This paper is in the following e-collection/theme issue:

Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (832) Participatory Medicine & E-Patients (773) Patient-Reported Outcome Measures (PROMs) (288)

Published on in Vol 18, No 5 (2016): May

Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level

Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level

Exploring Concordance of Patient-Reported Information on PatientsLikeMe and Medical Claims Data at the Patient Level

Authors of this article:

Gabriel S Eichler1 Author Orcid Image ;   Elisenda Cochin1 Author Orcid Image ;   Jian Han2 Author Orcid Image ;   Sylvia Hu2 Author Orcid Image ;   Timothy E Vaughan1 Author Orcid Image ;   Paul Wicks1 Author Orcid Image ;   Charles Barr2 Author Orcid Image ;   Jenny Devenport2 Author Orcid Image
Article Authors Cited by (24) Tweetations (12) Metrics

Journals

  1. Kariotis T, Ball M, Greshake Tzovaras B, Dennis S, Sahama T, Johnston C, Almond H, Borda A. Emerging health data platforms: From individual control to collective data governance. Data & Policy 2020;2 View
  2. Jacobsen P, Thorley E, Curran C. Real-world patient experience with sexual dysfunction and antidepressant use in patients with self-reported depression: A cross-sectional survey study. Neurology, Psychiatry and Brain Research 2020;36:57 View
  3. Yu H, Chen J, Wang J, Chiu Y, Qiu H, Wang L. Identification of the Differential Effect of City-Level on the Gini Coefficient of Health Service Delivery in Online Health Community. International Journal of Environmental Research and Public Health 2019;16(13):2314 View
  4. Eaneff S, Wang V, Hanger M, Levy M, Mealy M, Brandt A, Eek D, Ratchford J, Nyberg F, Goodall J, Wicks P. Patient perspectives on neuromyelitis optica spectrum disorders: Data from the PatientsLikeMe online community. Multiple Sclerosis and Related Disorders 2017;17:116 View
  5. Rockhold F, Tenenbaum J, Richesson R, Marsolo K, O’Brien E. Design and analytic considerations for using patient-reported health data in pragmatic clinical trials: report from an NIH Collaboratory roundtable. Journal of the American Medical Informatics Association 2020;27(4):634 View
  6. Murage M, Anderson A, Casso D, Oliveria S, Ojeh C, Muram T, Merola J, Zbrozek A, Araujo A. Treatment patterns, adherence, and persistence among psoriasis patients treated with biologics in a real-world setting, overall and by disease severity. Journal of Dermatological Treatment 2019;30(2):141 View
  7. Matthews P, Block V, Leocani L. E-health and multiple sclerosis. Current Opinion in Neurology 2020;33(3):271 View
  8. Murage M, Anderson A, Oliveria S, Casso D, Ojeh C, Muram T, Merola J, Araujo A. Healthcare resource utilization and costs among psoriasis patients treated with biologics, overall and by disease severity. Journal of Medical Economics 2018;21(8):745 View
  9. Wicks P, McCaffrey S, Goodwin K, Black R, Hoole M, Heywood J. A Modular Health-Related Quality of Life Instrument for Electronic Assessment and Treatment Monitoring: Web-Based Development and Psychometric Validation of Core Thrive Items. Journal of Medical Internet Research 2019;21(1):e12075 View
  10. Krishnamurthy M, Marcinek P, Malik K, Afzal M. Representing Social Network Patient Data as Evidence-Based Knowledge to Support Decision Making in Disease Progression for Comorbidities. IEEE Access 2018;6:12951 View
  11. Blaser D, Eaneff S, Loudon-Griffiths J, Roberts S, Phan P, Wicks P, Weatherall J. Comparison of rates of nausea side effects for prescription medications from an online patient community versus medication labels: an exploratory analysis. AAPS Open 2017;3(1) View
  12. Springer J, Kermani T, Sreih A, Shaw D, Young K, Burroughs C, Merkel P. Clinical Characteristics of an Internet-Based Cohort of Patient-Reported Diagnosis of Granulomatosis With Polyangiitis and Microscopic Polyangiitis: Observational Study. Journal of Medical Internet Research 2020;22(7):e17231 View
  13. Meguerditchian A, Tamblyn R, Meterissian S, Law S, Prchal J, Winslade N, Stern D. Adjuvant Endocrine Therapy in Breast Cancer: A Novel e-Health Approach in Optimizing Treatment for Seniors (OPTIMUM): A Two-Group Controlled Comparison Pilot Study. JMIR Research Protocols 2016;5(4):e199 View
  14. Nyman E, Vaughan T, Desta B, Wang X, Barut V, Emmas C. Characteristics and Symptom Severity of Patients Reporting Systemic Lupus Erythematosus in the PatientsLikeMe Online Health Community: A Retrospective Observational Study. Rheumatology and Therapy 2020;7(1):201 View
  15. Risson V, Ghodge B, Bonzani I, Korn J, Medin J, Saraykar T, Sengupta S, Saini D, Olson M. Linked Patient-Reported Outcomes Data From Patients With Multiple Sclerosis Recruited on an Open Internet Platform to Health Care Claims Databases Identifies a Representative Population for Real-Life Data Analysis in Multiple Sclerosis. Journal of Medical Internet Research 2016;18(9):e249 View
  16. Stausberg J, Harkener S, Semler S. Recent Trends in Patient Registries for Health Services Research. Methods of Information in Medicine 2021;60(S 01):e1 View
  17. Selvanayagam N, Mowbray F, Clayton N, Soomro A, Varner C, McLeod S, de Wit K. Reliability of patient‐reported outcome measures: Hemorrhage, anticoagulant, antiplatelet medication use. Research and Practice in Thrombosis and Haemostasis 2021;5(4):e12501 View
  18. Kellier-Steele N, Casso D, Anderson A, Oliveria S, Motsko S. Assessing the incidence of osteosarcoma among teriparatide-treated patients using linkage of commercial pharmacy and state cancer registry data, contributing to the removal of boxed warning and other labeling changes. Bone 2022;160:116394 View
  19. Dicuonzo G, Donofrio F, Fusco A, Shini M. Healthcare system: Moving forward with artificial intelligence. Technovation 2023;120:102510 View
  20. Novoa M, Bordini C. Higher frequency of medication overuse headache in patients attended by neurologists in Lima, Peru. Headache Medicine 2021;12(2):128 View
  21. Abdelraheem O, Sami D, Salama M. Online Health Communities: an alternative feasible data registry tool for developing countries. Health Research Policy and Systems 2023;21(1) View
  22. Weiss M, Holzer M, Muehlensiepen F, Ignatyev Y, Fiehn C, Bauhammer J, Schmidt J, Schlüter S, Dihkan A, Scheibner D, Schneider U, Valor-Mendez L, Corte G, Gupta L, Chinoy H, Lundberg I, Cavagna L, Distler J, Schett G, Knitza J. Healthcare utilization and unmet needs of patients with antisynthetase syndrome: An international patient survey. Rheumatology International 2023;43(10):1925 View
  23. Szeto M, Hook Sobotka M, Woolhiser E, Parmar P, Wu J, Alhanshali L, Dellavalle R. PatientsLikeMe and Online Patient Support Communities in Dermatology. JMIR Dermatology 2024;7:e50453 View

Books/Policy Documents

  1. Haque R, Nazir A. Drug Design: Principles and Applications. View