Published on in Vol 20, No 9 (2018): September

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/10897, first published .
Experience With the Use of an Online Community on Facebook for Brazilian Patients With Gestational Trophoblastic Disease: Netnography Study

Experience With the Use of an Online Community on Facebook for Brazilian Patients With Gestational Trophoblastic Disease: Netnography Study

Experience With the Use of an Online Community on Facebook for Brazilian Patients With Gestational Trophoblastic Disease: Netnography Study

Journals

  1. Diver E, Richardson M, Liao C, Mann A, Darcy K, Tian C, Kapp D, Chan J. Age and racial differences in the presentation of gestational trophoblastic neoplasia. International Journal of Gynecologic Cancer 2021;31(2):194 View
  2. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  3. Liu X, Pan X, Liu H, Ma X. Gut Microbial Diversity in Female Patients With Invasive Mole and Choriocarcinoma and Its Differences Versus Healthy Controls. Frontiers in Cellular and Infection Microbiology 2021;11 View
  4. de Assis R, de Morais L, Simões de Freitas A, Signorini FIlho R, Ribeiro Borges de Carvalho L, Parreira B, Yurie Yamachi C, Braga A, Sun S. Telemedicine in post-molar follow-up: is it a useful tool?. International Journal of Gynecologic Cancer 2022;32(5):633 View
  5. Braga A, Paiva G, Cattai C, Elias K, Horowitz N, Berkowitz R. Current chemotherapeutic options for the treatment of gestational trophoblastic disease. Expert Opinion on Pharmacotherapy 2023;24(2):245 View
  6. Francisco R, Brasil S, Pascoal C, Jaeken J, Liddle M, Videira P, dos Reis Ferreira V. The road to successful people-centric research in rare diseases: the web-based case study of the Immunology and Congenital Disorders of Glycosylation questionnaire (ImmunoCDGQ). Orphanet Journal of Rare Diseases 2022;17(1) View
  7. Tsimicalis A, Gasse M, Morand M, Rauch F. Use of Netnography to Understand GoFundMe® Crowdfunding Profiles Posted for Individuals and Families of Children with Osteogenesis Imperfecta. Healthcare 2022;10(8):1451 View
  8. Martins J, Bandiera-Paiva P, Neto A, de Carvalho L, Padrini-Andrade L, Machado V, da Silva Junior A, Sun S. Development and validation of a health information system for assistance and research in gestational trophoblast disease. BMC Medical Informatics and Decision Making 2022;22(1) View
  9. Joyce C, Coulter J, Kenneally C, McCarthy T, O'Donoghue K. Experience of women on the Irish National Gestational Trophoblastic Disease Registry. European Journal of Obstetrics & Gynecology and Reproductive Biology 2022;272:206 View
  10. Chambers L, Chalif J, Vargas R. Analysis of patient experiences with gestational trophoblastic neoplasia reported on Instagram social media. Gynecologic Oncology 2022;165(3):603 View
  11. Gómez Cano C, Sánchez Castillo V, Clavijo Gallego T. Mapping the Landscape of Netnographic Research: A Bibliometric Study of Social Interactions and Digital Culture. Data and Metadata 2023;2:25 View
  12. Braga Neto A, França S. Impacto da distância entre a residência da paciente e o centro de referência nos indicadores clínicos e de qualidade da assistência à saúde prestada às mulheres com neoplasia trofoblástica gestacional no Estado do Rio de Janeiro. Jornal Brasileiro de Ginecologia 2023;133 View
  13. Braga A, Lin L, Maestá I, Sun S, Uberti E, Madi J, Viggiano M. Gestational Trophoblastic Disease in Brazil. Revista Brasileira de Ginecologia e Obstetrícia / RBGO Gynecology and Obstetrics 2019;41(04):211 View
  14. Morton M, Haight P, Khadraoui W, Backes F, Bixel K, O'Malley D, Nagel C, Chambers L. “More than a song and dance”: Exploration of patient perspectives and educational quality of gynecologic cancer content on TikTok. Gynecologic Oncology 2023;175:81 View
  15. Braga A, Lopes R, Campos V, Freitas F, Maestá I, Sun S, Pedrotti L, Bessel M, de Sousa C, Leal E, Yela D, Uberti E, Madi J, Viggiano M, Junior J, Filho J, Elias K, Horowitz N, Berkowitz R. The impact of the distance traveled between residence and gestational trophoblastic neoplasia reference center and clinical outcomes in Brazilian women. Gynecologic Oncology 2023;176:130 View
  16. Mutiara V, Pamungkasari E, Padmawati R, Probandari A. The Role of Social Networking in Improving Health Literacy in Online Community: A Scoping Review. Malaysian Journal of Medicine and Health Sciences 2024;20(2):359 View