This paper is in the following e-collection/theme issue:

Clinical Informatics (1325) Blockchain, Distributed Ledger Apps for Health and Medicine (88) Internet of Things (98) Mobile Health (mhealth) (3464) Big Data (307) Electronic Health Records (1319)

Published on in Vol 22, No 7 (2020): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17508, first published .
Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review

Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review

Requirements of Health Data Management Systems for Biomedical Care and Research: Scoping Review

Authors of this article:

Leila Ismail1 Author Orcid Image ;   Huned Materwala1 Author Orcid Image ;   Achim P Karduck2 Author Orcid Image ;   Abdu Adem3 Author Orcid Image
Article Authors Cited by (76) Tweetations (25) Metrics

Journals

  1. Ismail L, Materwala H, Tayefi M, Ngo P, Karduck A. Type 2 Diabetes with Artificial Intelligence Machine Learning: Methods and Evaluation. Archives of Computational Methods in Engineering 2022;29(1):313 View
  2. Miyachi K, Mackey T. hOCBS: A privacy-preserving blockchain framework for healthcare data leveraging an on-chain and off-chain system design. Information Processing & Management 2021;58(3):102535 View
  3. Ismail L, Materwala H, Hennebelle A. A Scoping Review of Integrated Blockchain-Cloud (BcC) Architecture for Healthcare: Applications, Challenges and Solutions. Sensors 2021;21(11):3753 View
  4. Ismail L, Materwala H. IDMPF: intelligent diabetes mellitus prediction framework using machine learning. Applied Computing and Informatics 2025;21(1/2):78 View
  5. Miller J, Gunn F, Dunlop M, Din F, Maeda Y. Development of a customised data management system for a COVID-19-adapted colorectal cancer pathway. BMJ Health & Care Informatics 2021;28(1):e100307 View
  6. Mukherjee A, Mackessy S. Prevention and improvement of clinical management of snakebite in Southern Asian countries: A proposed road map. Toxicon 2021;200:140 View
  7. Babrak L, Smakaj E, Agac T, Asprion P, Grimberg F, der Werf D, van Ginkel E, Tosoni D, Clay I, Degen M, Brodbeck D, Natali E, Schkommodau E, Miho E. RWD-Cockpit: Application for Quality Assessment of Real-world Data. JMIR Formative Research 2022;6(10):e29920 View
  8. Khan M, Din I, Majali T, Kim B. A Survey of Authentication in Internet of Things-Enabled Healthcare Systems. Sensors 2022;22(23):9089 View
  9. Moses J, Adibi S, Angelova M, Islam S. Smart Home Technology Solutions for Cardiovascular Diseases: A Systematic Review. Applied System Innovation 2022;5(3):51 View
  10. Alderden J, Sharkey P, Kennerly S, Ghosh S, Barrett R, Horn S, Ghosh S, Yap T. Developing a Relational Database for Best Practice Data Management. CIN: Computers, Informatics, Nursing 2023;41(2):59 View
  11. Vassolo R, Mac Cawley A, Tortorella G, Fogliatto F, Tlapa D, Narayanamurthy G. Hospital Investment Decisions in Healthcare 4.0 Technologies: Scoping Review and Framework for Exploring Challenges, Trends, and Research Directions. Journal of Medical Internet Research 2021;23(8):e27571 View
  12. Barbaria S, Mont M, Ghadafi E, Mahjoubi Machraoui H, Rahmouni H. Leveraging Patient Information Sharing Using Blockchain-Based Distributed Networks. IEEE Access 2022;10:106334 View
  13. Satti F, Hussain M, Ali S, Saleem M, Ali H, Chung T, Lee S. A semantic sequence similarity based approach for extracting medical entities from clinical conversations. Information Processing & Management 2023;60(2):103213 View
  14. Xie Y, Zhang J, Wang H, Liu P, Liu S, Huo T, Duan Y, Dong Z, Lu L, Ye Z. Applications of Blockchain in the Medical Field: Narrative Review. Journal of Medical Internet Research 2021;23(10):e28613 View
  15. Tang L, Li J, Du H, Li L, Wu J, Wang S. Big Data in Forecasting Research: A Literature Review. Big Data Research 2022;27:100289 View
  16. Schäfer J, Tang M, Luu D, Bergmann A, Wiese L. Graph4Med: a web application and a graph database for visualizing and analyzing medical databases. BMC Bioinformatics 2022;23(1) View
  17. Zeng B, Bove R, Carini S, Lee J, Pollak J, Schleimer E, Sim I. Standardized Integration of Person-Generated Data Into Routine Clinical Care. JMIR mHealth and uHealth 2022;10(2):e31048 View
  18. Ismail L, Materwala H, Al Hammadi Y, Firouzi F, Khan G, Azzuhri S. Automated artificial intelligence-enabled proactive preparedness real-time system for accurate prediction of COVID-19 infections— Performance evaluation. Frontiers in Medicine 2022;9 View
  19. Van Bulck L, Wampers M, Moons P. Research Electronic Data Capture (REDCap): tackling data collection, management, storage, and privacy challenges. European Journal of Cardiovascular Nursing 2022;21(1):85 View
  20. Alamri B, Crowley K, Richardson I. Blockchain-Based Identity Management Systems in Health IoT: A Systematic Review. IEEE Access 2022;10:59612 View
  21. Chomutare T, Tejedor M, Svenning T, Marco-Ruiz L, Tayefi M, Lind K, Godtliebsen F, Moen A, Ismail L, Makhlysheva A, Ngo P. Artificial Intelligence Implementation in Healthcare: A Theory-Based Scoping Review of Barriers and Facilitators. International Journal of Environmental Research and Public Health 2022;19(23):16359 View
  22. Florea A, Anghel I, Cioara T. A Review of Blockchain Technology Applications in Ambient Assisted Living. Future Internet 2022;14(5):150 View
  23. Ismail L, Waseem M. Towards a Deep Learning Pain-Level Detection Deployment at UAE for Patient-Centric-Pain Management and Diagnosis Support: Framework and Performance Evaluation. Procedia Computer Science 2023;220:339 View
  24. Hennebelle A, Materwala H, Ismail L. HealthEdge: A Machine Learning-Based Smart Healthcare Framework for Prediction of Type 2 Diabetes in an Integrated IoT, Edge, and Cloud Computing System. Procedia Computer Science 2023;220:331 View
  25. Rangraz Jeddi F, Nabovati E, Mobayen M, Akbari H, Feizkhah A, Motalebi Kashani M, Bagheri Toolaroud P. A Smartphone Application for Caregivers of Children With Severe Burns: A Survey to Identify Minimum Data Set and Requirements. Journal of Burn Care & Research 2023;44(5):1200 View
  26. Kamal J, Zargaran D, Zargaran A, Mosahebi A. Esthetic Clinic Management Software—Can we improve patient safety?. Journal of Plastic, Reconstructive & Aesthetic Surgery 2024;88:145 View
  27. Houssein E, Hosney M, Emam M, Younis E, Ali A, Mohamed W. Soft computing techniques for biomedical data analysis: open issues and challenges. Artificial Intelligence Review 2023;56(S2):2599 View
  28. Elvas L, Ferreira J, Dias M, Rosário L. Health Data Sharing towards Knowledge Creation. Systems 2023;11(8):435 View
  29. Wolfien M, Ahmadi N, Fitzer K, Grummt S, Heine K, Jung I, Krefting D, Kühn A, Peng Y, Reinecke I, Scheel J, Schmidt T, Schmücker P, Schüttler C, Waltemath D, Zoch M, Sedlmayr M. Ten Topics to Get Started in Medical Informatics Research. Journal of Medical Internet Research 2023;25:e45948 View
  30. Alvarez-Romero C, Martínez-García A, Bernabeu-Wittel M, Parra-Calderón C. Health data hubs: an analysis of existing data governance features for research. Health Research Policy and Systems 2023;21(1) View
  31. Hennebelle A, Ismail L, Materwala H, Al Kaabi J, Ranjan P, Janardhanan R. Secure and privacy-preserving automated machine learning operations into end-to-end integrated IoT-edge-artificial intelligence-blockchain monitoring system for diabetes mellitus prediction. Computational and Structural Biotechnology Journal 2024;23:212 View
  32. Cano J, Bertomeu-González V, Fácila L, Hornero F, Alcaraz R, Rieta J. Improved Hypertension Risk Assessment with Photoplethysmographic Recordings Combining Deep Learning and Calibration. Bioengineering 2023;10(12):1439 View
  33. Ismail L, Shahin N, Materwala H, Hennebelle A, Frermann L. ML-NLPEmot: Machine Learning-Natural Language Processing Event-Based Emotion Detection Proactive Framework Addressing Mental Health. IEEE Access 2023;11:144126 View
  34. Aldosari B. Information Technology and Value-Based Healthcare Systems: A Strategy and Framework. Cureus 2024 View
  35. Erler C, Bauer A, Gauger F, Stork W. Decision Model to Design Trust-Focused and Blockchain-Based Health Data Management Applications. Blockchains 2024;2(2):79 View
  36. Guo L, Reddy K, Van Iseghem T, Pierce W. Enhancing data practices for Whole Health: Strategies for a transformative future. Learning Health Systems 2024;8(S1) View
  37. Molla A, Hayelom M, Adamu K, Mihiretu M, Adem Y. Health data management practice and associated factors among health professionals working in public health facilities in Oromia Special Zone, Amhara, Ethiopia: a cross-sectional study. BMJ Public Health 2024;2(1):e000807 View
  38. Shahin N, Ismail L. From rule-based models to deep learning transformers architectures for natural language processing and sign language translation systems: survey, taxonomy and performance evaluation. Artificial Intelligence Review 2024;57(10) View
  39. Kaafarani R, Ismail L, Zahwe O. Automatic Recommender System of Development Platforms for Smart Contract–Based Health Care Insurance Fraud Detection Solutions: Taxonomy and Performance Evaluation. Journal of Medical Internet Research 2024;26:e50730 View
  40. Lanka S, Madala P. AI in Healthcare: Bridging the Gap between Research and Clinical Implementation. International Journal of Innovative Science and Research Technology (IJISRT) 2024:500 View
  41. Cohen A, Langabeer J, Lopez A, Champagne-Langabeer T. Gaps and Direction for Digital Records Impacting the Mental Health Patient-Provider Dyad: A Systematic Review. Journal of Contemporary Psychotherapy 2025;55(2):139 View
  42. Engstrom T, Kenny D, Grimmett W, Ramis M, Foley C, Sullivan C, Pole J. System-wide analysis of qualitative hospital incident data: Feasibility of semi-automated content analysis to uncover insights. Health Information Management Journal 2025;54(3):247 View
  43. Pigueiras-del-Real J, Ruiz-Zafra A, Benavente-Fernández I, Lubián-López S, Shah S, Shah S, Gontard L. NeoVault: empowering neonatal research through a neonate data hub. BMC Pediatrics 2024;24(1) View
  44. Poornima V, R. R. A Hybrid Model for Prediction of Diabetes Using Machine Learning Classification Algorithms and Random Projection. Wireless Personal Communications 2024;139(3):1437 View
  45. Xiao Y, Grundy J, Madugalla A. Requirements engineering for older adult digital health software: A systematic literature review. Information and Software Technology 2025;183:107718 View
  46. Kowalewska E. Physicians and AI in healthcare: insights from a mixed-methods study in Poland on adoption and challenges. Frontiers in Digital Health 2025;7 View
  47. Marmo R, Adey B, Celentano G. Stress testing hospitals using service measures and resilience indicators. International Journal of Disaster Risk Reduction 2025;123:105492 View
  48. Ismail L, Shahin N, Tesfaye H, Hennebelle A. VisioSLR: A Vision Data-Driven Framework for Sign Language Video Recognition and Performance Evaluation on Fine-Tuned YOLO Models. Procedia Computer Science 2025;257:85 View
  49. Azadi A, García-Peñalvo F. Optimizing Clinical Decision Support System Functionality by Leveraging Specific Human-Computer Interaction Elements: Insights From a Systematic Review. JMIR Human Factors 2025;12:e69333 View
  50. Steven S, Spiess K, Schafmeyer L, Buggisch J, Schoenau E, Luedtke K, Duran I. Efficiency and Validity of the AI-Based rGMFM-66 in Assessing Gross Motor Function in Children with Cerebral Palsy. Applied Sciences 2025;15(12):6527 View
  51. Huang X, Zhu S, Lv Z, Zhou Q, Kou T. The open sharing operation mechanism of health data in the digital healthcare era: A study based on grounded theory and interpretative structural modeling method. DIGITAL HEALTH 2025;11 View
  52. Fan H, Hardi A, Yen P. Supporting clinical reasoning through visual summarization and presentation of patient data: a systematic review. Journal of the American Medical Informatics Association 2025;32(9):1485 View
  53. Yao L, Liu Y, Wang T, Han C, Li Q, Li Q, You X, Ren T, Wang Y. Global trends of big data analytics in health research: a bibliometric study. Frontiers in Medicine 2025;12 View
  54. Ogbeyemi A, Lin W, Odeyemi J, Bradford L, Yu H, Zhang W. Human factors in digital healthcare systems: a critical literature review. Enterprise Information Systems 2025;19(7-8) View
  55. Cicin F, Cicin I. Integrating mHealth Innovations into Decentralized Oncology Trials. Journal of Medical Systems 2025;49(1) View
  56. Shaw L, Freeman S, Aranha S, Boulton A, Capurro D, Chapman W, Fazio T, Gazarek J, Layton M, Lyons K, Plumb S, Astbury B. Implementation of a digital coordination centre in a hospital: a qualitative evaluation of enablers, barriers and strategies. BMC Health Services Research 2025;25(1) View
  57. Beyer S, Tanjga N, Kleinoscheg G, Hayn D, Donsa K, Kreiner K, Schreier G. Preparing for the European Health Data Space: an open-source compiler for fast, transparent, and portable health data transformations. Frontiers in Medicine 2025;12 View
  58. Yang X, Lin H, Liu S, Ai C, Cai Z, Yu R, Xu X, Gao J, Chen Y, Wen P. Research on issues in the protection of clinical trial human subjects in China: a Delphi study. BMC Medical Ethics 2025;26(1) View
  59. Shahin N, Ismail L. Towards Trustworthy Sign Language Translation System: A Privacy-Preserving Edge–Cloud–Blockchain Approach. Mathematics 2025;13(23):3759 View
  60. Zhou J, Li H, Chen S, Chen Z, Han Z, Gao X. Large language models in biomedicine and healthcare. npj Artificial Intelligence 2025;1(1) View

Books/Policy Documents

  1. Tavares J. Political and Economic Implications of Blockchain Technology in Business and Healthcare. View
  2. Kumar Shriva M, Bhansali A, Kolivand H, Kant Hiran K. Machine Intelligence for Internet of Medical Things: Applications and Future Trends. View
  3. Tourab H, Ellacuría M, Sanz L, Anchuelo A, Gómez-Garre D, González S, Méndez M, Merino-Barbancho B, Mayol J, Cabrera M, Arredondo M, Fico G. Pervasive Computing Technologies for Healthcare. View
  4. Tasia T, Maga-Nteve C, Tsolakis N, Meditskos G, Mavropoulos T, Vrochidis S. Artificial Intelligence Applications and Innovations. View
  5. Jain P, Gupta S. Intelligent Computing Techniques in Biomedical Imaging. View
  6. Erler C, Biri G, Stein T, Bouras M. Digitale Identitäten und Nachweise. View
  7. Bensaid M, Ziti S. HealthTech “Global Summit of Digital Health”. View

Conference Proceedings

  1. Bazel M, Ahmad M, Mohammed F. 2022 2nd International Conference on Emerging Smart Technologies and Applications (eSmarTA). Hospital Information Systems in Malaysia: Current Issues and Blockchain Technology as a Solution View
  2. Arefin K, Shuvo K, Rabbani M, Dobbs P, Jepson L, Leventhal A, Van Heeke A, Ahamed S. 2021 IEEE 45th Annual Computers, Software, and Applications Conference (COMPSAC). Towards Developing An EMR in Mental Health Care for Children’s Mental Health Development among the Underserved Communities in USA View
  3. Loperto I, Alfano R, Scala A, Ferrucci G, Borrelli A, Trunfio T, Gargiulo P. 2021 10th International Conference on Bioinformatics and Biomedical Science. The Impact of CoViD-19 on hospital activities: the case of the C.O.U. Otorhinolaryngology View
  4. Bazel M, Mohammed F, Ahmad M, Baarimah A, Ibrahim M. 2023 3rd International Conference on Emerging Smart Technologies and Applications (eSmarTA). Blockchain-Based Healthcare: Trend Mapping through Bibliometric Analysis View
  5. Shahin N, Ismail L. 2023 International Symposium on Networks, Computers and Communications (ISNCC). ChatGPT, Let Us Chat Sign Language: Experiments, Architectural Elements, Challenges and Research Directions View
  6. Hendawi R, Li J. 2024 IEEE First International Conference on Artificial Intelligence for Medicine, Health and Care (AIMHC). Comprehensive Personal Health Knowledge Graph for Effective Management and Utilization of Personal Health Data View
  7. Younis M, Habib B, Nassrat Al-Ubaidi M, Saeed Issa S, Hamodi Aljanabi Y, Soloviova T, Jameel Al-Obaidi M. 2024 36th Conference of Open Innovations Association (FRUCT). Assessing the Compatibility of Arduino with 6G for Real-Time Patient Monitoring View
  8. Seixas-Lopes F, Lopes C, Marques M, Agostinho C. 2024 IEEE International Conference on Engineering, Technology, and Innovation (ICE/ITMC). Designing an eHealth Dashboard for Clinical Professionals to support Telerehabilitation Medicine View
  9. J B, A A, V R, S M, R R. 2024 1st International Conference on Sustainability and Technological Advancements in Engineering Domain (SUSTAINED). Enhancing Security in SDN Cloud Serverless ECG Stream processing by using AES-256 and Lambda Framework View