This paper is in the following e-collection/theme issue:

Consumer & Patient Education and Shared-Decision Making (679) Participatory Medicine & E-Patients (773) Quality/Credibility of eHealth Information and Trust Issues (531)

Published on in Vol 22, No 3 (2020): March

Risks and Benefits of Web-Based Patient Narratives: Systematic Review

Risks and Benefits of Web-Based Patient Narratives: Systematic Review

Risks and Benefits of Web-Based Patient Narratives: Systematic Review

Authors of this article:

Daniel Drewniak1 Author Orcid Image ;   Andrea Glässel1, 2 Author Orcid Image ;   Martina Hodel1 Author Orcid Image ;   Nikola Biller-Andorno1 Author Orcid Image
Article Authors Cited by (34) Tweetations (29) Metrics

Journals

  1. Lamprell K, Fajardo Pulido D, Tran Y, Nic Giolla Easpaig B, Liauw W, Arnolda G, Braithwaite J. Personal Accounts of Young-Onset Colorectal Cancer Organized as Patient-Reported Data: Protocol for a Mixed Methods Study. JMIR Research Protocols 2021;10(2):e25056 View
  2. Holden A, Nanayakkara S, Skinner J, Spallek H, Sohn W. What do Australian health consumers believe about commercial advertisements and testimonials? a survey on health service advertising. BMC Public Health 2021;21(1) View
  3. Budimir S, Kuska M, Spiliopoulou M, Schlee W, Pryss R, Andersson G, Goedhart H, Harrison S, Vesala M, Hegde G, Langguth B, Pieh C, Probst T. Reasons for Discontinuing Active Participation on the Internet Forum Tinnitus Talk: Mixed Methods Citizen Science Study. JMIR Formative Research 2021;5(4):e21444 View
  4. Mahmood S, Law S, Bombard Y. “I have to start learning how to live with becoming sick”: A scoping review of the lived experiences of people with Huntington's disease. Clinical Genetics 2022;101(1):3 View
  5. Schultze M, Breuning M, von der Heyde M, Kaiser M, Müller-Nordhorn J, Holmberg C. Presenting scientifically-derived illness experiences online – Evaluation of the use of the DIPEx Germany website. Patient Education and Counseling 2022;105(7):2328 View
  6. Spitale G, Glässel A, Tyebally-Fang M, Mouton Dorey C, Biller-Andorno N. Patient narratives – a still undervalued resource for healthcare improvement. Swiss Medical Weekly 2023;153(1):40022 View
  7. Gasteiger C, Petrie K. Moving forward: Implementing health psychology research to improve patient acceptance of biosimilars. Research in Social and Administrative Pharmacy 2022;18(10):3860 View
  8. Kalch A, Albani A, Küchler C, Bilandzic H, Fischer S, Kirchberger I. Evidence-based health information about pulmonary embolism: Assessing the quality, usability and readability of online and offline patient information. PEC Innovation 2022;1:100103 View
  9. Walsh J, Dwumfour C, Cave J, Griffiths F. Spontaneously generated online patient experience data - how and why is it being used in health research: an umbrella scoping review. BMC Medical Research Methodology 2022;22(1) View
  10. Rivard S, Vitous C, Bamdad M, Varlamos C, Duby A, Suwanabol P. “Their Whole Lives Are Going To Change”: A Photo-Elicitation Study of Rectal Cancer Survivorship. Diseases of the Colon & Rectum 2022;65(12):1456 View
  11. Arnold D, Glässel A, Böttger T, Sarma N, Bethmann A, Narimani P. “What Do You Need? What Are You Experiencing?” Relationship Building and Power Dynamics in Participatory Research Projects: Critical Self-Reflections of Researchers. International Journal of Environmental Research and Public Health 2022;19(15):9336 View
  12. Sippel A, Riemann-Lorenz K, Pöttgen J, Wiedemann R, Drixler K, Bitzer E, Holmberg C, Lezius S, Heesen C. Validation of the German eHealth impact questionnaire for online health information users affected by multiple sclerosis. BMC Medical Informatics and Decision Making 2022;22(1) View
  13. Beahm J, Landry C, McCall H, Carleton R, Hadjistavropoulos H. Understanding and Addressing Occupational Stressors in Internet-Delivered Therapy for Public Safety Personnel: A Qualitative Analysis. International Journal of Environmental Research and Public Health 2022;19(8):4744 View
  14. Sippel A, Scheiderbauer J, Eklund D, Arnade S, Schmidt S, Kleiter I, Morrison R, Kofahl C, Heesen C. Development and evaluation of a website with patients experiences of multiple sclerosis: a mixed methods study. BMC Neurology 2022;22(1) View
  15. Yeganeh L, Boyle J, Johnston-Ataata K, Flore J, Hickey M, Kokanović R, Teede H, Vincent A. Positive impact of a co-designed digital resource for women with early menopause. Menopause 2022;29(6):671 View
  16. Brewster G, Wang D, McPhillips M, Epps F, Yang I. Correlates of Sleep Disturbance Experienced by Informal Caregivers of Persons Living with Dementia: A Systematic Review. Clinical Gerontologist 2024;47(3):380 View
  17. Murray C, Riordan D, Murray D, Singh P. What's trending: An analysis of posts by TikTok users undergoing orthodontic treatment. BDJ In Practice 2022;35(9):24 View
  18. Kalch A, Küchler C, Albani A, Bilandzic H, Fischer S, Kirchberger I. On the need for narratives in patient information: Differentiating types and functions of narratives from pulmonary embolism patients' point of view. Frontiers in Communication 2022;7 View
  19. Spitale G, Biller-Andorno N, Germani F. Concerns Around Opposition to the Green Pass in Italy: Social Listening Analysis by Using a Mixed Methods Approach. Journal of Medical Internet Research 2022;24(2):e34385 View
  20. Shah A, Muhammad W, Lee K, Naqvi R. Examining Different Factors in Web-Based Patients’ Decision-Making Process: Systematic Review on Digital Platforms for Clinical Decision Support System. International Journal of Environmental Research and Public Health 2021;18(21):11226 View
  21. Lamprell K, Fajardo-Pulido D, Arnolda G, Owais S, Nic Giolla Easpaig B, Tran Y, Liauw W, Braithwaite J. Things I need you to know: a qualitative analysis of advice-giving statements in early-onset colorectal cancer patients’ personal accounts published online. BMJ Open 2023;13(3):e068073 View
  22. Bartels S, Taygar A, Johnsson S, Petersson S, Flink I, Boersma K, McCracken L, Wicksell R. Using Personas in the development of eHealth interventions for chronic pain: A scoping review and narrative synthesis. Internet Interventions 2023;32:100619 View
  23. Canella C, Inderbitzin M, Oehler M, Witt C, Barth J. Cancer survival stories: Perception, creation, and potential use case. Health Expectations 2023;26(4):1551 View
  24. Adebayo A, Rowan K, Sanchorawala V, Boedicker M, Boedicker D. Evaluating the Amyloidosis Speakers Bureau: the influence of amyloidosis patients’ narratives on medical students’ knowledge, attitudes, and behavioral intent. MedEdPublish 2023;13:32 View
  25. Rahmatian A, Jamshidbeigi Y, Molavi A, Salimi E. Experiences Related to the Injection of COVID-19 Vaccines in Patients with Multiple Sclerosis: A Qualitative Study. Archives of Neuroscience 2023;10(3) View
  26. Hadjistavropoulos H, Reiser S, Beahm J, McCall H, Dena I, Phillips A, Scheltgen M, Sekhar S, Cox M, Cramm H, Reid N. Internet-Delivered Cognitive Behavioral Therapy Tailored to Spouses and Significant Others of Public Safety Personnel: Formative Evaluation Study. JMIR Formative Research 2023;7:e51088 View
  27. Hadjistavropoulos H, Hill T, Philipp-Muller A, Dear B, Titov N. Perceptions of client stories in internet-delivered cognitive behaviour therapy: A mixed-methods evaluation. Internet Interventions 2023;34:100692 View
  28. Barg A. Health Preserving Practices of Russians with Post-COVID-19 Syndrome. ЗДОРОВЬЕ НАСЕЛЕНИЯ И СРЕДА ОБИТАНИЯ - ЗНиСО / PUBLIC HEALTH AND LIFE ENVIRONMENT 2023:28 View
  29. Zhao J, Harvey G, Vandyk A, Huang M, Gifford W. Consolidating a program theory on how social media supports healthcare providers’ knowledge use in clinical practice: a realist-informed qualitative study. Interdisciplinary Nursing Research 2023 View
  30. Duong V, Bunzli S, Callahan L, Baatenburg de Jong C, Hunter D, Kim J, Mobasheri A. Visual narratives in medicine – bridging the gap in graphic medicine with an illustrated narrative of osteoarthritis. Osteoarthritis and Cartilage Open 2024:100471 View
  31. Barnacoat J, Lewis J, Stewart K, Mohammad S, Paget S. Content and readability of patient educational materials about neuromodulation for childhood movement disorders. Disability and Rehabilitation 2024:1 View
  32. Price J, Gregory J, McCall H, Landry C, Beahm J, Hadjistavropoulos H. Client Perspectives of Case Stories in Internet-Delivered Cognitive Behavioral Therapy for Public Safety Personnel: Mixed Methods Study. JMIR Formative Research 2024;8:e64454 View
  33. Glässel A, Hippold I. Exploring patient perspective: using narrative DIPEx interviews and the ICF model for interprofessional learning. Frontiers in Rehabilitation Sciences 2024;5 View

Books/Policy Documents

  1. Glässel A. Interprofessionelle Bildung für die Gesundheitsversorgung. View