This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (573) Participatory Medicine & E-Patients (773)

Published on in Vol 15, No 8 (2013): August

Consumers' Perceptions of Patient-Accessible Electronic Medical Records

Consumers' Perceptions of Patient-Accessible Electronic Medical Records

Consumers' Perceptions of Patient-Accessible Electronic Medical Records

Authors of this article:

Christina Zarcadoolas1 ;   Wendy L Vaughon1 ;   Sara J Czaja2 ;   Joslyn Levy3 ;   Maxine L Rockoff4
Article Authors Cited by (105) Tweetations (22) Metrics

Journals

  1. Ahmad T, Lafreniere A, Grynspan D. Incorporating Transition-Affirming Language into Anatomical Pathology Reporting for Gender Affirmation Surgery. Transgender Health 2019;4(1):335 View
  2. Tolan N. Health Literacy and the Desire to Manage One's Own Health. Clinics in Laboratory Medicine 2020;40(1):1 View
  3. Irizarry T, Shoemake J, Nilsen M, Czaja S, Beach S, DeVito Dabbs A. Patient Portals as a Tool for Health Care Engagement: A Mixed-Method Study of Older Adults With Varying Levels of Health Literacy and Prior Patient Portal Use. Journal of Medical Internet Research 2017;19(3):e99 View
  4. Powell K. Patient-Perceived Facilitators of and Barriers to Electronic Portal Use. CIN: Computers, Informatics, Nursing 2017;35(11):565 View
  5. Rief J, Hamm M, Zickmund S, Nikolajski C, Lesky D, Hess R, Fischer G, Weimer M, Clark S, Zieth C, Roberts M. Using Health Information Technology to Foster Engagement: Patients’ Experiences with an Active Patient Health Record. Health Communication 2017;32(3):310 View
  6. Dendere R, Slade C, Burton-Jones A, Sullivan C, Staib A, Janda M. Patient Portals Facilitating Engagement With Inpatient Electronic Medical Records: A Systematic Review. Journal of Medical Internet Research 2019;21(4):e12779 View
  7. Chen J, Jagannatha A, Fodeh S, Yu H. Ranking Medical Terms to Support Expansion of Lay Language Resources for Patient Comprehension of Electronic Health Record Notes: Adapted Distant Supervision Approach. JMIR Medical Informatics 2017;5(4):e42 View
  8. Bush R, Barlow H, Pérez A, Vazquez B, Mack J, Connelly C. Internet Access Influences Community Clinic Portal Use. Health Equity 2018;2(1):161 View
  9. Irizarry T, DeVito Dabbs A, Curran C. Patient Portals and Patient Engagement: A State of the Science Review. Journal of Medical Internet Research 2015;17(6):e148 View
  10. Hanna L, Gill S, Newstead L, Hawkins M, Osborne R. Patient perspectives on a personally controlled electronic health record used in regional Australia. Health Information Management Journal 2017;46(1):42 View
  11. Chen J, Zheng J, Yu H. Finding Important Terms for Patients in Their Electronic Health Records: A Learning-to-Rank Approach Using Expert Annotations. JMIR Medical Informatics 2016;4(4):e40 View
  12. Apter A. Can Patient Portals Reduce Health Disparities?. A Perspective from Asthma. Annals of the American Thoracic Society 2014;11(4):608 View
  13. Ludwin S, Greysen S. Use of smartphones and mobile devices in hospitalized patients: Untapped opportunities for inpatient engagement. Journal of Hospital Medicine 2015;10(7):459 View
  14. Woollen J, Prey J, Wilcox L, Sackeim A, Restaino S, Raza S, Bakken S, Feiner S, Hripcsak G, Vawdrey D. Patient Experiences Using an Inpatient Personal Health Record. Applied Clinical Informatics 2016;07(02):446 View
  15. Melchiorre M, Lamura G, Barbabella F, MacLure K. eHealth for people with multimorbidity: Results from the ICARE4EU project and insights from the “10 e’s” by Gunther Eysenbach. PLOS ONE 2018;13(11):e0207292 View
  16. Zhao Y, Liu M, Fan Z, Li J, Shi L, Zhang Y, Gong Y, Yang W. Application of Audio Education in Respiratory Medicine Wards. Clinical Nursing Research 2020;29(6):392 View
  17. Antonio M, Petrovskaya O, Lau F. Is research on patient portals attuned to health equity? A scoping review. Journal of the American Medical Informatics Association 2019;26(8-9):871 View
  18. Ancker J, Witteman H, Hafeez B, Provencher T, Van de Graaf M, Wei E. The Invisible Work of Personal Health Information Management Among People With Multiple Chronic Conditions: Qualitative Interview Study Among Patients and Providers. Journal of Medical Internet Research 2015;17(6):e137 View
  19. Struikman B, Bol N, Goedhart A, van Weert J, Talboom-Kamp E, van Delft S, Brabers A, van Dijk L. Features of a Patient Portal for Blood Test Results and Patient Health Engagement: Web-Based Pre-Post Experiment. Journal of Medical Internet Research 2020;22(7):e15798 View
  20. Kruse C, Argueta D, Lopez L, Nair A. Patient and Provider Attitudes Toward the Use of Patient Portals for the Management of Chronic Disease: A Systematic Review. Journal of Medical Internet Research 2015;17(2):e40 View
  21. Lee E, Patel J, Fortin A. Patient-centric medical notes: Identifying areas for improvement in the age of open medical records. Patient Education and Counseling 2017;100(8):1608 View
  22. Coughlin S, Stewart J, Young L, Heboyan V, De Leo G. Health literacy and patient web portals. International Journal of Medical Informatics 2018;113:43 View
  23. Leisy H, Ahmad M, Guevara G, Smith R. Engaging patients through an iBooks-based patient portal tutorial. BMJ Innovations 2017;3(3):152 View
  24. Ramsey A, Lanzo E, Huston-Paterson H, Tomaszewski K, Trent M. Increasing Patient Portal Usage: Preliminary Outcomes From the MyChart Genius Project. Journal of Adolescent Health 2018;62(1):29 View
  25. Avdagovska M, Ballermann M, Olson K, Graham T, Menon D, Stafinski T. Patient Portal Implementation and Uptake: Qualitative Comparative Case Study. Journal of Medical Internet Research 2020;22(7):e18973 View
  26. Cajita M, Nilsen M, Irizarry T, Callan J, Beach S, Swartwout E, Mecca L, Schulz R, Dabbs A. Predictors of Patient Portal Use Among Community-Dwelling Older Adults. Research in Gerontological Nursing 2021;14(1):33 View
  27. Russell E, Kosny A. Communication and collaboration among return-to-work stakeholders. Disability and Rehabilitation 2019;41(22):2630 View
  28. Portz J, Bayliss E, Bull S, Boxer R, Bekelman D, Gleason K, Czaja S. Using the Technology Acceptance Model to Explore User Experience, Intent to Use, and Use Behavior of a Patient Portal Among Older Adults With Multiple Chronic Conditions: Descriptive Qualitative Study. Journal of Medical Internet Research 2019;21(4):e11604 View
  29. Mohammed M, Montague J, Faisal M, Lamming L. The value of a Patient Access Portal in primary care: a cross-sectional survey of 62,486 registered users in the UK. Universal Access in the Information Society 2020;19(4):855 View
  30. Ronda M, Dijkhorst-Oei L, Rutten G. Reasons and Barriers for Using a Patient Portal: Survey Among Patients With Diabetes Mellitus. Journal of Medical Internet Research 2014;16(11):e263 View
  31. Chen J, Druhl E, Polepalli Ramesh B, Houston T, Brandt C, Zulman D, Vimalananda V, Malkani S, Yu H. A Natural Language Processing System That Links Medical Terms in Electronic Health Record Notes to Lay Definitions: System Development Using Physician Reviews. Journal of Medical Internet Research 2018;20(1):e26 View
  32. Bush R, Connelly C, Fuller M, Pérez A. Implementation of the Integrated Electronic Patient Portal in the Pediatric Population: A Systematic Review. Telemedicine and e-Health 2016;22(2):144 View
  33. Chen J, Yu H. Unsupervised ensemble ranking of terms in electronic health record notes based on their importance to patients. Journal of Biomedical Informatics 2017;68:121 View
  34. Atienza A, Zarcadoolas C, Vaughon W, Hughes P, Patel V, Chou W, Pritts J. Consumer Attitudes and Perceptions on mHealth Privacy and Security: Findings From a Mixed-Methods Study. Journal of Health Communication 2015;20(6):673 View
  35. Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen H, Scandurra I. Anticipating ageing: Older adults reading their medical records. Information Processing & Management 2018;54(3):394 View
  36. Nahm E, Son H, Yoon J. Older adults' use of patient portals: Experiences, challenges, and suggestions shared through discussion board forums. Geriatric Nursing 2020;41(4):387 View
  37. Korngut L, Johnston M, Pringsheim T, Jetté N. The future of neurological patient registries. Clinical Practice 2014;11(5):509 View
  38. Makarem N, Antoun J. Email communication in a developing country: different family physician and patient perspectives. Libyan Journal of Medicine 2016;11(1):32679 View
  39. Tolan N. Direct-to-Consumer Testing. Point of Care: The Journal of Near-Patient Testing & Technology 2017;16(3):108 View
  40. Haun J, Lind J, Shimada S, Martin T, Gosline R, Antinori N, Stewart M, Simon S. Evaluating User Experiences of the Secure Messaging Tool on the Veterans Affairs’ Patient Portal System. Journal of Medical Internet Research 2014;16(3):e75 View
  41. Harrison T, Wick J, Ahmed S, Jun M, Manns B, Quinn R, Tonelli M, Hemmelgarn B. Patients with Chronic Kidney Disease and Their Intent to Use Electronic Personal Health Records. Canadian Journal of Kidney Health and Disease 2015;2 View
  42. Simons R, Fleischman K, Zhan Y, Gao J, Xi B. Patient portals and human values. Proceedings of the Association for Information Science and Technology 2017;54(1):373 View
  43. Guo Y, Hildebrand J, Rousseau J, Brown B, Pimentel P, Olshansky E. Underserved Pregnant and Postpartum Women's Access and Use of Their Health Records. MCN: The American Journal of Maternal/Child Nursing 2018;43(3):164 View
  44. Shaw C, Casterline G, Taylor D, Fogle M, Granger B. Increasing Health Portal Utilization in Cardiac Ambulatory Patients. CIN: Computers, Informatics, Nursing 2017;35(10):512 View
  45. Bernaerdt J, Moerenhout T, Devisch I. Vulnerable patients' attitudes towards sharing medical data and granular control in patient portal systems: an interview study. Journal of Evaluation in Clinical Practice 2021;27(2):429 View
  46. Sadeghi M, Thomassie R, Sasangohar F. Objective Assessment of Functional Information Requirements for Patient Portals. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2017;61(1):1788 View
  47. Lyles C, Allen J, Poole D, Tieu L, Kanter M, Garrido T. “I Want to Keep the Personal Relationship With My Doctor”: Understanding Barriers to Portal Use among African Americans and Latinos. Journal of Medical Internet Research 2016;18(10):e263 View
  48. Kiberd J, Khan U, Stockman C, Radhakrishnan A, Phillips M, Kiberd B, West K, Soroka S, Chan C, Tennankore K. Effectiveness of a Web-Based eHealth Portal for Delivery of Care to Home Dialysis Patients: A Single-Arm Pilot Study. Canadian Journal of Kidney Health and Disease 2018;5 View
  49. Kim H, Xie B. Health literacy in the eHealth era: A systematic review of the literature. Patient Education and Counseling 2017;100(6):1073 View
  50. Wildenbos G, Jaspers M, Peute L. The equity paradox: older patients' participation in patient portal development. International Journal for Quality in Health Care 2018 View
  51. Kruse C, Bolton K, Freriks G. The Effect of Patient Portals on Quality Outcomes and Its Implications to Meaningful Use: A Systematic Review. Journal of Medical Internet Research 2015;17(2):e44 View
  52. Downey L, Hong A, Herrera K. If we build it they will come patient use of health portals. The American Journal of Emergency Medicine 2019;37(9):1799 View
  53. Klassen K, Millard T, Stout J, McDonald K, Dodson S, Osborne R, Battersby M, Fairley C, Kidd M, McMahon J, Baker D, Elliott J. Recruiting people with HIV to an online self-management support randomised controlled trial: barriers and facilitators. Sexual Health 2019;16(4):340 View
  54. Truong T, Lipschultz E, Danahey K, Schierer E, Ratain M, O'Donnell P. Assessment of Patient Knowledge and Perceptions of Pharmacogenomics Before and After Using a Mock Results Patient Web Portal. Clinical and Translational Science 2020;13(1):78 View
  55. Grossman L, Masterson Creber R, Benda N, Wright D, Vawdrey D, Ancker J. Interventions to increase patient portal use in vulnerable populations: a systematic review. Journal of the American Medical Informatics Association 2019;26(8-9):855 View
  56. Tieu L, Schillinger D, Sarkar U, Hoskote M, Hahn K, Ratanawongsa N, Ralston J, Lyles C. Online patient websites for electronic health record access among vulnerable populations: portals to nowhere?. Journal of the American Medical Informatics Association 2017;24(e1):e47 View
  57. Jackson D, Chou W, Coa K, Oh A, Hesse B. Implications of social media use on health information technology engagement: Data from HINTS 4 cycle 3. Translational Behavioral Medicine 2016;6(4):566 View
  58. Assadi V, Hassanein K. Consumer Adoption of Personal Health Record Systems: A Self-Determination Theory Perspective. Journal of Medical Internet Research 2017;19(7):e270 View
  59. Wildenbos G, Horenberg F, Jaspers M, Peute L, Sent D. How do patients value and prioritize patient portal functionalities and usage factors? A conjoint analysis study with chronically ill patients. BMC Medical Informatics and Decision Making 2018;18(1) View
  60. Tieu L, Sarkar U, Schillinger D, Ralston J, Ratanawongsa N, Pasick R, Lyles C. Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study. Journal of Medical Internet Research 2015;17(12):e275 View
  61. Showell C. Barriers to the use of personal health records by patients: a structured review. PeerJ 2017;5:e3268 View
  62. Shen N, Bernier T, Sequeira L, Strauss J, Silver M, Carter-Langford A, Wiljer D. Understanding the patient privacy perspective on health information exchange: A systematic review. International Journal of Medical Informatics 2019;125:1 View
  63. Bell C, Guerinet J, Atkinson K, Wilson K. Feasibility and Limitations of Vaccine Two-Dimensional Barcoding Using Mobile Devices. Journal of Medical Internet Research 2016;18(6):e143 View
  64. Sieck C, Hefner J, Schnierle J, Florian H, Agarwal A, Rundell K, McAlearney A. The Rules of Engagement: Perspectives on Secure Messaging From Experienced Ambulatory Patient Portal Users. JMIR Medical Informatics 2017;5(3):e13 View
  65. Jones J, Weiner J, Shah N, Stewart W. The Wired Patient: Patterns of Electronic Patient Portal Use Among Patients With Cardiac Disease or Diabetes. Journal of Medical Internet Research 2015;17(2):e42 View
  66. Miles R, Hippe D, Elmore J, Wang C, Payne T, Lee C. Patient Access to Online Radiology Reports. Academic Radiology 2016;23(9):1162 View
  67. Jenkins N, Parrish J, Mohan S, Geoghegan C, Jadczak C, Hrynewycz N, Singh K. Preoperative patient activation is predictive of improvements in patient-reported outcomes following minimally invasive lumbar decompression. European Spine Journal 2020;29(9):2222 View
  68. Nambisan P. Factors that impact Patient Web Portal Readiness (PWPR) among the underserved. International Journal of Medical Informatics 2017;102:62 View
  69. Heyworth L, Clark J, Marcello T, Paquin A, Stewart M, Archambeault C, Simon S. Aligning Medication Reconciliation and Secure Messaging: Qualitative Study of Primary Care Providers’ Perspectives. Journal of Medical Internet Research 2013;15(12):e264 View
  70. Czaja S, Zarcadoolas C, Vaughon W, Lee C, Rockoff M, Levy J. The Usability of Electronic Personal Health Record Systems for an Underserved Adult Population. Human Factors: The Journal of the Human Factors and Ergonomics Society 2015;57(3):491 View
  71. Esmaeilzadeh P, Dharanikota S, Mirzaei T. The role of patient engagement in patient-centric health information exchange (HIE) initiatives: an empirical study in the United States. Information Technology & People 2021 View
  72. Tsai W, Wu Y, Cheng C, Kuo M, Chang Y, Hu F, Sun C, Chang C, Chan T, Chen C, Lee C, Chu C. A Technology Acceptance Model for Deploying Masks to Combat the COVID-19 Pandemic in Taiwan (My Health Bank): Web-Based Cross-sectional Survey Study. Journal of Medical Internet Research 2021;23(4):e27069 View
  73. Park J, Liang M, Alpert J, Brown R, Zhong X. The Causal Relationship Between Portal Usage and Self-Efficacious Health Information–Seeking Behaviors: Secondary Analysis of the Health Information National Trends Survey Data. Journal of Medical Internet Research 2021;23(1):e17782 View
  74. Shu S, Liu Y. Looking Back to Move Forward: A Bibliometric Analysis of Consumer Privacy Research. Journal of Theoretical and Applied Electronic Commerce Research 2021;16(4):727 View
  75. Moerenhout T, Devisch I, Cooreman L, Bernaerdt J, De Sutter A, Provoost V. Patients’ moral attitudes toward electronic health records: Survey study with vignettes and statements. Health Informatics Journal 2021;27(1) View
  76. Schwarz M, Coccetti A, Draheim M, Gordon G. Perceptions of allied health staff of the implementation of an integrated electronic medical record across regional and metropolitan settings. Australian Health Review 2020;44(6):965 View
  77. Tapuria A, Porat T, Kalra D, Dsouza G, Xiaohui S, Curcin V. Impact of patient access to their electronic health record: systematic review. Informatics for Health and Social Care 2021;46(2):194 View
  78. Washburn L, Hadden K, Prince L, McNeill C, Moon Z. Development and Implementation of the How to Talk to Your Doctor HANDbook Health Literacy Program in Rural Counties. HLRP: Health Literacy Research and Practice 2019;3(3) View
  79. Ordaz O, Croff R, Robinson L, Shea S, Bowles N. Optimization of Primary Care Among Black Americans Using Patient Portals: Qualitative Study. Journal of Medical Internet Research 2021;23(6):e27820 View
  80. Yang S, Lee C, Beak J. Social Disparities in Online Health-Related Activities and Social Support: Findings from Health Information National Trends Survey. Health Communication 2023;38(7):1293 View
  81. Nguyen O, Hong Y, Alishahi Tabriz A, Hanna K, Turner K. Prevalence and Factors Associated with Patient-Requested Corrections to the Medical Record through Use of a Patient Portal: Findings from a National Survey. Applied Clinical Informatics 2022;13(01):242 View
  82. Wolff J, Dukhanin V, Burgdorf J, DesRoches C. Shared Access to Patient Portals for Older Adults: Implications for Privacy and Digital Health Equity. JMIR Aging 2022;5(2):e34628 View
  83. Gerlach E, Arpey N, Patel A. Patient Activation in Spine Surgery. Contemporary Spine Surgery 2023;24(1):1 View
  84. Wang H, Manning S, Ho A, Sambamoorthi U. Factors Associated with Reducing Disparities in Electronic Personal Heath Records Use Among Non-Hispanic White and Hispanic Adults. Journal of Racial and Ethnic Health Disparities 2023;10(3):1201 View
  85. Griesser A, Bidmon S. A Process Related View on the Usage of Electronic Health Records from the Patients’ Perspective: A Systematic Review. Journal of Medical Systems 2022;47(1) View
  86. Ho V, Sgroi M, Chandra V, Asch S, Chen J, Lee J. Utilizing remote access for electronic medical records reduces overall electronic medical record time for vascular surgery residents. Journal of Vascular Surgery 2023;77(6):1797 View
  87. Singh S, Polavarapu M, Arsene C. Changes in patient portal adoption due to the emergence of COVID-19 pandemic. Informatics for Health and Social Care 2023;48(2):125 View
  88. Hashmi A, Christy J, Saxena S, Factora R. An age‐friendly population health dashboard geolocating by clinical and social determinant needs. Health Services Research 2023;58(S1):44 View
  89. Nakikj D, Kreda D, Gehlenborg N. New Ways for Patients to Make Sense of Their Electronic Health Record Data Using the Discovery Web Application: Think-Aloud Evaluation Study. JMIR Formative Research 2023;7:e41346 View
  90. Conti J, Fix G, Javier S, Cheng H, Perez T, Dunlap S, McInnes D, Midboe A. Patient and provider perspectives of personal health record use: a multisite qualitative study in HIV care settings. Translational Behavioral Medicine 2023;13(7):475 View
  91. Griesser A, Bidmon S. A holistic view of facilitators and barriers of electronic health records usage from different perspectives: A qualitative content analysis approach. Health Information Management Journal 2024;53(3):227 View
  92. Ahmed N, Brown J, Parau C, McCullers A, Sanghavi K, Littlejohn R, Wesley D. Bridging the Digital Health Divide. Medical Care 2023;61(7):448 View
  93. Ahmed N, Sanghavi K, Mathur S, McCullers A. Patient portal use: Persistent disparities from pre- to post-onset of the COVID-19 pandemic. International Journal of Medical Informatics 2023;178:105204 View
  94. Kuppanda P, Jenkins J. Evaluation of Experiences and Attitudes of Patients Towards Patient Portal–Enabled Access to Their Health Information or Medical Records: A Qualitative Grounded Theory Study. Qualitative Health Research 2023;33(12):1080 View
  95. Alhur A, Alhur A, Alshammari M, Alhur A, Bin Shamlan W, Alqahtani M, Alhabsi S, Hassan R, Baawadh E, Alahmari S, Alshahrani N, Alwadae R, Abdalla E, Abuali H, Alshahrani M. Digital Health Literacy and Web-Based Health Information-Seeking Behaviors in the Saudi Arabian Population. Cureus 2023 View
  96. van der Mee F, Schaper F, Jansen J, Bons J, Meex S, Cals J. Enhancing Patient Understanding of Laboratory Test Results: Systematic Review of Presentation Formats and Their Impact on Perception, Decision, Action, and Memory. Journal of Medical Internet Research 2024;26:e53993 View
  97. Goehringer J, Kosmin A, Laible N, Romagnoli K. Assessing the Utility of a Patient-Facing Diagnostic Tool Among Individuals With Hypermobile Ehlers-Danlos Syndrome: Focus Group Study. JMIR Formative Research 2024;8:e49720 View

Books/Policy Documents

  1. Nazi K, Hogan T, Woods S, Simon S, Ralston J. Clinical Informatics Study Guide. View
  2. Lee D, Gefen D. Impacts of Information Technology on Patient Care and Empowerment. View
  3. Snipes C. Quality Improvement in Behavioral Health. View
  4. Vizer L, Hall A. Consumer Health Informatics. View
  5. Lee D, Gefen D. Research Anthology on Improving Health Literacy Through Patient Communication and Mass Media. View
  6. Turchioe M, Creber R. Personal Health Informatics. View