This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (573) Peer-to-Peer Support and Online Communities (636)

Published on in Vol 20, No 5 (2018): May

Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising

Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising

Scaling PatientsLikeMe via a “Generalized Platform” for Members with Chronic Illness: Web-Based Survey Study of Benefits Arising

Authors of this article:

Paul Wicks1 Author Orcid Image ;   Eileen Mack Thorley2 Author Orcid Image ;   Kristina Simacek2 Author Orcid Image ;   Christopher Curran2 Author Orcid Image ;   Cathy Emmas3 Author Orcid Image
Article Authors Cited by (28) Tweetations (31) Metrics

Journals

  1. Caga J, Hsieh S, Lillo P, Dudley K, Mioshi E. The Impact of Cognitive and Behavioral Symptoms on ALS Patients and Their Caregivers. Frontiers in Neurology 2019;10 View
  2. Wicks P, McCaffrey S, Goodwin K, Black R, Hoole M, Heywood J. A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items. Journal of Medical Internet Research 2019;21(1):e12075 View
  3. James G, Nyman E, Fitz-Randolph M, Niklasson A, Hedman K, Hedberg J, Wittbrodt E, Medin J, Moreno Quinn C, Allum A, Emmas C. Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study. Journal of Medical Internet Research 2020;22(7):e18548 View
  4. Borda A, Gray K, Fu Y. Research data management in health and biomedical citizen science: practices and prospects. JAMIA Open 2020;3(1):113 View
  5. Okun S. The Missing Reality of Real Life in Real‐World Evidence. Clinical Pharmacology & Therapeutics 2019;106(1):136 View
  6. Nyman E, Vaughan T, Desta B, Wang X, Barut V, Emmas C. Characteristics and Symptom Severity of Patients Reporting Systemic Lupus Erythematosus in the PatientsLikeMe Online Health Community: A Retrospective Observational Study. Rheumatology and Therapy 2020;7(1):201 View
  7. Nguyen Y. Dealing with internet-based information obtained by families of critically ill patients. Intensive Care Medicine 2019;45(8):1119 View
  8. Arigo D, Jake-Schoffman D, Wolin K, Beckjord E, Hekler E, Pagoto S. The history and future of digital health in the field of behavioral medicine. Journal of Behavioral Medicine 2019;42(1):67 View
  9. Gasteiger N, Grainger R, Day K. Arthritis-Related Support in a Social Media Group for Quilting Hobbyists: Qualitative Study. Interactive Journal of Medical Research 2018;7(2):e11026 View
  10. Johnson J, Black R, Hayes G. Roles in the Discussion. Proceedings of the ACM on Human-Computer Interaction 2020;4(CSCW2):1 View
  11. Oni‐Orisan A, Srinivas N, Mehta K, Das J, Nguyen T, Tison G, Bauer S, Burian M, Funk R, Graham R. Leveraging innovative technology to generate drug response phenotypes for the advancement of biomarker‐driven precision dosing. Clinical and Translational Science 2021;14(3):784 View
  12. Puspitasari I, Fauzi S, Ho C. Factors Driving Users’ Engagement in Patient Social Network Systems. Informatics 2021;8(1):8 View
  13. Cramer-van der Welle C, Kastelijn E, Plouvier B, van Uden-Kraan C, Schramel F, Groen H, van de Garde E. Development and Evaluation of a Real-World Outcomes-Based Tool to Support Informed Clinical Decision Making in the Palliative Treatment of Patients With Metastatic NSCLC. JCO Clinical Cancer Informatics 2021;(5):570 View
  14. Gelinas L, Morrell W, White S, Bierer B. Online Research Participant Communication: Balancing Benefits and Risks. Ethics & Human Research 2021;43(4):2 View
  15. Xie D, Boss E, Stewart C. An Exploration of Otolaryngology in the Reddit Community. The Laryngoscope 2022;132(2):284 View
  16. Khayal I, Brooks G, Barnato A. Development of dynamic health care delivery heatmaps for end-of-life cancer care: a cohort study. BMJ Open 2022;12(5):e056328 View
  17. Xie D, Boss E, Stewart C. Audience of Academic Otolaryngology on Twitter: Cross-sectional Study. JMIR Medical Education 2021;7(4):e25654 View
  18. Subramaniam S, Dhillon J, Wan Ahmad W. Behavioral Theory-Based Framework for Prediabetes Self-Care System—Design Perspectives and Validation Results. International Journal of Environmental Research and Public Health 2021;18(17):9160 View
  19. Wang T, Giunti G, Melles M, Goossens R. Digital Patient Experience: Umbrella Systematic Review. Journal of Medical Internet Research 2022;24(8):e37952 View
  20. Batko K, Ślęzak A. The use of Big Data Analytics in healthcare. Journal of Big Data 2022;9(1) View
  21. Abdelraheem O, Sami D, Salama M. Online Health Communities: an alternative feasible data registry tool for developing countries. Health Research Policy and Systems 2023;21(1) View
  22. Niranjan B, de Courten M, Iyngkaran P, Battersby M. Malthusian Trajectory for Heart Failure and Novel Translational Ambulatory Technologies. Current Cardiology Reviews 2023;19(3) View
  23. van Til J, Pearce A, Ozdemir S, Hollin I, Peay H, Wu A, Ostermann J, Deal K, Craig B. Role Preferences in Medical Decision Making: Relevance and Implications for Health Preference Research. The Patient - Patient-Centered Outcomes Research 2024;17(1):3 View
  24. Weitzman E, Minegishi M, Cox R, Wisk L. Associations Between Patient-Reported Outcome Measures of Physical and Psychological Functioning and Willingness to Share Social Media Data for Research Among Adolescents With a Chronic Rheumatic Disease: Cross-Sectional Survey. JMIR Pediatrics and Parenting 2023;6:e46555 View
  25. Gerritzen E, Lee A, McDermott O, Coulson N, Orrell M. Online peer support for people with Amyotrophic Lateral Sclerosis (ALS): a narrative synthesis systematic review. Frontiers in Digital Health 2024;6 View
  26. Szeto M, Hook Sobotka M, Woolhiser E, Parmar P, Wu J, Alhanshali L, Dellavalle R. PatientsLikeMe and Online Patient Support Communities in Dermatology. JMIR Dermatology 2024;7:e50453 View
  27. Alkhdairi A, Alsugair M, Alrashdi M, Alrasheedi S, Alzweihari A, Alharbi M, Alqubays M, Aljemeeli F. Potential Impact of Online Self-Help Groups on Knowledge, Attitudes, and Quality of Life on Patients with Rheumatoid Arthritis Study, in Saudi Arabia 2023/2024. Annals of Rheumatology and Autoimmunity 2024;4(3):65 View

Books/Policy Documents

  1. Fitzpatrick M, Kyweluk M. The Handbook of Applied Communication Research. View