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Polycystic ovary syndrome (PCOS), endometriosis, and uterine fibroids are among the most prevalent reproductive health conditions, collectively impacting millions of women and people who menstruate globally. Prevalences of PCOS and endometriosis range from 4%-20% and 5%-10%, respectively [1-4].
JMIR Form Res 2024;8:e65469
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Semistructured interviews were conducted with women living with PCOS, trustees of the Verity UK PCOS charity who themselves had PCOS, and endocrinologists who provided services to patients with PCOS at a large publicly funded teaching hospital.
Those with lived experience of PCOS were 13 adult women recruited through purposive sampling from social media. All had received a formal diagnosis of PCOS from health professionals at least 6 months before the study and took part in individual interviews.
JMIR Form Res 2024;8:e52427
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Genomic and proteomic approaches [11] have also identified potential new genes and proteins that might explain the link between PCOS and EC and could upregulate genes associated with the insulin signaling pathway in PCOS.
Over the past few years, research studies have investigated the potential role of insulin resistance and IGF-1 in the association between PCOS and EC [12,13].
JMIR Res Protoc 2023;12:e48127
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While some studies have analyzed the content and reliability of You Tube videos related to reproductive health and PCOS, the findings were limited by small sample sizes and a lack of focus on a comprehensive analysis of the public’s comments [17,18]. Therefore, we delved into the vast realm of You Tube comments on PCOS videos, meticulously analyzing the keywords, sentiments, prevailing trends, and recurring themes expressed by the public, ultimately unravelling the rich tapestry of opinions surrounding PCOS.
J Med Internet Res 2023;25:e49220
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Surveyed people with PCOS also expressed dissatisfaction with their physicians’ awareness of PCOS [13,14] and the lack of information provided to them about PCOS or relevant clinical therapies upon diagnosis [15].
Some people with PCOS find and participate in online PCOS support groups that exist on various social media platforms. This is possibly due to dissatisfaction with clinical diagnosis and management options.
JMIR Form Res 2023;7:e44810
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Multimodal Recruitment to Study Ovulation and Menstruation Health: Internet-Based Survey Pilot Study
Reference 7: The Androgen Excess and PCOS Society criteria for the polycystic ovary syndrome: the completepcos
J Med Internet Res 2021;23(4):e24716
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This has led to the organization of educational events, such as the PCOS Awareness Symposium by PCOS Challenge, Inc, held at the University of California, Los Angeles (UCLA), in 2015, to provide the general public with up-to-date education on the diagnosis and management of PCOS as a crucial public health priority [9].
J Med Internet Res 2020;22(4):e16541
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