Published on in Vol 22, No 7 (2020): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/14591, first published .
Information Loss in Harmonizing Granular Race and Ethnicity Data: Descriptive Study of Standards

Information Loss in Harmonizing Granular Race and Ethnicity Data: Descriptive Study of Standards

Information Loss in Harmonizing Granular Race and Ethnicity Data: Descriptive Study of Standards

Karen Wang   1, 2 , MD, MS ;   Holly Grossetta Nardini   3 , MLS ;   Lori Post   4 , PhD ;   Todd Edwards   5 , MS, PhD ;   Marcella Nunez-Smith   1 , MD, MHS ;   Cynthia Brandt   2, 6 , MD, MPH

1 Equity Research and Innovation Center, General Internal Medicine, Yale School of Medicine, New Haven, CT, United States

2 Center for Medical Informatics, Yale School of Medicine, New Haven, CT, United States

3 Harvey Cushing/John Hay Whitney Medical Library, Yale School of Medicine, New Haven, CT, United States

4 Buehler Center for Health Policy and Economics, Feinberg School of Medicine, Chicago, IL, United States

5 Division of Epidemiology, Department of Medicine, Vanderbilt Genetics Institute, Vanderbilt University Medical Center, Nashville, TN, United States

6 Veteran Affairs Connecticut Healthcare System, US Department of Veteran Affairs, West Haven, CT, United States

Corresponding Author:

  • Karen Wang, MD, MS
  • Equity Research and Innovation Center
  • General Internal Medicine
  • Yale School of Medicine
  • 100 Church Street South, A200
  • New Haven, CT, 06520
  • United States
  • Phone: 1 203-785-5233
  • Email: karen.wang@yale.edu