Published on in Vol 18, No 5 (2016): May

Therapeutic Affordances of Online Support Group Use in Women With Endometriosis

Therapeutic Affordances of Online Support Group Use in Women With Endometriosis

Therapeutic Affordances of Online Support Group Use in Women With Endometriosis

Authors of this article:

Amie Shoebotham1 Author Orcid Image ;   Neil S. Coulson1 Author Orcid Image

Journals

  1. Coulson N, Bullock E, Rodham K. Exploring the Therapeutic Affordances of Self-Harm Online Support Communities: An Online Survey of Members. JMIR Mental Health 2017;4(4):e44 View
  2. Denouel A, Fauconnier A, Torre A. Republication de : Attentes des femmes atteintes d’endométriose : Quelle information apporter ? RPC Endométriose CNGOF-HAS. La Revue Sage-Femme 2018;17(4):191 View
  3. Huchon C, Aubry G, Ploteau S, Fauconnier A. Signes spécifiques cliniques évocateurs de l’endométriose (hors adénomyose) et questionnaires de symptômes, de douleur et qualité de vie, RPC Endométriose CNGOF-HAS. Gynécologie Obstétrique Fertilité & Sénologie 2018;46(3):168 View
  4. Banbury A, Nancarrow S, Dart J, Gray L, Parkinson L. Telehealth Interventions Delivering Home-based Support Group Videoconferencing: Systematic Review. Journal of Medical Internet Research 2018;20(2):e25 View
  5. Turner J. Online Support Groups: The Good, the Bad, and the Motivated. Journal of Consumer Health on the Internet 2017;21(1):11 View
  6. Smedley R, Coulson N. A thematic analysis of messages posted by moderators within health-related asynchronous online support forums. Patient Education and Counseling 2017;100(9):1688 View
  7. Grimes C, Balk E, Dieter A, Singh R, Wieslander C, Jeppson P, Aschkenazi S, Kim J, Truong M, Gupta A, Keltz J, Hobson D, Sheyn D, Petruska S, Adam G, Meriwether K. Guidance for gynecologists utilizing telemedicine during COVID‐19 pandemic based on expert consensus and rapid literature reviews. International Journal of Gynecology & Obstetrics 2020;150(3):288 View
  8. Denouel A, Fauconnier A, Torre A. Attentes des femmes atteintes d’endométriose : quelle information apporter ? RPC Endométriose CNGOF-HAS. Gynécologie Obstétrique Fertilité & Sénologie 2018;46(3):214 View
  9. Chauvet P, Guiguet-Auclair C, Comptour A, Denouël A, Gerbaud L, Canis M, Bourdel N. Feelings and expectations in endometriosis: Analysis of open comments from a cohort of endometriosis patients. Journal of Gynecology Obstetrics and Human Reproduction 2018;47(7):281 View
  10. Laukka E, Rantakokko P, Suhonen M. Consumer-led health-related online sources and their impact on consumers: An integrative review of the literature. Health Informatics Journal 2019;25(2):247 View
  11. O’Hara R, Rowe H, Fisher J. Self-management in condition-specific health: a systematic review of the evidence among women diagnosed with endometriosis. BMC Women's Health 2019;19(1) View
  12. Dodemaide P, Joubert L, Merolli M, Hill N. Exploring the Therapeutic and Nontherapeutic Affordances of Social Media Use by Young Adults with Lived Experience of Self-Harm or Suicidal Ideation: A Scoping Review. Cyberpsychology, Behavior, and Social Networking 2019;22(10):622 View
  13. Joglekar S, Sastry N, Coulson N, Taylor S, Patel A, Duschinsky R, Anand A, Jameson Evans M, Griffiths C, Sheikh A, Panzarasa P, De Simoni A. How Online Communities of People With Long-Term Conditions Function and Evolve: Network Analysis of the Structure and Dynamics of the Asthma UK and British Lung Foundation Online Communities. Journal of Medical Internet Research 2018;20(7):e238 View
  14. Sormunen T, Karlgren K, Aanesen A, Fossum B, Westerbotn M. The role of social media for persons affected by infertility. BMC Women's Health 2020;20(1) View
  15. Coulson N. Affordance theory can help understanding of individuals' use of online support communities. British Journal of Health Psychology 2017;22(3):379 View
  16. Islind A, Snis U, Lindroth T, Lundin J, Cerna K, Steineck G. The Virtual Clinic: Two-sided Affordances in Consultation Practice. Computer Supported Cooperative Work (CSCW) 2019;28(3-4):435 View
  17. Halls A, Nunes D, Muller I, Angier E, Grimshaw K, Santer M. ‘Hope you find your ‘eureka’ moment soon’: a qualitative study of parents/carers’ online discussions around allergy, allergy tests and eczema. BMJ Open 2018;8(11):e022861 View
  18. Lupton D, Maslen S. How Women Use Digital Technologies for Health: Qualitative Interview and Focus Group Study. Journal of Medical Internet Research 2019;21(1):e11481 View
  19. Almugathwi M, Wearden A, Green K, Hill-Feltham P, Powell R. Online support group users’ perceptions and experiences of bone-anchored hearing aids (BAHAs): a qualitative study. International Journal of Audiology 2020;59(11):850 View
  20. O'Leary K, Coulson N, Perez-Vallejos E, McAuley D. Towards understanding how individuals with inflammatory bowel disease use contemporary social media platforms for health-related discourse. Computers in Human Behavior 2020;112:106463 View
  21. Perkins V, Coulson N, Davies E. Using Online Support Communities for Tourette Syndrome and Tic Disorders: Online Survey of Users’ Experiences. Journal of Medical Internet Research 2020;22(11):e18099 View
  22. Fernley N. That one doctor. . . Qualitative thematic analysis of 49 women’s written accounts of their endometriosis diagnosis. Journal of Endometriosis and Pelvic Pain Disorders 2021;13(1):40 View
  23. Katz M, Nandi N. Social Media and Medical Education in the Context of the COVID-19 Pandemic: Scoping Review. JMIR Medical Education 2021;7(2):e25892 View
  24. Temmesen C, Nielsen H, Andersen H, Birch Petersen K, Clemensen J. Using Social Media for Qualitative Health Research in Danish Women of Reproductive Age: Online Focus Group Study on Facebook. JMIR Formative Research 2021;5(5):e24108 View
  25. Wilson C, Stock J. ‘Social media comes with good and bad sides, doesn’t it?’ A balancing act of the benefits and risks of social media use by young adults with long-term conditions. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2021;25(5):515 View
  26. Smith K, Langer S. The Impact of Parental Bereavement on Young People: A Thematic Analysis of Using Online Web Forums as a Method of Coping. OMEGA - Journal of Death and Dying 2023;87(3):921 View
  27. Wren G, Mercer J. Dismissal, distrust, and dismay: A phenomenological exploration of young women’s diagnostic experiences with endometriosis and subsequent support. Journal of Health Psychology 2022;27(11):2549 View
  28. Márki G, Vásárhelyi D, Rigó A, Kaló Z, Ács N, Bokor A. Challenges of and possible solutions for living with endometriosis: a qualitative study. BMC Women's Health 2022;22(1) View
  29. Holowka E. Mediating Pain: Navigating Endometriosis on Social Media. Frontiers in Pain Research 2022;3 View
  30. Dodemaide P, Merolli M, Hill N, Joubert L. Therapeutic Affordances of Social Media and Associated Quality of Life Outcomes in Young Adults. Social Science Computer Review 2023;41(1):44 View
  31. Sormunen T, Westerbotn M, Aanesen A, Fossum B, Karlgren K. Social media in the infertile community—using a text analysis tool to identify the topics of discussion on the multitude of infertility blogs. Women's Health 2021;17 View
  32. Perro D, Seglah H, Abrahams V, Weckesser A, Griffith V. Black women’s menstrual and reproductive health: a critical call for action in the UK. BMJ 2022:o3052 View
  33. Soós M, Coulson N, Davies E. Exploring Social Support in an Online Support Community for Tourette Syndrome and Tic Disorders: Analysis of Postings. Journal of Medical Internet Research 2022;24(10):e34403 View
  34. Coulson N, Buchanan H. The Role of Online Support Groups in Helping Individuals Affected by HIV and AIDS: Scoping Review of the Literature. Journal of Medical Internet Research 2022;24(7):e27648 View
  35. Warr D, Luscombe G, Couch D. Hype, evidence gaps and digital divides: Telehealth blind spots in rural Australia. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 2023;27(4):588 View
  36. Nieves-Vázquez C, Detrés-Marquéz A, Torres-Reverón A, Appleyard C, Llorens-De Jesús A, Resto I, López-Rodríguez V, Ramos-Echevarría P, Castro E, Flores I. Feasibility and acceptability of an adapted environmental enrichment intervention for endometriosis: A pilot study. Frontiers in Global Women's Health 2023;3 View
  37. Linos E, Lasky-Fink J, Halley M, Sarkar U, Mangurian C, Sabry H, Linos E, Jagsi R. Impact of Sexual Harassment and Social Support on Burnout in Physician Mothers. Journal of Women's Health 2022;31(7):932 View
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  40. Broc G, Porro B. Psychological adaptation in women with endometriosis: current knowledge and future research perspectives. Psychology, Health & Medicine 2023;28(2):509 View
  41. Ilschner S, Neeman T, Parker M, Phillips C. Communicating Endometriosis Pain in France and Australia: An Interview Study. Frontiers in Global Women's Health 2022;3 View
  42. Lindgren S, Richardson L. Endometriosis pain and epistemic community: Mapping discourses in online discussions among sufferers. Social Science & Medicine 2023;326:115889 View
  43. Handelsman N, Sherman K, Pereira C, Fernando M. Locked inside: Living with uncertainty in self-management for endometriosis during the COVID-19 pandemic. Journal of Psychosomatic Research 2023;170:111327 View
  44. Moumane K, Idri A. Mobile applications for endometriosis management functionalities: Analysis and potential. Scientific African 2023;21:e01833 View
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  46. Talbot J, Charron V, Konkle A. A Tumblr thematic analysis of perinatal health: Where users go to seek support. Open Health 2023;4(1) View
  47. Chua S, Eow L, Poh K. Patient Support Groups in Rheumatic Diseases: An Evolving and Essential Component of Patient Care. Indian Journal of Rheumatology 2023;18(Suppl 1):S54 View
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  50. Burke E, Di Renna T, Mustafa N, Ginter C, Carter W, Corkery C, Sheffe S, Wilson R, Lemos N, Bosma R. Empowered management for pelvic pain: The experiences of women with persistent pelvic pain participating in an online self-directed self-management program while they wait for interprofessional care. Women's Health 2024;20 View
  51. Mettela S, Chima M, Costigan H, Stuckey-Peyrot H, Baweja R, Riley K. “Pap smear horror stories, self loathing, feeling like I was less of a woman”: A qualitative content analysis of an online vaginismus forum. Journal of Endometriosis and Pelvic Pain Disorders 2024;16(2):89 View
  52. Vardell E, Wang T, Linares B. Infertility Consumer Health Information and Resources. Journal of Consumer Health on the Internet 2024;28(1):63 View
  53. Arbeena , Asif M. Social networking: An analysis of health-related social support messages posted in a Facebook group for Kashmiri women. Health Marketing Quarterly 2024;41(3):271 View
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Books/Policy Documents

  1. Holowka E, Woods S, Pahayahay A, Roy M, Khalili-Mahani N. Digital Human Modeling and Applications in Health, Safety, Ergonomics and Risk Management. AI, Product and Service. View