Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

Marlene Sinclair   ¹ , BSc, MEd, PGDipEd, RM, PhD ;   Julie EM McCullough   ¹ , BSc, PGDip, PhD ;   David Elliott   ² , BSc, MBA, CPhys, PhD ;   Anna Latos-Bielenska   ³ , MD, PhD ;   Paula Braz   ⁴ , MSc ;   Clara Cavero-Carbonell   ⁵ , BSPharm, MPH, PhD ;   Anna Jamry-Dziurla   ³ , MSc ;   Ana João Santos   ^{4, 6} , PhD ;   Lucía Páramo-Rodríguez   ⁵ , BA, MA

¹ Institute of Nursing and Health Research, Ulster University, Newtownabbey, Northern Ireland, United Kingdom

² Redburn Solution Ltd, Belfast, United Kingdom

³ Department of Medical Genetics, Poznan University of Medical Sciences, Poznan, Poland

⁴ Epidemiology Department, National Institute of Health Doctor Ricardo Jorge, Lisbon, Portugal

⁵ Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, Valencia, Spain

⁶ Public Health Research Centre, National School of Public Health, Nova University Lisbon, Lisbon, Portugal