed from a privacy perspective, enforcement of granular privacy settings lessens the perceived risk by giving individuals a greater sense of assurance regarding their personal fitness information. This research finds that on average, people are likely to share their fitness information when applications empower them with more control. That is because people naturally prefer to avoid risk. Granular privacy control offers people the ability to mitigate risk. This step will increase their willingness to participate in sharing personal fitness information.

    This paper illustrates how providing individuals with granular privacy control can lead to improvement in sharing of fitness information. This could result in improved health outcomes for individuals and the general public. Granular privacy control allows individuals to mitigate the perceived risk involved in the universal sharing of all fitness information.

    In general, the perceived risk remains a major barrier to information sharing, even with regard to fitness information. The introduction of granular privacy control could mitigate the negative impact of perceived risk. On the positive side, perceived benefits show the strongest influence on the intention to share fitness information. This indicates that individuals attach sharing fitness information to many benefits. The magnitude of the perceived benefit coefficient is three times stronger than the coefficient of perceived risk. This also has implications for the need for such integration between fitness apps and health care systems. Policymakers may want to consider establishing policies and rules that govern the sharing process.

    This research contributes to theory by integrating the privacy model and CPM theory in the context of fitness information sharing. In addition, the study adds to theory by highlighting the impact of granular privacy control on the intention to share fitness information.

    Conflicts of Interest

    None declared.

    ‎
    Multimedia Appendix 1

    Measurement items.

    DOCX File , 17 KB
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    ‎
    CFI: comparative fit index
    CPM: communication privacy management
    CR: composite reliability
    IoT: internet of things
    MTurk: Mechanical Turk
    RMSEA: root-mean-square error of approximation
    SEM: structural equation modeling
    TLI: Tucker-Lewis index
    VIF: variance inflation factor

    Edited by G Eysenbach; submitted 30.07.20; peer-reviewed by AS Alaqra, C Friedrich, S Uwizeyemungu; comments to author 24.09.20; revised version received 03.02.21; accepted 18.09.21; published 16.11.21

    Copyright

    ©Mohamed Abdelhamid. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 16.11.2021.

    This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.