Published on in Vol 18, No 1 (2016): January

Health Advice from Internet Discussion Forums: How Bad Is Dangerous?

Health Advice from Internet Discussion Forums: How Bad Is Dangerous?

Health Advice from Internet Discussion Forums: How Bad Is Dangerous?

Authors of this article:

Jennifer Cole1 Author Orcid Image ;   Chris Watkins2 Author Orcid Image ;   Dorothea Kleine3 Author Orcid Image

Journals

  1. Seckin G, Hughes S. Patient-Reported Outcomes in a Nationally Representative Sample of Older Internet Users: Cross-sectional Survey. JMIR Aging 2021;4(4):e16006 View
  2. Fisher S, Jehassi A, Ziv M. Hidradenitis suppurativa on Facebook: thematic and content analyses of patient support group. Archives of Dermatological Research 2020;312(6):421 View
  3. Benetoli A, Chen T, Aslani P. How patients’ use of social media impacts their interactions with healthcare professionals. Patient Education and Counseling 2018;101(3):439 View
  4. Alcaraz Mateos E, Guerra Pastrián L, Pijuan Andújar L, López Solache L, Zucchiatti A, García Ángel R, Prieto Cuadra J, Labiano Miravalles T, Carvalho R, Gardner J, Terrádez C, de Álava E. La Anatomía Patológica en las redes sociales. Campaña de reclutamiento. Revista Española de Patología 2018;51(1):6 View
  5. Tausczik Y, Huang X. Knowledge generation and sharing in online communities: current trends and future directions. Current Opinion in Psychology 2020;36:60 View
  6. Hesse B, Greenberg A, Rutten L. The role of Internet resources in clinical oncology: promises and challenges. Nature Reviews Clinical Oncology 2016;13(12):767 View
  7. Laukka E, Rantakokko P, Suhonen M. Consumer-led health-related online sources and their impact on consumers: An integrative review of the literature. Health Informatics Journal 2019;25(2):247 View
  8. Deccache C, Hamon T, Morsa M, De Andrade V, Albano M, Gagnayre R. Helping patients to learn: characteristics and types of users and uses of independent online forums on health problems and chronic conditions. Education Thérapeutique du Patient - Therapeutic Patient Education 2019;11(1):10208 View
  9. Cedars B, Cohen A, Fergus K, Baradaran N, Ndoye M, Kamal P, Breyer B. Qualitative Analysis of the Content Found in Online Discussion Boards for Urethral Stricture Disease and Urethroplasty. Urology 2019;130:155 View
  10. Sharma R, Wigginton B, Meurk C, Ford P, Gartner C. Motivations and Limitations Associated with Vaping among People with Mental Illness: A Qualitative Analysis of Reddit Discussions. International Journal of Environmental Research and Public Health 2016;14(1):7 View
  11. Ovretveit J, Wu A, Street R, Thimbleby H, Thilo F, Hannawa A. Using and choosing digital health technologies: a communications science perspective. Journal of Health Organization and Management 2017;31(1):28 View
  12. Zhao Y, Zhang J. Consumer health information seeking in social media: a literature review. Health Information & Libraries Journal 2017;34(4):268 View
  13. Georgsson S, van der Spoel L, Ferm J, Carlsson T. Quality of web pages about second‐trimester medical abortion: A cross‐sectional study of readability, comprehensiveness, and transparency. Journal of Advanced Nursing 2019;75(11):2683 View
  14. Huh J, Marmor R, Jiang X. Lessons Learned for Online Health Community Moderator Roles: A Mixed-Methods Study of Moderators Resigning From WebMD Communities. Journal of Medical Internet Research 2016;18(9):e247 View
  15. Hodgson L, Growcott C, Williams A, Nester C, Morrison S. First steps: Parent health behaviours related to children’s foot health. Journal of Child Health Care 2020;24(2):221 View
  16. Saran I, Fink G, McConnell M, Agras W. How does anonymous online peer communication affect prevention behavior? Evidence from a laboratory experiment. PLOS ONE 2018;13(11):e0207679 View
  17. Sinha A, Porter T, Wilson A. The Use of Online Health Forums by Patients With Chronic Cough: Qualitative Study. Journal of Medical Internet Research 2018;20(1):e19 View
  18. White K, Gebremariam A, Lewis D, Nordgren W, Wedding J, Pasek J, Garrity A, Hirschfeld E, Lee J. Motivations for Participation in an Online Social Media Community for Diabetes. Journal of Diabetes Science and Technology 2018;12(3):712 View
  19. Kamiński M, Borger M, Prymas P, Muth A, Stachowski A, Łoniewski I, Marlicz W. Analysis of Answers to Queries among Anonymous Users with Gastroenterological Problems on an Internet Forum. International Journal of Environmental Research and Public Health 2020;17(3):1042 View
  20. Nam S, Han S, Gilligan M. Internet Use and Preventive Health Behaviors Among Couples in Later Life: Evidence from the Health and Retirement Study. The Gerontologist 2019;59(1):69 View
  21. Jayaraman P, Forkan A, Morshed A, Haghighi P, Kang Y. Healthcare 4.0: A review of frontiers in digital health. WIREs Data Mining and Knowledge Discovery 2020;10(2) View
  22. Lovatt M, Bath P, Ellis J. Development of Trust in an Online Breast Cancer Forum: A Qualitative Study. Journal of Medical Internet Research 2017;19(5):e175 View
  23. Willig A, Wright L, Galvin T. Practice Paper of the Academy of Nutrition and Dietetics: Nutrition Intervention and Human Immunodeficiency Virus Infection. Journal of the Academy of Nutrition and Dietetics 2018;118(3):486 View
  24. White B, Giglia R, Scott J, Burns S. How New and Expecting Fathers Engage With an App-Based Online Forum: Qualitative Analysis. JMIR mHealth and uHealth 2018;6(6):e144 View
  25. Allin S, Shepherd J, Tomasone J, Munce S, Linassi G, Hossain S, Jaglal S. Participatory Design of an Online Self-Management Tool for Users With Spinal Cord Injury: Qualitative Study. JMIR Rehabilitation and Assistive Technologies 2018;5(1):e6 View
  26. Hodgson L, Williams A, Nester C, Morrison S. Steps towards evidence‐based foot‐care for children: Behaviour and opinions of health professionals. Health & Social Care in the Community 2020;28(5):1651 View
  27. Dittmar J, Eilks I. Secondary School Students and Internet Forums—A Survey of Student Views Contrasted with an Analysis of Internet Forum Posts. Education Sciences 2019;9(2):121 View
  28. Cowher M, Witten M. Quality of Online Information to Support Patient Decision-Making in Breast Cancer Surgery. Breast Diseases: A Year Book Quarterly 2016;27(2):117 View
  29. Swallow V. Parents managing childhood long-term conditions: longitudinal research is needed on online forums as sources of peer-to-peer information. British Journal of Dermatology 2017;176(6):1430 View
  30. Wilkerson D, Brady E, Yi E, Bateman D. Friendsourcing Peer Support for Alzheimer’s Caregivers Using Facebook Social Media. Journal of Technology in Human Services 2018;36(2-3):105 View
  31. Allem J, Majmundar A, Dharmapuri L, Unger J, Cruz T. Insights on electronic cigarette products from reviews on the Reddit forum. Tobacco Prevention & Cessation 2019;5(September) View
  32. Majeed M, Khan F. Do information and communication technologies (ICTs) contribute to health outcomes? An empirical analysis. Quality & Quantity 2019;53(1):183 View
  33. Ellis L, Roberts L. Exploring the use and quality of Internet discussion forums in pregnancy: A qualitative analysis. Birth 2020;47(1):153 View
  34. Litchman M, Edelman L, Donaldson G. Effect of Diabetes Online Community Engagement on Health Indicators: Cross-Sectional Study. JMIR Diabetes 2018;3(2):e8 View
  35. Eades C, Clarke K, Cameron D, Coulson N, Evans J. Analysis of spontaneous, user‐generated data about gestational diabetes on online forums: implications for diabetes prevention. Diabetic Medicine 2020;37(12):2058 View
  36. Navarro K, Wainwright E, Rodham K, Jordan A. Parenting young people with complex regional pain syndrome: an analysis of the process of parental online communication. PAIN Reports 2018;3(7):e681 View
  37. Cole J, Ezziane S, Watkins C. Rapid Creation of an Online Discussion Space (r/nipah) During a Serious Disease Outbreak: Observational Study. JMIR Public Health and Surveillance 2019;5(4):e13753 View
  38. Liu Y, Song X, Chen S. Long story short: finding health advice with informative summaries on health social media. Aslib Journal of Information Management 2019;71(6):821 View
  39. van Mierlo T, Li X, Hyatt D, Ching A. Demographic and Indication-Specific Characteristics Have Limited Association With Social Network Engagement: Evidence From 24,954 Members of Four Health Care Support Groups. Journal of Medical Internet Research 2017;19(2):e40 View
  40. Lee E, Cooper R. Codeine Addiction and Internet Forum Use and Support: Qualitative Netnographic Study. JMIR Mental Health 2019;6(4):e12354 View
  41. Ronen K, Grant E, Copley C, Batista T, Guthrie B. Peer Group Focused eHealth Strategies to Promote HIV Prevention, Testing, and Care Engagement. Current HIV/AIDS Reports 2020;17(5):557 View
  42. Holroyd T, Oloko O, Salmon D, Omer S, Limaye R. Communicating Recommendations in Public Health Emergencies: The Role of Public Health Authorities. Health Security 2020;18(1):21 View
  43. Kamiński M, Łoniewski I, Marlicz W. ‘Dr. Google, I have a stomach ache’ – seasonal variations in abdominal pain: a 4-year retrospective data analysis from Google Ads keywords planner. Therapeutic Advances in Gastroenterology 2020;13 View
  44. Seçkin G. Expansion of Parson's sick role into cyberspace: Patient information consumerism and subjective health in a representative sample of U.S. internet users. Social Science & Medicine 2020;247:112733 View
  45. Zhou J, Wang C. Improving cancer survivors’ e-health literacy via online health communities (OHCs): a social support perspective. Journal of Cancer Survivorship 2020;14(2):244 View
  46. Courtenay T, Baraitser P. Online contraceptive discussion forums: a qualitative study to explore information provision. BMJ Sexual & Reproductive Health 2021;47(3):e5 View
  47. Amith M, Cohen T, Cunningham R, Savas L, Smith N, Cuccaro P, Gabay E, Boom J, Schvaneveldt R, Tao C. Mining HPV Vaccine Knowledge Structures of Young Adults From Reddit Using Distributional Semantics and Pathfinder Networks. Cancer Control 2020;27(1) View
  48. Ostherr K. The Shifting Aesthetics of Expertise in the Sharing Economy of Scientific Medicine. Science in Context 2018;31(1):107 View
  49. Gabarron E, Bradway M, Fernandez-Luque L, Chomutare T, Hansen A, Wynn R, Årsand E. Social media for health promotion in diabetes: study protocol for a participatory public health intervention design. BMC Health Services Research 2018;18(1) View
  50. Jamison J, Sutton S, Mant J, De Simoni A. Online stroke forum as source of data for qualitative research: insights from a comparison with patients’ interviews. BMJ Open 2018;8(3):e020133 View
  51. Crawford G, Maycock B, Tobin R, Brown G, Lobo R. Prevention of HIV and Other Sexually Transmissible Infections in Expatriates and Traveler Networks: Qualitative Study of Peer Interaction in an Online Forum. Journal of Medical Internet Research 2018;20(9):e10787 View
  52. San Lazaro Campillo I, Meaney S, Sheehan J, Rice R, O’Donoghue K. Reproductive Health Knowledge About Miscarriage: A Cross-Sectional Study of University Students. Maternal and Child Health Journal 2021;25(2):282 View
  53. Law G, Bülbül A, Jones C, Smith H. ‘The mean mummy way’ – experiences of parents instilling eye drops to their young children as described in online forums and blogs. BMC Pediatrics 2020;20(1) View
  54. Zuidema W, Graumans M, Oosterhuis J, van der Steeg A, van Heurn E. The Quality of Web Sites' Health Information on Minimal Invasive Repair of Pectus Excavatum Using the DISCERN Instrument. European Journal of Pediatric Surgery 2021;31(02):157 View
  55. Xie D, Boss E, Stewart C. An Exploration of Otolaryngology in the Reddit Community. The Laryngoscope 2022;132(2):284 View
  56. Farnood A, Johnston B, Mair F. An analysis of the diagnostic accuracy and peer‐to‐peer health information provided on online health forums for heart failure. Journal of Advanced Nursing 2022;78(1):187 View
  57. Ahmad M, Malik A, Mahmood K. Dengue-Related Information Needs and Information-Seeking Behavior in Pakistan. Health Communication 2023;38(6):1168 View
  58. Cao C, Li D, Xu Q, Shao X. Motivational Influences Affecting Middle-Aged and Elderly Users’ Participation Intention in Health-Related Social Media. International Journal of Environmental Research and Public Health 2022;19(18):11240 View
  59. Newson L, Bould K, Aspin‐Wood B, Sinclair L, Ikramullah Z, Abayomi J. The lived experiences of women exploring a healthy lifestyle, gestational weight gain and physical activity throughout pregnancy. Health Expectations 2022;25(4):1717 View
  60. Khelfaoui I, Xie Y, Hafeez M, Ahmed D, Degha H, Meskher H. Information Communication Technology and Infant Mortality in Low-Income Countries: Empirical Study Using Panel Data Models. International Journal of Environmental Research and Public Health 2022;19(12):7338 View
  61. Aboul-Fettouh N, Lee K, Kash N, Kroger K, Silapunt S. Social Media and Dermatology During the COVID-19 Pandemic: Analyzing User-Submitted Posts Seeking Dermatologic Advice on Reddit. Cureus 2023 View
  62. Gonzalez G, Vaculik K, Khalil C, Zektser Y, Arnold C, Almario C, Spiegel B, Anger J. Using Large-scale Social Media Analytics to Understand Patient Perspectives About Urinary Tract Infections: Thematic Analysis. Journal of Medical Internet Research 2022;24(1):e26781 View
  63. Nakagomi A, Shiba K, Kawachi I, Ide K, Nagamine Y, Kondo N, Hanazato M, Kondo K. Internet use and subsequent health and well-being in older adults: An outcome-wide analysis. Computers in Human Behavior 2022;130:107156 View
  64. Ragnedda M, Addeo F, Laura Ruiu M. How offline backgrounds interact with digital capital. New Media & Society 2024;26(4):2023 View
  65. Tulloch A, Oh R, Gallegos D. Environmental and public health co-benefits of consumer switches to immunity-supporting food. Ambio 2022;51(7):1658 View
  66. Dittmar J, Eilks I. Cooperative Learning With and About Internet Forums: A Case Study on a Unit on the Consumption and Chemistry of Mineral Water vs. Tap Water. Frontiers in Education 2022;6 View
  67. Akrich M, Cochoy F. A Masked Truth? Public Discussions about Face Masks on a French Health Forum. Minerva 2023;61(3):315 View
  68. Liu Y, Chen S. Advanced intelligent health advice with informative summaries to facilitate treatment decision-making. The Electronic Library 2023;41(5):662 View
  69. Pierce S, de Castro Lima H, Jain B, Reynolds K, Tomfohr-Madsen L, Roos L. “Please, please not another lockdown - I can’t do it again.” The Stressors Discussed on Online Canadian Forums by Parents of Young Children During the COVID-19 Pandemic. Journal of Child and Family Studies 2023;32(12):3653 View
  70. Alnashwan R, O’Riordan A, Sorensen H. Multiple-Perspective Data-Driven Analysis of Online Health Communities. Healthcare 2023;11(20):2723 View
  71. Wu N, Wang S, Brazeau A, Chan D, Mussa J, Nakhla M, Elkeraby M, Ell M, Prevost M, Lepine L, Panagiotopoulos C, Mukerji G, Butalia S, Henderson M, Da Costa D, Rahme E, Dasgupta K. Supporting and Incentivizing Peer Leaders for an Internet-Based Private Peer Community for Youths With Type 1 Diabetes: Social Network and Directed Content Analysis. Journal of Medical Internet Research 2023;25:e48267 View
  72. Wang W, Khelfaoui I, Ahmed D, Xie Y, Hafeez M, Meskher H. Nexus between information and communication technologies and life expectancies of low-income countries: Does technological advancement increase their life span?. SSM - Population Health 2024;25:101600 View
  73. Abdulai A, Naghdali H, Noga H, Yong P. Patient-Centered Approaches for Designing Destigmatizing Sexual Pain-Related Web-Based Platforms: Qualitative Study. JMIR Formative Research 2024;8:e53742 View
  74. Roquet A, Martinelli P, Lampraki C, Jopp D. Internet Use as a Moderator of the Relationship Between Personal Resources and Stress in Older Adults: Cross-Sectional Study. JMIR Aging 2024;7:e52555 View
  75. Kjærulff E, Nexø M, Papoutsi C, Langstrup H. ‘Online boundary-work’: How people with diabetes negotiate what counts as legitimate knowledge in Facebook peer support groups. Social Science & Medicine 2024;363:117480 View

Books/Policy Documents

  1. Noor K, Hunter A, Mayer A. Advances in Artificial Intelligence: From Theory to Practice. View
  2. Gabarron E, Bradway M, Årsand E. Diabetes Digital Health. View
  3. Zhou H, Yu B. Sustainable Digital Communities. View
  4. Reavley N, Fernando L, Jorm A. Mental Health in a Digital World. View
  5. Banday M, Bhat L. The Internet of Medical Things (IoMT) and Telemedicine Frameworks and Applications. View