This paper is in the following e-collection/theme issue:

Electronic/Mobile Data Capture, Internet-based Survey & Research Methodology (832) Medicine 2.0: Social Media, Open, Participatory, Collaborative Medicine (1641) LGBTQ Issues (448) Recruitment of Research Participants (296)

Published on in Vol 16, No 5 (2014): May

Using Online Social Media for Recruitment of Human Immunodeficiency Virus-Positive Participants: A Cross-Sectional Survey

Using Online Social Media for Recruitment of Human Immunodeficiency Virus-Positive Participants: A Cross-Sectional Survey

Using Online Social Media for Recruitment of Human Immunodeficiency Virus-Positive Participants: A Cross-Sectional Survey

Authors of this article:

Patrick Yuan1 ;   Michael G Bare1 ;   Mallory O Johnson1 ;   Parya Saberi1 Author Orcid Image
Article Authors Cited by (101) Tweetations (27) Metrics

Journals

  1. Sauceda J, Neilands T, Johnson M, Saberi P. An update on the Barriers to Adherence and a Definition of Self-Report Non-adherence Given Advancements in Antiretroviral Therapy (ART). AIDS and Behavior 2018;22(3):939 View
  2. Guillory J, Wiant K, Farrelly M, Fiacco L, Alam I, Hoffman L, Crankshaw E, Delahanty J, Alexander T. Recruiting Hard-to-Reach Populations for Survey Research: Using Facebook and Instagram Advertisements and In-Person Intercept in LGBT Bars and Nightclubs to Recruit LGBT Young Adults. Journal of Medical Internet Research 2018;20(6):e197 View
  3. Topolovec-Vranic J, Natarajan K. The Use of Social Media in Recruitment for Medical Research Studies: A Scoping Review. Journal of Medical Internet Research 2016;18(11):e286 View
  4. Rosa C, Campbell A, Miele G, Brunner M, Winstanley E. Using e-technologies in clinical trials. Contemporary Clinical Trials 2015;45:41 View
  5. Grové C. Using Social Networking Sites in Research: An Emerging Approach to Engaging With Young People Who Have a Parent With a Mental Illness and/or Substance Abuse Disorder. Frontiers in Psychiatry 2019;10 View
  6. Dalessandro C. Recruitment Tools for Reaching Millennials. International Journal of Qualitative Methods 2018;17(1) View
  7. Clyne W, Pezaro S, Deeny K, Kneafsey R. Using Social Media to Generate and Collect Primary Data: The #ShowsWorkplaceCompassion Twitter Research Campaign. JMIR Public Health and Surveillance 2018;4(2):e41 View
  8. Merolli M, Gray K, Martin-Sanchez F, Lopez-Campos G. Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2015;17(1):e20 View
  9. Berzins K, Louch G, Brown M, O’Hara J, Baker J. Service user and carer involvement in mental health care safety: raising concerns and improving the safety of services. BMC Health Services Research 2018;18(1) View
  10. Sauceda J, Johnson M, Saberi P. Nonadherence as 4-day Antiretroviral Therapy Interruptions: Do Depression and Race/Ethnicity Matter as Much in the Modern Antiretroviral Therapy Era?. AIDS and Behavior 2016;20(11):2624 View
  11. Miller K, Langdon J, Burdette G, Buckley T. Concussion knowledge among amateur motocross riders. Concussion 2016;1(3):CNC16 View
  12. Cahill T, Wertz B, Zhong Q, Parlato A, Donegan J, Forman R, Manot S, Wu T, Xu Y, Cummings J, Norkunas Cunningham T, Wang C. The Search for Consumers of Web-Based Raw DNA Interpretation Services: Using Social Media to Target Hard-to-Reach Populations. Journal of Medical Internet Research 2019;21(7):e12980 View
  13. Bennetts S, Hokke S, Crawford S, Hackworth N, Leach L, Nguyen C, Nicholson J, Cooklin A. Using Paid and Free Facebook Methods to Recruit Australian Parents to an Online Survey: An Evaluation. Journal of Medical Internet Research 2019;21(3):e11206 View
  14. Merolli M, Gray K, Martin-Sanchez F. Therapeutic Affordances of Social Media: Emergent Themes From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2014;16(12):e284 View
  15. Liang Y, Zheng X, Zeng D, Zhou X, Leischow S, Chung W. Exploring How the Tobacco Industry Presents and Promotes Itself in Social Media. Journal of Medical Internet Research 2015;17(1):e24 View
  16. Garrido-Hernansaiz H, Murphy P, Alonso-Tapia J. Predictors of Resilience and Posttraumatic Growth Among People Living with HIV: A Longitudinal Study. AIDS and Behavior 2017;21(11):3260 View
  17. Kozak A, Buscemi J, Hawkins M, Wang M, Breland J, Ross K, Kommu A. Technology-based interventions for weight management: current randomized controlled trial evidence and future directions. Journal of Behavioral Medicine 2017;40(1):99 View
  18. Frampton G, Shepherd J, Pickett K, Griffiths G, Wyatt J. Digital tools for the recruitment and retention of participants in randomised controlled trials: a systematic map. Trials 2020;21(1) View
  19. Wong C, Horn-Ross P, Gee G, Shariff-Marco S, Quach T, Allen L, Bautista R, La Chica P, Tseng W, Chang P, Clarke C, Yang J, Le G, Canchola A, Irwin M, Lee S, Gomez S. Strategies for recruiting representative samples of Asian Americans for a population-based case–control study. Journal of Epidemiology and Community Health 2016;70(10):974 View
  20. Klassen K, Millard T, Stout J, McDonald K, Dodson S, Osborne R, Battersby M, Fairley C, Kidd M, McMahon J, Baker D, Elliott J. Recruiting people with HIV to an online self-management support randomised controlled trial: barriers and facilitators. Sexual Health 2019;16(4):340 View
  21. Saberi P. Research in the Time of Coronavirus: Continuing Ongoing Studies in the Midst of the COVID-19 Pandemic. AIDS and Behavior 2020;24(8):2232 View
  22. Thornton L, Batterham P, Fassnacht D, Kay-Lambkin F, Calear A, Hunt S. Recruiting for health, medical or psychosocial research using Facebook: Systematic review. Internet Interventions 2016;4:72 View
  23. Redmond N, Harker L, Bamps Y, Flemming S, Perryman J, Thompson N, Patzer R, Williams N, Arriola K. Implementation of a Web-Based Organ Donation Educational Intervention: Development and Use of a Refined Process Evaluation Model. Journal of Medical Internet Research 2017;19(11):e396 View
  24. Raviotta J, Nowalk M, Lin C, Huang H, Zimmerman R. Using Facebook™ to Recruit College-Age Men for a Human Papillomavirus Vaccine Trial. American Journal of Men's Health 2016;10(2):110 View
  25. McCarthy E, Mazza D. Cost and Effectiveness of Using Facebook Advertising to Recruit Young Women for Research: PREFER (Contraceptive Preferences Study) Experience. Journal of Medical Internet Research 2019;21(11):e15869 View
  26. Stokes Y, Vandyk A, Squires J, Jacob J, Gifford W. Using Facebook and LinkedIn to Recruit Nurses for an Online Survey. Western Journal of Nursing Research 2019;41(1):96 View
  27. Watson B, Robinson D, Harker L, Arriola K. The Inclusion of African-American Study Participants in Web-Based Research Studies: Viewpoint. Journal of Medical Internet Research 2016;18(6):e168 View
  28. Arayasirikul S, Chen Y, Jin H, Wilson E. A Web 2.0 and Epidemiology Mash-Up: Using Respondent-Driven Sampling in Combination with Social Network Site Recruitment to Reach Young Transwomen. AIDS and Behavior 2016;20(6):1265 View
  29. Ash G, Robledo D, Ishii M, Pittman B, DeMartini K, O'Malley S, Redeker N, Fucito L. Using Web-Based Social Media to Recruit Heavy-Drinking Young Adults for Sleep Intervention: Prospective Observational Study. Journal of Medical Internet Research 2020;22(8):e17449 View
  30. Algtewi E, Owens J, Baker S. Online support groups for head and neck cancer and health-related quality of life. Quality of Life Research 2017;26(9):2351 View
  31. Guillory J, Kim A, Murphy J, Bradfield B, Nonnemaker J, Hsieh Y. Comparing Twitter and Online Panels for Survey Recruitment of E-Cigarette Users and Smokers. Journal of Medical Internet Research 2016;18(11):e288 View
  32. Moore D, Chandler T, Holland T, Davis-Smith Y, King E. African American Obese Women’s Perspectives Regarding Barriers to the Utilization of Bariatric Surgery: A Phenomenological Study. Journal of Black Studies 2017;48(5):484 View
  33. Gaupp-Berghausen M, Raser E, Anaya-Boig E, Avila-Palencia I, de Nazelle A, Dons E, Franzen H, Gerike R, Götschi T, Iacorossi F, Hössinger R, Nieuwenhuijsen M, Rojas-Rueda D, Sanchez J, Smeds E, Deforth M, Standaert A, Stigell E, Cole-Hunter T, Int Panis L. Evaluation of Different Recruitment Methods: Longitudinal, Web-Based, Pan-European Physical Activity Through Sustainable Transport Approaches (PASTA) Project. Journal of Medical Internet Research 2019;21(5):e11492 View
  34. Niranjan S, Spulick S, Savitskie K. Mediating and moderating influencers of firm performance. Journal of Enterprise Information Management 2018;31(1):38 View
  35. Alber J, Bernhardt J, Stellefson M, Weiler R, Anderson-Lewis C, Miller M, MacInnes J. Designing and Testing an Inventory for Measuring Social Media Competency of Certified Health Education Specialists. Journal of Medical Internet Research 2015;17(9):e221 View
  36. Wright C, Leinberger K, Lim M. Challenges to translating new media interventions in community practice: a sexual health SMS program case study. Health Promotion Journal of Australia 2016;27(1):70 View
  37. Caplan A, Friesen P. Health disparities and clinical trial recruitment: Is there a duty to tweet?. PLOS Biology 2017;15(3):e2002040 View
  38. Siegmund L. Social Media. Clinical Nurse Specialist 2018;32(2):62 View
  39. Frandsen M, Thow M, Ferguson S. The Effectiveness Of Social Media (Facebook) Compared With More Traditional Advertising Methods for Recruiting Eligible Participants To Health Research Studies: A Randomized, Controlled Clinical Trial. JMIR Research Protocols 2016;5(3):e161 View
  40. Jameson S, Parkinson L, Banbury A. After the care journey: exploring the experiences of family carers of people living with dementia. Ageing and Society 2020;40(11):2429 View
  41. Reeve M, Partridge M. The Use of Social Media to Combat Research-Isolation. Annals of the Entomological Society of America 2017;110(5):449 View
  42. van den Berg J, Neilands T, Johnson M, Chen B, Saberi P. Using Path Analysis to Evaluate the Healthcare Empowerment Model Among Persons Living with HIV for Antiretroviral Therapy Adherence. AIDS Patient Care and STDs 2016;30(11):497 View
  43. Davies B, Kotter M. Lessons From Recruitment to an Internet-Based Survey for Degenerative Cervical Myelopathy: Comparison of Free and Fee-Based Methods. JMIR Research Protocols 2018;7(2):e18 View
  44. Solomon S, Pfeffer M. The Future of Clinical Trials in Cardiovascular Medicine. Circulation 2016;133(25):2662 View
  45. Gabrielli J, Borodovsky J, Corcoran E, Sink L. Leveraging social media to rapidly recruit a sample of young adults aging out of foster care: Methods and recommendations. Children and Youth Services Review 2020;113:104960 View
  46. Saberi P, Johnson M. Correlation of Internet Use for Health Care Engagement Purposes and HIV Clinical Outcomes Among HIV-Positive Individuals Using Online Social Media. Journal of Health Communication 2015;20(9):1026 View
  47. Whitaker C, Stevelink S, Fear N. The Use of Facebook in Recruiting Participants for Health Research Purposes: A Systematic Review. Journal of Medical Internet Research 2017;19(8):e290 View
  48. Bragard E, Fisher C, Curtis B. “They know what they are getting into:” Researchers confront the benefits and challenges of online recruitment for HIV research. Ethics & Behavior 2020;30(7):481 View
  49. D Welch T. Is Facebook a viable recruitment tool?. Nurse Researcher 2020;28(2):9 View
  50. Lee J, DeCamp M, Dredze M, Chisolm M, Berger Z. What Are Health-Related Users Tweeting? A Qualitative Content Analysis of Health-Related Users and Their Messages on Twitter. Journal of Medical Internet Research 2014;16(10):e237 View
  51. He D, Jeng W. Scholarly Collaboration on the Academic Social Web. Synthesis Lectures on Information Concepts, Retrieval, and Services 2016;8(1):1 View
  52. Wilson R, Usher K. Social media as a recruitment strategy: using Twitter to explore young people’s mental health. Nurse Researcher 2017;25(3):36 View
  53. O'Dwyer S, Moyle W, Zimmer-Gembeck M, De Leo D. Suicidal ideation in family carers of people with dementia. Aging & Mental Health 2016;20(2):222 View
  54. Iribarren S, Ghazzawi A, Sheinfil A, Frasca T, Brown W, Lopez-Rios J, Rael C, Balán I, Crespo R, Dolezal C, Giguere R, Carballo-Diéguez A. Mixed-Method Evaluation of Social Media-Based Tools and Traditional Strategies to Recruit High-Risk and Hard-to-Reach Populations into an HIV Prevention Intervention Study. AIDS and Behavior 2018;22(1):347 View
  55. Garrido‐Hernansaiz H, Alonso‐Tapia J. Predictors of anxiety and depression among newly diagnosed people living with HIV: A longitudinal study. Scandinavian Journal of Psychology 2020;61(5):616 View
  56. Wasilewski M, Stinson J, Webster F, Cameron J. Using Twitter to recruit participants for health research: An example from a caregiving study. Health Informatics Journal 2019;25(4):1485 View
  57. Bell C, Spruit J, Kavanaugh K. Exposing the Risks of Social Media Recruitment in Adolescents and Young Adults with Cancer: #Beware. Journal of Adolescent and Young Adult Oncology 2020;9(5):601 View
  58. Hughes D, Hutchinson A, Prichard I, Chapman J, Wilson C. Challenges associated with recruiting multigenerational, multicultural families into a randomised controlled trial: Balancing feasibility with validity. Contemporary Clinical Trials 2015;43:185 View
  59. Rashid Soron T. Use of facebook for developing suicide database in Bangladesh. Asian Journal of Psychiatry 2019;39:110 View
  60. Saberi P, Johnson M. Moving toward a novel and comprehensive behavioral composite of engagement in HIV care. AIDS Care 2015;27(5):660 View
  61. Norman C, Haresign H, Mehling C, Bloomberg H. Exploring the Feasibility and Potential of Virtual Panels for Soliciting Feedback on Nutrition Education Materials: A Proof-of-Concept Study. JMIR Public Health and Surveillance 2016;2(1):e18 View
  62. Lee S, Torok M, Shand F, Chen N, McGillivray L, Burnett A, Larsen M, Mok K. Performance, Cost-Effectiveness, and Representativeness of Facebook Recruitment to Suicide Prevention Research: Online Survey Study. JMIR Mental Health 2020;7(10):e18762 View
  63. Borodovsky J, Marsch L, Budney A. Studying Cannabis Use Behaviors With Facebook and Web Surveys: Methods and Insights. JMIR Public Health and Surveillance 2018;4(2):e48 View
  64. Ladeiras-Lopes R, Baciu L, Grapsa J, Sohaib A, Vidal-Perez R, Bohm A, Silvola H, Gimenez M, Muscoli S, Wallner M, Rakisheva A, Nagy V, Cowie M, Clarke S, Achenbach S. Social media in cardiovascular medicine: a contemporary review. European Heart Journal - Digital Health 2020;1(1):10 View
  65. Zhang W, Hu Q, Tang W, Jin X, Mao X, Lu T, Gao Y, Chu Z, Dong W, Bao Y, Shang H, Xu J. HIV Self-Testing Programs to Men Who Have Sex With Men Delivered by Social Media Key Opinion Leaders and Community-Based Organizations are Both Effective and Complementary: A National Pragmatic Study in China. JAIDS Journal of Acquired Immune Deficiency Syndromes 2020;84(5):453 View
  66. Barsoum R, Harrison S. Clinical Characteristics in Early Childhood Associated with a Nevus-Prone Phenotype in Adults from Tropical Australia: Two Decades of Follow-Up of the Townsville Preschool Cohort Study. International Journal of Environmental Research and Public Health 2020;17(22):8680 View
  67. Jones A, Walters J, Brown A. Participant Recruitment in Social Work: A Social Media Approach. Social Work Research 2021;44(4):247 View
  68. Kuruvilla D, Mehta A, Ravishankar N, Cowan R. A patient perspective of complementary and integrative medicine (CIM) for migraine treatment: a social media survey. BMC Complementary Medicine and Therapies 2021;21(1) View
  69. Navarra A, Handschuh C, Hroncich T, Jacobs S, Goldsamt L. Recruitment of US Adolescents and Young Adults (AYA) into Human Immunodeficiency Virus (HIV)–Related Behavioral Research Studies: A Scoping Review. Current HIV/AIDS Reports 2020;17(6):615 View
  70. Albeaino G, Gheisari M. Trends, benefits, and barriers of unmanned aerial systems in the construction industry: a survey study in the United States. Journal of Information Technology in Construction 2021;26:84 View
  71. Bour C, Ahne A, Schmitz S, Perchoux C, Dessenne C, Fagherazzi G. The Use of Social Media for Health Research Purposes: Scoping Review. Journal of Medical Internet Research 2021;23(5):e25736 View
  72. Brøgger-Mikkelsen M, Ali Z, Zibert J, Andersen A, Thomsen S. Online Patient Recruitment in Clinical Trials: Systematic Review and Meta-Analysis. Journal of Medical Internet Research 2020;22(11):e22179 View
  73. Waling A, Lyons A, Alba B, Minichiello V, Barrett C, Hughes M, Fredriksen-Goldsen K. Recruiting stigmatised populations and managing negative commentary via social media: a case study of recruiting older LGBTI research participants in Australia. International Journal of Social Research Methodology 2022;25(2):157 View
  74. Flood-Grady E, Solberg L, Baralt C, Meyer M, Stevens J, Krieger J. Engaging Institutional Stakeholders to Develop and Implement Guidelines for Recruiting Participants in Research Studies Using Social Media: Mixed Methods, Multi-Phase Process. Journal of Medical Internet Research 2021;23(10):e23312 View
  75. Green H, Fernandez R, MacPhail C. Social Media as a Platform for Recruitment to a National Survey During the COVID-19 Pandemic: Feasibility and Cost Analysis. JMIR Formative Research 2021;5(7):e28656 View
  76. Lathen L, Laestadius L. Reflections on Online Focus Group Research With Low Socio-Economic Status African American Adults During COVID-19. International Journal of Qualitative Methods 2021;20 View
  77. Garrido‐Hernansaiz H. The use of online social media for the recruitment of people living with HIV in Spain and Latin America: Lessons from two studies. Health & Social Care in the Community 2022;30(6) View
  78. Jackson J. Expanding opportunities to maximise research recruitment and data collection using digital tools. International Journal of Social Research Methodology 2023;26(6):721 View
  79. Holloway A, Chandler C, Aviles Reinso L, Clarissa C, Putri A, Choi H, Pan J, Mitra U, Hewitt J, Cluckie G, Smart A, Noble H, Harris R, Reid J, Kelly D. Young Adults Rehabilitation Needs and Experiences following Stroke (YARNS): A review of digital accounts to inform the development of age‐appropriate support and rehabilitation. Journal of Advanced Nursing 2022;78(3):869 View
  80. Coffin T, Bowen D, Lu K, Swisher E, Rayes N, Norquist B, Blank S, Levine D, Bakkum-Gamez J, Fleming G, I Olopade O, Romero I, D'Andrea A, Nebgen D, Peterson C, Munsell M, Gavin K, Crase J, Polinsky D, Lechner R. Using Social Media to Facilitate Communication About Women’s Testing: Tool Validation Study. JMIR Formative Research 2022;6(9):e35035 View
  81. Hmamouchi I, Abi Najm A, El Kibbi L, Metawee M, Halabi H, Abdulateef N, Eissa M, El Rakawi M, Masri B, Boutaiban F, Hamdi W, Adnan A, Felten R, Arnaud L, Ziadé N. How to optimize recruitment strategies of patients with rheumatic and musculoskeletal diseases for online surveys: experience from an international study. Rheumatology International 2022;43(4):705 View
  82. Parker J, Hunter A, Bauermeister J, Bonar E, Carrico A, Stephenson R. Comparing Social Media and In-Person Recruitment: Lessons Learned From Recruiting Substance-Using, Sexual and Gender Minority Adolescents and Young Adults for a Randomized Control Trial. JMIR Public Health and Surveillance 2021;7(12):e31657 View
  83. Sivagurunathan M, Walton D, Packham T, Booth R, MacDermid J. Discourses Around Male IPV Related Systemic Biases on Reddit. Journal of Interpersonal Violence 2022;37(19-20):NP17834 View
  84. Lockhart E, Turner D, Galea J, Marhefka S, Parchem B. Considerations for partnering with Ryan White Case Managers to create equitable opportunities for people with HIV to participate in research. PLOS ONE 2022;17(10):e0276057 View
  85. Doley J, Rodgers R, Paxton S, McLean S. Effectiveness of recruitment strategies for a social media literacy E-intervention for young adults with body dissatisfaction: cost, time, diversity, and completion. Eating Disorders 2022;30(5):515 View
  86. Sledzieski N, Gallicano T, Shaikh S, Levens S. Optimizing Recruitment for Qualitative Research: A Comparison of Social Media, Emails, and Offline Methods. International Journal of Qualitative Methods 2023;22 View
  87. Kasianczuk M. Experiences of respondent-driven sampling in online research among men who have sex with men in other countries (literature review). Ukrainian Society 2023;85(2):168 View
  88. Abbasi-Perez A, Alvarez-Mon M, Donat-Vargas C, Ortega M, Monserrat J, Perez-Gomez A, Alvarez-Mon M. Using Twitter Data Analysis to Understand the Perceptions, Beliefs, and Attitudes about Pharmacotherapy Used in Rheumatology: An Observational Study. Healthcare 2023;11(11):1526 View
  89. Woo B, Hendriks J, Tam W, Lim T. Assessment of the general public’s knowledge of atrial fibrillation through social media: a cross-sectional study. BMC Nursing 2023;22(1) View
  90. Jones K, Wilson-Keates B, Melrose S. Using social media to recruit research participants: a literature review. Nurse Researcher 2024;32(1):28 View
  91. de Graaf B, Gerritse M, Michiels K, Kluivers K, van de Belt T. Social media recruitment of participants in a female stress urinary incontinence trial: A feasibility study. European Journal of Obstetrics & Gynecology and Reproductive Biology 2024;299:253 View
  92. Nowell L, Dolan S, Johnston S, Jacobsen M, Lorenzetti D, Oddone Paolucci E. Exploring Student Perspectives and Experiences of Online Opportunities for Virtual Care Skills Development: Sequential Explanatory Mixed Methods Study. JMIR Nursing 2024;7:e53777 View
  93. Bikou A, Deligianni E, Dermiki-Gkana F, Liappas N, Teriús-Padrón J, Beltrán Jaunsarás M, Cabrera-Umpiérrez M, Kontogiorgis C. Improving Participants Recruitment in Clinical Trials: A Comparative Analysis of Innovative Digital Platforms (Preprint). Journal of Medical Internet Research 2024 View

Books/Policy Documents

  1. Antolín-Amérigo D, Alvarez-Perea A, Popescu F. Implementing Precision Medicine in Best Practices of Chronic Airway Diseases. View
  2. Morgan S, Occa A, Peng W, McFarlane S. The Handbook of Applied Communication Research. View
  3. D'Abundo M, Akhtar S, Israel C. Healthcare Ethics and Training. View
  4. Valdez R, Keim-Malpass J. Social Web and Health Research. View
  5. Monaco S. Handbook of Research on Advanced Research Methodologies for a Digital Society. View
  6. Marjerison R, Lin Y, Kennedyd S. Research Anthology on Usage, Identity, and Impact of Social Media on Society and Culture. View
  7. Johnson R, D'Abundo M. Contemporary Issues in Global Medicine and Moving Toward International Healthcare Equity. View