Published on in Vol 19, No 2 (2017): February

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs

Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de… https://t.co/z892irIOpB

4:15 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

4:18 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

4:22 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

4:25 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

4:25 PM · Apr 12, 2019

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A quien interese la estructura de necesidades de información en web para #pacientes #FFPaciente https://t.co/5ZNOxk6knW

4:27 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

4:28 PM · Apr 12, 2019

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#FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

4:30 PM · Apr 12, 2019

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RT @AieSalud: #FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

4:34 PM · Apr 12, 2019

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RT @AieSalud: #FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

4:37 PM · Apr 12, 2019

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RT @ffpaciente: A quien interese la estructura de necesidades de información en web para #pacientes #FFPaciente https://t.co/5ZNOxk6knW

5:02 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

5:02 PM · Apr 12, 2019

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RT @AieSalud: #FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

5:02 PM · Apr 12, 2019

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RT @AieSalud: #FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

5:33 PM · Apr 12, 2019

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RT @ffpaciente: A quien interese la estructura de necesidades de información en web para #pacientes #FFPaciente https://t.co/5ZNOxk6knW

5:33 PM · Apr 12, 2019

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RT @AieSalud: #FFpaciente por este twit sobre estudios de webs para #pacientes https://t.co/uv5i4eDQph

7:03 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

7:21 PM · Apr 12, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

9:34 PM · Apr 12, 2019

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RT @ffpaciente: A quien interese la estructura de necesidades de información en web para #pacientes #FFPaciente https://t.co/5ZNOxk6knW

1:11 PM · Apr 13, 2019

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RT @ffpaciente: Uso de #Internet por parte de padres de niños con #EnfermedadesRaras: hallazgos de un estudio sobre necesidades de madres y…

1:39 PM · Apr 13, 2019

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/oApFIF7rmR

3:08 PM · Feb 28, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/Xxskexx9xz

3:08 PM · Feb 28, 2017

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Celebrate #raredisease day with this article about how #digitalhealth can build #patientempowermenthttps://t.co/wKl19OrrUp

3:27 PM · Feb 28, 2017

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Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs… https://t.co/TvpBySYc5e

3:29 PM · Feb 28, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

3:31 PM · Feb 28, 2017

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JMedInternetRes: "Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Ne… https://t.co/1NEBhtiseJ

3:33 PM · Feb 28, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

3:35 PM · Feb 28, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/E2N7US3Wmz

3:39 PM · Feb 28, 2017

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RT @manyez: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/…

3:42 PM · Feb 28, 2017

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RT @manyez: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/…

3:51 PM · Feb 28, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

4:08 PM · Feb 28, 2017

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Parents of children with #RareDisease habitually use Internet for condition info, Facebook used for info&support https://t.co/vw9ien72Cx

4:25 PM · Feb 28, 2017

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In honor of Rare Diseases Day: Internet Use by Parents of Children With Rare Conditions https://t.co/CS2MxUUo1O

4:28 PM · Feb 28, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web #InformationNeeds https://t.co/YYWJpR1WXQ

6:49 PM · Feb 28, 2017

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RT @JMedInternetRes: Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: https://t.co/yhHR8VOnCf & http…

12:27 AM · Mar 01, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

6:58 AM · Mar 01, 2017

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RT @JMedInternetRes: Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: https://t.co/yhHR8VOnCf & http…

6:58 AM · Mar 01, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

11:58 AM · Mar 01, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/WcQyImddH6

1:06 PM · Mar 01, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study https://t.co/9o76YH2Qoe #eHealth #mhealth #telehealth

1:55 PM · Mar 01, 2017

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RT @salumedia: Internet Use by Parents of Children With Rare Conditions: Findings From a Study https://t.co/9o76YH2Qoe #eHealth #mhealth #…

6:36 PM · Mar 01, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/jJcBNyQWLZ

11:49 AM · Mar 02, 2017

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RT @JMedInternetRes: Internet Use by #Parents of Children With #Rare Conditions: Study on Parents’ Web Information Needs https://t.co/V3DIZ…

1:22 PM · Mar 02, 2017

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"Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs" https://t.co/15yVu5G1kb

2:21 PM · Mar 02, 2017

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Shared dialogues with professionals needed a call for the #patient centered infrastructure https://t.co/VDyAkhJrVL #pcit #hcsm #healthlit

5:14 PM · Mar 02, 2017

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Shared dialogues with professionals needed a call for the #patient centered infrastructure https://t.co/ZfmBvPOcqP #pcit #hcsm #healthlit

5:15 PM · Mar 02, 2017

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Internet Use by Parents of Children With Rare Conditions https://t.co/hpCXUHoAfb #RareDiseases #eHealth

1:15 PM · Mar 05, 2017

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RT @jgjeannot: Internet Use by Parents of Children With Rare Conditions https://t.co/hpCXUHoAfb #RareDiseases #eHealth

1:23 PM · Mar 05, 2017

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RT @salumedia: Internet Use by Parents of Children With Rare Conditions: Findings From a Study https://t.co/9o76YH2Qoe #eHealth #mhealth #…

3:43 PM · Mar 05, 2017

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RT @jgjeannot Internet Use by Parents of Children With Rare Conditions https://t.co/zq7SBFjXBX #RareDiseases #eHealth

10:22 PM · Mar 05, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From Study https://t.co/7lyvDdPXns #pharmamktg #hcsm #raredisease #hcmktg

11:53 PM · Mar 05, 2017

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RT @HCSMnews: Internet Use by Parents of Children With Rare Conditions: Findings From Study https://t.co/7lyvDdPXns #pharmamktg #hcsm #rare…

1:26 AM · Mar 06, 2017

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子供の稀な病気について親はネットやソーシャルメディアで情報を探す。これにより、親同士で経験や情報を共有し合い、子供の状態についての知識や理解を深める。オンラインの資源は意思決定や介助、マネジメントに好影響だが、専門医との共有等は微妙。https://t.co/LZlm91apvy

2:05 AM · Mar 06, 2017

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RT @uranus_2: 子供の稀な病気について親はネットやソーシャルメディアで情報を探す。これにより、親同士で経験や情報を共有し合い、子供の状態についての知識や理解を深める。オンラインの資源は意思決定や介助、マネジメントに好影響だが、専門医との共有等は微妙。https://…

3:13 AM · Mar 06, 2017

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Internet Use by Parents of Children With Rare Conditions https://t.co/7FGzXxf7Os #pharmamktg #hcsm #raredisease #hcmktg @HCSMnews #epharma

2:07 PM · Mar 06, 2017

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RT @HealthcareSMM: Internet Use by Parents of Children With Rare Conditions https://t.co/7FGzXxf7Os #pharmamktg #hcsm #raredisease #hcmktg

3:39 PM · Mar 06, 2017

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RT @HealthcareSMM: Internet Use by Parents of Children With Rare Conditions https://t.co/7FGzXxf7Os #pharmamktg #hcsm #raredisease #hcmktg

4:44 PM · Mar 06, 2017

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Internet Use by Parents of Children with rare conditions https://t.co/nb6W209KrY I personally am... https://t.co/wAFCvJLukd

5:10 PM · Mar 06, 2017

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RT @HealthcareSMM: Internet Use by Parents of Children With Rare Conditions https://t.co/7FGzXxf7Os #pharmamktg #hcsm #raredisease #hcmktg

5:18 PM · Mar 06, 2017

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RT @NadiaBodkin: Internet Use by Parents of Children with rare conditions https://t.co/nb6W209KrY I personally am... https://t.co/wAFCvJL…

12:34 AM · Mar 07, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/4pdwitVoFd

12:10 PM · Mar 08, 2017

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RT @JBBC: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/4p…

12:16 PM · Mar 08, 2017

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RT @JBBC: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/4p…

12:29 PM · Mar 08, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https://t.co/U72KFmuYjG

5:33 PM · Apr 29, 2017

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RT @22Q11_Ireland: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https:…

5:35 PM · Apr 29, 2017

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RT @22Q11_Ireland: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https:…

11:07 PM · Apr 29, 2017

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RT @22Q11_Ireland: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https:…

8:44 AM · Apr 30, 2017

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RT @22Q11_Ireland: Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents’ Web Information Needs https:…

10:03 AM · Apr 30, 2017

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Possible similarities for adults with rare conditions ... HCPs need to keep up and embrace patient needs ... and we… https://t.co/x87W2adxmk

2:01 PM · Apr 30, 2017

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RT @UnaHendroff: Possible similarities for adults with rare conditions ... HCPs need to keep up and embrace patient needs ... and we need I…

5:02 PM · Apr 30, 2017

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Internet Use by Parents of Children With Rare Conditions: Findings From a Study on Parents' Web Information Needs. https://t.co/PphPvKxLJg

4:47 AM · Sep 14, 2017

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Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: https://t.co/yhHR8VOnCf &… https://t.co/x1aNDBtrHD

3:17 PM · Feb 28, 2017

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JMedInternetRes: "Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: … https://t.co/9tf67IO4zV

3:18 PM · Feb 28, 2017

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RT @JMedInternetRes: Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: https://t.co/yhHR8VOnCf & http…

3:23 PM · Feb 28, 2017

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RT @JMedInternetRes: Happy #rarediseaseday! JMIR celebrates role of the Internet for rare dis w/ 2 articles: https://t.co/yhHR8VOnCf & http…

3:26 PM · Feb 28, 2017

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