Published on in Vol 21, No 7 (2019): July

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/12340, first published .
Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies

Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies

Telehealth Interventions for Improving Self-Management in Patients With Hemophilia: Scoping Review of Clinical Studies

Journals

  1. Muzammil S. Telehealth: Is It Only for the Rural Areas? A Review of Its Wider Use. Telehealth and Medicine Today 2020;5 View
  2. Timmer M, Kloek C, de Kleijn P, Kuijlaars I, Schutgens R, Veenhof C, Pisters M. A Blended Physiotherapy Intervention for Persons With Hemophilic Arthropathy: Development Study. Journal of Medical Internet Research 2020;22(6):e16631 View
  3. del Río-Lanza A, Suárez-Vázquez A, Suárez-Álvarez L, Iglesias-Argüelles V. Mobile health (mhealth): facilitators and barriers of the intention of use in patients with chronic illnesses. Journal of Communication in Healthcare 2020;13(2):138 View
  4. Drabble S, O'Cathain A, Scott A, Arden M, Keating S, Hutchings M, Maguire C, Wildman M. Mechanisms of Action of a Web-Based Intervention With Health Professional Support to Increase Adherence to Nebulizer Treatments in Adults With Cystic Fibrosis: Qualitative Interview Study. Journal of Medical Internet Research 2020;22(10):e16782 View
  5. Yang S, Chen Y, Zhou L, Huang Y, Dai J. Willingness to Adopt mHealth Among Chinese Parents During the COVID-19 Outbreak: Cross-sectional Questionnaire Study. JMIR mHealth and uHealth 2021;9(1):e23155 View
  6. Flannery T, Bladen M, Hopper D, Jones S, McLaughlin P, Penn A, Sayers F, Wells A, Stephensen D. Physiotherapy after COVID‐19—"Zoom or room". Haemophilia 2021;27(4) View
  7. Docherty T, Schneider J, Cooper J. Clinic- and Hospital-Based Home Care, Outpatient Parenteral Antimicrobial Therapy (OPAT) and the Evolving Clinical Responsibilities of the Pharmacist. Pharmacy 2020;8(4):233 View
  8. Huygens M, Voogdt-Pruis H, Wouters M, Meurs M, van Lettow B, Kleijweg C, Friele R. The Uptake and Use of Telemonitoring in Chronic Care Between 2014 and 2019: Nationwide Survey Among Patients and Health Care Professionals in the Netherlands. Journal of Medical Internet Research 2021;23(5):e24908 View
  9. Wijers A, Hochstenbach L, Tissingh G. Telemonitoring via Questionnaires Reduces Outpatient Healthcare Consumption in Parkinson's Disease. Movement Disorders Clinical Practice 2021;8(7):1075 View
  10. Dirzu N, Hotea I, Jitaru C, Brinza M, Urian L, Peters M, Gal K, Popescu L, Blag C, Marian M, Pal E, Stanescu M, Cenariu D, Tarniceriu C, Serban M, Dima D, Coriu D, Tomuleasa C. Mobile Health Technology for the Personalized Therapy of Hemophilia. Frontiers in Medicine 2021;8 View
  11. Cheung Y, Lam P, Lam T, Lam H, Li C. Technology Acceptance Among Patients With Hemophilia in Hong Kong and Their Expectations of a Mobile Health App to Promote Self-management: Survey Study. JMIR Formative Research 2021;5(9):e27985 View
  12. Wong A, Bayuo J, Wong F, Yuen W, Lee A, Chang P, Lai J. Effects of a Nurse-Led Telehealth Self-care Promotion Program on the Quality of Life of Community-Dwelling Older Adults: Systematic Review and Meta-analysis. Journal of Medical Internet Research 2022;24(3):e31912 View
  13. Rambod M, Pasyar N, Irannejad Parizi F, Edraki M, Khair K, von Mackensen S. The effect of a virtual child disease management programme on burden and social adjustment of caregivers of children with coagulation factor deficiencies. Haemophilia 2023;29(1):199 View
  14. Blazquez-Ramos N, Romero-Garrido J, Gonzalez Del Valle L, Collada-Sanchez V, Alvarez-Roman M, Jimenez-Yuste V, Martin-Salces M, De la Corte-Rodriguez H, Herrero-Ambrosio A, Benedi-Gonzalez J, Rodriguez-Merchan E. Development of a telematic pharmaceutical care app (Haemoassist) for multidisciplinary follow-up of patients with congenital coagulopathies. Expert Review of Hematology 2023;16(3):213 View
  15. Petracca F, Tempre R, Cucciniello M, Ciani O, Pompeo E, Sannino L, Lovato V, Castaman G, Ghirardini A, Tarricone R. An Electronic Patient-Reported Outcome Mobile App for Data Collection in Type A Hemophilia: Design and Usability Study. JMIR Formative Research 2021;5(12):e25071 View
  16. Ballmann J, Ewers M. Nurse‐led education of people with bleeding disorders and their caregivers: A scoping review. Haemophilia 2022;28(6) View
  17. Valentino L, Baker J, Butler R, Escobar M, Frick N, Karp S, Koulianos K, Lattimore S, Nugent D, Pugliese J, Recht M, Reding M, Rice M, Thibodeaux C, Skinner M. Integrated Hemophilia Patient Care via a National Network of Care Centers in the United States: A Model for Rare Coagulation Disorders. Journal of Blood Medicine 2021;Volume 12:897 View
  18. Konkle B, Quon D, Raffini L, Recht M, Radulescu V, Carpenter S, Dunn A, Lu M, Watt M. A Prospective Observational Study of Antihemophilic Factor (Recombinant) Prophylaxis Related to Physical Activity Levels in Patients with Hemophilia A in the United States (SPACE). Journal of Blood Medicine 2021;Volume 12:883 View
  19. Esmaeilzadeh P, Mirzaei T. Do Hospitals Need to Extend Telehealth Services? An Experimental Study of Different Telehealth Modalities during the COVID-19 Pandemic. Methods of Information in Medicine 2021;60(03/04):071 View
  20. Cheung Y, Lam P, Lam H, Ma C, Leung A, Wong R, Li C. Treatment Adherence and Health-Related Quality of Life in Patients with Hemophilia in Hong Kong. International Journal of Environmental Research and Public Health 2022;19(11):6496 View
  21. Powell G, Gagnon M, Komarova S, Rauch F, Veilleux L. Delivering a Home-Based Exercise Program to Youth With Osteogenesis Imperfecta: Protocol for a Comparative-Approach Study. JMIR Research Protocols 2023;12:e40262 View
  22. Sullivan M, Curtin M, Flynn R, Cronin C, Mahony J, Trujillo J. Telehealth interventions for transition to self‐management in adolescents with allergic conditions: A systematic review. Allergy 2024;79(4):861 View
  23. Espírito-Santo M, Santos S, Estêvão M. Digital Solutions Available to Be Used by Informal Caregivers, Contributing to Medication Adherence: A Scoping Review. Pharmacy 2024;12(1):20 View
  24. Feldberg G, Ricciardi J, Zorzi A, Yamaguti‐Hayakawa G, Ozelo M. Promoting pain coping skills in haemophilia: A remote intervention integrating exercise and pain education. Haemophilia 2024 View

Books/Policy Documents

  1. Sharma M. Effective Use of Social Media in Public Health. View