Published on in Vol 13, No 3 (2011): Jul-Sep

Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet

Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet

Can Online Consumers Contribute to Drug Knowledge? A Mixed-Methods Comparison of Consumer-Generated and Professionally Controlled Psychotropic Medication Information on the Internet

Authors of this article:

Shannon Hughes 1 ;   David Cohen 2

Journals

  1. McCoy A, Wright A, Rogith D, Fathiamini S, Ottenbacher A, Sittig D. Development of a clinician reputation metric to identify appropriate problem-medication pairs in a crowdsourced knowledge base. Journal of Biomedical Informatics 2014;48:66 View
  2. Stockmann T, Odegbaro D, Timimi S, Moncrieff J. SSRI and SNRI withdrawal symptoms reported on an internet forum. International Journal of Risk & Safety in Medicine 2018;29(3-4):175 View
  3. Patel S, Cain R, Neailey K, Hooberman L. Public Awareness, Usage, and Predictors for the Use of Doctor Rating Websites: Cross-Sectional Study in England. Journal of Medical Internet Research 2018;20(7):e243 View
  4. Bernhard G, Ose D, Baudendistel I, Seidling H, Stützle M, Szecsenyi J, Wensing M, Mahler C. Understanding Challenges, Strategies, and the Role of Support Networks in Medication Self-management Among Patients With Type 2 Diabetes. The Diabetes Educator 2017;43(2):190 View
  5. Hughes S, Lacasse J, Fuller R, Spaulding-Givens J. Adverse effects and treatment satisfaction among online users of four antidepressants. Psychiatry Research 2017;255:78 View
  6. Bronstein J. An examination of social and informational support behavior codes on the Internet: The case of online health communities. Library & Information Science Research 2017;39(1):63 View
  7. Hughes S, Matheson A. Subjectively Experienced Benefits and Harms of Antipsychotics According to Users’ Firsthand Accounts on the Internet. Ethical Human Psychology and Psychiatry 2016;18(3):196 View
  8. McCoy A, Wright A, Krousel-Wood M, Thomas E, McCoy J, Sittig D. Validation of a Crowdsourcing Methodology for Developing a Knowledge Base of Related Problem-Medication Pairs. Applied Clinical Informatics 2015;06(02):334 View
  9. Convertino I, Ferraro S, Blandizzi C, Tuccori M. The usefulness of listening social media for pharmacovigilance purposes: a systematic review. Expert Opinion on Drug Safety 2018;17(11):1081 View
  10. Lacasse J, Hayes Piel M, Lietz C, Rider A, Hess J. The client experience of psychiatric medication: A qualitative study. Social Work in Mental Health 2016;14(1):61 View
  11. Williams D, Sullivan S, Schneiders A, Ahmed O, Lee H, Balasundaram A, McCrory P. Big hits on the small screen: an evaluation of concussion-related videos on YouTube. British Journal of Sports Medicine 2014;48(2):107 View
  12. Cohen D, Hughes S. How Do People Taking Psychiatric Drugs Explain Their “Chemical Imbalance?”. Ethical Human Psychology and Psychiatry 2012;13(3):176 View
  13. Siskind S, Aydin R, Matta P, Cyron C. Higher patient satisfaction with antidepressants correlates with earlier drug release dates across online user‐generated medical databases. Pharmacology Research & Perspectives 2017;5(5) View
  14. Tricco A, Zarin W, Lillie E, Jeblee S, Warren R, Khan P, Robson R, Pham B, Hirst G, Straus S. Utility of social media and crowd-intelligence data for pharmacovigilance: a scoping review. BMC Medical Informatics and Decision Making 2018;18(1) View
  15. Borchert J, Wang B, Ramzanali M, Stein A, Malaiyandi L, Dineley K. Adverse Events Due to Insomnia Drugs Reported in a Regulatory Database and Online Patient Reviews: Comparative Study. Journal of Medical Internet Research 2019;21(11):e13371 View
  16. Kalf R, Makady A, ten Ham R, Meijboom K, Goettsch W. Use of Social Media in the Assessment of Relative Effectiveness: Explorative Review With Examples From Oncology. JMIR Cancer 2018;4(1):e11 View
  17. Hughes S, Cohen D, Johnson R. Adverse event assessment methods in published trials of psychotropic drugs: Poor reporting and neglect of emerging safety concerns. International Journal of Risk & Safety in Medicine 2016;28(2):101 View
  18. Lardon J, Abdellaoui R, Bellet F, Asfari H, Souvignet J, Texier N, Jaulent M, Beyens M, Burgun A, Bousquet C. Adverse Drug Reaction Identification and Extraction in Social Media: A Scoping Review. Journal of Medical Internet Research 2015;17(7):e171 View
  19. Conell J, Bauer R, Glenn T, Alda M, Ardau R, Baune B, Berk M, Bersudsky Y, Bilderbeck A, Bocchetta A, Bossini L, Paredes Castro A, Cheung E, Chillotti C, Choppin S, Del Zompo M, Dias R, Dodd S, Duffy A, Etain B, Fagiolini A, Garnham J, Geddes J, Gildebro J, Gonzalez-Pinto A, Goodwin G, Grof P, Harima H, Hassel S, Henry C, Hidalgo-Mazzei D, Kapur V, Kunigiri G, Lafer B, Lam C, Larsen E, Lewitzka U, Licht R, Lund A, Misiak B, Piotrowski P, Monteith S, Munoz R, Nakanotani T, Nielsen R, O’Donovan C, Okamura Y, Osher Y, Reif A, Ritter P, Rybakowski J, Sagduyu K, Sawchuk B, Schwartz E, Scippa Â, Slaney C, Sulaiman A, Suominen K, Suwalska A, Tam P, Tatebayashi Y, Tondo L, Vieta E, Vinberg M, Viswanath B, Volkert J, Zetin M, Zorrilla I, Whybrow P, Bauer M. Online information seeking by patients with bipolar disorder: results from an international multisite survey. International Journal of Bipolar Disorders 2016;4(1) View
  20. Salmasian H, Tran T, Chase H, Friedman C. Medication-indication knowledge bases: a systematic review and critical appraisal. Journal of the American Medical Informatics Association 2015;22(6):1261 View
  21. Hauw D. Antidoping Education Using a Lifelong Situated Activity-Based Approach: Evidence, Conception, and Challenges. Quest 2017;69(2):256 View
  22. Bernhard G, Mahler C, Seidling H, Stützle M, Ose D, Baudendistel I, Wensing M, Szecsenyi J. Developing a Shared Patient-Centered, Web-Based Medication Platform for Type 2 Diabetes Patients and Their Health Care Providers: Qualitative Study on User Requirements. Journal of Medical Internet Research 2018;20(3):e105 View
  23. Abou Taam M, Rossard C, Cantaloube L, Bouscaren N, Roche G, Pochard L, Montastruc F, Herxheimer A, Montastruc J, Bagheri H. Analysis of patients' narratives posted on social media websites on benfluorex's (Mediator® ) withdrawal in France. Journal of Clinical Pharmacy and Therapeutics 2014;39(1):53 View
  24. Bagheri H, Lacroix I, Guitton E, Damase-Michel C, Montastruc J. Cyberpharmacovigilance : les réseaux sociaux sont-ils utiles en pharmacovigilance ?. Therapies 2016;71(2):229 View
  25. del Fresno García M, Peláez A. Social work and netnography: The case of Spain and generic drugs. Qualitative Social Work 2014;13(1):85 View
  26. Pages A, Bondon-Guitton E, Montastruc J, Bagheri H. Undesirable Effects Related to Oral Antineoplastic Drugs: Comparison Between Patients’ Internet Narratives and a National Pharmacovigilance Database. Drug Safety 2014;37(8):629 View
  27. Patel S, Cain R, Neailey K, Hooberman L. General Practitioners’ Concerns About Online Patient Feedback: Findings From a Descriptive Exploratory Qualitative Study in England. Journal of Medical Internet Research 2015;17(12):e276 View
  28. Moncrieff J. Research on a ‘drug-centred’ approach to psychiatric drug treatment: assessing the impact of mental and behavioural alterations produced by psychiatric drugs. Epidemiology and Psychiatric Sciences 2018;27(2):133 View
  29. Adusumalli S, Lee H, Hoi Q, Koo S, Tan I, Ng P. Assessment of Web-Based Consumer Reviews as a Resource for Drug Performance. Journal of Medical Internet Research 2015;17(8):e211 View
  30. Kennedy C, Powell J, Payne T, Ainsworth J, Boyd A, Buchan I. Active Assistance Technology for Health-Related Behavior Change: An Interdisciplinary Review. Journal of Medical Internet Research 2012;14(3):e80 View
  31. McCoy A, Wright A, Laxmisan A, Ottosen M, McCoy J, Butten D, Sittig D. Development and evaluation of a crowdsourcing methodology for knowledge base construction: identifying relationships between clinical problems and medications. Journal of the American Medical Informatics Association 2012;19(5):713 View
  32. Monteith S, Glenn T. Automated Decision-Making and Big Data: Concerns for People With Mental Illness. Current Psychiatry Reports 2016;18(12) View
  33. Bagheri H, Lacroix I, Guitton E, Damase-Michel C, Montastruc J. Cyberpharmacovigilance: What is the usefulness of the social networks in pharmacovigilance?. Therapies 2016;71(2):235 View
  34. Chew S, Khoo C. Comparison of drug information on consumer drug review sites versus authoritative health information websites. Journal of the Association for Information Science and Technology 2016;67(2):333 View
  35. Cohen D, Recalt A. Withdrawal effects confounding in clinical trials: another sign of a needed paradigm shift in psychopharmacology research. Therapeutic Advances in Psychopharmacology 2020;10:204512532096409 View
  36. Golder S, Smith K, O’Connor K, Gross R, Hennessy S, Gonzalez-Hernandez G. A Comparative View of Reported Adverse Effects of Statins in Social Media, Regulatory Data, Drug Information Databases and Systematic Reviews. Drug Safety 2021;44(2):167 View
  37. van der Linden D, Edwards M, Hadar I, Zamansky A. Pets without PETs: on pet owners’ under-estimation of privacy concerns in pet wearables. Proceedings on Privacy Enhancing Technologies 2020;2020(1):143 View
  38. Trinkūnas J, Puronaitė R. PATIENT-REPORTED MEASURES INTEGRATION INTO A HOSPITAL INFORMATION SYSTEM: BIBLIOMETRIC ANALYSIS AND CASE STUDY. Mokslas - Lietuvos ateitis 2022;14(0):1 View
  39. Gordijn R, Wessels W, Kriek E, Nicolai M, Elzevier H, Visser L, Guchelaar H, Teichert M. Patient reporting of sexual adverse events on an online platform for medication experiences. British Journal of Clinical Pharmacology 2022;88(12):5326 View
  40. Thal S, Engel L, Bright S. Sober sitter or coconsumer? Psychedelics, online forums and preferences for interpersonal interactions. Addiction Research & Theory 2022;30(5):382 View
  41. Golder S, Medaglio D, O’Connor K, Hennessy S, Gross R, Gonzalez Hernandez G. Reasons for Discontinuation or Change of Selective Serotonin Reuptake Inhibitors in Online Drug Reviews. JAMA Network Open 2023;6(7):e2323746 View

Books/Policy Documents

  1. Richardson G. Global Perspectives on Health Communication in the Age of Social Media. View
  2. Upadhyay C, Tiwari V, Tiwari V, Pandiya B. Soft Computing for Problem Solving. View
  3. Ivanov A, Mileva E. Cooperative Design, Visualization, and Engineering. View
  4. Richardson G. Research Anthology on Mental Health Stigma, Education, and Treatment. View