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PatientsLikeMe and Online Patient Support Communities in Dermatology
Encouraging health care provider acknowledgment of and engagement on these forums with patients can play an important role in promoting community-building and health literacy and developing trust and rapport while cautioning users on the potential for misinformation. While extremely beneficial to many, online platforms like PLM should not be all-encompassing resources, and informed use is paramount.
JMIR Dermatol 2024;7:e50453
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Web-Based Forums for People Experiencing Substance Use or Gambling Disorders: Scoping Review
Understanding who participates in the web-based peer-supported forums (and how), and the principles underpinning forums, can also assist those interested in designing or implementing similar platforms.
We conducted a scoping review on how people experiencing substance use or gambling disorders, or their family, friends, and supporters, use and participate in web-based peer-supported forums.
JMIR Ment Health 2024;11:e49010
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Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study
In this social listening study, we explored the experience of patients living with lupus (SLE and CLE), as discussed in web-based social media platforms, such as blogs and forums, by searching for posts regarding disease burden, HRQo L impacts, treatment experience, and unmet needs.
This retrospective exploratory social listening study was conducted between October 2019 and January 2022 across 13 publicly available English-language social media platforms (Multimedia Appendix 1).
JMIR Form Res 2024;8:e52768
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Recent studies have leveraged such patient-generated data from social media platforms and web forums to gather the experiences and concerns of patients with cancer on contemporary treatments [11,12].
Despite the popularity of TCIM among patients with cancer, few related studies have used data from web forums and social media platforms to explore the use of TCIM among patients with cancer [13,14].
J Med Internet Res 2023;25:e45408
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In order to analyze the different areas of concerns, we assessed health care (Pub Med abstracts) and family (forum posts) concepts associated with ADHD by visualizing the KGs from Pub Med abstracts and family forums by using the Gephi network visualization tool [43].
J Med Internet Res 2022;24(8):e39888
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