Published on in Vol 21, No 9 (2019): September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/15856, first published .
Fifteen Years’ Use of Patient-Reported Outcome Measures at the Group and Patient Levels: Trend Analysis

Fifteen Years’ Use of Patient-Reported Outcome Measures at the Group and Patient Levels: Trend Analysis

Fifteen Years’ Use of Patient-Reported Outcome Measures at the Group and Patient Levels: Trend Analysis

Authors of this article:

Niels Henrik I Hjollund1, 2 Author Orcid Image

Journals

  1. Mejdahl C, Schougaard L, Hjollund N, Riiskjær E, Lomborg K. Patient-reported outcome measures in the interaction between patient and clinician – a multi-perspective qualitative study. Journal of Patient-Reported Outcomes 2020;4(1) View
  2. Kargo A, Coulter A, Lindemann K, Jensen P, Hjøllund N, Mosgaard B, Steffensen K. Use of PROM during follow-up of patients with ovarian cancer: the PROMova study protocol. International Journal of Gynecologic Cancer 2020;30(9):1444 View
  3. Taarnhøj G, Lindberg H, Dohn L, Omland L, Hjøllund N, Johansen C, Pappot H. Electronic reporting of patient-reported outcomes in a fragile and comorbid population during cancer therapy – a feasibility study. Health and Quality of Life Outcomes 2020;18(1) View
  4. Thestrup Hansen S, Kjerholt M, Friis Christensen S, Hølge-Hazelton B, Brodersen J. Haematologists’ experiences implementing patient reported outcome measures (PROMs) in an outpatient clinic: a qualitative study for applied practice. Journal of Patient-Reported Outcomes 2019;3(1) View
  5. Friis R, Hjøllund N, Pappot H, Taarnhøj G, Vestergaard J, Skuladottir H. Patient-Reported Outcome Measures Used in Routine Care Predict for Survival at Disease Progression in Patients With Advanced Lung Cancer. Clinical Lung Cancer 2021;22(2):e169 View
  6. Eriksen J, Bygholm A, Bertelsen P. The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement. Applied Sciences 2020;10(21):7507 View
  7. Shetty P, Hawken J, Sanghavi K, Giladi A. Correlation of Patient-Reported Outcomes Measurement Information System Questionnaires With the Brief Michigan Hand Questionnaire in Patients With 5 Common Hand Conditions. The Journal of Hand Surgery 2021;46(8):709.e1 View
  8. Lehmann J, Buhl P, Giesinger J, Wintner L, Sztankay M, Neppl L, Willenbacher W, Weger R, Weyrer W, Rumpold G, Holzner B. Using the Computer-based Health Evaluation System (CHES) to Support Self-management of Symptoms and Functional Health: Evaluation of Hematological Patient Use of a Web-Based Patient Portal. Journal of Medical Internet Research 2021;23(6):e26022 View
  9. Aiyegbusi O, Nair D, Peipert J, Schick-Makaroff K, Mucsi I. A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases. Therapeutic Advances in Chronic Disease 2021;12:204062232110159 View
  10. Kargo A, Jensen P, Lindemann K, Hjøllund N, Liposits G, Raaschou-Jensen N, Knudsen B, Möller S, Hansen D, Steffensen K. Association of patient-reported outcomes and ovarian cancer recurrence. International Journal of Gynecologic Cancer 2021;31(9):1248 View
  11. Thestrup Hansen S, Piil K, Bak Hansen L, Ledertoug K, Hølge-Hazelton B, Schmidt V. Electronic patient-reported outcome measures to enable systematic follow-up in treatment and care of women diagnosed with breast cancer: a feasibility study protocol. BMJ Open 2022;12(11):e065110 View
  12. Skovlund P, Vind Thaysen H, Schmidt H, Alsner J, Hjollund N, Lomborg K, Nielsen B. Effect of patient-reported outcomes as a dialogue-based tool in cancer consultations on patient self-management and health-related quality of life: a clinical, controlled trial. Acta Oncologica 2021;60(12):1668 View
  13. Lassen R, Abild C, Kristensen K, Kristensen L, Hørlück J, Jensen A. Involving children and adolescents with type 1 diabetes in health care: a qualitative study of the use of patient-reported outcomes. Journal of Patient-Reported Outcomes 2023;7(1) View
  14. Ravn S, Thaysen H, Verwaal V, Soerensen M, Funder J, Mikkelsen M, Christiansen T, Søgaard C, Seibæk L, Iversen L. Cancer follow-up supported by patient-reported outcomes in patients undergoing intended curative complex surgery for advanced cancer. Journal of Patient-Reported Outcomes 2021;5(1) View
  15. Grove B, Schougaard L, Ivarsen P, Kyte D, Hjollund N, de Thurah A. Patient-reported outcome measures for clinical decision-making in outpatient follow-up: validity and reliability of a renal disease questionnaire. Journal of Patient-Reported Outcomes 2021;5(1) View
  16. Rodkjær L, Jeppesen M, Schougaard L. Management of Cystic Fibrosis during COVID-19: Patient Reported Outcomes based remote follow-up among CF patients in Denmark – A feasibility study. Journal of Cystic Fibrosis 2022;21(2):e106 View
  17. Astradsson A, Sørensen N, Graversen A, Nemeiko I, Bilgin-Freiert A, Stephansen L, Einarsson H, Schougaard L, Juhler M, Hansen T. Hydroflex: Use of Patient Reported Outcomes in a Clinical Setting Among Patients with Hydrocephalus. World Neurosurgery 2023;169:e67 View
  18. Holmen H, Singstad T, Ribu L, Jensen A, Weldingh N, Torbjørnsen A. Adapting a Patient-Reported Outcome Measure to Digital Outpatient Specialist Health Care Services for Type 1 Diabetes: User Involvement Study. JMIR Human Factors 2022;9(4):e38678 View
  19. Hjollund N, Larsen L, de Thurah A, Grove B, Skuladottir H, Linnet H, Friis R, Johnsen S, May O, Jensen A, Hansen T, Taarnhøj G, Tolstrup L, Pappot H, Ivarsen P, Dørflinger L, Jessen A, Sørensen N, Schougaard L, team T. Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years’ experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex. Quality of Life Research 2023;32(4):1053 View
  20. Laurberg T, Schougaard L, Hjollund N, Lomborg K, Hansen T, Jensen A. Randomized controlled study to evaluate the impact of flexible patient‐controlled visits in people with type 1 diabetes: The DiabetesFlex Trial. Diabetic Medicine 2022;39(5) View
  21. Appel C, Pedersen S, Nielsen A, Larsen B. Telemedicine based on patient-reported outcomes in management of patients with inflammatory bowel disease in a real-life setting – a before and after cohort study. Scandinavian Journal of Gastroenterology 2022;57(7):825 View
  22. Jensen A, Schougaard L, Laurberg T, Hansen T, Lomborg K. Flexible patient‐reported outcome‐based telehealth follow‐up for type 1 diabetes: A qualitative study. Scandinavian Journal of Caring Sciences 2023;37(3):662 View
  23. Schougaard L, Knudsen L, Grove B, Vestergaard J, Hjollund N, Hauge E, de Thurah A. Socioeconomic, Disease‐Related, and Personal Factors Associated With Participation in Remote Follow‐Up in Rheumatoid Arthritis: A Cross‐Sectional Study. Arthritis Care & Research 2023;75(10):2044 View
  24. Matini L, Chapman T, Kantschuster R, Wilson J, Tarafdar A, Hussain M, Song K, Simadibrata D, Seeva P, White L, Slater J, Kormilitzin A, Collins G, Travis S, Walsh A. Development of the Escalation of Therapy or Intervention (ETI) Calculator for Patients with Ulcerative Colitis Using ePROMs. Journal of Crohn's and Colitis 2023;17(11):1744 View
  25. Taarnhøj G, Johansen C, Carus A, Dahlrot R, Dohn L, Hjøllund N, Knudsen M, Tolver A, Lindberg H, Pappot H. The iBLAD study: patient-reported outcomes in bladder cancer during oncological treatment: a multicenter national randomized controlled trial. Journal of Patient-Reported Outcomes 2023;7(1) View
  26. Rasmussen S, Schougaard L, Hjøllund N, Christiansen D. Patient-reported outcome measures as determinants for the utilization of health care among outpatients with epilepsy: a prognostic cohort study. Journal of Patient-Reported Outcomes 2023;7(1) View
  27. Baldwin D, Adair M, Micheelsen A, Åstrøm D, Reines E. Goal setting and goal attainment in patients with major depressive disorder: a narrative review on shared decision making in clinical practice. Current Medical Research and Opinion 2024;40(3):483 View
  28. Mercadal-Orfila G, Herrera-Pérez S, Piqué N, Mateu-Amengual F, Ventayol-Bosch P, Maestre-Fullana M, Serrano-López de las Hazas J, Fernández-Cortés F, Barceló-Sansó F, Rios S. Implementing Systematic Patient-Reported Measures for Chronic Conditions Through the Naveta Value-Based Telemedicine Initiative: Observational Retrospective Multicenter Study. JMIR mHealth and uHealth 2024;12:e56196 View
  29. Mitchell J, Sossi F, Miller I, Jaber P, Das‐Gupta Z, Fialho L, Amos A, Austin J, Badzik S, Baker G, Zeev B, Bolton J, Chaplin J, Cross J, Chan D, Gericke C, Husain A, Lally L, Mbugua S, Megan C, Mesa T, Nuñez L, von Oertzen T, Perucca E, Pullen A, Ronen G, Sajatovic M, Singh M, Wilmshurst J, Wollscheid L, Berg A. Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations. Epilepsia 2024 View
  30. Dreyer N, Blackburn S. Power to the people: why person-generated health data are important for pharmacoepidemiology. American Journal of Epidemiology 2024 View

Books/Policy Documents

  1. Aiyegbusi O, Hughes S, Calvert M. Handbook of Quality of Life in Cancer. View
  2. Castro M, Wang M. Chronic Illness Care. View