This paper is in the following e-collection/theme issue:

Web-based and Mobile Health Interventions (3128) Focus Groups and Qualitative Research for Human Factors Research (781) User Needs and Competencies (274) Information Seeking, Information Needs (426) Disabilities (111) Children and Youth with Disabilities (48) Supporting Home Care and Family Caregivers (173)

Published on in Vol 21, No 12 (2019): December

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/15924, first published .
Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study

Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study

Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study

Authors of this article:

Aimee R Castro1, 2 Author Orcid Image ;   Khadidja Chougui2 Author Orcid Image ;   Claudette Bilodeau2 Author Orcid Image ;   Argerie Tsimicalis1, 2 Author Orcid Image
Article Authors Cited by (11) Tweetations (25) Metrics

Journals

  1. Castro A, Marinello J, Chougui K, Morand M, Bilodeau C, Tsimicalis A. The day‐to‐day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study. Journal of Clinical Nursing 2020;29(15-16):2999 View
  2. Wang Y, Carnevale F, Chougui K, Tsimicalis A. How Children's participation ought to be practiced: A preliminary ethical framework to optimise the participation of children with osteogenesis imperfecta in health care. Journal of Clinical Nursing 2023;32(11-12):2773 View
  3. Rapoport M, Bober M, Raggio C, Wekre L, Rauch F, Westerheim I, Hart T, van Welzenis T, Mistry A, Clancy J, Booth L, Prince S, Semler O. The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review. Orphanet Journal of Rare Diseases 2023;18(1) View
  4. Frey E, Bonfiglioli C, Brunner M, Frawley J. Parents’ Use of Social Media as a Health Information Source for Their Children: A Scoping Review. Academic Pediatrics 2022;22(4):526 View
  5. Wang Y, Carnevale F, Ezcurra M, Chougui K, Bilodeau C, Siedlikowski S, Tsimicalis A. The moral experiences of children with osteogenesis imperfecta. Nursing Ethics 2022;29(7-8):1773 View
  6. Long J, Best S, Nic Giolla Easpaig B, Hatem S, Fehlberg Z, Christodoulou J, Braithwaite J. Needs of people with rare diseases that can be supported by electronic resources: a scoping review. BMJ Open 2022;12(9):e060394 View
  7. Rodrigues N, Martins G, Silveira A. Disfunção vesical e intestinal na infância: abordagem multi-metodológica. Acta Paulista de Enfermagem 2023;36 View
  8. Tsimicalis A, Stinson J, Thorstad K, Rauch F, Hamdy R, Chougui K, Addab S, Palomo T, Bernstein M, Dahan-Oliel N, Veilleux L, Massochin Nunes Pinto L, Passos dos Santos R. The Design, Development, and Usability Testing of an eHealth Program for Youths With Osteogenesis Imperfecta: Protocol for a 2-Phase User-Centered Mixed Methods Study. JMIR Research Protocols 2023;12:e47524 View
  9. Xu R, Zhu L, Sun R, Zou S, Dong D. Impact of caregiver’s eHealth literacy, financial well-being, and mental health on quality of life of pediatric patients with osteogenesis imperfecta. Health and Quality of Life Outcomes 2023;21(1) View
  10. Wang M, Wang L, Zhong Y, Wang X, Wang L, Shi T, Yang L, Ji J. Risk perception for fractures and its related factors among family caregivers of underage patients with osteogenesis imperfecta in China: A cross-sectional study. Journal of Pediatric Nursing 2024;77:81 View
  11. Aratti A, Zampini L. Caregiver Burden, Parenting Stress and Coping Strategies: The Experience of Parents of Children and Adolescents with Osteogenesis Imperfecta. Healthcare 2024;12(10):1018 View