This paper is in the following e-collection/theme issue:

Participatory Medicine & E-Patients (773) Innovations and Technology in Cancer Care (423) Participatory Cancer Care (87) Emotional, Social, Psychological Support for Cancer (194)

Published on in Vol 19, No 8 (2017): August

“Am I normal?” The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers

“Am I normal?” The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers

“Am I normal?” The Wishes of Patients With Lymphoma to Compare Their Patient-Reported Outcomes With Those of Their Peers

Authors of this article:

Simone Oerlemans1 Author Orcid Image ;   Lindy P Arts1 Author Orcid Image ;   Nicole J Horevoorts1, 2 Author Orcid Image ;   Lonneke V van de Poll-Franse1, 2, 3 Author Orcid Image
Article Authors Cited by (24) Tweetations (20) Metrics

Journals

  1. Weitzman E, Magane K, Wisk L. How Returning Aggregate Research Results Impacts Interest in Research Engagement and Planned Actions Relevant to Health Care Decision Making: Cohort Study. Journal of Medical Internet Research 2018;20(12):e10647 View
  2. Arts L, Oerlemans S, Tick L, Koster A, Roerdink H, van de Poll‐Franse L. More frequent use of health care services among distressed compared with nondistressed survivors of lymphoma and chronic lymphocytic leukemia: Results from the population‐based PROFILES registry. Cancer 2018;124(14):3016 View
  3. Lehmann J, Wintner L, Sztankay M, Willenbacher W, Weger R, Weyrer W, Rumpold G, Holzner B. Patient-reported outcomes and psycho-oncological screening in hematology: a practical example of routine electronic monitoring. memo - Magazine of European Medical Oncology 2020;13(3):285 View
  4. de Rooij B, Ezendam N, Mols F, Vissers P, Thong M, Vlooswijk C, Oerlemans S, Husson O, Horevoorts N, van de Poll-Franse L. Cancer survivors not participating in observational patient-reported outcome studies have a lower survival compared to participants: the population-based PROFILES registry. Quality of Life Research 2018;27(12):3313 View
  5. Thieblemont C, Howlett S, Casasnovas R, Mounier N, Perrot A, Morschhauser F, Fruchart C, Daguindau N, van Eygen K, Obéric L, Bouabdallah R, Pica G, Nicolas‐Virezelier E, Abraham J, Fitoussi O, Snauwaert S, Eisenmann J, Lionne‐Huyghe P, Bron D, Tricot S, Deeren D, Gonzalez H, Costello R, Le Du K, da Silva M, Grosicki S, Trotman J, Catalano J, Caballero D, Greil R, Cohen A, Gaulard P, Roulin L, Takeshita K, Casadebaig M, Tilly H, Coiffier B. Lenalidomide maintenance for diffuse large B‐cell lymphoma patients responding to R‐CHOP: quality of life, dosing, and safety results from the randomised controlled REMARC study. British Journal of Haematology 2020;189(1):84 View
  6. Mols F, Husson O, Oudejans M, Vlooswijk C, Horevoorts N, van de Poll-Franse L. Reference data of the EORTC QLQ-C30 questionnaire: five consecutive annual assessments of approximately 2000 representative Dutch men and women. Acta Oncologica 2018;57(10):1381 View
  7. Sztankay M, Neppl L, Wintner L, Loth F, Willenbacher W, Weger R, Weyrer W, Steurer M, Rumpold G, Holzner B. Complementing clinical cancer registry data with patient reported outcomes: A feasibility study on routine electronic patient‐reported outcome assessment for the Austrian Myelome Registry. European Journal of Cancer Care 2019;28(6) View
  8. Thong M, Mols F, Doege D, van de Poll-Franse L, Arndt V. Population-based cancer survivorship research: Experiences from Germany and the Netherlands. Journal of Cancer Policy 2018;15:87 View
  9. Derksen J, Beijer S, Koopman M, Verkooijen H, van de Poll-Franse L, May A. Monitoring potentially modifiable lifestyle factors in cancer survivors: A narrative review on currently available methodologies and innovations for large-scale surveillance. European Journal of Cancer 2018;103:327 View
  10. Vromans R, Pauws S, Bol N, van de Poll-Franse L, Krahmer E. Communicating tailored risk information of cancer treatment side effects: Only words or also numbers?. BMC Medical Informatics and Decision Making 2020;20(1) View
  11. Leahy A, Schwartz L, Li Y, Reeve B, Bekelman J, Aplenc R, Basch E. Electronic symptom monitoring in pediatric patients hospitalized for chemotherapy. Cancer 2021;127(16):2980 View
  12. Oerlemans S, Arts L, Kieffer J, Prins J, Hoogendoorn M, van der Poel M, Koster A, Lensen C, Stevens W, Issa D, Pruijt J, Oosterveld M, van der Griend R, Nijziel M, Tick L, Posthuma E, van de Poll-Franse L. Web-Based Return of Individual Patient-Reported Outcome Results Among Patients With Lymphoma: Randomized Controlled Trial. Journal of Medical Internet Research 2021;23(12):e27886 View
  13. van den Hurk C, Mols F, Eicher M, Chan R, Becker A, Geleijnse G, Walraven I, Coolbrandt A, Lustberg M, Velikova G, Charalambous A, Koczwara B, Howell D, Basch E, van de Poll-Franse L. A Narrative Review on the Collection and Use of Electronic Patient-Reported Outcomes in Cancer Survivorship Care with Emphasis on Symptom Monitoring. Current Oncology 2022;29(6):4370 View
  14. Vromans R, van Eenbergen M, Geleijnse G, Pauws S, van de Poll-Franse L, Krahmer E. Exploring Cancer Survivor Needs and Preferences for Communicating Personalized Cancer Statistics From Registry Data: Qualitative Multimethod Study. JMIR Cancer 2021;7(4):e25659 View
  15. Albers E, Fraterman I, Walraven I, Wilthagen E, Schagen S, van der Ploeg I, Wouters M, van de Poll-Franse L, de Ligt K. Visualization formats of patient-reported outcome measures in clinical practice: a systematic review about preferences and interpretation accuracy. Journal of Patient-Reported Outcomes 2022;6(1) View
  16. Vissers P, Vink G, Koelink M, Koopman M, Arts L, Oerlemans S, May A, van de Poll-Franse L, van Erning F. Evaluation of an individual feedback report on patient-reported outcomes in the Prospective Dutch ColoRectal Cancer cohort. Supportive Care in Cancer 2022;30(9):7303 View
  17. van de Poll-Franse L, Horevoorts N, Schoormans D, Beijer S, Ezendam N, Husson O, Oerlemans S, Schagen S, Hageman G, Van Deun K, van den Hurk C, van Eenbergen M, Mols F, Rooij B, Raijmakers N, Vlooswijk C, Bonhof C, Ekels A, Hoedjes M, van Cappellen – van Maldegem S, Ham L, van de Graaf D, van Roij J. Measuring Clinical, Biological, and Behavioral Variables to Elucidate Trajectories of Patient-Reported Outcomes: The PROFILES Registry. JNCI: Journal of the National Cancer Institute 2022;114(6):800 View
  18. Vromans R, Hommes S, Clouth F, Lo-Fo-Wong D, Verbeek X, van de Poll-Franse L, Pauws S, Krahmer E. Need for numbers: assessing cancer survivors’ needs for personalized and generic statistical information. BMC Medical Informatics and Decision Making 2022;22(1) View
  19. Vromans R, Pauws S, van de Poll-Franse L, Krahmer E. Effects of comparative information when communicating personalized risks of treatment outcomes: an experimental study. Journal of Risk Research 2023;26(3):324 View
  20. Mols F, Schoormans D, Netea-Maier R, Husson O, Beijer S, Van Deun K, Zandee W, Kars M, Wouters van Poppel P, Simsek S, van Battum P, Kisters J, de Boer J, Massolt E, van Leeuwaarde R, Oranje W, Roerink S, Vermeulen M, van de Poll-Franse L. Determinants and mediating mechanisms of quality of life and disease-specific symptoms among thyroid cancer patients: the design of the WaTCh study. Thyroid Research 2023;16(1) View
  21. Kim M, Graziano F, Tadros A, Allen R, Nelson J. Patient-Reported Outcome Measures in Breast Cancer Surgery. Current Surgery Reports 2024;12(5):67 View
  22. Kim M, Gilliland J, Parnes M, Bruce C, Stern C, Allen R, Pusic A, Tadros A, Nelson J. BREAST-Q REACT: Qualitative Assessment of the Design, Functionality, and Clinical Utility of a New Score Interpretation Tool. Annals of Surgical Oncology 2024;31(7):4498 View

Books/Policy Documents

  1. Giesinger J, Lehmann J. Handbook of Quality of Life in Cancer. View
  2. Kluger B, Miyasaki J. Neuropalliative Care, Part I. View