Published on in Vol 17, No 1 (2015): January

Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain

Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain

Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain

Journals

  1. Tatara N, Kjøllesdal M, Mirkovic J, Andreassen H. eHealth Use Among First-Generation Immigrants From Pakistan in the Oslo Area, Norway, With Focus on Diabetes: Survey Protocol. JMIR Research Protocols 2016;5(2):e79 View
  2. De Nardi L, Trombetta A, Ghirardo S, Genovese M, Barbi E, Taucar V. Adolescents with chronic disease and social media: a cross-sectional study. Archives of Disease in Childhood 2020;105(8):744 View
  3. Vasilica C, Brettle A, Ormandy P. A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study. JMIR Formative Research 2020;4(1):e13207 View
  4. Bragazzi N, Amital H, Adawi M, Brigo F, Watad S, Aljadeff G, Amital D, Watad A. What do people search online concerning the “elusive” fibromyalgia? Insights from a qualitative and quantitative analysis of Google Trends. Clinical Rheumatology 2017;36(8):1873 View
  5. Pisaniello H, Dixon W. What does digitalization hold for the creation of real-world evidence?. Rheumatology 2020;59(1):39 View
  6. Cacioppo C, Conway L, Mehta D, Krantz I, Noon S. Attitudes about the use of internet support groups and the impact among parents of children with Cornelia de Lange syndrome. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 2016;172(2):229 View
  7. Islam S, Tabassum R, Liu Y, Chen S, Redfern J, Kim S, Ball K, Maddison R, Chow C. The role of social media in preventing and managing non-communicable diseases in low-and-middle income countries: Hope or hype?. Health Policy and Technology 2019;8(1):96 View
  8. Hazzam J, Lahrech A. Health Care Professionals’ Social Media Behavior and the Underlying Factors of Social Media Adoption and Use: Quantitative Study. Journal of Medical Internet Research 2018;20(11):e12035 View
  9. Merolli M, Gray K, Martin-Sanchez F, Mantopoulos S, Hogg M. Using Social Media While Waiting in Pain: A Clinical 12-Week Longitudinal Pilot Study. JMIR Research Protocols 2015;4(3):e101 View
  10. Conesa-Fuentes M, Hernandez-Morante J. Prospective analysis of the quality of Spanish health information web sites after 3 years. Informatics for Health and Social Care 2016;41(4):417 View
  11. Mullins C, ffrench-O'Carroll R, Lane J, O'Connor T. Sharing the pain: an observational analysis of Twitter and pain in Ireland. Regional Anesthesia & Pain Medicine 2020;45(8):597 View
  12. Toye F, Seers K, Barker K. “It’s like she’s talking about me” — Exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain: An analysis of online comments. Canadian Journal of Pain 2020;4(3):61 View
  13. Guymer E, Littlejohn G, Brand C, Kwiatek R. Fibromyalgia onset has a high impact on work ability in Australians. Internal Medicine Journal 2016;46(9):1069 View
  14. Hunt D, Koteyko N, Gunter B. UK policy on social networking sites and online health: From informed patient to informed consumer?. DIGITAL HEALTH 2015;1:205520761559251 View
  15. Marco-Ruiz L, Wynn R, Oyeyemi S, Budrionis A, Yigzaw K, Bellika J. Impact of Illness on Electronic Health Use (The Seventh Tromsø Study - Part 2): Population-Based Questionnaire Study. Journal of Medical Internet Research 2020;22(3):e13116 View
  16. Hausmann J, Touloumtzis C, White M, Colbert J, Gooding H. Adolescent and Young Adult Use of Social Media for Health and Its Implications. Journal of Adolescent Health 2017;60(6):714 View
  17. Ukoha C, Stranieri A. Criteria to Measure Social Media Value in Health Care Settings: Narrative Literature Review. Journal of Medical Internet Research 2019;21(12):e14684 View
  18. Slater H, Dear B, Merolli M, Li L, Briggs A. Use of eHealth technologies to enable the implementation of musculoskeletal Models of Care: Evidence and practice. Best Practice & Research Clinical Rheumatology 2016;30(3):483 View
  19. McAlpine H, Sejka M, Drummond K. Brain tumour patients’ use of social media for disease management: Current practices and implications for the future. Patient Education and Counseling 2021;104(2):395 View
  20. Gray K, Martin-Sanchez F, Lopez-Campos G, Almalki M, Merolli M. Person-generated Data in Self-quantification. Methods of Information in Medicine 2017;56(01):40 View
  21. Chen A. The Relationship Between Health Management and Information Behavior Over Time: A Study of the Illness Journeys of People Living With Fibromyalgia. Journal of Medical Internet Research 2016;18(10):e269 View
  22. Maor D, Mitchem K. Hospitalized Adolescents’ Use of Mobile Technologies for Learning, Communication, and Well-Being. Journal of Adolescent Research 2020;35(2):225 View
  23. Tsai S, Crawford E, Strong J. Seeking virtual social support through blogging: A content analysis of published blog posts written by people with chronic pain. DIGITAL HEALTH 2018;4:205520761877266 View
  24. Pappa D, Stergioulas L. Harnessing social media data for pharmacovigilance: a review of current state of the art, challenges and future directions. International Journal of Data Science and Analytics 2019;8(2):113 View
  25. Martin-Sanchez F, Lopez-Campos G. The New Role of Biomedical Informatics in the Age of Digital Medicine. Methods of Information in Medicine 2016;55(05):392 View
  26. Mouelhi Y, Alessandrini M, Pauly V, Dussol B, Gentile S. Internet and social network users’ profiles in Renal Transplant Recipients in France. BMC Nephrology 2017;18(1) View
  27. Reuter K, Danve A, Deodhar A. Harnessing the power of social media: how can it help in axial spondyloarthritis research?. Current Opinion in Rheumatology 2019;31(4):321 View
  28. Shoebotham A, Coulson N. Therapeutic Affordances of Online Support Group Use in Women With Endometriosis. Journal of Medical Internet Research 2016;18(5):e109 View
  29. Cury D, Paez L, Micheletti A, Reis S. The Impact of Electronic Media on Patients with Inflammatory Bowel Disease. Risk Management and Healthcare Policy 2021;Volume 14:809 View
  30. Studenic P, Karlfeldt S, Alunno A. The past, present and future of e-health in Rheumatology. Joint Bone Spine 2021;88(4):105163 View
  31. Kozinets R, Ferreira D, Chimenti P, Price L, Goulding C. How Do Platforms Empower Consumers? Insights from the Affordances and Constraints of Reclame Aqui. Journal of Consumer Research 2021;48(3):428 View
  32. Piszczek C, Foley C, Farag S, Northup M, Overcarsh P, Wiedrick J, Yunker A, Ecker A. Social media utilization, preferences, and patterns of behavior in patients with gynecologic pelvic pain. American Journal of Obstetrics and Gynecology 2022;226(4):547.e1 View
  33. Khalili-Mahani N, Holowka E, Woods S, Khaled R, Roy M, Lashley M, Glatard T, Timm-Bottos J, Dahan A, Niesters M, Hovey R, Simon B, Kirmayer L. Play the Pain: A Digital Strategy for Play-Oriented Research and Action. Frontiers in Psychiatry 2021;12 View
  34. Studenic P, Karlfeldt S, Alunno A. Le passé, le présent et le futur de l’e-santé en rhumatologie. Revue du Rhumatisme 2022;89(3):204 View
  35. McNeilage A, Avery N, Holliday S, Glare P, Ashton-James C. A qualitative trajectory analysis of patients' experiences tapering opioids for chronic pain. Pain 2022;163(2):e246 View
  36. Wang H, Gupta S, Singhal A, Muttreja P, Singh S, Sharma P, Piterova A. An Artificial Intelligence Chatbot for Young People’s Sexual and Reproductive Health in India (SnehAI): Instrumental Case Study. Journal of Medical Internet Research 2022;24(1):e29969 View
  37. van den Haspel K, Reddington C, Healey M, Li R, Dior U, Cheng C. The role of social media in management of individuals with endometriosis: A cross‐sectional study. Australian and New Zealand Journal of Obstetrics and Gynaecology 2022;62(5):701 View
  38. Goff A, Barton C, Merolli M, Zhang Quah A, Ki-Cheong Hoe C, De Oliveira Silva D. Comprehensiveness, accuracy, quality, credibility and readability of online information about knee osteoarthritis. Health Information Management Journal 2023;52(3):185 View
  39. Liddy C, Poulin P, Hunter Z, Smyth C, Keely E. Patient perspectives on wait times and the impact on their life: A waiting room survey in a chronic pain clinic. Scandinavian Journal of Pain 2017;17(1):53 View
  40. Kilcoyne S, Rogers C, Thomas G, Wall S, Johnson D. Craniofacial Surgery-Related Hashtag Utilisation on Instagram. Journal of Craniofacial Surgery 2021;32(6):2035 View
  41. Kovačević I, Majerić Kogler V, Krikšić V, Ilić B, Friganović A, Ozimec Vulinec Š, Pavić J, Milošević M, Kovačević P, Petek D. Non-Medical Factors Associated with the Outcome of Treatment of Chronic Non-Malignant Pain: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2022;19(5):2881 View
  42. Monaco F, Georgiadis E, Chatsiou K, Bonacaro A. Understanding chronic pain in the ubiquitous community: the role of open data. Frontiers in Pain Research 2023;4 View
  43. Moumane K, Idri A. Mobile applications for endometriosis management functionalities: Analysis and potential. Scientific African 2023;21:e01833 View

Books/Policy Documents

  1. van Deen W, Hommes D. Telemanagement of Inflammatory Bowel Disease. View
  2. Isika N, Mendoza A, Bosua R. Opportunities and Challenges in Digital Healthcare Innovation. View
  3. Pruulmann-Vengerfeldt P, Willstedt Buchholtz J. Podcasting. View
  4. Bond C, Merolli M, Ahmed O. Participatory Health Through Social Media. View
  5. Abdelguiom G, Iahad N. Innovative Systems for Intelligent Health Informatics. View
  6. Tennakoon H. Handbook of Research on Cyberchondria, Health Literacy, and the Role of Media in Society’s Perception of Medical Information. View