Published on in Vol 18, No 12 (2016): December

The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review

The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review

The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review

Journals

  1. Castro A, Chougui K, Bilodeau C, Tsimicalis A. Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study. Journal of Medical Internet Research 2019;21(12):e15924 View
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  15. Jansen R, Reid M. Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review. JMIR mHealth and uHealth 2020;8(8):e13179 View
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  20. Grace R, Kemp L, Barnes J, Elcombe E, Knight J, Baird K, Webster V, Byrne F. Community Volunteer Support for Families With Young Children: Protocol for the Volunteer Family Connect Randomized Controlled Trial. JMIR Research Protocols 2018;7(7):e10000 View
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  22. Jansen R, Reid M. Interest in Communication Technology by Rural Caregivers of Adolescents with Mental Health Issues in South Africa: The Mmogo-Method®. Issues in Mental Health Nursing 2021;42(1):24 View
  23. Jindal P, MacDermid J, Rosenbaum P, DiRezze B, Narayan A. Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health. Disability and Rehabilitation 2018;40(23):2745 View
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  26. Dodds R. Meeting families where they are: Text‐based support in parent to parent programs. Child: Care, Health and Development 2021;47(2):290 View
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  37. Mbuthia K, Mwangi S, Owino G. Implications of providing social support to close network members on the social well-being of older people in Kitui County, Kenya. Frontiers in Aging 2022;3 View
  38. Gruebner O, van Haasteren A, Hug A, Elayan S, Sykora M, Albanese E, Naslund J, Wolf M, Fadda M, von Rhein M. Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review. Journal of Medical Internet Research 2022;24(12):e37972 View
  39. Xi Y, Elkana O, Jiao W, Li D, Tao Z. Associations between social support and anxiety during the COVID-19 lockdown in young and middle-aged Israelis: A cross-sectional study. World Journal of Psychiatry 2022;12(9):1194 View
  40. Kaji N, Ando S, Nishida A, Yamasaki S, Kuwabara H, Kanehara A, Satomura Y, Jinde S, Kano Y, Hiraiwa‐Hasegawa M, Igarashi T, Kasai K. Children with special health care needs and mothers' anxiety/depression: Findings from the Tokyo Teen Cohort study. Psychiatry and Clinical Neurosciences 2021;75(12):394 View
  41. Schimith M, Cezar-Vaz M, Xavier D, Cardoso L. Communication in health and inter-professional collaboration in the care for children with chronic conditions. Revista Latino-Americana de Enfermagem 2021;29 View
  42. Harney S, Chu T, Trask C, Welch J. Health-related Internet Use by Caregivers of Children and Adolescents With Cancer. Journal of Pediatric Hematology/Oncology 2022 View
  43. Elliott K, Vears D, Sung V, Poulakis Z, Sheehan J. Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway. Journal of Clinical Medicine 2022;11(5):1389 View
  44. Forner-Puntonet M, Gisbert-Gustemps L, Castell-Panisello E, Larrarte M, Quintero J, Ariceta G, Gran F, Iglesias-Serrano I, Garcia-Morán A, Español-Martín G, Ibañez-Jimenez P, Ramos-Quiroga J. Stress and coping strategies of families of pediatric solid organ transplant recipients in times of pandemic. Frontiers in Psychology 2023;14 View
  45. Bonnot Fazio S, Dany L, Dahan S, Tosello B. Communication, information, and the parent–caregiver relationship in neonatal intensive care units: A review of the literature. Archives de Pédiatrie 2022;29(5):331 View
  46. Callans K, Carroll D, McDonough A. Parental experience of hypoglossal nerve stimulator implantation in adolescents with Down Syndrome and obstructive sleep apnea. Journal of Pediatric Nursing 2023;68:24 View
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  48. Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Experiences, Motivations, and Perceived Impact of Participation in a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(3):e33172 View
  49. Taylor K, Havinga J, Moore B, Tumin D, Bear K. Social Media as a Source of Medical Information for Parents of Premature Infants: A Content Analysis of Prematurity-Related Facebook Groups. American Journal of Perinatology 2023;40(15):1629 View
  50. Kwon S, O’Neill M, Foster C. The Associations of Child’s Clinical Conditions and Behavioral Problems with Parenting Stress among Families of Preschool-Aged Children: 2018–2019 National Survey of Child Health. Children 2022;9(2):241 View
  51. Hoover C, Coller R, Houtrow A, Harris D, Agrawal R, Turchi R. Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home. Academic Pediatrics 2022;22(2):S14 View
  52. Lynch A, Raziano V, Feehan K, Thompson E, Massey P, Turchi R. Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs. Maternal and Child Health Journal 2021;25(12):1992 View
  53. Gulzar S, Saeed S, Taufiq Kirmani S, Karmaliani R, Majumder M. Enhancing the knowledge of parents on child health using eLearning in a government school in the semi-rural community of Karachi, Pakistan. PLOS Global Public Health 2022;2(6):e0000500 View
  54. Houwen T, Vugts M, Lansink K, Theeuwes H, Neequaye N, Beerekamp M, Joosen M, de Jongh M. Developing mHealth to the Context and Valuation of Injured Patients and Professionals in Hospital Trauma Care: Qualitative and Quantitative Formative Evaluations. JMIR Human Factors 2022;9(2):e35342 View
  55. Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(2):e33170 View
  56. Pérez-Ardanaz B, Peláez-Cantero M, González-Cano-Caballero M, Gutiérrez-Rodríguez L, Gómez-González A, Lupiáñez-Pérez I, Morales-Asencio J, Canca-Sánchez J. Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases: A Cross-Sectional Study. Children 2021;8(11):973 View
  57. Olpin E, Hanson C, Crandall A. Influence of Social Media Uses and Gratifications on Family Health among U.S. Parents: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2023;20(3):1910 View
  58. Ikhwan R. Women in health: Social practices in online health information management. Masyarakat, Kebudayaan dan Politik 2020;33(4):371 View
  59. Para A, Batko B, Ippolito J, Hanna G, Edobor-Osula F. Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?. Children 2021;8(10):869 View
  60. Currie G, Finlay B, Seth A, Roth C, Elsabbagh M, Hudon A, Hunt M, Jodoin S, Lach L, Lencucha R, Nicholas D, Shakako K, Zwicker J. Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities. International Journal of Qualitative Studies on Health and Well-being 2022;17(1) View
  61. Dorner R, Lemmon M, Vazifedan T, Johnson E, Boss R. Symptoms of Cerebrospinal Shunt Malfunction in Young Children: A National Caregiver Survey. Child Neurology Open 2023;10 View
  62. Craig K, Riggan K, Rubeck S, Meredith S, Allyse M, Michie M. Never “totally prepared”: Support groups on helping families prepare for a child with a genetic condition. Journal of Community Genetics 2023;14(3):319 View
  63. Cimino S, Cerniglia L. Breastfeeding Apps: A Descriptive Report. Behavioral Sciences 2023;13(10):801 View
  64. Baskar D, Ngnepieba M, Paul P, Segovia N, Frick S. Conversations About Congenital Clubfoot: Investigating How Parents Share Information About a Structural Diagnosis With Their Children. Cureus 2023 View
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Books/Policy Documents

  1. Simeonsson R, Simeonsson K. Public Health Perspectives on Disability. View
  2. Black D. Prevention, Recognition and Management of Fetal Alcohol Spectrum Disorders. View