This paper is in the following e-collection/theme issue:

Medicine 2.0'12 Boston (Full Paper of Conference Presentation) (14) Peer-to-Peer Support and Online Communities (592)

Published on in Vol 15, No 6 (2013): June

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Authors of this article:

Colleen Young1
Article Authors Cited by (89) Tweetations (274) Metrics

Journals

  1. Horrell L, Lazard A, Bhowmick A, Hayes S, Mees S, Valle C. Attracting Users to Online Health Communities: Analysis of LungCancer.net’s Facebook Advertisement Campaign Data. Journal of Medical Internet Research 2019;21(11):e14421 View
  2. Pohlisch J. Internal Open Innovation—Lessons Learned from Internal Crowdsourcing at SAP. Sustainability 2020;12(10):4245 View
  3. Islam S, Tabassum R, Liu Y, Chen S, Redfern J, Kim S, Ball K, Maddison R, Chow C. The role of social media in preventing and managing non-communicable diseases in low-and-middle income countries: Hope or hype?. Health Policy and Technology 2019;8(1):96 View
  4. Zhao D, Zhang Q, Ma F. Communication that changes lives: an exploratory research on a Chinese online hypertension community. Library Hi Tech 2020;38(4):883 View
  5. van Mierlo T, Hyatt D, Ching A. Mapping Power Law Distributions in Digital Health Social Networks: Methods, Interpretations, and Practical Implications. Journal of Medical Internet Research 2015;17(6):e160 View
  6. Zhang F, Li S, Yu Z. The super user selection for building a sustainable online social network marketing community. Multimedia Tools and Applications 2019;78(11):14777 View
  7. Frisch N, Atherton P, Borycki E, Mickelson G, Cordeiro J, Novak Lauscher H, Black A. Growing a Professional Network to Over 3000 Members in Less Than 4 Years: Evaluation of InspireNet, British Columbia’s Virtual Nursing Health Services Research Network. Journal of Medical Internet Research 2014;16(2):e49 View
  8. Booth R. Happiness, stress, a bit of vulgarity, and lots of discursive conversation: A pilot study examining nursing students' tweets about nursing education posted to Twitter. Nurse Education Today 2015;35(2):322 View
  9. Cristancho-Lacroix V, Wrobel J, Cantegreil-Kallen I, Dub T, Rouquette A, Rigaud A. A Web-Based Psychoeducational Program for Informal Caregivers of Patients With Alzheimer’s Disease: A Pilot Randomized Controlled Trial. Journal of Medical Internet Research 2015;17(5):e117 View
  10. Elliott S, Dyson M, Wilkes G, Zimmermann G, Chambers C, Wittmeier K, Russell D, Scott S, Thomson D, Hartling L. Considerations for Health Researchers Using Social Media for Knowledge Translation: Multiple Case Study. Journal of Medical Internet Research 2020;22(7):e15121 View
  11. Petrič G, Atanasova S, Kamin T. Ill Literates or Illiterates? Investigating the eHealth Literacy of Users of Online Health Communities. Journal of Medical Internet Research 2017;19(10):e331 View
  12. Pedersen S, Skovbakke S, Wiil U, Schmidt T, dePont Christensen R, Brandt C, Sørensen J, Vinther M, Larroudé C, Melchior T, Riahi S, Smolderen K, Spertus J, Johansen J, Nielsen J. Effectiveness of a comprehensive interactive eHealth intervention on patient-reported and clinical outcomes in patients with an implantable cardioverter defibrillator [ACQUIRE-ICD trial]: study protocol of a national Danish randomised controlled trial. BMC Cardiovascular Disorders 2018;18(1) View
  13. Wang X, Zhao K, Street N. Analyzing and Predicting User Participations in Online Health Communities: A Social Support Perspective. Journal of Medical Internet Research 2017;19(4):e130 View
  14. van Mierlo T. The 1% Rule in Four Digital Health Social Networks: An Observational Study. Journal of Medical Internet Research 2014;16(2):e33 View
  15. Crawford G, Maycock B, Tobin R, Brown G, Lobo R. Prevention of HIV and Other Sexually Transmissible Infections in Expatriates and Traveler Networks: Qualitative Study of Peer Interaction in an Online Forum. Journal of Medical Internet Research 2018;20(9):e10787 View
  16. Bender J, Flora P, Milosevic E, Soheilipour S, Maharaj N, Dirlea M, Parvin L, Matthew A, Kazanjian A. Training prostate cancer survivors and caregivers to be peer navigators: a blended online/in-person competency-based training program. Supportive Care in Cancer 2021;29(3):1235 View
  17. Carron-Arthur B, Ali K, Cunningham J, Griffiths K. From Help-Seekers to Influential Users: A Systematic Review of Participation Styles in Online Health Communities. Journal of Medical Internet Research 2015;17(12):e271 View
  18. Lev-On A, Steinfeld N. “Objection, Your Honor”: Use of Social Media by Civilians to Challenge the Criminal Justice System. Social Science Computer Review 2020;38(3):315 View
  19. Rolls K, Hansen M, Jackson D, Elliott D. How Health Care Professionals Use Social Media to Create Virtual Communities: An Integrative Review. Journal of Medical Internet Research 2016;18(6):e166 View
  20. Zhou J, Liu F, Zhou T. Exploring the Factors Influencing Consumers to Voluntarily Reward Free Health Service Contributors in Online Health Communities: Empirical Study. Journal of Medical Internet Research 2020;22(4):e16526 View
  21. Boogaarts H, van Nuenen-Platvoet W, van den Abbeele L, Petersen H, Draskovic I, de Vries J, Westert G, Grotenhuis J, Bartels R. An Online Health Community for Aneurysmal Subarachnoid Hemorrhage Patients: A Pilot Study. JMIR Research Protocols 2014;3(4):e60 View
  22. Koufopoulos J, Conner M, Gardner P, Kellar I. A Web-Based and Mobile Health Social Support Intervention to Promote Adherence to Inhaled Asthma Medications: Randomized Controlled Trial. Journal of Medical Internet Research 2016;18(6):e122 View
  23. Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Griffiths K. What’s all the talk about? Topic modelling in a mental health Internet support group. BMC Psychiatry 2016;16(1) View
  24. Gruzd A, Haythornthwaite C. Enabling Community Through Social Media. Journal of Medical Internet Research 2013;15(10):e248 View
  25. Huh J, Marmor R, Jiang X. Lessons Learned for Online Health Community Moderator Roles: A Mixed-Methods Study of Moderators Resigning From WebMD Communities. Journal of Medical Internet Research 2016;18(9):e247 View
  26. Atanasova S, Kamin T, Petrič G. Exploring the benefits and challenges of health professionals’ participation in online health communities: Emergence of (dis)empowerment processes and outcomes. International Journal of Medical Informatics 2017;98:13 View
  27. Skousen T, Safadi H, Young C, Karahanna E, Safadi S, Chebib F. Successful Moderation in Online Patient Communities: Inductive Case Study. Journal of Medical Internet Research 2020;22(3):e15983 View
  28. Zhang S, Bantum E, Owen J, Bakken S, Elhadad N. Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact. Journal of the American Medical Informatics Association 2017;24(2):451 View
  29. Chen D, Zhang R, Feng J, Liu K. Fulfilling information needs of patients in online health communities. Health Information & Libraries Journal 2020;37(1):48 View
  30. Stearns M, Nambiar S, Nikolaev A, Semenov A, McIntosh S. Towards evaluating and enhancing the reach of online health forums for smoking cessation. Network Modeling Analysis in Health Informatics and Bioinformatics 2014;3(1) View
  31. Rothman M, Gnanaskathy A, Wicks P, Papadopoulos E. Can We Use Social Media to Support Content Validity of Patient-Reported Outcome Instruments in Medical Product Development?. Value in Health 2015;18(1):1 View
  32. Janssen A, Robinson T, Shaw T. The Evolution of a Professional Practice Forum: Balancing Peer-to-Peer Learning With Course Objectives. JMIR Research Protocols 2014;3(4):e58 View
  33. Cristancho-Lacroix V, Kerhervé H, de Rotrou J, Rouquette A, Legouverneur G, Rigaud A. Evaluating the Efficacy of a Web-Based Program (Diapason) for Informal Caregivers of Patients With Alzheimer’s Disease: Protocol for a Randomized Clinical Trial. JMIR Research Protocols 2013;2(2):e55 View
  34. Carron-Arthur B, Reynolds J, Bennett K, Bennett A, Cunningham J, Griffiths K. Community Structure of a Mental Health Internet Support Group: Modularity in User Thread Participation. JMIR Mental Health 2016;3(2):e20 View
  35. Urbanoski K, van Mierlo T, Cunningham J. Investigating Patterns of Participation in an Online Support Group for Problem Drinking: a Social Network Analysis. International Journal of Behavioral Medicine 2017;24(5):703 View
  36. Partridge S, Gallagher P, Freeman B, Gallagher R. Facebook Groups for the Management of Chronic Diseases. Journal of Medical Internet Research 2018;20(1):e21 View
  37. Santos T, Walk S, Kern R, Strohmaier M, Helic D. Activity Archetypes in Question-and-Answer (Q8A) Websites—A Study of 50 Stack Exchange Instances. ACM Transactions on Social Computing 2019;2(1):1 View
  38. Russell D, Sprung J, McCauley D, Kraus de Camargo O, Buchanan F, Gulko R, Martens R, Gorter J. Knowledge Exchange and Discovery in the Age of Social Media: The Journey From Inception to Establishment of a Parent-Led Web-Based Research Advisory Community for Childhood Disability. Journal of Medical Internet Research 2016;18(11):e293 View
  39. Carron-Arthur B, Cunningham J, Griffiths K. Describing the distribution of engagement in an Internet support group by post frequency: A comparison of the 90-9-1 Principle and Zipf's Law. Internet Interventions 2014;1(4):165 View
  40. Feldhege J, Moessner M, Bauer S. Who says what? Content and participation characteristics in an online depression community. Journal of Affective Disorders 2020;263:521 View
  41. Saez L, Langlois J, Legrand K, Quinet M, Lecomte E, Omorou A, Briançon S. Reach and Acceptability of a Mobile Reminder Strategy and Facebook Group Intervention for Weight Management in Less Advantaged Adolescents: Insights From the PRALIMAP-INÈS Trial. JMIR mHealth and uHealth 2018;6(5):e110 View
  42. Shang L, Zuo M, Ma D, Yu Q. The Antecedents and Consequences of Health Care Professional–Patient Online Interactions: Systematic Review. Journal of Medical Internet Research 2019;21(9):e13940 View
  43. Harmeling C, Mende M, Scott M, Palmatier R. Marketing, Through the Eyes of the Stigmatized. Journal of Marketing Research 2021;58(2):223 View
  44. Issom D, Hardy-Dessources M, Romana M, Hartvigsen G, Lovis C. Toward a Conversational Agent to Support the Self-Management of Adults and Young Adults With Sickle Cell Disease: Usability and Usefulness Study. Frontiers in Digital Health 2021;3 View
  45. Ma D, Zuo M, Liu L. The Information Needs of Chinese Family members of Cancer Patients in the Online Health Community: What and Why?. Information Processing & Management 2021;58(3):102517 View
  46. Antonacci G, Fronzetti Colladon A, Stefanini A, Gloor P. It is rotating leaders who build the swarm: social network determinants of growth for healthcare virtual communities of practice. Journal of Knowledge Management 2017;21(5):1218 View
  47. Johansson V, Islind A, Lindroth T, Angenete E, Gellerstedt M. Online Communities as a Driver for Patient Empowerment: Systematic Review. Journal of Medical Internet Research 2021;23(2):e19910 View
  48. Wang P, Wang J, Li Q. Cognitive mechanisms underlying interaction and contribution in online health communities: the perspectives of doctors and patients. Aslib Journal of Information Management 2021;73(3):367 View
  49. Allison K, Patterson P, Guilbert D, Noke M, Husson O. Logging On, Reaching Out, and Getting By. Proceedings of the ACM on Human-Computer Interaction 2021;5(CSCW1):1 View
  50. Smit D, Vrijsen J, Groeneweg B, Vellinga-Dings A, Peelen J, Spijker J. A Newly Developed Online Peer Support Community for Depression (Depression Connect): Qualitative Study. Journal of Medical Internet Research 2021;23(7):e25917 View
  51. Boyce L, Harun A, Prybutok G, Prybutok V. Exploring the factors in information seeking behavior: a perspective from multinational COPD online forums. Health Promotion International 2022;37(2) View
  52. Chandwani R. Stakeholders in the Indian Healthcare Sector. Vikalpa: The Journal for Decision Makers 2021;46(2):65 View
  53. Panda A, Mohapatra S. Online Healthcare Practices and Associated Stakeholders: Review of Literature for Future Research Agenda. Vikalpa: The Journal for Decision Makers 2021;46(2):71 View
  54. Fang J, Wen L, Ren H, Wen C. The effect of technical and functional quality on online physician selection: Moderation effect of competition intensity. Information Processing & Management 2022;59(4):102969 View
  55. Sinclair M, McCullough J, Elliott D, Braz P, Cavero-Carbonell C, Dornan L, Jamry-Dziurla A, João Santos A, Latos-Bieleńska A, Machado A, Páramo-Rodríguez L. Using Social Media as a Research Tool for a Bespoke Web-Based Platform for Stakeholders of Children With Congenital Anomalies: Development Study. JMIR Pediatrics and Parenting 2021;4(4):e18483 View
  56. Tseng H, Ibrahim F, Hajli N, Nisar T, Shabbir H. Effect of privacy concerns and engagement on social support behaviour in online health community platforms. Technological Forecasting and Social Change 2022;178:121592 View
  57. Gao Y, Gong L, Liu H, Kong Y, Wu X, Guo Y, Hu D. Research on the influencing factors of users’ information processing in online health communities based on heuristic-systematic model. Frontiers in Psychology 2022;13 View
  58. Masson Z, Parmentier G. Drivers and mechanisms for online communities performance: A systematic literature review. European Management Journal 2023;41(4):590 View
  59. Chou C, Leo W, Chen T. Servicing through digital interactions andwell-being in virtual communities. Journal of Services Marketing 2022;36(2):217 View
  60. Cohen J, Patterson P, Noke M, Clarke K, Husson O. Development and Evaluation of the Canteen Connect Online Health Community: Using a Participatory Design Approach in Meeting the Needs of Young People Impacted by Cancer. Cancers 2021;14(1):50 View
  61. Yang Z, Luo X, Jia H, Xie Y, Zhang R. Personal Narrative under Nationalism: Chinese COVID-19 Vaccination Expressions on Douyin. International Journal of Environmental Research and Public Health 2022;19(19):12553 View
  62. Zhao J, Harvey G, Vandyk A, Huang M, Hu J, Modanloo S, Gifford W. Understanding How and Under What Circumstances Social Media Supports Health Care Providers' Knowledge Use in Clinical Practice: A Realist Review. Telemedicine and e-Health 2023;29(4):475 View
  63. Fu H, Oh S. Online community development in the early stages: the life cycle model application to Medical Sciences Stack Exchange. Aslib Journal of Information Management 2022;74(6):1214 View
  64. Ma D, Zuo M. Unconscious or conscious? The impacts of habit and social support receipt on older adults' continued participation in online health communities. Aslib Journal of Information Management 2022;74(4):688 View
  65. Bullini Orlandi L, Veronesi G, Zardini A. Unpacking linguistic devices and discursive strategies in online social movement organizations: Evidence from anti-vaccine online communities. Information and Organization 2022;32(2):100409 View
  66. Harmon D, Young C, Bear M, Aase L, Pruthi S. Integrating online community support into outpatient breast cancer care: Mayo Clinic Connect online platform. DIGITAL HEALTH 2021;7:205520762110489 View
  67. Patten C, Koller K, Sinicrope P, Prochaska J, Young C, Resnicow K, Decker P, Hughes C, Merritt Z, McConnell C, Huang M, Thomas T. Facebook Intervention to Connect Alaska Native People With Resources and Support to Quit Smoking: CAN Quit Pilot Randomized Controlled Trial. Nicotine & Tobacco Research 2022 View
  68. Sinicrope P, Young C, Resnicow K, Merritt Z, McConnell C, Hughes C, Koller K, Bock M, Decker P, Flanagan C, Meade C, Thomas T, Prochaska J, Patten C. Lessons Learned From Beta-Testing a Facebook Group Prototype to Promote Treatment Use in the “Connecting Alaska Native People to Quit Smoking” (CAN Quit) Study. Journal of Medical Internet Research 2022;24(2):e28704 View
  69. Yang E, Kornfield R, Liu Y, Chih M, Sarma P, Gustafson D, Curtin J, Shah D. Using Machine Learning of Online Expression to Explain Recovery Trajectories: Content Analytic Approach to Studying a Substance Use Disorder Forum. Journal of Medical Internet Research 2023;25:e45589 View
  70. Wang X, Zhao K, Amato M, Stanton C, Shuter J, Graham A. The Role of Seed Users in Nurturing an Online Health Community for Smoking Cessation Among People With HIV/AIDS. Annals of Behavioral Medicine 2024;58(2):122 View
  71. Lev-On A. “Objection, Your Honor”: Use of Social Media by Civilians to Challenge the Criminal Justice System. SSRN Electronic Journal 2023 View
  72. Sharma P, Tranby B, Kamath C, Brockman T, Roche A, Hammond C, Brewer L, Sinicrope P, Lenhart N, Quade B, Abuan N, Halom M, Staples J, Patten C. A Christian Faith-Based Facebook Intervention for Smoking Cessation in Rural Communities (FAITH-CORE): Protocol for a Community Participatory Development Study. JMIR Research Protocols 2023;12:e52398 View
  73. Bujanda-Sainz de Murieta A, Soto-Ruiz N, García-Vivar C, San Martín-Rodríguez L, Escalada-Hernández P. Use of Online Communities among People with Type 2 Diabetes: A Scoping Review. Current Diabetes Reports 2024;24(5):96 View
  74. Zhao Y, Zhang L. Getting better? Examining the effects of social support in OHCs on users’ emotional improvement. Information Processing & Management 2024;61(4):103754 View
  75. O’Donnell E, Van Citters A, Khayal I, Wilson M, Gustafson D, Barnato A, Buccellato A, Young C, Holthoff M, Korsunskiy E, Tomlin S, Cullinan A, Steinbaugh A, Hinson J, Johnson K, Williams A, Thomson R, Haines J, Holmes A, Bradley A, Nelson E, Kirkland K. A Web-Based Peer Support Network to Help Care Partners of People With Serious Illness: Co-Design Study. JMIR Human Factors 2024;11:e53194 View
  76. Roche A, Young A, Sabaque C, Kelpin S, Sinicrope P, Pham C, Marsch L, Campbell A, Venner K, Baker-DeKrey L, Wyatt T, WhiteHawk S, Nord T, Resnicow K, Young C, Brown A, Bart G, Patten C. Wiidookaage'win: Beta-test of a Facebook group intervention for Native women to support opioid use recovery. Journal of Substance Use and Addiction Treatment 2024;163:209396 View

Books/Policy Documents

  1. Hanlis E, Abbass P. Encyclopedia of Information Science and Technology, Third Edition. View
  2. Loehr G, Shackleford L, Dill-Shackleford K, Metcalf M. Handbook of Research on the Impact of Fandom in Society and Consumerism. View
  3. Zeiger R, Frydman G. Oncology Informatics. View
  4. Bender J. Novel Applications of Virtual Communities in Healthcare Settings. View
  5. Pohlisch J. Internal Crowdsourcing in Companies. View
  6. Loehr G, Shackleford L, Dill-Shackleford K, Metcalf M. Research Anthology on Fandoms, Online Social Communities, and Pop Culture. View
  7. Cunliffe D. Language Revitalisation and Social Transformation. View
  8. . The Online Healthcare Community. View