This paper is in the following e-collection/theme issue:

Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (832) Patient-Reported Outcome Measures (PROMs) (288) Longitudinal and Cohort Studies in Public Health (309)

Published on in Vol 22, No 7 (2020): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/17231, first published .
Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study

Authors of this article:

Jason Michael Springer1 Author Orcid Image ;   Tanaz A Kermani2 Author Orcid Image ;   Antoine Sreih3 Author Orcid Image ;   Dianne G Shaw4 Author Orcid Image ;   Kalen Young4 Author Orcid Image ;   Cristina M Burroughs5 Author Orcid Image ;   Peter A Merkel3, 6 Author Orcid Image
Article Authors Cited by (13) Tweetations (5) Metrics

Journals

  1. Banerjee S, George M, Young K, Venkatachalam S, Gordon J, Burroughs C, Curtis D, Ferrada M, Gavigan K, Grayson P, Kullman J, Danila M, Curtis J, Shaw D, Benjamin Nowell W, Merkel P. Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis. ACR Open Rheumatology 2021;3(1):17 View
  2. Sreih A, Cronin K, Shaw D, Young K, Burroughs C, Kullman J, Machireddy K, McAlear C, Merkel P. Diagnostic delays in vasculitis and factors associated with time to diagnosis. Orphanet Journal of Rare Diseases 2021;16(1) View
  3. Nowell W, Merkel P, McBurney R, Young K, Venkatachalam S, Shaw D, Dobes A, Cerciello E, Kolaczkowski L, Curtis J, Kappelman M. Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions. The Patient - Patient-Centered Outcomes Research 2021;14(6):699 View
  4. Laudien M, Holl-Ulrich K. Bioptische Diagnostik ANCA‑assoziierter Vaskulitiden im HNO‑Trakt. Zeitschrift für Rheumatologie 2023;82(1):53 View
  5. Haase I, Mucke J, Vossen D, Knitza J, Ruffer N, Zeeck M, Krusche M. Social Media – Chancen und Risiken für die Rheumatologie. Zeitschrift für Rheumatologie 2022;81(5):413 View
  6. Doubelt I, Springer J, Kermani T, Sreih A, Burroughs C, Cuthbertson D, Carette S, Khalidi N, Koening C, Langford C, McAlear C, Moreland L, Monach P, Shaw D, Seo P, Specks U, Warrington K, Young K, Merkel P, Pagnoux C. Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis. Interactive Journal of Medical Research 2022;11(1):e27273 View
  7. Sun G, Yafasova A, Baslund B, Faurschou M, Schou M, Shams-Eldin A, Kristensen S, Weeke P, Torp-Pedersen C, Fosbøl E, Køber L, Butt J. Long-term Risk of Heart Failure and Other Adverse Cardiovascular Outcomes in Granulomatosis With Polyangiitis: A Nationwide Cohort Study. The Journal of Rheumatology 2022;49(3):291 View
  8. Poledniczek M. Coronary Artery Disease in Granulomatosis with Polyangiitis: a Review. SN Comprehensive Clinical Medicine 2022;4(1) View
  9. Hellmich B, Sanchez-Alamo B, Schirmer J, Berti A, Blockmans D, Cid M, Holle J, Hollinger N, Karadag O, Kronbichler A, Little M, Luqmani R, Mahr A, Merkel P, Mohammad A, Monti S, Mukhtyar C, Musial J, Price-Kuehne F, Segelmark M, Teng Y, Terrier B, Tomasson G, Vaglio A, Vassilopoulos D, Verhoeven P, Jayne D. EULAR recommendations for the management of ANCA-associated vasculitis: 2022 update. Annals of the Rheumatic Diseases 2024;83(1):30 View
  10. Weiss M, Holzer M, Muehlensiepen F, Ignatyev Y, Fiehn C, Bauhammer J, Schmidt J, Schlüter S, Dihkan A, Scheibner D, Schneider U, Valor-Mendez L, Corte G, Gupta L, Chinoy H, Lundberg I, Cavagna L, Distler J, Schett G, Knitza J. Healthcare utilization and unmet needs of patients with antisynthetase syndrome: An international patient survey. Rheumatology International 2023;43(10):1925 View
  11. Granath A, Pettersson S, Gunnarsson I, Welin E, Dahlberg K. How is the patient perspective captured in ANCA-associated vasculitis research? An integrative review. Rheumatology Advances in Practice 2023;7(3) View
  12. Yoshii R, Kajiwara K, Uemura N, Matsushita K, Nakamura T, Tomita M, Mukoyama M. The successful treatment of microscopic polyangiitis associated with non-tuberculous mycobacterial-pulmonary disease. CEN Case Reports 2023;13(4):271 View
  13. Mendel A, Vinet É. Connecting the Docs in Vasculitis Pregnancies. The Journal of Rheumatology 2024;51(10):949 View