Published on in Vol 17, No 5 (2015): May

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

The Cancer Experience Map: An Approach to Including the Patient Voice in Supportive Care Solutions

Journals

  1. Menichetti J, Graffigna G. “PHE in Action”: Development and Modeling of an Intervention to Improve Patient Engagement among Older Adults. Frontiers in Psychology 2016;7 View
  2. Wittenberg E, Xu J, Goldsmith J, Mendoza Y. Caregiver Communication About Cancer: Development of a mhealth resource to support family caregiver communication burden. Psycho-Oncology 2019;28(2):365 View
  3. van Eenbergen M, Vromans R, Boll D, Kil P, Vos C, Krahmer E, Mols F, van de Poll‐Franse L. Changes in internet use and wishes of cancer survivors: A comparison between 2005 and 2017. Cancer 2020;126(2):408 View
  4. Tavernier S, Beck S. Design and Evaluation of the Electronic Patient-Generated Index. Nursing Research 2020;69(3):227 View
  5. Villalba C, Jaiprakash A, Donovan J, Roberts J, Crawford R. Unlocking the Value of Literature in Health Co-Design: Transforming Patient Experience Publications into a Creative and Accessible Card Tool. The Patient - Patient-Centered Outcomes Research 2018;11(6):637 View
  6. Ana F, Loreto M, José L, Pablo S, María Pilar M, Myriam S. Mobile applications in oncology: A systematic review of health science databases. International Journal of Medical Informatics 2020;133:104001 View
  7. Bacchus L, Bullock L, Sharps P, Burnett C, Schminkey D, Buller A, Campbell J. Infusing Technology Into Perinatal Home Visitation in the United States for Women Experiencing Intimate Partner Violence: Exploring the Interpretive Flexibility of an mHealth Intervention. Journal of Medical Internet Research 2016;18(11):e302 View
  8. Nicholson C, Morrow E, Hicks A, Fitzpatrick J. Supportive care for older people with frailty in hospital: An integrative review. International Journal of Nursing Studies 2017;66:60 View
  9. Almeida S, Elliott R, Silva E, Sales C. Fear of cancer recurrence: A qualitative systematic review and meta-synthesis of patients' experiences. Clinical Psychology Review 2019;68:13 View
  10. Hälleberg Nyman M, Frank C, Langius-Eklöf A, Blomberg K, Sundberg K, Wengström Y. Patients’ Perspective on Participation in Care With or Without the Support of a Smartphone App During Radiotherapy for Prostate Cancer: Qualitative Study. JMIR mHealth and uHealth 2017;5(7):e107 View
  11. Schmit C, Ajayi K, Ferdinand A, Giannouchos T, Ilangovan G, Nowell W, Kum H. Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study. Journal of Medical Internet Research 2020;22(12):e20783 View
  12. Kaler A, Johnson C, Whisenant M. Patient voice in metastatic cancer: A conceptual analysis. Nursing Forum 2022;57(6):1523 View
  13. Wardill H, Cheung Y, Boltong A, Charalambous A, Koczwara B, Lustberg M, Tomlins E, Britto J. ‘Share your views’—international consultation informs a patient engagement strategy for the Multinational Association of Supportive Care in Cancer. Supportive Care in Cancer 2022;30(12):9953 View
  14. Shé É, Gordan A, Hughes B, Hope T, McNally T, Whelan R, Staunton M, Grayson M, Hazell L, Wilson I, Stephens R, Quinn E, McCann A. “Could you give us an idea on what we are all doing here?” the Patient Voice in Cancer Research (PVCR) starting the journey of involvement in Ireland. Research Involvement and Engagement 2021;7(1) View
  15. Eubank B, Lackey S, Slomp M, Werle J, Kuntze C, Sheps D. Consensus for a primary care clinical decision-making tool for assessing, diagnosing, and managing shoulder pain in Alberta, Canada. BMC Family Practice 2021;22(1) View
  16. Jack K, Illingworth S. Rehearsing empathy: exploring the role of poetry in supporting learning. Arts & Health 2023:1 View
  17. Roggenbuck J, Eubank B, Wright J, Harms M, Kolb S. Evidence‐based consensus guidelines for ALS genetic testing and counseling. Annals of Clinical and Translational Neurology 2023;10(11):2074 View
  18. Romagnoli K, Kulchak Rahm A, Jonas M, Schwiter R, Klinger T, Ladd I, Salvati Z, DiNucci A, Blasi P, Sheridan L, Scrol A, Henrikson N. Human-Centered Design Study to Inform Traceback Cascade Genetic Testing Programs at Three Integrated Health Systems. Public Health Genomics 2023:45 View

Books/Policy Documents

  1. Hochheiser H, Romagnoli K. Clinical Decision Support for Pharmacogenomic Precision Medicine. View