This paper is in the following e-collection/theme issue:

Digital Health Reviews (1724) Participatory Medicine & E-Patients (873) Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (698) Quality Improvement (294)

Published on in Vol 23, No 1 (2021): January

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17655, first published .
How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review

How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review

How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review

Authors of this article:

Janine Benjamins1, 2 Author Orcid Image ;   Annemien Haveman-Nies2, 3 Author Orcid Image ;   Marian Gunnink1 Author Orcid Image ;   Annemieke Goudkuil1 Author Orcid Image ;   Emely de Vet2 Author Orcid Image
Article Authors Cited by (36) Tweetations (3) Metrics

Journals

  1. Zaidi M, Amante D, Anderson E, Ito Fukunaga M, Faro J, Frisard C, Sadasivam R, Lemon S. Association Between Patient Portal Use and Perceived Patient-Centered Communication Among Adults With Cancer: Cross-sectional Survey Study. JMIR Cancer 2022;8(3):e34745 View
  2. Fagerlund A, Kristiansen E, Simonsen R. Experiences from using patient accessible electronic health records - a qualitative study within Sámi mental health patients in Norway. International Journal of Circumpolar Health 2022;81(1) View
  3. Dong W, Lei X, Liu Y. The Mediating Role of Patients’ Trust Between Web-Based Health Information Seeking and Patients’ Uncertainty in China: Cross-sectional Web-Based Survey. Journal of Medical Internet Research 2022;24(3):e25275 View
  4. Kujala S, Hörhammer I, Väyrynen A, Holmroos M, Nättiaho-Rönnholm M, Hägglund M, Johansen M. Patients' Experiences of Web-Based Access to Electronic Health Records in Finland: Cross-sectional Survey. Journal of Medical Internet Research 2022;24(6):e37438 View
  5. Zanaboni P, Kristiansen E, Lintvedt O, Wynn R, Johansen M, Sørensen T, Fagerlund A. Impact on patient-provider relationship and documentation practices when mental health patients access their electronic health records online: a qualitative study among health professionals in an outpatient setting. BMC Psychiatry 2022;22(1) View
  6. Maria M, Maram K, Sarib H, Jason R, Eguale T, Mark L, Gordon S. Assessing the Assessment—Developing and Deploying a Novel Tool for Evaluating Clinical Notes’ Diagnostic Assessment Quality. Journal of General Internal Medicine 2023;38(9):2123 View
  7. Benjamins J, de Vet E, Jordaan G, Haveman-Nies A. Effect of the Use of a Client-Accessible Youth Health Record on Experienced Autonomy Among Parents and Adolescents in Preventive Child Healthcare and Youth Care; a Mixed Methods Intervention Study. SSRN Electronic Journal 2022 View
  8. Keuper J, Batenburg R, van Tuyl L, Verheij R. General Practices’ Experiences With Patients’ Web-Based Access to Medical Records: Survey Study. Journal of Medical Internet Research 2023;25:e41832 View
  9. Orte S, Migliorelli C, Sistach-Bosch L, Gómez-Martínez M, Boqué N. A Tailored and Engaging mHealth Gamified Framework for Nutritional Behaviour Change. Nutrients 2023;15(8):1950 View
  10. Simola S, Hörhammer I, Xu Y, Bärkås A, Fagerlund A, Hagström J, Holmroos M, Hägglund M, Johansen M, Kane B, Kharko A, Scandurra I, Kujala S. Patients’ Experiences of a National Patient Portal and Its Usability: Cross-Sectional Survey Study. Journal of Medical Internet Research 2023;25:e45974 View
  11. Benjamins J, Duinkerken J, Den Hamer-Jordaan G, Canfijn R, Koster R, De Vet E, Haveman-Nies A. Implementation of EPR-Youth, a Client-Accessible and Multidisciplinary Health Record; A Mixed-Methods Process Evaluation. International Journal of Integrated Care 2023;23:26 View
  12. Ramachandran M, Brinton C, Wiljer D, Upshur R, Gray C. The impact of eHealth on relationships and trust in primary care: a review of reviews. BMC Primary Care 2023;24(1) View
  13. Benjamins J, de Vet E, Jordaan G, Haveman-Nies A. Effect of using client-accessible youth health records on experienced autonomy among parents and adolescents in preventive child healthcare and youth care: A mixed methods intervention study. Journal of Child Health Care 2025;29(1):79 View
  14. Weiste E, Koskela I, Kallio A, Keränen H, Pesonen S, Sormunen E, Juvonen-Posti P, Ruusuvuori J. Balancing participation in writing meeting minutes online in video-mediated return-to-work negotiations. Frontiers in Communication 2023;8 View
  15. Hornum M, Steinsbekk A, Nøst T. Interest in using patient portals among adolescents in mental health care - a cross-sectional study. BMC Health Services Research 2023;23(1) View
  16. Ramamoorthi K, Stamenova V, Liu R, Bhattacharyya O. The Implementation of Federated Digital Identifiers in Health Care: Rapid Review. Journal of Medical Internet Research 2024;26:e45751 View
  17. Benjamins J, de Vet E, de Mortier C, Haveman-Nies A. The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents. Journal of Participatory Medicine 2024;16:e50092 View
  18. Thielmann R, Hoving C, Cals J, Crutzen R. Patient online access to medical records in general practice: Perceived effects after one year follow-up. Patient Education and Counseling 2024;125:108309 View
  19. van Kessel R, Ranganathan S, Anderson M, McMillan B, Mossialos E. Exploring potential drivers of patient engagement with their health data through digital platforms: A scoping review. International Journal of Medical Informatics 2024;189:105513 View
  20. Nielsen M, Steinsbekk A, Nøst T. Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study. JMIR Mental Health 2024;11:e57965 View
  21. Fagerlund A, Bärkås A, Kharko A, Blease C, Hagström J, Huvila I, Hörhammer I, Kane B, Kristiansen E, Kujala S, Moll J, Rexhepi H, Scandurra I, Simola S, Soone H, Wang B, Åhlfeldt R, Hägglund M, Johansen M. Experiences from patients in mental healthcare accessing their electronic health records: results from a cross-national survey in Estonia, Finland, Norway, and Sweden. BMC Psychiatry 2024;24(1) View
  22. Schindler F, Wuerstlein R, Schinkoethe T, Debes A, Paysen C, Harbeck N, Eggersmann T. Changes in Technical Equipment and Patient Perspectives Navigating Towards Enhanced Digitalization in Breast Cancer Across Pre-COVID-19 and Early COVID-19 Eras. Clinical Breast Cancer 2024;24(8):e690 View
  23. Brands M, Haverman L, Muis J, Driessens M, Meijer S, van der Meer F, de Jong M, van der Bom J, Cnossen M, Fijnvandraat K, Gouw S. Toward Personalized Care and Patient Empowerment and Perspectives on a Personal Health Record in Hemophilia Care: Qualitative Interview Study. JMIR Human Factors 2024;11:e48359 View
  24. Gandhi A, Soundappan K. Perception towards electronic health records & uptake of digital health IDs among the urban residents in northern India: A mixed methods study. The Indian Journal of Medical Research 2024;160:51 View
  25. Ahn S, Lee C, Bae I. Patients’ Use of Electronic Health Records Facilitates Patient-Centered Communication: Findings From the 2017 Health Information National Trends Survey. Journal of Medical Internet Research 2024;26:e50476 View
  26. Rosenlund L, Jakobsson S, Lloyd H, Diffner A, Lundgren‐Nilsson Å, Dencker A. Patient Experiences and Prerequisites of Collaboration as Partners in Person‐Centred Care: An Interview Study. Nursing Open 2025;12(1) View
  27. Kariotis T, Prictor M, Gray K, Chang S. Patient-Accessible Electronic Health Records and Information Practices in Mental Health Care Contexts: Scoping Review. Journal of Medical Internet Research 2025;27:e54973 View
  28. Thielmann R, Hoving C, Cals J, Crutzen R. Relevant determinants of Dutch patients’ informed decision-making and use of online access to medical records. Health Promotion International 2025;40(1) View
  29. Zaidi M, Gazarian P, Sheldon L, Kragen B, Cooley M, Li W, Enah C. Nurse PATHIT: An Adapted Framework for Nurse Support for Patient Activation Through Health Information Technology. Journal of Advanced Nursing 2025;81(8):5080 View
  30. Davidge G, Blease C, Brown L, Nenadic G, Sanders C, McMillan B. ‘Getting it write’ in an era of online electronic health records access in primary care: A qualitative study exploring the needs and requirements of underserved patients and carers. Patient Education and Counseling 2025;138:109192 View
  31. Chhor C, Raichandani S, du Preez L, Brandser N, Fotos J, Jiwani R, Li D, Rajiah P, Sin J, Nguyen X. Data governance in radiology part II: Innovative opportunities for research, education, and clinical practice in radiology. Current Problems in Diagnostic Radiology 2025;54(5):562 View
  32. Meier-Diedrich E, Blease C, Heinze M, Wördemann J, Schwarz J. Changes in Documentation After Implementing Open Notes in Mental Health Care: Pre-Post Mixed Methods Study. Journal of Medical Internet Research 2025;27:e72667 View
  33. Staehelin D, Weber L, Kindler K, Schwabe G. Designing Patient Empowerment Systems: Tackling Low Adherence in Weight Management. Proceedings of the ACM on Human-Computer Interaction 2025;9(7):1 View
  34. Quinn S, Caine V, Petrovskaya O. The Effects of an Online Patient Portal on Nurses’ and the Health Care Team's Work in an Outpatient Oncology Setting: A Qualitative Study. Canadian Journal of Nursing Research 2025 View

Books/Policy Documents

  1. Ellison R, Courville K. Service Design, Creativity, and Innovation in Healthcare. View
  2. Chelsom J, Dorset C, Lee W. Health Informatics and Medical Systems and Biomedical Engineering. View