e.g. mhealth
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The data recorded by patients (patient reported outcomes; PROs) can be recorded electronically in real time (electronic patient reported outcomes; e PROs) using a smartphone app and made available to the doctor. The use of e PROs thus enables ongoing recording of patients’ daily well-being and state of health. The evaluation of e PROs is also used in clinical studies of patients with cancer [2] and enables structured and standardized data collection in patients’ everyday lives.
JMIR Form Res 2024;8:e55917
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Patient-reported outcomes (PROs) and PRO measures play a crucial role in this process. PROs refer to any report of the patient’s health status that comes directly from the patient, while patient-reported outcome measures are validated questionnaires that patients complete to self-assess their health status [13]. Patient self-reporting is a critical part of comprehensive pain assessment [14], given pain’s subjective and multidimensional nature.
JMIR Mhealth Uhealth 2023;11:e49677
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Of the 50 practices in this study, 46 were from the Pediatric Research in Office Settings (PROS) Network, the pediatric primary-care practice-based research network of the American Academy of Pediatrics (AAP), and the remaining 4 were affiliated with the Children’s Hospital of Philadelphia (CHOP) and Columbia University, respectively. Practices were located throughout the United States (Northeast [28%], South [36%], Midwest [16%], and West [20%]).
JMIR Form Res 2023;7:e39576
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However, toxic treatment often causes long-term sequelae (eg, physical and psychological morbidities and premature mortality [4-8]), which contribute to poor patient-reported outcomes (PROs) and impaired quality of life [8,9]. Poor PROs, such as fatigue, pain, psychological distress, and neurocognitive problems, are prevalent in survivors of cancer aged
Conventionally, PROs are collected from childhood survivors of cancer during follow-up care using standard surveys with prespecified content of PROs.
J Med Internet Res 2021;23(11):e26777
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Patient-reported outcomes (PROs), defined by the US Food and Drug Administration as “any report of the status of a patient's health condition that comes directly from the patient,” are becoming more and more common in the medical field, with an increasing improvement of dedicated software solutions for electronic capturing of data [1]. Furthermore, general advantages of using online formats compared to paper ones were already highlighted in the early 90s [2] and confirmed by further studies [3,4].
JMIR Res Protoc 2016;5(4):e219
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In the field of breast cancer research, patient-reported outcomes (PROs) are becoming increasingly important to better understand and quantify symptoms, psychosocial well-being, and side effects of treatment from a patient’s perspective [4,5]. Mobile health apps may prove to be useful in the collection of PROs, as many patients already use their mobile phones to collect and share personal information. However, it is still unknown to what extent health apps can be used to collect reliable PROs.
JMIR Cancer 2016;2(1):e8
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