Published on in Vol 18, No 12 (2016): December
Journals
- Castro A, Chougui K, Bilodeau C, Tsimicalis A. Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study. Journal of Medical Internet Research 2019;21(12):e15924 View
- Tikkanen S, Peterson B, Parsloe S. Courtesy Stigma and Social Support: An Exploration of Fathers’ Buffering Strategies and Blocking Rationalizations. Health Communication 2019;34(13):1543 View
- Pionke J, Manson J. Creating Disability LibGuides with Accessibility in Mind. Journal of Web Librarianship 2018;12(1):63 View
- Donley T, King D, Nyathi N, Okafor A, Mbizo J. Socioeconomic Status, Family Functioning and Delayed Care Among Children With Special Needs. Social Work in Public Health 2018;33(6):366 View
- Castro A, Marinello J, Chougui K, Morand M, Bilodeau C, Tsimicalis A. The day‐to‐day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study. Journal of Clinical Nursing 2020;29(15-16):2999 View
- Canty M, Breitbart S, Siegel L, Fehlings D, Milo-Manson G, Alotaibi N, Ibrahim G. The role of social media in selective dorsal rhizotomy for children: information sharing and social support. Child's Nervous System 2019;35(11):2179 View
- Boss R, Raisanen J, Detwiler K, Fratantoni K, Huff S, Neubauer K, Donohue P. Lived Experience of Pediatric Home Health Care Among Families of Children With Medical Complexity. Clinical Pediatrics 2020;59(2):178 View
- Dol J, Richardson B, Boates T, Campbell-Yeo M. Learning to parent from Google? Evaluation of available online health evidence for parents of preterm infants requiring neonatal intensive care. Health Informatics Journal 2019;25(4):1265 View
- Ashcraft L, Asato M, Houtrow A, Kavalieratos D, Miller E, Ray K. Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies. The Patient - Patient-Centered Outcomes Research 2019;12(2):199 View
- Johnston E, Martinez I, Currie E, Brock K, Wolfe J. Hospital or Home? Where Should Children Die and How Do We Make That a Reality?. Journal of Pain and Symptom Management 2020;60(1):106 View
- Sinclair M, McCullough J, Elliott D, Latos-Bielenska A, Braz P, Cavero-Carbonell C, Jamry-Dziurla A, João Santos A, Páramo-Rodríguez L. Exploring Research Priorities of Parents Who Have Children With Down Syndrome, Cleft Lip With or Without Cleft Palate, Congenital Heart Defects, or Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study. Journal of Medical Internet Research 2019;21(11):e15847 View
- Skliarova T, Zaitsev D. Developing Practices of Inclusive Culture Social Services: Interdisciplinary Analysis Challenges and Perspectives. Bulletin of Science and Practice 2019;5(11):343 View
- Fuller M, Vaucher Y, Bann C, Das A, Vohr B. Lack of social support as measured by the Family Resource Scale screening tool is associated with early adverse cognitive outcome in extremely low birth weight children. Journal of Perinatology 2019;39(11):1546 View
- Petrenko C, Parr J, Kautz C, Tapparello C, Olson H. A Mobile Health Intervention for Fetal Alcohol Spectrum Disorders (Families Moving Forward Connect): Development and Qualitative Evaluation of Design and Functionalities. JMIR mHealth and uHealth 2020;8(4):e14721 View
- Jansen R, Reid M. Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review. JMIR mHealth and uHealth 2020;8(8):e13179 View
- Motti V, Kalantari N, Neris V. Understanding how social media imagery empowers caregivers: an analysis of microcephaly in Latin America. Personal and Ubiquitous Computing 2021;25(2):321 View
- Ramey L, Osborne C, Kasitinon D, Juengst S. Apps and Mobile Health Technology in Rehabilitation. Physical Medicine and Rehabilitation Clinics of North America 2019;30(2):485 View
- Davis E, Young D, Gilson K, Reynolds J, Carter R, Tonmukayakul U, Williams K, Gibbs L, McDonald R, Reddihough D, Tracy J, Morgan J, Ireland P, Kenyon C, Carracher R. A Capacity Building Program to Improve the Self-Efficacy of Key Workers to Support the Well-Being of Parents of a Child With a Disability Accessing an Early Childhood Intervention Service: Protocol for a Stepped-Wedge Design Trial. JMIR Research Protocols 2019;8(4):e12531 View
- Kent de Grey R, Uchino B, Baucom B, Smith T, Holton A, Diener E. Enemies and friends in high-tech places: the development and validation of the Online Social Experiences Measure. DIGITAL HEALTH 2019;5 View
- Grace R, Kemp L, Barnes J, Elcombe E, Knight J, Baird K, Webster V, Byrne F. Community Volunteer Support for Families With Young Children: Protocol for the Volunteer Family Connect Randomized Controlled Trial. JMIR Research Protocols 2018;7(7):e10000 View
- Huang K, Lee D, Nakigudde J, Cheng S, Gouley K, Mann D, Schoenthaler A, Chokshi S, Kisakye E, Tusiime C, Mendelsohn A. Use of Technology to Promote Child Behavioral Health in the Context of Pediatric Care: A Scoping Review and Applications to Low- and Middle-Income Countries. Frontiers in Psychiatry 2019;10 View
- Jansen R, Reid M. Interest in Communication Technology by Rural Caregivers of Adolescents with Mental Health Issues in South Africa: The Mmogo-Method®. Issues in Mental Health Nursing 2021;42(1):24 View
- Jindal P, MacDermid J, Rosenbaum P, DiRezze B, Narayan A. Perspectives on rehabilitation of children with cerebral palsy: exploring a cross-cultural view of parents from India and Canada using the international classification of functioning, disability and health. Disability and Rehabilitation 2018;40(23):2745 View
- Fry J, Frader J. “We want to do everything”: how parents represent their experiences with maternal–fetal surgery online. Journal of Perinatology 2018;38(3):226 View
- Springer A. Optimal Management of Undescended Testis in Boys with Cerebral Palsy. A Debate. Sexual Development 2019;13(1):20 View
- Dodds R. Meeting families where they are: Text‐based support in parent to parent programs. Child: Care, Health and Development 2021;47(2):290 View
- Uhm J, Kim M. Predicting Quality of Life among Mothers in an Online Health Community for Children with Type 1 Diabetes. Children 2020;7(11):235 View
- Buteau-Poulin A, Gosselin C, Bergeron-Ouellet A, Kiss J, Lamontagne M, Maltais D, Trottier C, Desmarais C. Availability and Quality of Web Resources for Parents of Children With Disability: Content Analysis and Usability Study. JMIR Pediatrics and Parenting 2020;3(2):e19669 View
- Jeffrey A, Andracchio L, Dvorak M, Lomas P, Smith B, Borowitz D. Virtual Peer Support for People With Cystic Fibrosis and Their Family Members: A Program Evaluation. Journal of Patient Experience 2020;7(6):1748 View
- Fernández-Medina I, Granero-Molina J, Hernández-Padilla J, Jiménez-Lasserrotte M, Ruiz-Fernández M, Fernández-Sola C. Socio-family support for parents of technology-dependent extremely preterm infants after hospital discharge. Journal of Child Health Care 2022;26(1):42 View
- Hanna G, Batko B, Potter J, Ippolito J, Edobor-Osula F. The role of social media in clubfoot: Information sharing and social support. Journal of Children's Orthopaedics 2021;15(1):81 View
- Iotova V, Schalin-Jäntti C, Bruegmann P, Broesamle M, De Graaf J, Bratina N, Tillmann V, Pereira A, Hiort O. Access to patient oriented information—a baseline Endo-ERN survey among patients with rare endocrine disorders. Endocrine 2021;71(3):542 View
- Schindler M, Domahidi E. The growing field of interdisciplinary research on user comments: A computational scoping review. New Media & Society 2021;23(8):2474 View
- Deuitch N, Beckman E, Halley M, Young J, Reuter C, Kohler J, Bernstein J, Wheeler M, Ormond K, Tabor H. “Doctors can read about it, they can know about it, but they've never lived with it”: How parents use social media throughout the diagnostic odyssey. Journal of Genetic Counseling 2021;30(6):1707 View
- Schimith M, Cezar-Vaz M, Xavier D, Cardoso L. Communication in health and inter-professional collaboration in the care for children with chronic conditions. Revista Latino-Americana de Enfermagem 2021;29 View
- Cao P, McGrath C, Rudman D. Navigating the “Blind World”: The psychosocial and occupational experiences of parents of adolescents with visual impairments. British Journal of Visual Impairment 2024;42(3):623 View
- Mbuthia K, Mwangi S, Owino G. Implications of providing social support to close network members on the social well-being of older people in Kitui County, Kenya. Frontiers in Aging 2022;3 View
- Gruebner O, van Haasteren A, Hug A, Elayan S, Sykora M, Albanese E, Naslund J, Wolf M, Fadda M, von Rhein M. Digital Platform Uses for Help and Support Seeking of Parents With Children Affected by Disabilities: Scoping Review. Journal of Medical Internet Research 2022;24(12):e37972 View
- Xi Y, Elkana O, Jiao W, Li D, Tao Z. Associations between social support and anxiety during the COVID-19 lockdown in young and middle-aged Israelis: A cross-sectional study. World Journal of Psychiatry 2022;12(9):1194 View
- Kaji N, Ando S, Nishida A, Yamasaki S, Kuwabara H, Kanehara A, Satomura Y, Jinde S, Kano Y, Hiraiwa‐Hasegawa M, Igarashi T, Kasai K. Children with special health care needs and mothers' anxiety/depression: Findings from the Tokyo Teen Cohort study. Psychiatry and Clinical Neurosciences 2021;75(12):394 View
- Schimith M, Cezar-Vaz M, Xavier D, Cardoso L. Communication in health and inter-professional collaboration in the care for children with chronic conditions. Revista Latino-Americana de Enfermagem 2021;29 View
- Harney S, Chu T, Trask C, Welch J. Health-related Internet Use by Caregivers of Children and Adolescents With Cancer. Journal of Pediatric Hematology/Oncology 2022 View
- Elliott K, Vears D, Sung V, Poulakis Z, Sheehan J. Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway. Journal of Clinical Medicine 2022;11(5):1389 View
- Forner-Puntonet M, Gisbert-Gustemps L, Castell-Panisello E, Larrarte M, Quintero J, Ariceta G, Gran F, Iglesias-Serrano I, Garcia-Morán A, Español-Martín G, Ibañez-Jimenez P, Ramos-Quiroga J. Stress and coping strategies of families of pediatric solid organ transplant recipients in times of pandemic. Frontiers in Psychology 2023;14 View
- Bonnot Fazio S, Dany L, Dahan S, Tosello B. Communication, information, and the parent–caregiver relationship in neonatal intensive care units: A review of the literature. Archives de Pédiatrie 2022;29(5):331 View
- Callans K, Carroll D, McDonough A. Parental experience of hypoglossal nerve stimulator implantation in adolescents with Down Syndrome and obstructive sleep apnea. Journal of Pediatric Nursing 2023;68:24 View
- Costa R, Lamy Z, Oliveira P, Carvalho R, Pereira M, Guimarães C, Batista R, Nascimento M. Síndrome congênita pelo vírus zika: análise das redes de apoio de pais. Acta Paulista de Enfermagem 2022;35 View
- Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Experiences, Motivations, and Perceived Impact of Participation in a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(3):e33172 View
- Taylor K, Havinga J, Moore B, Tumin D, Bear K. Social Media as a Source of Medical Information for Parents of Premature Infants: A Content Analysis of Prematurity-Related Facebook Groups. American Journal of Perinatology 2023;40(15):1629 View
- Kwon S, O’Neill M, Foster C. The Associations of Child’s Clinical Conditions and Behavioral Problems with Parenting Stress among Families of Preschool-Aged Children: 2018–2019 National Survey of Child Health. Children 2022;9(2):241 View
- Hoover C, Coller R, Houtrow A, Harris D, Agrawal R, Turchi R. Understanding Caregiving and Caregivers: Supporting Children and Youth With Special Health Care Needs at Home. Academic Pediatrics 2022;22(2):S14 View
- Lynch A, Raziano V, Feehan K, Thompson E, Massey P, Turchi R. Unmet Needs of Male Caregivers of Children and Youth with Special Health Care Needs. Maternal and Child Health Journal 2021;25(12):1992 View
- Gulzar S, Saeed S, Taufiq Kirmani S, Karmaliani R, Majumder M. Enhancing the knowledge of parents on child health using eLearning in a government school in the semi-rural community of Karachi, Pakistan. PLOS Global Public Health 2022;2(6):e0000500 View
- Houwen T, Vugts M, Lansink K, Theeuwes H, Neequaye N, Beerekamp M, Joosen M, de Jongh M. Developing mHealth to the Context and Valuation of Injured Patients and Professionals in Hospital Trauma Care: Qualitative and Quantitative Formative Evaluations. JMIR Human Factors 2022;9(2):e35342 View
- Kelly K, Doucet S, Luke A, Azar R, Montelpare W. Exploring the Use of a Facebook-Based Support Group for Caregivers of Children and Youth With Complex Care Needs: Qualitative Descriptive Study. JMIR Pediatrics and Parenting 2022;5(2):e33170 View
- Pérez-Ardanaz B, Peláez-Cantero M, González-Cano-Caballero M, Gutiérrez-Rodríguez L, Gómez-González A, Lupiáñez-Pérez I, Morales-Asencio J, Canca-Sánchez J. Utilization of Parallel Resources and Sociodemographic Factors in Treating Children with Complex Chronic Diseases: A Cross-Sectional Study. Children 2021;8(11):973 View
- Olpin E, Hanson C, Crandall A. Influence of Social Media Uses and Gratifications on Family Health among U.S. Parents: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2023;20(3):1910 View
- Ikhwan R. Women in health: Social practices in online health information management. Masyarakat, Kebudayaan dan Politik 2020;33(4):371 View
- Para A, Batko B, Ippolito J, Hanna G, Edobor-Osula F. Developmental Dysplasia of the Hip: How Does Social Media Influence Patients and Caregivers Seeking Information?. Children 2021;8(10):869 View
- Currie G, Finlay B, Seth A, Roth C, Elsabbagh M, Hudon A, Hunt M, Jodoin S, Lach L, Lencucha R, Nicholas D, Shakako K, Zwicker J. Mental health challenges during COVID-19: perspectives from parents with children with neurodevelopmental disabilities. International Journal of Qualitative Studies on Health and Well-being 2022;17(1) View
- Dorner R, Lemmon M, Vazifedan T, Johnson E, Boss R. Symptoms of Cerebrospinal Shunt Malfunction in Young Children: A National Caregiver Survey. Child Neurology Open 2023;10 View
- Craig K, Riggan K, Rubeck S, Meredith S, Allyse M, Michie M. Never “totally prepared”: Support groups on helping families prepare for a child with a genetic condition. Journal of Community Genetics 2023;14(3):319 View
- Cimino S, Cerniglia L. Breastfeeding Apps: A Descriptive Report. Behavioral Sciences 2023;13(10):801 View
- Baskar D, Ngnepieba M, Paul P, Segovia N, Frick S. Conversations About Congenital Clubfoot: Investigating How Parents Share Information About a Structural Diagnosis With Their Children. Cureus 2023 View
- McDaniel B, Pater J, Cornet V, Mughal S, Reining L, Schaller A, Radesky J, Drouin M. Parents’ desire to change phone use: Associations with objective smartphone use and feelings about problematic use and distraction. Computers in Human Behavior 2023;148:107907 View
- Heydon R, Akiwenzie E, Cooper E, Ghannoum H, Havord-Wier D, Johns B, MacAlpine K, McKee L, Nagle J, Neeganagwedgin E, Potts D, Poczobut S, Coelho C, Stooke A, Tran A, Zhang Z. Guidelines for virtual early childhood and family learning: An equity, diversity, inclusion, and decolonization-informed systematic review of the literature. Journal of Early Childhood Research 2024;22(2):180 View
- Kosaka M, Kotera Y, Masunaga H, Bhandari D, Miyatake H, Nishikawa Y, Komori N, Ozaki A, Beniya H. Emotional impacts of excursions on parents of children with medical complexity. Pediatrics International 2023;65(1) View
- Wong T, Yeung K, Khalikova V, Hui L, Chow K, Lau E, Nelson E. Online ethnography of breastfeeding discussions in social networking sites for Hong Kong mothers. Food Science & Nutrition 2024;12(2):843 View
- Pearce E, Raj H, Emezienna N, Gilkey M, Lazard A, Ribisl K, Savage S, Han P. The Use of Social Media to Express and Manage Medical Uncertainty in Dyskeratosis Congenita: Content Analysis. JMIR Infodemiology 2024;4:e46693 View
- Khare J, Kalra S, Jindal S. Sociocrinology: Impact of Social Media on Endocrine Health – A Review. Indian Journal of Endocrinology and Metabolism 2023;27(6):480 View
- Nowland R, McNally L, Gregory P. Parents’ use of digital technology for social connection during the COVID‐19 pandemic: A mixed‐methods study. Scandinavian Journal of Psychology 2024;65(3):533 View
- Baiden P, Graaf G, Okine L, LaBrenz C. Association between Adverse Childhood Experiences and Unmet Health Care Needs among Children in the United States. Social Work in Public Health 2024;39(3):261 View
- Apps J, Webb S, Hutton E. Parents’ and carers’ attitudes to the use of digital technology and its role in the care of children with complex needs. British Journal of Occupational Therapy 2024;87(7):452 View
- Postma A, Ketelaar M, van Nispen tot Sevenaer J, Downs Z, van Rappard D, Jongmans M, Zinkstok J. Exploring individual parent‐to‐parent support interventions for parents caring for children with brain‐based developmental disabilities: A scoping review. Child: Care, Health and Development 2024;50(3) View
- Wu J, Lu F, Li Z, Dai Y, Wang Y, Bao R, Rao Y, Wang H. Parents’ experience of children’s transitions from intensive care unit after liver transplantation: A qualitative study. Intensive and Critical Care Nursing 2024;83:103698 View
- Chang A, Huang S, Benjamin D, Schmidt J, Palmer C, Garrison N. Exploring the role of digital tools in rare disease management: An interview‐based study. Journal of Genetic Counseling 2024 View
- Tenzek K, Lattimer T, Levy K, Grant P, Depner R, Pailler M, Beaupin L. Pushing the boundaries: an evaluation of the Photographs of Meaning (POM) program for pediatric palliative caregivers (PPCGs). Journal of Applied Communication Research 2024;52(4):534 View
- Liu T, Pang P, Lam C. Public health education using social learning theory: a systematic scoping review. BMC Public Health 2024;24(1) View
- Koob C, Griffin S, Stuenkel M, Cartmell K, Rennert L, Sease K. Bridging the gaps in pediatric complex healthcare: the case for home nursing care among children with medical complexity. BMC Health Services Research 2024;24(1) View
- Zannat R, Faisal H, Moni S, Maxwell L. Understanding We Can Do This COVID-19 vaccine campaign elements through message frames and emotional appeals. Discover Psychology 2024;4(1) View
- Findling Y, Itzhaki M, Barnoy S. Parental Burnout—A Model of Risk Factors and Protective Resources Among Mothers of Children with/Without Special Needs. European Journal of Investigation in Health, Psychology and Education 2024;14(11):2883 View
- Sun J, Wang L, Wang W, Wang J, Wang Y, Gao Y, Yuan L. The influential factors of anxiety among caregivers of children with CL/P: a path analysis based on diathesis-stress theoretical model. BMC Public Health 2024;24(1) View