This paper is in the following e-collection/theme issue:

Medicine 2.0'11 (Full Paper of Conference Presentation) (9) Medicine 2.0'11 (Stanford) (8)

Published on in Vol 14, No 5 (2012): Sep-Oct

Communicating the Experience of Chronic Pain and Illness Through Blogging

Communicating the Experience of Chronic Pain and Illness Through Blogging

Communicating the Experience of Chronic Pain and Illness Through Blogging

Authors of this article:

Pamela Katz Ressler1 ;   Ylisabyth S. Bradshaw1, 2 ;   Lisa Gualtieri2 ;   Kenneth Kwan Ho Chui3
Article Authors Cited by (66) Tweetations (154) Metrics

Journals

  1. Carcello K, McLennon S. “Personal road map for recovery:” examining the therapeutic use of weblogs by stroke survivors with aphasia. Disability and Rehabilitation 2022;44(10):1933 View
  2. Sendra A, Farré J. Communicating the experience of chronic pain through social media: patients’ narrative practices on Instagram. Journal of Communication in Healthcare 2020;13(1):46 View
  3. Petersen A, Schermuly A, Anderson A. Feeling less alone online: patients’ ambivalent engagements with digital media. Sociology of Health & Illness 2020;42(6):1441 View
  4. Tsai S, Crawford E, Strong J. Seeking virtual social support through blogging: A content analysis of published blog posts written by people with chronic pain. DIGITAL HEALTH 2018;4 View
  5. Hays C, Spiers J, Paterson B. Opportunities and Constraints in Disseminating Qualitative Research in Web 2.0 Virtual Environments. Qualitative Health Research 2015;25(11):1576 View
  6. Helfenstein A, Tammela P, Wren J. Analyzing user-generated online content for drug discovery: development and use of MedCrawler. Bioinformatics 2017;33(8):1205 View
  7. Zamanzadeh V, Ahmadi F, Foolady M, Behshid M, Irajpoor A. The Health Seeking Behaviors and Perceptions of Iranian Patient with Osteoarthritis about Pain Management: A Qualitative Study. Journal of Caring Sciences 2017;6(1):81 View
  8. Johnson D, Levings‐Gregory M, Pickens J, Andrews L. Using Social Media to Change the Narrative Around Chronic Illness. Australian and New Zealand Journal of Family Therapy 2020;41(1):67 View
  9. Miller E, Pole A, Usidame B. Life and Death in the Mental-Health Blogosphere: An Analysis of Blog Content and Survival. World Medical & Health Policy 2015;7(1):59 View
  10. Nguyen A, Mosadeghi S, Almario C. Persistent digital divide in access to and use of the Internet as a resource for health information: Results from a California population-based study. International Journal of Medical Informatics 2017;103:49 View
  11. Kannaley K, Mehta S, Yelton B, Friedman D. Thematic analysis of blog narratives written by people with Alzheimer’s disease and other dementias and care partners. Dementia 2019;18(7-8):3071 View
  12. Fotiadou D, Northcott S, Chatzidaki A, Hilari K. Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?. Aphasiology 2014;28(11):1281 View
  13. Murphy E, Donohue G, McCann E. Exploring Mental Health Issues through the Use of Blogs: A Scoping Review of the Research Evidence. Issues in Mental Health Nursing 2020;41(4):296 View
  14. Litchman M, Tran M, Dearden S, Guo J, Simonsen S, Clark L. What Women With Disabilities Write in Personal Blogs About Pregnancy and Early Motherhood: Qualitative Analysis of Blogs. JMIR Pediatrics and Parenting 2019;2(1):e12355 View
  15. Gonzalez-Polledo E. Chronic Media Worlds: Social Media and the Problem of Pain Communication on Tumblr. Social Media + Society 2016;2(1) View
  16. Slater H, Dear B, Merolli M, Li L, Briggs A. Use of eHealth technologies to enable the implementation of musculoskeletal Models of Care: Evidence and practice. Best Practice & Research Clinical Rheumatology 2016;30(3):483 View
  17. Oh J, He D, Jeng W, Mattern E, Bowler L. Linguistic characteristics of eating disorder questions on Yahoo! Answers – content, style, and emotion. Proceedings of the American Society for Information Science and Technology 2013;50(1):1 View
  18. Ruskin D, Harris L, Stinson J, Kohut S, Walker K, McCarthy E. “I Learned to Let Go of My Pain”. The Effects of Mindfulness Meditation on Adolescents with Chronic Pain: An Analysis of Participants’ Treatment Experience. Children 2017;4(12):110 View
  19. Potts G, Radford D. #Teeth&Tweets: the reach and reaction of an online social media oral health promotion campaign. British Dental Journal 2019;227(3):217 View
  20. Keim-Malpass J, Albrecht T, Steeves R, Danhauer S. Young Women’s Experiences With Complementary Therapies During Cancer Described Through Illness Blogs. Western Journal of Nursing Research 2013;35(10):1309 View
  21. Johansson L, Silén M. Research methods in nursing students' Bachelor's theses in Sweden: A descriptive study. Nurse Education Today 2018;66:187 View
  22. Elnaggar A, Ta Park V, Lee S, Bender M, Siegmund L, Park L. Patients’ Use of Social Media for Diabetes Self-Care: Systematic Review. Journal of Medical Internet Research 2020;22(4):e14209 View
  23. Guymer E, Littlejohn G, Brand C, Kwiatek R. Fibromyalgia onset has a high impact on work ability in Australians. Internal Medicine Journal 2016;46(9):1069 View
  24. Thomas C, Allison R, Latour J. Using blogs to explore the lived‐experience of life after stroke: “A journey of discovery I never wanted to take”. Journal of Advanced Nursing 2018;74(3):579 View
  25. Twynstra J, Dworatzek P. Use of an Experiential Learning Assignment to Prepare Future Health Professionals to Utilize Social Media for Nutrition Communications. Canadian Journal of Dietetic Practice and Research 2016;77(1):30 View
  26. Robillard J, Whiteley L, Johnson T, Lim J, Wasserman W, Illes J. Utilizing Social Media to Study Information-Seeking and Ethical Issues in Gene Therapy. Journal of Medical Internet Research 2013;15(3):e44 View
  27. Stage C, Hvidtfeldt K, Klastrup L. Vital Media: The Affective and Temporal Dynamics of Young Cancer Patients’ Social Media Practices. Social Media + Society 2020;6(2) View
  28. Bryant Howren M, Van Liew J, Christensen A. Advances in Patient Adherence to Medical Treatment Regimens: The Emerging Role of Technology in Adherence Monitoring and Management. Social and Personality Psychology Compass 2013;7(7):427 View
  29. Gonzalez-Polledo E, Tarr J. The thing about pain: The remaking of illness narratives in chronic pain expressions on social media. New Media & Society 2016;18(8):1455 View
  30. Knoll M, Bronstein J. An examination of the information disclosure behavior of infertility bloggers. Aslib Journal of Information Management 2014;66(2):175 View
  31. Ozanne A, Henoch I, Strang S. Is blogging a new form of communication in palliative health care? A qualitative research study. International Journal of Palliative Nursing 2018;24(5):238 View
  32. Braun L, Zomorodbakhsch B, Keinki C, Huebner J. Information needs, communication and usage of social media by cancer patients and their relatives. Journal of Cancer Research and Clinical Oncology 2019;145(7):1865 View
  33. Pithon M, Santos E. Information available on the internet about pain after orthognathic surgery: A careful review. Dental Press Journal of Orthodontics 2014;19(6):86 View
  34. Sendra A, Farré J, Vaagan R. Seeking, sharing and co-creating: a systematic review of the relation between social support theory, social media use and chronic diseases. Social Theory & Health 2020;18(4):317 View
  35. Keim-Malpass J, Steeves R, Kennedy C. Internet ethnography: A review of methodological considerations for studying online illness blogs. International Journal of Nursing Studies 2014;51(12):1686 View
  36. Chen A. The Relationship Between Health Management and Information Behavior Over Time: A Study of the Illness Journeys of People Living With Fibromyalgia. Journal of Medical Internet Research 2016;18(10):e269 View
  37. Vasilica C, Brettle A, Ormandy P. A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study. JMIR Formative Research 2020;4(1):e13207 View
  38. Yang Y, Xu J, Hu Y, Hu J, Jiang A. The experience of patients with cancer on narrative practice: A systematic review and meta‐synthesis. Health Expectations 2020;23(2):274 View
  39. Coll‐Planas G, Visa M. The wounded blogger: analysis of narratives by women with breast cancer. Sociology of Health & Illness 2016;38(6):884 View
  40. Wright R, Junghaenel D, Rivas R, Hristidis V, Robbins M. A new approach to capturing pain disclosure in daily life in-person and online. Journal of Health Psychology 2021;26(13):2577 View
  41. Hung M, Conrad J, Hon S, Cheng C, Franklin J, Tang P. Uncovering patterns of technology use in consumer health informatics. WIREs Computational Statistics 2013;5(6):432 View
  42. Hunter R, Parry B, Thomas C. Fears for the future: A qualitative exploration of the experiences of individuals living with multiple sclerosis, and its impact upon the family from the perspective of the person with MS. British Journal of Health Psychology 2021;26(2):464 View
  43. Toye F, Seers K, Barker K. “It’s like she’s talking about me” — Exploring the value and potential impact of a YouTube film presenting a qualitative evidence synthesis about chronic pain: An analysis of online comments. Canadian Journal of Pain 2020;4(3):61 View
  44. Karim S, Hsiung K, Symonds M, Radovic A. Experience of Peer Bloggers Using a Social Media Website for Adolescents With Depression or Anxiety: Proof-of-Concept Study. JMIR Formative Research 2021;5(7):e26183 View
  45. Slade M, Rennick-Egglestone S, Llewellyn-Beardsley J, Yeo C, Roe J, Bailey S, Smith R, Booth S, Harrison J, Bhogal A, Penas Morán P, Hui A, Quadri D, Robinson C, Smuk M, Farkas M, Davidson L, van der Krieke L, Slade E, Bond C, Nicholson J, Grundy A, Charles A, Hare-Duke L, Pollock K, Ng F. Recorded Mental Health Recovery Narratives as a Resource for People Affected by Mental Health Problems: Development of the Narrative Experiences Online (NEON) Intervention. JMIR Formative Research 2021;5(5):e24417 View
  46. Ruschak I, Montesó-Curto P, Rosselló L, Aguilar Martín C, Sánchez-Montesó L, Toussaint L. Fibromyalgia Syndrome Pain in Men and Women: A Scoping Review. Healthcare 2023;11(2):223 View
  47. Tour S, Thompson A, Howard R, Larkin M. Experiences of Blogging About Visible and Long-term Skin Conditions: Interpretative Phenomenological Analysis. JMIR Dermatology 2022;5(2):e29980 View
  48. Lee J, Green B, Palmarella G, McNamara K, Wachholtz A. Negative impact of chronic pain: The role of locus of control and perceived family validation of chronic pain. Health Psychology Open 2022;9(2) View
  49. van Hout F, van Rooden A, Slatman J. Chronicling the chronic: narrating the meaninglessness of chronic pain. Medical Humanities 2023;49(1):1 View
  50. Kovačević I, Majerić Kogler V, Krikšić V, Ilić B, Friganović A, Ozimec Vulinec Š, Pavić J, Milošević M, Kovačević P, Petek D. Non-Medical Factors Associated with the Outcome of Treatment of Chronic Non-Malignant Pain: A Cross-Sectional Study. International Journal of Environmental Research and Public Health 2022;19(5):2881 View
  51. Tekniker I, Cheung R. Do Bloggers Have Better Mental Health? The Social, Cognitive, and Psychological Benefits of Blogging in Emerging Adulthood. International Journal of Environmental Research and Public Health 2023;20(8):5493 View
  52. Sarker A, Lakamana S, Guo Y, Ge Y, Leslie A, Okunromade O, Gonzalez-Polledo E, Perrone J, McKenzie-Brown A. #ChronicPain: Automated Building of a Chronic Pain Cohort from Twitter Using Machine Learning. Health Data Science 2023;3 View
  53. Griffiths H. Low-dose ketamine infusions for chronic pain management: Does this qualify as evidence-based practice?. British Journal of Pain 2023;17(5):457 View
  54. Kvaale K, Synnes O, S. Lian O, Bondevik H. “That bastard chose me”: the use of metaphor in women’s cancer blogs. Qualitative Research in Medicine and Healthcare 2024;8(2) View
  55. Prodgers L, Gough B, Madill A. How Do Men Who Post Publicly on Social Media Author Themselves and Their Experiences of Crohn’s Disease? A Dialogical Analysis of Three Cases. Qualitative Health Research 2024 View

Books/Policy Documents

  1. Thompson B. Meanings of Pain. View
  2. Stage C. Networked Cancer. View
  3. . The Language of Illness and Death on Social Media. View
  4. Reifegerste D. Die Rollen der Angehörigen in der Gesundheitskommunikation. View
  5. Pousti H, Urquhart C, Linger H. Information Systems and Global Assemblages. (Re)Configuring Actors, Artefacts, Organizations. View
  6. Cockton G. Emotions in Technology Design: From Experience to Ethics. View
  7. Greene A. Envisioning Embodiment in the Health Humanities. View
  8. Stevens B, Hathway G, Zempsky W, Jibb L, Stinson J. Oxford Textbook of Pediatric Pain. View