This paper is in the following e-collection/theme issue:

Demographics of Users, Social & Digital Divide (739) Participatory Medicine & E-Patients (773) Consumer & Patient Education and Shared-Decision Making (679)

Published on in Vol 15, No 7 (2013): July

Facilitating Out-of-Home Caregiving Through Health Information Technology: Survey of Informal Caregivers’ Current Practices, Interests, and Perceived Barriers

Facilitating Out-of-Home Caregiving Through Health Information Technology: Survey of Informal Caregivers’ Current Practices, Interests, and Perceived Barriers

Facilitating Out-of-Home Caregiving Through Health Information Technology: Survey of Informal Caregivers’ Current Practices, Interests, and Perceived Barriers

Authors of this article:

Donna M Zulman1, 2 ;   John D Piette3, 4 ;   Emily C Jenchura1 ;   Steven M Asch1, 2 ;   Ann-Marie Rosland3, 4
Article Authors Cited by (39) Tweetations (20) Metrics

Journals

  1. Wolff J, Darer J, Berger A, Clarke D, Green J, Stametz R, Delbanco T, Walker J. Inviting patients and care partners to read doctors’ notes: OpenNotes and shared access to electronic medical records. Journal of the American Medical Informatics Association 2016:ocw108 View
  2. Semere W, Crossley S, Karter A, Lyles C, Brown W, Reed M, McNamara D, Liu J, Schillinger D. Secure Messaging with Physicians by Proxies for Patients with Diabetes: Findings from the ECLIPPSE Study. Journal of General Internal Medicine 2019;34(11):2490 View
  3. Quintana Y, Crotty B, Fahy D, Lipsitz L, Davis R, Safran C. Information sharing across generations and environments (InfoSAGE): study design and methodology protocol. BMC Medical Informatics and Decision Making 2018;18(1) View
  4. Post L, Vaca F, Biroscak B, Dziura J, Brandt C, Bernstein S, Taylor R, Jagminas L, D'Onofrio G. The Prevalence and Characteristics of Emergency Medicine Patient Use of New Media. JMIR mHealth and uHealth 2015;3(3):e72 View
  5. Ruggiano N, Brown E, Shaw S, Geldmacher D, Clarke P, Hristidis V, Bertram J. The Potential of Information Technology to Navigate Caregiving Systems: Perspectives from Dementia Caregivers. Journal of Gerontological Social Work 2019;62(4):432 View
  6. Wolff J, Berger A, Clarke D, Green J, Stametz R, Yule C, Darer J. Patients, care partners, and shared access to the patient portal: online practices at an integrated health system. Journal of the American Medical Informatics Association 2016;23(6):1150 View
  7. Rosland A, Piette J, Trivedi R, Kerr E, Stoll S, Tremblay A, Heisler M. Engaging family supporters of adult patients with diabetes to improve clinical and patient-centered outcomes: study protocol for a randomized controlled trial. Trials 2018;19(1) View
  8. Chimowitz H, Gerard M, Fossa A, Bourgeois F, Bell S. Empowering Informal Caregivers with Health Information: OpenNotes as a Safety Strategy. The Joint Commission Journal on Quality and Patient Safety 2018;44(3):130 View
  9. Buis L, McCant F, Gierisch J, Bastian L, Oddone E, Richardson C, Kim H, Evans R, Hooks G, Kadri R, White-Clark C, Damschroder L. Understanding the Effect of Adding Automated and Human Coaching to a Mobile Health Physical Activity App for Afghanistan and Iraq Veterans: Protocol for a Randomized Controlled Trial of the Stay Strong Intervention. JMIR Research Protocols 2019;8(1):e12526 View
  10. Wolff J, Darer J, Larsen K. Family Caregivers and Consumer Health Information Technology. Journal of General Internal Medicine 2016;31(1):117 View
  11. Colvin A, Bullock A. A review of the biopsychosocial aspects of caregiving for aging family members. Journal of Family Social Work 2016;19(5):420 View
  12. Vizer L, Eschler J, Koo B, Ralston J, Pratt W, Munson S. “It’s Not Just Technology, It’s People”: Constructing a Conceptual Model of Shared Health Informatics for Tracking in Chronic Illness Management. Journal of Medical Internet Research 2019;21(4):e10830 View
  13. Matthew-Maich N, Harris L, Ploeg J, Markle-Reid M, Valaitis R, Ibrahim S, Gafni A, Isaacs S. Designing, Implementing, and Evaluating Mobile Health Technologies for Managing Chronic Conditions in Older Adults: A Scoping Review. JMIR mHealth and uHealth 2016;4(2):e29 View
  14. Ruggiano N, Brown E, Li J, Scaccianoce M. Rural Dementia Caregivers and Technology: What Is the Evidence?. Research in Gerontological Nursing 2018;11(4):216 View
  15. Scharett E, Narasimha S, Madathil K, Wilson M, Davis N, Dye C. Informational Needs of Urinary Incontinent Patients on Online Peer Support Groups-A Pilot Study. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2018;62(1):1689 View
  16. Brown E, Ruggiano N, Li J, Clarke P, Kay E, Hristidis V. Smartphone-Based Health Technologies for Dementia Care: Opportunities, Challenges, and Current Practices. Journal of Applied Gerontology 2019;38(1):73 View
  17. Kim H. Understanding Internet Use Among Dementia Caregivers: Results of Secondary Data Analysis Using the US Caregiver Survey Data. interactive Journal of Medical Research 2015;4(1):e1 View
  18. Wittenberg E, Xu J, Goldsmith J, Mendoza Y. Caregiver Communication About Cancer: Development of a mhealth resource to support family caregiver communication burden. Psycho-Oncology 2019;28(2):365 View
  19. Tieu L, Sarkar U, Schillinger D, Ralston J, Ratanawongsa N, Pasick R, Lyles C. Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study. Journal of Medical Internet Research 2015;17(12):e275 View
  20. Guay C, Auger C, Demers L, Mortenson W, Miller W, Gélinas-Bronsard D, Ahmed S. Components and Outcomes of Internet-Based Interventions for Caregivers of Older Adults: Systematic Review. Journal of Medical Internet Research 2017;19(9):e313 View
  21. Kim H, Paige Powell M, Bhuyan S. Seeking Medical Information Using Mobile Apps and the Internet: Are Family Caregivers Different from the General Public?. Journal of Medical Systems 2017;41(3) View
  22. Rozwadowski M, Dittakavi M, Mazzoli A, Hassett A, Braun T, Barton D, Carlozzi N, Sen S, Tewari M, Hanauer D, Choi S. Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial. JMIR Research Protocols 2020;9(9):e19288 View
  23. Ruggiano N, Brown E, Roberts L, Framil Suarez C, Luo Y, Hao Z, Hristidis V. Chatbots to Support People With Dementia and Their Caregivers: Systematic Review of Functions and Quality. Journal of Medical Internet Research 2021;23(6):e25006 View
  24. Garnett A, Northwood M, Ting J, Sangrar R. mHealth Interventions to Support Caregivers of Older Adults: Equity-Focused Systematic Review. JMIR Aging 2022;5(3):e33085 View
  25. Wolff J, Dukhanin V, Burgdorf J, DesRoches C. Shared Access to Patient Portals for Older Adults: Implications for Privacy and Digital Health Equity. JMIR Aging 2022;5(2):e34628 View
  26. Gleason K, Peereboom D, Wec A, Wolff J. Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations. JAMA Network Open 2022;5(12):e2248696 View
  27. Fong Z, Teinor J, Yeo T, Rinaldi D, Greer J, Lavu H, Qadan M, Johnston F, Ferrone C, Chang D, Yeo C, Wolfgang C, Warshaw A, Lillemoe K, Fernandez-del Castillo C, Weiss M, Wolff J, Wu A. Assessment of Caregivers’ Burden When Caring for Patients With Pancreatic and Periampullary Cancer. JNCI: Journal of the National Cancer Institute 2022;114(11):1468 View
  28. Mejía S, Su T, Lan Q, Zou A, Griffin A, Sosnoff J. The Context of Caring and Concern for Falling Differentiate Which Mobile Fall Technology Features Chinese Family Caregivers Find Most Important. Journal of Applied Gerontology 2022;41(4):1175 View
  29. Park J, Tracy C, Gray C. Mobile phone apps for family caregivers: A scoping review and qualitative content analysis. DIGITAL HEALTH 2022;8:205520762210766 View
  30. Persson J, Larsson R, Erlingsdottir G, Rydenfält C. How Digital Systems Are Used in Swedish Home Care Nursing Practice. CIN: Computers, Informatics, Nursing 2023;41(8):586 View
  31. Fong Z, Teinor J, Yeo T, Rinaldi D, Greer J, Lavu H, Qadan M, Johnston F, Ferrone C, Chang D, Yeo C, Wolfgang C, Warshaw A, Lillemoe K, Fernandez-del Castillo C, Wolff J, Wu A, Weiss M. Profile of the Postoperative Care Provided for Patients With Pancreatic and Periampullary Cancers by Family and Unpaid Caregivers. JCO Oncology Practice 2023;19(8):551 View
  32. Hawley C, Wagner C, Venegas M, Genovese N, Triantafylidis L, McCullough M, Beizer J, Hung W, Moo L. Connecting the disconnected: Leveraging an in‐home team member for video visits for older adults. Journal of the American Geriatrics Society 2024;72(5):1408 View
  33. Heaton-Shrestha C, Hanson K, Quirke-McFarlane S, Delaney N, Vandrevala T, Bearne L. Exploring how members of the public access and use health research and information: a scoping review. BMC Public Health 2023;23(1) View
  34. Darwich A, Boström A, Guidetti S, Raghothama J, Meijer S. Investigating the Connections Between Delivery of Care, Reablement, Workload, and Organizational Factors in Home Care Services: Mixed Methods Study. JMIR Human Factors 2023;10:e42283 View
  35. Semere W, Karter A, Lyles C, Reed M, Karliner L, Kaplan C, Liu J, Livaudais-Toman J, Schillinger D. Care Partner Engagement in Secure Messaging Between Patients With Diabetes and Their Clinicians: Cohort Study. JMIR Diabetes 2024;9:e49491 View
  36. Wolff J, Wec A, Peereboom D, Gleason K, Amjad H, Burgdorf J, Cassidy J, DesRoches C, Fabius C, Green A, Lin C, Nothelle S, Powell D, Riffin C, Smith J, Lum H. Care partners and consumer health information technology: A framework to guide systems‐level initiatives in support of digital health equity. Learning Health Systems 2024;8(S1) View

Books/Policy Documents

  1. Wolff J, Jacobs B. Family Caregiving in the New Normal. View
  2. Ruggiano N. Bridging the Family Care Gap. View
  3. Lee C, Balmuth A, D’Ambrosio L, Felts A, Coughlin J. Human Aspects of IT for the Aged Population. View