This paper is in the following e-collection/theme issue:

Telehealth and Telemonitoring (1575)

Published on in Vol 18, No 2 (2016): February

Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study

Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study

Utilizing Remote Real-Time Videoconferencing to Expand Access to Cancer Genetic Services in Community Practices: A Multicenter Feasibility Study

Authors of this article:

Angela Bradbury1, 2, 3 Author Orcid Image ;   Linda Patrick-Miller4, 5 Author Orcid Image ;   Diana Harris1 Author Orcid Image ;   Evelyn Stevens1 Author Orcid Image ;   Brian Egleston6 Author Orcid Image ;   Kyle Smith1 Author Orcid Image ;   Rebecca Mueller1 Author Orcid Image ;   Amanda Brandt1 Author Orcid Image ;   Jill Stopfer1 Author Orcid Image ;   Shea Rauch1 Author Orcid Image ;   Andrea Forman7 Author Orcid Image ;   Rebecca Kim1 Author Orcid Image ;   Dominique Fetzer1 Author Orcid Image ;   Linda Fleisher8 Author Orcid Image ;   Mary Daly7 Author Orcid Image ;   Susan Domchek1, 2, 9 Author Orcid Image
Article Authors Cited by (74) Tweetations (12) Metrics

Journals

  1. McCuaig J, Armel S, Care M, Volenik A, Kim R, Metcalfe K. Next-Generation Service Delivery: A Scoping Review of Patient Outcomes Associated with Alternative Models of Genetic Counseling and Genetic Testing for Hereditary Cancer. Cancers 2018;10(11):435 View
  2. Barsom E, van Hees E, Bemelman W, Schijven M. Measuring patient satisfaction with video consultation: a systematic review of assessment tools and their measurement properties. International Journal of Technology Assessment in Health Care 2020;36(4):356 View
  3. Weissman S, Zellmer K, Gill N, Wham D. Implementing a Virtual Health Telemedicine Program in a Community Setting. Journal of Genetic Counseling 2018;27(2):323 View
  4. Thiruchelvam P, Fisher C, Leff D, Domchek S. Pervasive genetic testing. The Lancet 2018;391(10135):2089 View
  5. Lévesque E, Hagan J, Knoppers B, Simard J. Organizational challenges to equity in the delivery of services within a new personalized risk-based approach to breast cancer screening. New Genetics and Society 2019;38(1):38 View
  6. Beri N, Patrick‐Miller L, Egleston B, Hall M, Domchek S, Daly M, Ganschow P, Grana G, Olopade O, Fetzer D, Brandt A, Chambers R, Clark D, Forman A, Gaber R, Gulden C, Horte J, Long J, Lucas T, Madaan S, Mattie K, McKenna D, Montgomery S, Nielsen S, Powers J, Rainey K, Rybak C, Savage M, Seelaus C, Stoll J, Stopfer J, Yao X, Bradbury A. Preferences for in‐person disclosure: Patients declining telephone disclosure characteristics and outcomes in the multicenter Communication Of GENetic Test Results by Telephone study. Clinical Genetics 2019;95(2):293 View
  7. Solomons N, Lamb A, Lucas F, McDonald E, Miesfeldt S. Examination of the Patient-Focused Impact of Cancer Telegenetics Among a Rural Population: Comparison with Traditional In-Person Services. Telemedicine and e-Health 2018;24(2):130 View
  8. McCarthy A. Persistent Underutilization of BRCA1/2 Testing Suggest the Need for New Approaches to Genetic Testing Delivery. JNCI: Journal of the National Cancer Institute 2019;111(8):751 View
  9. Childers C, Childers K, Maggard-Gibbons M, Macinko J. National Estimates of Genetic Testing in Women With a History of Breast or Ovarian Cancer. Journal of Clinical Oncology 2017;35(34):3800 View
  10. King E, Mahon S. Genetic Testing: Challenges and Changes in Testing for Hereditary Cancer Syndromes. Clinical Journal of Oncology Nursing 2017;21(5):589 View
  11. Desai A, Perpich M, Godley L. Clinical Assessment and Diagnosis of Germline Predisposition to Hematopoietic Malignancies: The University of Chicago Experience. Frontiers in Pediatrics 2017;5 View
  12. Hamilton J, Abdiwahab E, Edwards H, Fang M, Jdayani A, Breslau E. Primary care providers’ cancer genetic testing-related knowledge, attitudes, and communication behaviors: A systematic review and research agenda. Journal of General Internal Medicine 2017;32(3):315 View
  13. Roberts M, Wood E, Gaieski J, Bradbury A. Possible barriers for genetic counselors returning actionable genetic research results across state lines. Genetics in Medicine 2017;19(11):1202 View
  14. Yung R, Korde L. Hereditary Cancer Evaluation in 2019—a Rapidly Evolving Landscape. JAMA Oncology 2019;5(11):1539 View
  15. Roberts M, Dotson W, DeVore C, Bednar E, Bowen D, Ganiats T, Green R, Hurst G, Philp A, Ricker C, Sturm A, Trepanier A, Williams J, Zierhut H, Wilemon K, Hampel H. Delivery Of Cascade Screening For Hereditary Conditions: A Scoping Review Of The Literature. Health Affairs 2018;37(5):801 View
  16. Jacobs C, Patch C, Michie S. Communication about genetic testing with breast and ovarian cancer patients: a scoping review. European Journal of Human Genetics 2019;27(4):511 View
  17. Sirintrapun S, Lopez A. Telemedicine in Cancer Care. American Society of Clinical Oncology Educational Book 2018;(38):540 View
  18. Orlando J, Beard M, Kumar S, Borsci S. Systematic review of patient and caregivers’ satisfaction with telehealth videoconferencing as a mode of service delivery in managing patients’ health. PLOS ONE 2019;14(8):e0221848 View
  19. Terry A, Wylie A, Raspa M, Vogel B, Sanghavi K, Djurdjinovic L, Caggana M, Bodurtha J. Clinical models of telehealth in genetics: A regional telegenetics landscape. Journal of Genetic Counseling 2019;28(3):673 View
  20. Palter V, Baker N, Rabeneck L, Tinmouth J, Gagliardi A, Kennedy E, Carroll J, Gallinger S, Baxter N. A framework to build capacity for a reflex-testing program for Lynch syndrome. Genetics in Medicine 2019;21(6):1381 View
  21. Erwin D, LaMaire C, Espana A, Eble T, Dhar S. Financial barriers in a county genetics clinic: Problems and solutions. Journal of Genetic Counseling 2020;29(4):678 View
  22. Cohen S, Bradbury A, Henderson V, Hoskins K, Bednar E, Arun B. Genetic Counseling and Testing in a Community Setting: Quality, Access, and Efficiency. American Society of Clinical Oncology Educational Book 2019;(39):e34 View
  23. Fournier D, Bazzell A, Dains J. Comparing Outcomes of Genetic Counseling Options in Breast and Ovarian Cancer: An Integrative Review. Oncology Nursing Forum 2018;45(1):96 View
  24. Bradbury A. Implementation of Precision Cancer Medicine: Progress and the Path to Realizing the Promise of Tumor Sequencing. Journal of Oncology Practice 2019;15(6):297 View
  25. Hardy M, Grinzaid K. Benefits and Challenges of Telemedicine: the JScreen Program Experience. Current Genetic Medicine Reports 2017;5(2):84 View
  26. Sinatra C, Asan O. The Effects of Telehealth Interventions on Oncological Disease and Treatment Outcomes: A Systematic Literature Review. Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care 2020;9(1):258 View
  27. McAlarnen L, Stearns K, Uyar D. Challenges of Genomic Testing for Hereditary Breast and Ovarian Cancers. The Application of Clinical Genetics 2021;Volume 14:1 View
  28. Snir M, Nazareth S, Simmons E, Hayward L, Ashcraft K, Bristow S, Esplin E, Aradhya S. Democratizing genomics: Leveraging software to make genetics an integral part of routine care. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 2021;187(1):14 View
  29. Raspa M, Moultrie R, Toth D, Haque S. Barriers and Facilitators to Genetic Service Delivery Models: Scoping Review. Interactive Journal of Medical Research 2021;10(1):e23523 View
  30. Guan Y, McBride C, Rogers H, Zhao J, Allen C, Escoffery C. Initiatives to Scale Up and Expand Reach of Cancer Genomic Services Outside of Specialty Clinical Settings: A Systematic Review. American Journal of Preventive Medicine 2021;60(2):e85 View
  31. Elliott A, Dragojlovic N, Campbell T, Adam S, Souich C, Fryer M, Lehman A, Karnebeek C, Lynd L, Friedman J. Utilization of telehealth in paediatric genome-wide sequencing: Health services implementation issues in the CAUSES Study. Journal of Telemedicine and Telecare 2023;29(4):318 View
  32. Dragojlovic N, Kopac N, Borle K, Tandun R, Salmasi S, Ellis U, Birch P, Adam S, Friedman J, Elliott A, Lynd L. Utilization and uptake of clinical genetics services in high-income countries: A scoping review. Health Policy 2021;125(7):877 View
  33. Brown E, Watts I, Beales E, Maudhoo A, Hayward J, Sheridan E, Rafi I. Videoconferencing to deliver genetics services: a systematic review of telegenetics in light of the COVID-19 pandemic. Genetics in Medicine 2021 View
  34. Gorrie A, Gold J, Cameron C, Krause M, Kincaid H. Benefits and limitations of telegenetics: A literature review. Journal of Genetic Counseling 2021;30(4):924 View
  35. López-Fernández A, Villacampa G, Grau E, Salinas M, Darder E, Carrasco E, Torres-Esquius S, Iglesias S, Solanes A, Gadea N, Velasco A, Urgell G, Torres M, Tuset N, Brunet J, Corbella S, Balmaña J. Patients’ and professionals’ perspective of non-in-person visits in hereditary cancer: predictors and impact of the COVID-19 pandemic. Genetics in Medicine 2021;23(8):1450 View
  36. Houston E, Kennedy A, O'Malley D, Rabinowitz T, Rose G, Boyd J. Telemedicine in Neurology: A Scoping Review of Key Outcomes in Movement Disorders. Telemedicine and e-Health 2022;28(3):295 View
  37. Cacioppo C, Egleston B, Fetzer D, Burke Sands C, Raza S, Reddy Malleda N, McCarty Wood E, Rittenburg I, Childs J, Cho D, Hosford M, Khair T, Khatri J, Komarnicky L, Poretta T, Rahman F, Shah S, Patrick‐Miller L, Domchek S, Bradbury A. Randomized study of remote telehealth genetic services versus usual care in oncology practices without genetic counselors. Cancer Medicine 2021;10(13):4532 View
  38. Mills R, MacFarlane I, Caleshu C, Ringler M, Zierhut H. Genetic counselor experiences with telehealth before and after COVID‐19. Journal of Genetic Counseling 2021;30(4):999 View
  39. Dratch L, Paul R, Baldwin A, Brzozowski M, Gonzalez‐Alegre P, Tropea T, Raper A, Bardakjian T. Transitioning to telegenetics in the COVID‐19 era: Patient satisfaction with remote genetic counseling in adult neurology. Journal of Genetic Counseling 2021;30(4):974 View
  40. Danylchuk N, Cook L, Shane‐Carson K, Cacioppo C, Hardy M, Nusbaum R, Steelman S, Malinowski J. Telehealth for genetic counseling: A systematic evidence review. Journal of Genetic Counseling 2021;30(5):1361 View
  41. Frey M, Finch A, Kulkarni A, Akbari M, Chapman-Davis E. Genetic Testing for All: Overcoming Disparities in Ovarian Cancer Genetic Testing. American Society of Clinical Oncology Educational Book 2022;(42):471 View
  42. Kircher S, Braccio N, Gallagher K, Carlos R, Wagner L, Smith M, Balch A, Benson A. Meeting Patients Where They Are: Policy Platform for Telehealth and Cancer Care Delivery. Journal of the National Comprehensive Cancer Network 2021;19(12):1470 View
  43. Cohen S, Nixon D, Lichtenberg E. Adding a genetic counseling assistant improves efficiency of hereditary cancer genetic counseling without impacting patient experience. Journal of Genetic Counseling 2023;32(3):656 View
  44. Bitkowska A, Pomaranik W, Hawrysz L, Korneta P. Telemedycyna w czasie pandemii COVID-19. Doświadczenia pacjentów z systemem w świetle w wyników badań w Polsce. Przegląd Organizacji 2021:20 View
  45. Arrighi-Allisan A, Wong A, Gidumal S, Shah J, Filip P, Omorogbe A, Rosenberg J, Govindaraj S, Iloreta A. Otolaryngology Patient Satisfaction with In-Office Appointments and Virtual Visits Due to COVID-19. Annals of Otology, Rhinology & Laryngology 2023;132(10):1168 View
  46. Campbell I, Crowley T, Keena B, Donoghue S, McManus M, Zackai E. The experience of one pediatric geneticist with telemedicine‐based clinical diagnosis. American Journal of Medical Genetics Part A 2022;188(12):3416 View
  47. Beeman C, Abrams M, Zajo K, Stanek J, O'Brien S, Chan P, Shen Y, McCorkle B, Johnson L, Chisolm D, Barnard-Kirk T, Mahan J, Martinez-Mendez A, Phillips W, Creary S. Acceptability to and Engagement With a Virtual Sickle Cell Trait Education Program (SCTaware): Single-Center Prospective Study. JMIR Formative Research 2022;6(11):e38780 View
  48. Mercado J, Lawrence J, Moore M, Neogi A, Vig H. A call for unity in DEIJ efforts using a proposed framework for Education, Recruitment, Retainment, Research, and Active outreach (ERA) for genetic counselors in the United States. Journal of Genetic Counseling 2022;31(3):590 View
  49. Gonzalez T, Tucker K, Wakefield C, Geelan-Small P, Macmillan S, Taylor N, Williams R. Comparing cancer genetic counselling using telegenetics with in-person and telephone appointments: Results of a partially randomised patient-preference pilot study. Journal of Telemedicine and Telecare 2022:1357633X2211125 View
  50. Green S, Hartzfeld D, Terry A, Fissell K, Friedman S, Paolino N, Principe K, Sandbach J, Trzupek K, Winheld S, Malinowski J. An evidence‐based practice guideline of the National Society of Genetic Counselors for telehealth genetic counseling. Journal of Genetic Counseling 2023;32(1):4 View
  51. Deo S, Pramanik R, Chaturvedi M, Nath A, Ghosh J, Das Majumdar S, Salins N, Kadayaprath G, Garg P, Chaturvedi A, Mathur S, Mathur P. Telemedicine and Cancer Care in India: Promises, Opportunities and Caveats. Future Science OA 2022;8(9) View
  52. Hardy M, Kener H, Grinzaid K. Implementation of a Carrier Screening Program in a High-Risk Undergraduate Student Population Using Digital Marketing, Online Education, and Telehealth. Public Health Genomics 2018;21(1-2):67 View
  53. Wagner N, Witherington S, Waldman L, Ryan L, Hardy M. Analysis of the reported use of practice‐based competencies by North American genetic counselors during the COVID‐19 pandemic. Journal of Genetic Counseling 2021;30(5):1257 View
  54. Brugioni E, Cathcart-Rake E, Metsker J, Gustafson E, Douglass L, Pluard T. Germline BRCA-Mutated HER2-Negative Advanced Breast Cancer: Overcoming Challenges in Genetic Testing and Clinical Considerations When Using Talazoparib. Clinical Breast Cancer 2023;23(5):469 View
  55. Agbali R, Balas E, Beltrame F, Heboyan V, De Leo G. A review of questionnaires used for the assessment of telemedicine. Journal of Telemedicine and Telecare 2023:1357633X2311661 View
  56. Williams S, Ebrahimzadeh J, Clay D, Constantino G, Heiman J, Wangensteen K, Valverde K, Mahmud N, Katona B. Comparing telemedicine and in-person gastrointestinal cancer genetic appointment outcomes during the COVID-19 pandemic. Hereditary Cancer in Clinical Practice 2023;21(1) View
  57. Cohen S, Nixon D. Evaluating attributes of a collaborative model of service delivery for hereditary cancer risk assessment. Journal of Genetic Counseling 2024;33(2):291 View
  58. Chu A, Chung C, Hue S, Chung B. The growing needs of genetic counselling—Feasibility in utilization of tele-genetic counselling in Asia and Hong Kong. Frontiers in Genetics 2023;14 View
  59. Duchek D, McDonough M, Bridel W, McNeely M, Culos-Reed S. Understanding In-Person and Online Exercise Oncology Programme Delivery: A Mixed-Methods Approach to Participant Perspectives. Current Oncology 2023;30(8):7366 View
  60. West H, Bange E, Chino F. Telemedicine as patient-centred oncology care: will we embrace or resist disruption?. Nature Reviews Clinical Oncology 2023;20(10):659 View
  61. Rana H, Stopfer J, Weitz M, Kipnis L, Koeller D, Culver S, Mercado J, Gelman R, Underhill-Blazey M, McGregor B, Sweeney C, Petrucelli N, Kokenakes C, Pirzadeh-Miller S, Reys B, Frazier A, Knechtl A, Fateh S, Vatnick D, Silver R, Kilbridge K, Pomerantz M, Wei X, Choudhury A, Sonpavde G, Kozyreva O, Lathan C, Horton C, Dolinsky J, Heath E, Ross T, Courtney K, Garber J, Taplin M. Pretest Video Education Versus Genetic Counseling for Patients With Prostate Cancer: ProGen, A Multisite Randomized Controlled Trial. JCO Oncology Practice 2023;19(11):1069 View
  62. Greenup E, Best D. Comparison of patient responses to telehealth satisfaction surveys in rural and urban populations in Queensland. Australian Health Review 2023;47(5):559 View
  63. Riordan S, Richardson J, Zierhut H, Goodnight B, Sieling F, Black C, Moore R. Medicare beneficiary barriers to genetic counselor services: Implications for patient policy, decision‐making, and care. Journal of Genetic Counseling 2024;33(2):262 View
  64. Wang C, Bertrand K, Trevino-Talbot M, Flynn M, Ruderman M, Cabral H, Bowen D, Hughes-Halbert C, Palmer J. Ethical, legal, and social implications (ELSI) and challenges in the design of a randomized controlled trial to test the online return of cancer genetic research results to U.S. Black women. Contemporary Clinical Trials 2023;132:107309 View
  65. Bange E, Li Y, Kumar P, Doucette A, Gabriel P, Parikh R, Li E, Mamtani R, Getz K. The association between telemedicine, advance care planning, and unplanned hospitalizations among high‐risk patients with cancer. Cancer 2024;130(4):636 View
  66. Alhammad N, Alajlani M, Abd-alrazaq A, Epiphaniou G, Arvanitis T. Patients’ Perspectives on the Data Confidentiality, Privacy, and Security of mHealth Apps: Systematic Review. Journal of Medical Internet Research 2024;26:e50715 View
  67. Henderson T, Allen M, Mim R, Egleston B, Fleisher L, Elkin E, Oeffinger K, Krull K, Ofidis D, Mcleod B, Griffin H, Wood E, Cacioppo C, Weinberg M, Brown S, Howe S, McDonald A, Vukadinovich C, Alston S, Rinehart D, Armstrong G, Bradbury A. The ENGAGE study: a 3-arm randomized hybrid type 1 effectiveness and implementation study of an in-home, collaborative PCP model of remote telegenetic services to increase uptake of cancer genetic services in childhood cancer survivors. BMC Health Services Research 2024;24(1) View
  68. Rodriguez N, Syngal S. Expanding access to genetic testing for pancreatic cancer. Familial Cancer 2024;23(3):247 View
  69. Kruse C, Krowski N, Rodriguez B, Tran L, Vela J, Brooks M. Telehealth and patient satisfaction: a systematic review and narrative analysis. BMJ Open 2017;7(8):e016242 View
  70. Cuaron J, McBride S, Chino F, Parikh D, Kollmeier M, Pastrana G, Wagner K, Tamas A, Gomez D. Patient Safety and Satisfaction With Fully Remote Management of Radiation Oncology Care. JAMA Network Open 2024;7(6):e2416570 View
  71. Vanderpool R, Muro A, Jensen R. Advancing a telehealth and cancer control research agenda at the US National Cancer Institute. JNCI Monographs 2024;2024(64):51 View
  72. Bange E, Daly R, Lipitz-Snyderman A, Kuperman G, Polubriaginof F, Liebertz C, Doshi S, Stevanovic K, Chan K, Bernal C, Charvadeh Y, Chen Y, Chimonas S, Stetson P, Schrag D, Morris M, Panageas K. Transforming patient-centered cancer care using telehealth: the MATCHES Center. JNCI Monographs 2024;2024(64):76 View

Books/Policy Documents

  1. Brédart A, De Pauw A, Colas C, Stoppa-Lyonnet D, Dolbeault S. Psycho-Oncologie de L'adulte. View
  2. Trepanier A, Allain D. Genetic Counseling Practice. View