This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (573) Demographics of Users, Social & Digital Divide (739)

Published on in Vol 18, No 10 (2016): October

“I Want to Keep the Personal Relationship With My Doctor”: Understanding Barriers to Portal Use among African Americans and Latinos

“I Want to Keep the Personal Relationship With My Doctor”: Understanding Barriers to Portal Use among African Americans and Latinos

“I Want to Keep the Personal Relationship With My Doctor”: Understanding Barriers to Portal Use among African Americans and Latinos

Authors of this article:

Courtney Rees Lyles1, 2 Author Orcid Image ;   Jill Y Allen3 Author Orcid Image ;   Dolly Poole4 Author Orcid Image ;   Lina Tieu5 Author Orcid Image ;   Michael H Kanter6, 7 Author Orcid Image ;   Terhilda Garrido8 Author Orcid Image
Article Authors Cited by (65) Tweetations (6) Metrics

Journals

  1. McHugh K, Swamy G, Hernandez A. Engaging patients throughout the health system: A landscape analysis of cold-call policies and recommendations for future policy change. Journal of Clinical and Translational Science 2018;2(6):384 View
  2. Anthony D, Campos-Castillo C, Lim P. Who Isn’t Using Patient Portals And Why? Evidence And Implications From A National Sample Of US Adults. Health Affairs 2018;37(12):1948 View
  3. Casillas A, Perez-Aguilar G, Abhat A, Gutierrez G, Olmos-Ochoa T, Mendez C, Mahajan A, Brown A, Moreno G. Su salud a la mano (your health at hand): patient perceptions about a bilingual patient portal in the Los Angeles safety net. Journal of the American Medical Informatics Association 2019;26(12):1525 View
  4. Assadi V, Hassanein K. Consumer Adoption of Personal Health Record Systems: A Self-Determination Theory Perspective. Journal of Medical Internet Research 2017;19(7):e270 View
  5. Ukoha E, Feinglass J, Yee L. Disparities in Electronic Patient Portal Use in Prenatal Care: Retrospective Cohort Study. Journal of Medical Internet Research 2019;21(9):e14445 View
  6. Antonio M, Petrovskaya O, Lau F. Is research on patient portals attuned to health equity? A scoping review. Journal of the American Medical Informatics Association 2019;26(8-9):871 View
  7. Wildenbos G, Jaspers M, Peute L. The equity paradox: older patients' participation in patient portal development. International Journal for Quality in Health Care 2018 View
  8. Gordon N, Hornbrook M. Older adults’ readiness to engage with eHealth patient education and self-care resources: a cross-sectional survey. BMC Health Services Research 2018;18(1) View
  9. Sheon A, Bolen S, Callahan B, Shick S, Perzynski A. Addressing Disparities in Diabetes Management Through Novel Approaches to Encourage Technology Adoption and Use. JMIR Diabetes 2017;2(2):e16 View
  10. Arcury T, Quandt S, Sandberg J, Miller Jr D, Latulipe C, Leng X, Talton J, Melius K, Smith A, Bertoni A. Patient Portal Utilization Among Ethnically Diverse Low Income Older Adults: Observational Study. JMIR Medical Informatics 2017;5(4):e47 View
  11. Ukoha E, Yee L. Use of Electronic Patient Portals in Pregnancy: An Overview. Journal of Midwifery & Women's Health 2018;63(3):335 View
  12. Perzynski A, Roach M, Shick S, Callahan B, Gunzler D, Cebul R, Kaelber D, Huml A, Thornton J, Einstadter D. Patient portals and broadband internet inequality. Journal of the American Medical Informatics Association 2017;24(5):927 View
  13. Chan B, Lyles C, Kaplan C, Lam R, Karliner L. A Comparison of Electronic Patient-Portal Use Among Patients with Resident and Attending Primary Care Providers. Journal of General Internal Medicine 2018;33(12):2085 View
  14. Wildenbos G, Horenberg F, Jaspers M, Peute L, Sent D. How do patients value and prioritize patient portal functionalities and usage factors? A conjoint analysis study with chronically ill patients. BMC Medical Informatics and Decision Making 2018;18(1) View
  15. Lin S, Lyles C, Sarkar U, Adler-Milstein J. Are Patients Electronically Accessing Their Medical Records? Evidence From National Hospital Data. Health Affairs 2019;38(11):1850 View
  16. Graetz I, Huang J, Brand R, Hsu J, Reed M. Mobile-accessible personal health records increase the frequency and timeliness of PHR use for patients with diabetes. Journal of the American Medical Informatics Association 2019;26(1):50 View
  17. Hardeman A, Kahn M. Technological Innovation in Healthcare: Disrupting Old Systems to Create More Value for African American Patients in Academic Medical Centers. Journal of the National Medical Association 2020;112(3):289 View
  18. Gonzalez M, Sanders-Jackson A, Wright T. Web-Based Health Information Technology: Access Among Latinos Varies by Subgroup Affiliation. Journal of Medical Internet Research 2019;21(4):e10389 View
  19. Portz J, Bayliss E, Bull S, Boxer R, Bekelman D, Gleason K, Czaja S. Using the Technology Acceptance Model to Explore User Experience, Intent to Use, and Use Behavior of a Patient Portal Among Older Adults With Multiple Chronic Conditions: Descriptive Qualitative Study. Journal of Medical Internet Research 2019;21(4):e11604 View
  20. Sadasivaiah S, Lyles C, Kiyoi S, Wong P, Ratanawongsa N. Disparities in Patient-Reported Interest in Web-Based Patient Portals: Survey at an Urban Academic Safety-Net Hospital. Journal of Medical Internet Research 2019;21(3):e11421 View
  21. Casillas A, Cemballi A, Abhat A, Lemberg M, Portz J, Sadasivaiah S, Ratanawongsa N, Semere W, Brown A, Lyles C. An Untapped Potential in Primary Care: Semi-Structured Interviews with Clinicians on How Patient Portals Will Work for Caregivers in the Safety Net. Journal of Medical Internet Research 2020;22(7):e18466 View
  22. Kolodychuk N, Wong M, Chimento G, Adams T, Gastanaduy M, Waddell B. Web-based patient portal access in an orthopedic adult reconstruction patient population. Arthroplasty Today 2019;5(1):83 View
  23. Casillas A, Moreno G, Grotts J, Tseng C, Morales L. A Digital Language Divide? The Relationship between Internet Medication Refills and Medication Adherence among Limited English Proficient (LEP) Patients. Journal of Racial and Ethnic Health Disparities 2018;5(6):1373 View
  24. Li J, Yazdany J, Trupin L, Izadi Z, Gianfrancesco M, Goglin S, Schmajuk G. Capturing a Patient-Reported Measure of Physical Function Through an Online Electronic Health Record Patient Portal in an Ambulatory Clinic: Implementation Study. JMIR Medical Informatics 2018;6(2):e31 View
  25. Javier S, Troszak L, Shimada S, McInnes D, Ohl M, Avoundjian T, Erhardt T, Midboe A. Racial and ethnic disparities in use of a personal health record by veterans living with HIV. Journal of the American Medical Informatics Association 2019;26(8-9):696 View
  26. Wieland D, Gibeau A, Dewey C, Roshto M, Frankel H. Patient portal readiness among postpartum patients in a safety net setting. Applied Clinical Informatics 2017;08(03):698 View
  27. Vreugdenhil M, Ranke S, de Man Y, Haan M, Kool R. Patient and Health Care Provider Experiences With a Recently Introduced Patient Portal in an Academic Hospital in the Netherlands: Mixed Methods Study. Journal of Medical Internet Research 2019;21(8):e13743 View
  28. Latulipe C, Quandt S, Melius K, Bertoni A, Miller Jr D, Smith D, Arcury T. Insights Into Older Adult Patient Concerns Around the Caregiver Proxy Portal Use: Qualitative Interview Study. Journal of Medical Internet Research 2018;20(11):e10524 View
  29. Ochoa C, Baron-Lee J, Popescu C, Busl K. Electronic patient portal utilization by neurology patients and association with outcomes. Health Informatics Journal 2020;26(4):2751 View
  30. Turner K, Clary A, Hong Y, Alishahi Tabriz A, Shea C. Patient Portal Barriers and Group Differences: Cross-Sectional National Survey Study. Journal of Medical Internet Research 2020;22(9):e18870 View
  31. Cahan E, Mittal V, Shah N, Thadaney-Israni S. Achieving a Quintuple Aim for Telehealth in Pediatrics. Pediatric Clinics of North America 2020;67(4):683 View
  32. Clarke M, Lyden E, Ma J, King K, Siahpush M, Michaud T, Idoate R, Ramos A. Sociodemographic Differences and Factors Affecting Patient Portal Utilization. Journal of Racial and Ethnic Health Disparities 2021;8(4):879 View
  33. Wu Q, Street R. Factors Affecting Cancer Patients’ Electronic Communication with Providers: Implications for COVID-19 Induced Transitions to Telehealth. Patient Education and Counseling 2020 View
  34. Cemballi A, Karter A, Schillinger D, Liu J, McNamara D, Brown W, Crossley S, Semere W, Reed M, Allen J, Lyles C. Descriptive examination of secure messaging in a longitudinal cohort of diabetes patients in the ECLIPPSE study. Journal of the American Medical Informatics Association 2021;28(6):1252 View
  35. Freise L, Neves A, Flott K, Harrison P, Kelly J, Darzi A, Mayer E. Assessment of Patients’ Ability to Review Electronic Health Record Information to Identify Potential Errors: Cross-sectional Web-Based Survey. JMIR Formative Research 2021;5(2):e19074 View
  36. Eriksson-Backa K, Hirvonen N, Enwald H, Huvila I. Enablers for and barriers to using My Kanta – A focus group study of older adults’ perceptions of the National Electronic Health Record in Finland. Informatics for Health and Social Care 2021;46(4):399 View
  37. Escobar N, Crown A, Pocock B, Joseph K. The Devastating Impact of the COVID-19 Pandemic on Breast Cancer Care Among Medically Underserved Populations at Two New York City Public Hospitals. Annals of Surgery Open 2020;1(2):e018 View
  38. Dickman Portz J, Powers J, Casillas A, Baldwin M, Bekelman D, Palen T, Bull S, Kutner J, Bayliss E. Characteristics of Patients and Proxy Caregivers Using Patient Portals in the Setting of Serious Illness and End of Life. Journal of Palliative Medicine 2021;24(11):1697 View
  39. Ordaz O, Croff R, Robinson L, Shea S, Bowles N. Optimization of Primary Care Among Black Americans Using Patient Portals: Qualitative Study. Journal of Medical Internet Research 2021;23(6):e27820 View
  40. Harst L, Wollschlaeger B, Birnstein J, Fuchs T, Timpel P. Evaluation is Key: Providing Appropriate Evaluation Measures for Participatory and User-Centred Design Processes of Healthcare IT. International Journal of Integrated Care 2021;21(2) View
  41. Richwine C, Johnson C, Patel V. Disparities in patient portal access and the role of providers in encouraging access and use. Journal of the American Medical Informatics Association 2023;30(2):308 View
  42. Leach B, Parkinson S, Gkousis E, Abel G, Atherton H, Campbell J, Clark C, Cockcroft E, Marriott C, Pitchforth E, Sussex J. Digital Facilitation to Support Patient Access to Web-Based Primary Care Services: Scoping Literature Review. Journal of Medical Internet Research 2022;24(7):e33911 View
  43. Localio A, Klusaritz H, Morales K, Ruggieri D, Han X, Apter A. Primary language and the electronic health record patient portal: Barriers to use among Spanish-speaking adults with asthma. Journal of Asthma 2022;59(10):2081 View
  44. Casillas A, Valdovinos C, Wang E, Abhat A, Mendez C, Gutierrez G, Portz J, Brown A, Lyles C. Perspectives from leadership and frontline staff on telehealth transitions in the Los Angeles safety net during the COVID-19 pandemic and beyond. Frontiers in Digital Health 2022;4 View
  45. Lee D, Gefen D. The Interplay of Trust and Subjective Norms in Telemedicine Adoption by a Minority Community at Einstein Medical Center Philadelphia. ACM SIGMIS Database: the DATABASE for Advances in Information Systems 2022;53(4):46 View
  46. Korngiebel D, West K. Patient Recommendations for the Content and Design of Electronic Returns of Genetic Test Results: Interview Study Among Patients Who Accessed Their Genetic Test Results via the Internet. JMIRx Med 2022;3(2):e29706 View
  47. Acholonu R, Raphael J. The Influence of the Electronic Health Record on Achieving Equity and Eliminating Health Disparities for Children. Pediatric Annals 2022;51(3) View
  48. Nguyen M, Garcia F, Juarez J, Zeng B, Khoong E, Nijagal M, Sarkar U, Su G, Lyles C. Satisfaction can co-exist with hesitation: qualitative analysis of acceptability of telemedicine among multi-lingual patients in a safety-net healthcare system during the COVID-19 pandemic. BMC Health Services Research 2022;22(1) View
  49. Ndabu T, Agrawal L, Sharman R. The Role of Access Type and Age Group in the Breadth of Use of Patient Portals: Observational Study. Journal of Medical Internet Research 2022;24(12):e41972 View
  50. Sun E, Alvarez C, Callahan L, Sheikh S. The Disparities in Patient Portal Use Among Patients With Rheumatic and Musculoskeletal Diseases: Retrospective Cross-sectional Study. Journal of Medical Internet Research 2022;24(8):e38802 View
  51. Whitehead L, Talevski J, Fatehi F, Beauchamp A. Barriers to and Facilitators of Digital Health Among Culturally and Linguistically Diverse Populations: Qualitative Systematic Review. Journal of Medical Internet Research 2023;25:e42719 View
  52. Reinhardt G, Schwarz P, Harst L. Non-use of telemedicine: A scoping review. Health Informatics Journal 2021;27(4) View
  53. Payán D, Frehn J, Garcia L, Tierney A, Rodriguez H. Telemedicine implementation and use in community health centers during COVID-19: Clinic personnel and patient perspectives. SSM - Qualitative Research in Health 2022;2:100054 View
  54. Armstrong M, Benda N, Seier K, Rogers C, Ancker J, Stetson P, Peng Y, Diamond L. Improving Cancer Care Communication: Identifying Sociodemographic Differences in Patient Portal Secure Messages Not Authored by the Patient. Applied Clinical Informatics 2023;14(02):296 View
  55. Liu S, McCoy A, Aldrich M, Sandler K, Reese T, Steitz B, Bian J, Wu Y, Russo E, Wright A. Leveraging natural language processing to identify eligible lung cancer screening patients with the electronic health record. International Journal of Medical Informatics 2023;177:105136 View
  56. Conroy M, Kamaraju S, Powell M, Harris A, Beckius A, Nagavally S, Dawson A, Min H, Wright T, Wainaina N, Binder A. Racial and Ethnic Differences in the Use of Electronic Medical Record Messaging Among Patients With Breast Cancer: A Quality Improvement Study. Clinical Breast Cancer 2023;23(7):e434 View
  57. Geldof M, Gerlach N, Portela A. Digitalization of home-based records for maternal, newborn, and child health: a scoping review. BMC Digital Health 2023;1(1) View
  58. Abel G, Atherton H, Sussex J, Akter N, Aminu A, Bak W, Bryce C, Clark C, Cockcroft E, Evans H, Gkousis E, Jenkins G, Jenkinson C, Khan N, Lambert J, Leach B, Marriott C, Newbould J, Parkinson S, Parsons J, Pitchforth E, Sheard L, Stockwell S, Thomas C, Treadgold B, Winder R, Campbell J. Current experience and future potential of facilitating access to digital NHS primary care services in England: the Di-Facto mixed-methods study. Health and Social Care Delivery Research 2024:1 View
  59. Lockhart L, Gootee J, Copeland L, Turner D. Willingness to be contacted via the patient portal for health screening, research recruitment, and at home self-test kits for health monitoring: A Pilot Quantitative Survey (Preprint). JMIR Formative Research 2024 View
  60. Huvila I, Rexhepi H, Moll J, Ghorbanian Zolbin M, Blease C, Bärkås A, Åhlfeldt R, Hagström J, Kane B, Scandurra I, Hägglund M, Klein G, Wang B, Kharko A. Affordance trajectories and the usefulness of online records access among older adults in Sweden. DIGITAL HEALTH 2024;10 View

Books/Policy Documents

  1. Holve E. Consumer Informatics and Digital Health. View
  2. Campos-Castillo C, Mayberry L. Diabetes Digital Health and Telehealth. View
  3. Ghias M, Cline A, Safai B, Marmon S. Teledermatology. View
  4. Enwald H, Eriksson-Backa K, Hirvonen N, Huvila I. Information Experience and Information Literacy. View
  5. Seley J, Jack A. Diabetes Digital Health, Telehealth, and Artificial Intelligence. View