This paper is in the following e-collection/theme issue:

Peer-to-Peer Support and Online Communities (633) Participatory Medicine & E-Patients (769)

Published on in Vol 17, No 3 (2015): February

The Contribution of Online Peer-to-Peer Communication Among Patients With Adrenal Disease to Patient-Centered Care

The Contribution of Online Peer-to-Peer Communication Among Patients With Adrenal Disease to Patient-Centered Care

The Contribution of Online Peer-to-Peer Communication Among Patients With Adrenal Disease to Patient-Centered Care

Authors of this article:

Dirkjan Kauw1 Author Orcid Image ;   Han Repping-Wuts1 Author Orcid Image ;   Alida Noordzij2 Author Orcid Image ;   Nike Stikkelbroeck1 Author Orcid Image ;   Ad Hermus1 Author Orcid Image ;   Marjan Faber3 Author Orcid Image
Article Authors Cited by (11) Tweetations (6) Metrics

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  1. Badiu C, Bonomi M, Borshchevsky I, Cools M, Craen M, Ghervan C, Hauschild M, Hershkovitz E, Hrabovszky E, Juul A, Kim S, Kumanov P, Lecumberri B, Lemos M, Neocleous V, Niedziela M, Djurdjevic S, Persani L, Phan-Hug F, Pignatelli D, Pitteloud N, Popovic V, Quinton R, Skordis N, Smith N, Stefanija M, Xu C, Young J, Dwyer A. Developing and evaluating rare disease educational materials co-created by expert clinicians and patients: the paradigm of congenital hypogonadotropic hypogonadism. Orphanet Journal of Rare Diseases 2017;12(1) View
  2. Cole S. Evaluation and Treatment of Adrenal Dysfunction in the Primary Care Environment. Nursing Clinics of North America 2018;53(3):385 View
  3. Colman A, Sellick J, Weaver J. Use of Quick Response (QR) coded bracelets and cards for the improvement of cortisol deficiency/Addison’s disease management: an audit of quality of care of the management of steroid deficiency in acute illness. BMJ Innovations 2018;4(3):115 View
  4. Hanna K, Brennan D, Sambrook P, Armfield J. Third Molars on the Internet: A Guide for Assessing Information Quality and Readability. interactive Journal of Medical Research 2015;4(4):e19 View
  5. Travlos V, Bulsara C, Patman S, Downs J, Danzl M, Etter N. A fine balance and a shared learning journey: Exploring healthcare engagement through the experiences of youth with Neuromuscular Disorders. NeuroRehabilitation 2016;39(4):519 View
  6. Kamiński M, Borger M, Prymas P, Muth A, Stachowski A, Łoniewski I, Marlicz W. Analysis of Answers to Queries among Anonymous Users with Gastroenterological Problems on an Internet Forum. International Journal of Environmental Research and Public Health 2020;17(3):1042 View
  7. Amann J, Rubinelli S. Views of Community Managers on Knowledge Co-creation in Online Communities for People With Disabilities: Qualitative Study. Journal of Medical Internet Research 2017;19(10):e320 View
  8. Li D, Genere N, Behnken E, Xhikola M, Abbondanza T, Vaidya A, Bancos I. Determinants of Self-reported Health Outcomes in Adrenal Insufficiency: A Multisite Survey Study. The Journal of Clinical Endocrinology & Metabolism 2021;106(3):e1408 View
  9. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  10. Long J, Best S, Nic Giolla Easpaig B, Hatem S, Fehlberg Z, Christodoulou J, Braithwaite J. Needs of people with rare diseases that can be supported by electronic resources: a scoping review. BMJ Open 2022;12(9):e060394 View
  11. Adams C, Walpola R, Iqbal M, Schembri A, Harrison R. The three pillars of patient experience: identifying key drivers of patient experience to improve quality in healthcare. Journal of Public Health 2024 View