This paper is in the following e-collection/theme issue:

Web-based and Mobile Health Interventions (3297) Participatory Medicine & E-Patients (773) Formative Studies and eHealth/mHealth Development (524) Emotional, Social, Psychological Support for Cancer (194) Participatory Design and Participatory Research (329) Caregiving and Parenting for Chronic Pediatric Diseases (82)

Published on in Vol 20, No 4 (2018): April

Preprints (earlier versions) of this paper are available at https://preprints.jmir.org/preprint/9457, first published .
Development of an Internet-Administered Cognitive Behavior Therapy Program (ENGAGE) for Parents of Children Previously Treated for Cancer: Participatory Action Research Approach

Development of an Internet-Administered Cognitive Behavior Therapy Program (ENGAGE) for Parents of Children Previously Treated for Cancer: Participatory Action Research Approach

Development of an Internet-Administered Cognitive Behavior Therapy Program (ENGAGE) for Parents of Children Previously Treated for Cancer: Participatory Action Research Approach

Authors of this article:

Anna Wikman1 Author Orcid Image ;   Laura Kukkola1 Author Orcid Image ;   Helene Börjesson1 Author Orcid Image ;   Martin Cernvall1 Author Orcid Image ;   Joanne Woodford1 Author Orcid Image ;   Helena Grönqvist1 Author Orcid Image ;   Louise von Essen1 Author Orcid Image
Article Authors Cited by (24) Tweetations (8) Metrics

Journals

  1. Vanstone R, Fergus K. Online couple interventions in cancer. Current Opinion in Supportive & Palliative Care 2020;14(1):67 View
  2. Hovén E, Hagström J, Pöder U, Grönqvist H, von Essen L. Parents’ needs of support following the loss of a child to cancer: a Swedish, prospective, longitudinal, multi-centre study. Acta Oncologica 2020;59(3):351 View
  3. Farrand P, Woodford J, Coumoundouros C, Svedin F. Supported cognitive-behavioural therapy self-help versus treatment-as-usual for depressed informal caregivers of stroke survivors (CEDArS): feasibility randomised controlled trial. The Cognitive Behaviour Therapist 2020;13 View
  4. Hill L, Gubi P. Factors That May Continue to Impact a Mother’s Emotional Well-Being Once Her Child’s Treatment for Cancer Has Completed and Their Implications for Ongoing Support. Illness, Crisis & Loss 2022;30(2):273 View
  5. Woodford J, Norbäck K, Hagström J, Grönqvist H, Parker A, Arundel C, von Essen L. Study within a trial (SWAT) protocol. Investigating the effect of personalised versus non-personalised study invitations on recruitment: An embedded randomised controlled recruitment trial. Contemporary Clinical Trials Communications 2020;18:100572 View
  6. Woodford J, Wikman A, Einhorn K, Cernvall M, Grönqvist H, Romppala A, von Essen L. Attitudes and Preferences Toward a Hypothetical Trial of an Internet-Administered Psychological Intervention for Parents of Children Treated for Cancer: Web-Based Survey. JMIR Mental Health 2018;5(4):e10085 View
  7. Woodford J, Farrand P, Hagström J, Hedenmalm L, von Essen L. Internet-Administered Cognitive Behavioral Therapy for Common Mental Health Difficulties in Parents of Children Treated for Cancer: Intervention Development and Description Study. JMIR Formative Research 2021;5(7):e22709 View
  8. McCarron T, Clement F, Rasiah J, Moran C, Moffat K, Gonzalez A, Wasylak T, Santana M. Patients as partners in health research: A scoping review. Health Expectations 2021;24(4):1378 View
  9. Thiblin E, Woodford J, Reuther C, Lundgren J, Lutvica N, von Essen L. Internet‐administered, low‐intensity cognitive behavioral therapy for parents of children treated for cancer: A feasibility trial (ENGAGE). Cancer Medicine 2023;12(5):6225 View
  10. Espinoza-Salgado F, Robles García R, Wakefield C, Kelada L, Sansom-Daly U, McGill B, Zentella Tusie A, Juárez García L, Cárdenas Cardos R, Zapata-Tarrés M. Adaptación cultural mexicana del programa de intervención CASCAdE para padres de supervivientes de cáncer infantil. Psicooncología 2022;19(1):63 View
  11. Hagström J, Woodford J, von Essen A, Lähteenmäki P, von Essen L. Opt-out rates and reasons for non-participation in a single-arm feasibility trial (ENGAGE) of a guided internet-administered CBT-based intervention for parents of children treated for cancer: a nested cross-sectional survey. BMJ Open 2022;12(4):e056758 View
  12. Langegård U, Cajander Å, Carlsson M, von Essen L, Ahmad A, Laurell G, Tiblom Ehrsson Y, Johansson B. Internet-based support for informal caregivers to individuals with head and neck cancer (Carer eSupport): a study protocol for the development and feasibility testing of a complex online intervention. BMJ Open 2022;12(5):e057442 View
  13. Thiblin E, Woodford J, Öhman M, von Essen L. The effect of personalised versus non-personalised study invitations on recruitment within the ENGAGE feasibility trial: an embedded randomised controlled recruitment trial. BMC Medical Research Methodology 2022;22(1) View
  14. Lundgren J, Thiblin E, Lutvica N, Reuther C, Farrand P, Woodford J, von Essen L. Concerns experienced by parents of children treated for cancer: A qualitative study to inform adaptations to an internet‐administered, low‐intensity cognitive behavioral therapy intervention. Psycho-Oncology 2023;32(2):237 View
  15. Colomer‐Lahiguera S, Steimer M, Ellis U, Eicher M, Tompson M, Corbière T, Haase K. Patient and public involvement in cancer research: A scoping review. Cancer Medicine 2023;12(14):15530 View
  16. Chiwanga F, Woodford J, Masika G, Richards D, Savi V, von Essen L. An mHealth Intervention to Improve Guardians’ Adherence to Children’s Follow-Up Care for Acute Lymphoblastic Leukemia in Tanzania (GuardiansCan Project): Protocol for a Development and Feasibility Study. JMIR Research Protocols 2023;12:e48799 View
  17. Woodford J, Reuther C, Ljungberg J, von Essen L. Involving parents of children treated for cancer in Sweden as public contributors to inform the design and conduct of an evaluation of internet-administered self-help for parents of children treated for cancer: a protocol. Research Involvement and Engagement 2024;10(1) View
  18. MacNeil M, Benoit B, Disher T, Newman A, Campbell-Yeo M. Challenges and best practices for recruiting families of children with intellectual disabilities for health research. Journal of Intellectual Disabilities 2024 View
  19. Woodford J, Wikman A, Cernvall M, Ljungman G, Romppala A, Grönqvist H, von Essen L. Study protocol for a feasibility study of an internet-administered, guided, CBT-based, self-help intervention (ENGAGE) for parents of children previously treated for cancer. BMJ Open 2018;8(6):e023708 View
  20. Reuther C, Lundgren J, Gottvall M, Ljungberg J, Woodford J, Essen L. E-therapists’ views on the acceptability and feasibility of an internet-administered, guided, low-intensity cognitive behavioural therapy intervention for parents of children treated for cancer: A qualitative study. DIGITAL HEALTH 2024;10 View
  21. van Leersum C, Jaschinski C, Bults M, van der Zwart J. Citizen involvement in research on technological innovations for health, care or well-being: a scoping review. Health Research Policy and Systems 2024;22(1) View
  22. Nic Giolla Easpaig B, Tran Y, Arnolda G, Clay-Williams R, Delaney G, Liauw W, Braithwaite J. How Do We Work as Researchers in the Real World? Mapping the Trajectory of Methodological Decision Making in Health Services Research. International Journal of Qualitative Methods 2020;19 View
  23. Pearce E, Majid A, Brown T, Shepherd R, Rising C, Wilsnack C, Thompson A, Gilkey M, Ribisl K, Lazard A, Han P, Werner-Lin A, Hutson S, Savage S. “Crying in the wilderness” the use of online support in telomere biology disorders: thematic analysis (Preprint). JMIR Formative Research 2024 View

Books/Policy Documents

  1. Cramer E, Marsh A. Technology and Health. View