This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (538) Participatory Medicine & E-Patients (758) mHealth in a Clinical Setting (579) Design and Formative Evaluation of Mobile Apps (661) Participatory Design and Participatory Research (301)

Published on in Vol 21, No 2 (2019): February

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/11371, first published .
Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design

Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design

Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design

Authors of this article:

John Kildea1, 2, 3, 4 Author Orcid Image ;   John Battista5 Author Orcid Image ;   Briana Cabral2 Author Orcid Image ;   Laurie Hendren3, 6 Author Orcid Image ;   David Herrera6 Author Orcid Image ;   Tarek Hijal1, 3, 5 Author Orcid Image ;   Ackeem Joseph7 Author Orcid Image
Article Authors Cited by (57) Tweetations (1) Metrics

Journals

  1. Hulter P, Pluut B, Leenen-Brinkhuis C, de Mul M, Ahaus K, Weggelaar-Jansen A. Adopting Patient Portals in Hospitals: Qualitative Study. Journal of Medical Internet Research 2020;22(5):e16921 View
  2. Siedlikowski M, Rauch F, Tsimicalis A. Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI. Journal of Medical Internet Research 2020;22(9):e17947 View
  3. Thor M, Oh J, Apte A, Deasy J. Registering Study Analysis Plans (SAPs) Before Dissecting Your Data—Updating and Standardizing Outcome Modeling. Frontiers in Oncology 2020;10 View
  4. Risling T, Risling D. Advancing nursing participation in user-centred design. Journal of Research in Nursing 2020;25(3):226 View
  5. Patrick H, Hijal T, Souhami L, Freeman C, Parker W, Joly L, Kildea J. A Canadian Response to the Coronavirus Disease 2019 (COVID-19) Pandemic: Is There a Silver Lining for Radiation Oncology Patients?. Advances in Radiation Oncology 2020;5(4):774 View
  6. Ormel I, Magalhaes M, Josephson D, Tracey L, Law S. How to know what to know: Information challenges for women in the diagnostic phase of breast cancer. Patient Education and Counseling 2021;104(1):179 View
  7. Foster B, Krasowski M. The Use of an Electronic Health Record Patient Portal to Access Diagnostic Test Results by Emergency Patients at an Academic Medical Center: Retrospective Study. Journal of Medical Internet Research 2019;21(6):e13791 View
  8. Helou S, Abou-Khalil V, Yamamoto G, Kondoh E, Tamura H, Hiragi S, Sugiyama O, Okamoto K, Nambu M, Kuroda T. Understanding the EMR-Related Experiences of Pregnant Japanese Women to Redesign Antenatal Care EMR Systems. Informatics 2019;6(2):15 View
  9. Chen S, Liu C, Wang Z, McAdam R, Brennan M, Davey S, Cheng T. How Geographical Isolation and Aging in Place Can Be Accommodated Through Connected Health Stakeholder Management: Qualitative Study With Focus Groups. Journal of Medical Internet Research 2020;22(5):e15976 View
  10. Espinoza-Bautista J, Álvarez-Ballesteros S, Carreto-Arellano C, Patiño-Ortiz J, Romero-Castro M. Método sistémico-transdisciplinar para el diseño de dispositivos eHealth. Científica 2020:33 View
  11. McCrea Z, Power K, Kiersey R, White M, Breen A, Murphy S, Healy L, Kearney H, Dunleavy B, O'Donoghue S, Lambert V, Delanty N, Doherty C, Fitzsimons M. Coproducing health and well-being in partnership with patients, families, and healthcare providers: A qualitative study exploring the role of an epilepsy patient portal. Epilepsy & Behavior 2021;115:107664 View
  12. Chu D, Schuster T, Lessard D, Mate K, Engler K, Ma Y, Abulkhir A, Arora A, Long S, de Pokomandy A, Lacombe K, Rougier H, Cox J, Kronfli N, Hijal T, Kildea J, Routy J, Asselah J, Lebouché B. Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study. Journal of Personalized Medicine 2021;11(2):134 View
  13. Weinberger N, Weis A, Pohlmann S, Brändle C, Zentek T, Ose D, Szecsenyi J. A New Method for Structured Integration of User Needs in Two Health Technology Development Projects: Action Sheets. Informatics for Health and Social Care 2021;46(2):113 View
  14. Nøst T, Faxvaag A, Steinsbekk A. Participants’ views and experiences from setting up a shared patient portal for primary and specialist health services- a qualitative study. BMC Health Services Research 2021;21(1) View
  15. Mohsen K, Kildea J, Lambert S, Laizner A. Exploring Cancer Patients’ Perceptions of Accessing and Experience with Using the Educational Material in the Opal Patient Portal. Supportive Care in Cancer 2021;29(8):4365 View
  16. Gorman C, Gustafsson L, Gomura C. The perspectives of stroke survivors and health professionals on the use of augmented reality for inpatient stroke rehabilitation: an anticipatory exploration. Brain Impairment 2022;23(2):206 View
  17. Hopstaken J, Verweij L, van Laarhoven C, Blijlevens N, Stommel M, Hermens R. Effect of Digital Care Platforms on Quality of Care for Oncological Patients and Barriers and Facilitators for Their Implementation: Systematic Review. Journal of Medical Internet Research 2021;23(9):e28869 View
  18. van Rijt A, Hulter P, Weggelaar-Jansen A, Ahaus K, Pluut B. Mental Health Care Professionals’ Appraisal of Patients’ Use of Web-Based Access to Their Electronic Health Record: Qualitative Study. Journal of Medical Internet Research 2021;23(8):e28045 View
  19. Rumanyika J, Apiola M, Mramba N, Oyelere S, Tedre M. Design and development of Machinga mobile trading application: A participatory and design science research. African Journal of Science, Technology, Innovation and Development 2022;14(5):1196 View
  20. Chu D, Lessard D, Laymouna M, Engler K, Schuster T, Ma Y, Kronfli N, Routy J, Hijal T, Lacombe K, Sheehan N, Rougier H, Lebouché B. Understanding the Risks and Benefits of a Patient Portal Configured for HIV Care: Patient and Healthcare Professional Perspectives. Journal of Personalized Medicine 2022;12(2):314 View
  21. Lo B, Charow R, Laberge S, Bakas V, Williams L, Wiljer D. Why are Patient Portals Important in the Age of COVID-19? Reflecting on Patient and Team Experiences From a Toronto Hospital Network. Journal of Patient Experience 2022;9:237437352211122 View
  22. Cwintal M, Ranjbar H, Bandamiri P, Guadagno E, Osmanlliu E, Poenaru D. A rapid review for developing a co-design framework for a pediatric surgical communication application. Journal of Pediatric Surgery 2023;58(5):879 View
  23. Lin Y, Lemos M, Neuschaefer-Rube C. Digital Health and Learning in Speech-Language Pathology, Phoniatrics, and Otolaryngology: Survey Study for Designing a Digital Learning Toolbox App. JMIR Medical Education 2022;8(2):e34042 View
  24. Bager S, Düdder B, Henglein F, Hébert J, Wu H. Event-Based Supply Chain Network Modeling: Blockchain for Good Coffee. Frontiers in Blockchain 2022;5 View
  25. Van Baelen F, De Regge M, Larivière B, Verleye K, Schelfout S, Eeckloo K. Role of Social and App-Related Factors in Behavioral Engagement With mHealth for Improved Well-being Among Chronically Ill Patients: Scenario-Based Survey Study. JMIR mHealth and uHealth 2022;10(8):e33772 View
  26. Caissie A, Olson R, Barbera L, O’Donnell J, Davis C, Croke J, Bird L, Kildea J, Brown E, Brundage M, Milosevic M. Striving to Fill in Gaps between Clinical Practice and Standards: The Evolution of a Pan-Canadian Approach to Patient-Reported Outcomes Use. Current Oncology 2022;29(5):3698 View
  27. Johnson A, Brimhall A, Johnson E, Hodgson J, Didericksen K, Pye J, Harmon G, Sewell K. A systematic review of the effectiveness of patient education through patient portals. JAMIA Open 2023;6(1) View
  28. Santos A, Caine V, Robson P, Watson L, Easaw J, Petrovskaya O. Oncology Patients’ Experiences With Novel Electronic Patient Portals to Support Care and Treatment: Qualitative Study With Early Users and Nonusers of Portals in Alberta, Canada. JMIR Cancer 2021;7(4):e32609 View
  29. Ledermann K, Abou Khaled O, Caon M, Berger T, Chabwine J, Wicht J, Martin-Soelch C. An Ecological Monitoring and Management App (EMMA) for Older Adults With Chronic Pain: Protocol for a Design and Feasibility Study. JMIR Research Protocols 2021;10(8):e26930 View
  30. Cestari V, Florêncio R, Garces T, Souza L, Negreiros F, Pessoa V, Moreira T. CODESIGN OF A CARE-EDUCATIONAL APP FOR PEOPLE WITH HEART FAILURE: DESIGN, PROTOTYPING AND CO-IMPLEMENTATION. Texto & Contexto - Enfermagem 2022;31 View
  31. Gerido L, Griggs J, Resnicow K, Kidwell K, Delacroix E, Austin S, Hanson E, Bacon E, Koeppe E, Goodall S, Demerath M, Rizzo E, Weiner S, Hawley S, Uhlmann W, Roberts J, Stoffel E. The Michigan Genetic Hereditary Testing (MiGHT) study’s innovative approaches to promote uptake of clinical genetic testing among cancer patients: a study protocol for a 3-arm randomized controlled trial. Trials 2023;24(1) View
  32. Rackerseder J, Hornbach C, Dicks P, Kerek-Bodden H, Krieger T. Designing a Patient-Friendly Website for Newly Diagnosed Cancer Patients with the Participatory Health Research Approach. International Journal of Environmental Research and Public Health 2022;19(4):1969 View
  33. Lessard D, Engler K, Ma Y, Rodriguez Cruz A, Vicente S, Kronfli N, Barkati S, Brouillette M, Cox J, Kildea J, Hijal T, Pomey M, Bartlett S, Asselah J, Lebouché B. Remote Follow-up of Self-isolating Patients With COVID-19 Using a Patient Portal: Protocol for a Mixed Methods Pilot Study (Opal-COVID Study). JMIR Research Protocols 2022;11(8):e35760 View
  34. Cestari V, Florêncio R, Garces T, Souza L, Negreiros F, Pessoa V, Moreira T. CODESING DE APLICATIVO CUIDATIVO-EDUCACIONAL PARA PESSOAS COM INSUFICIÊNCIA CARDÍACA: IDEAÇÃO, PROTOTIPAGEM E CO-IMPLANTAÇÃO. Texto & Contexto - Enfermagem 2022;31 View
  35. Jackson J, Leziak K, Niznik C, Yee L. Health Care Providers’ Utilization of and Perspectives on Mobile Health Technology for Diabetes and Pregnancy Support. Diabetes Spectrum 2021;34(3):257 View
  36. Engler K, Vicente S, Ma Y, Hijal T, Cox J, Ahmed S, Klein M, Achiche S, Pant Pai N, de Pokomandy A, Lacombe K, Lebouché B, Moitra E. Implementation of an electronic patient-reported measure of barriers to antiretroviral therapy adherence with the Opal patient portal: Protocol for a mixed method type 3 hybrid pilot study at a large Montreal HIV clinic. PLOS ONE 2021;16(12):e0261006 View
  37. Davoody N, Eghdam A, Koch S, Hägglund M. Evaluation of an Electronic Care and Rehabilitation Planning Tool With Stroke Survivors With Aphasia: Usability Study. JMIR Human Factors 2023;10:e43861 View
  38. Vásquez Navarro G, Córdova Dávila A, Cano Lengua M, Andrade Arenas L. Design of a mobile app for the learning of algorithms for university students. Advances in Mobile Learning Educational Research 2023;3(1):727 View
  39. Kechagioglou P. Big Data in Oncology: The Electronic Patient Record Transformation Program. Seminars in Oncology Nursing 2023;39(3):151430 View
  40. Sidani S. A revolution against the evidence‐based movement. Journal of Evaluation in Clinical Practice 2023;29(5):744 View
  41. Barrett N, Burrows L, Atatoa-Carr P, Smith L. Reflections on the co-design process of a holistic assessment tool for a Kaupapa Māori antenatal wānanga (workshop). Kōtuitui: New Zealand Journal of Social Sciences Online 2023:1 View
  42. Weis J, Wolf L, Boerries M, Kassahn D, Boeker M, Dresch C. Identification of the Needs and Preferences of Patients With Cancer for the Development of a Clinic App: Qualitative Study. JMIR Cancer 2023;9:e40891 View
  43. O'Sullivan‐Steben K, Galarneau L, Judd S, Laizner A, Williams T, Kildea J. Design and implementation of a prototype radiotherapy menu in a patient portal. Journal of Applied Clinical Medical Physics 2024;25(3) View
  44. Parsell M, Greenleaf M, Kombara G, Sukhatme V, Lam W. Engaging Cancer Care Physicians in Off-Label Drug Clinical Trials: Human-Centered Design Approach. JMIR Formative Research 2024;8:e51604 View
  45. Ma Y, Achiche S, Pomey M, Paquette J, Adjtoutah N, Vicente S, Engler K, Laymouna M, Lessard D, Lemire B, Asselah J, Therrien R, Osmanlliu E, Zawati M, Joly Y, Lebouché B. Adapting and Evaluating an AI-Based Chatbot Through Patient and Stakeholder Engagement to Provide Information for Different Health Conditions: Master Protocol for an Adaptive Platform Trial (the MARVIN Chatbots Study). JMIR Research Protocols 2024;13:e54668 View
  46. Yu K, Jiang H, Liu M, Wu S, Jordan-Marsh M, Chi I. Chinese Immigrant Caregivers: Understanding Their Unmet Needs and the Co-Design of an mHealth App. Canadian Journal on Aging / La Revue canadienne du vieillissement 2024:1 View
  47. Brown P, Singh H, Su E, Sirisegaram L, Munce S, Eaton A, Zhabokritsky A, McKinlay S, Kokorelias K, Hoddinott G. Understanding the use of co-design methods for research involving older adults living with HIV: A scoping review protocol. PLOS ONE 2024;19(5):e0303580 View
  48. Santarossa S, Baber M, Hussein J, Oley C, Slangerup K, Murphy D, Kippen K. Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective. Research Involvement and Engagement 2024;10(1) View

Books/Policy Documents

  1. Chu S. Social Media Tools in Experiential Internship Learning. View
  2. Heath C, Heath T, McDaniel T, Venkateswara H, Panchanathan S. Smart Multimedia. View
  3. . Nursing and Health Interventions. View
  4. Austin R, Wang C. Personal Health Informatics. View
  5. Meiklem R, Stevenson K, Richarz S, Kingsmore D, Bouamrane M, Dunlop M, Thomson P. Human-Computer Interaction – INTERACT 2021. View
  6. . Nursing and Health Interventions. View
  7. Jiang Y, Chen J, Chen Q, Liu L. Digital Human Modeling and Applications in Health, Safety, Ergonomics and Risk Management. View