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Skip search results from other journals and go to results- 4 JMIR Research Protocols
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Exploring the Perspectives of Patients Living With Lupus: Retrospective Social Listening Study
To investigate the HRQo L of patients, the frequency of mentions and the perceived importance of issues related to HRQo L facets were analyzed. Social networking communities discussed several aspects of HRQo L, as evidenced by 2199 patient mentions and 2138 posts accounting to 37.9% (2138/5636) of all posts analyzed in this study. These posts on HRQo L by patients with SLE contained descriptions of how they perceived the most burdensome symptoms and the impact on their daily lives.
JMIR Form Res 2024;8:e52768
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However, treatment with ICIs is associated with short- and long-term immune-related adverse events (AEs) [5-7], most commonly fatigue [7,8], and a deteriorated health-related quality of life (HRQo L) [6,9,10]. Some studies have reported that inadequate symptom monitoring and reporting (eg, under detection) can lead to worsening of AEs and more frequent emergency department visits and hospitalizations [11-13].
JMIR Res Protoc 2023;12:e49252
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Finally, our exploratory aim was to examine whether four variables, (1) previous HRQOL measures, (2) number of weeks in study, (3) step count, and (4) minutes of sleep, can modify the effectiveness of personalized JITAIs on HRQOL outcomes. Findings from this exploratory analysis can inform the future design of personalized JITAIs.
JMIR Form Res 2023;7:e43099
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Although having positive effects, these treatments also have side effects, such as fatigue [5,6] and a decrease in functional exercise capacity [7], muscle mass [8], and muscle strength [8,9], which will ultimately affect physical activity and health-related quality of life (HRQo L) [10,11]. Therefore, complementary interventions that could minimize these side effects are needed [7].
Studies have demonstrated that exercise promotes benefits to this population [7].
JMIR Res Protoc 2023;12:e43547
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Sleep Disturbance and Quality of Life in Rheumatoid Arthritis: Prospective mHealth Study
People living with rheumatoid arthritis (RA), a long-term progressive autoimmune disease, experience a significantly reduced health-related quality of life (HRQo L), which can be characterized as the impact a condition has on physical, emotional, and social well-being. People with RA have poorer HRQo L compared with patients with other rheumatic diseases [1] and the general population [2]. There are likely numerous causes for poor HRQo L.
J Med Internet Res 2022;24(4):e32825
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PROs comprise various aspects of the subjectively perceived state of health from the patients’ point of view such as HRQo L, satisfaction with care, and drug adherence [9,15,16]. With regard to the therapy setting, monitoring HRQo L and the occurrence of symptoms appears to be of particular relevance, primarily during therapy, but also as a long-term follow-up for improving and supporting patients´ well-being [17-20].
J Med Internet Res 2019;21(1):e10004
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AYAs with cancer report a decrease in health-related quality of life (HRQo L), regardless of other demographic factors such as gender, age, or ethnicity [6,7] and struggle with long-term complications in the physical, psychosocial, economic, and academic domains as a consequence of their disease and recovery process [8-10].
JMIR Res Protoc 2018;7(5):e10098
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HRQo L is divided into domains (1) health, (2) subjective feelings, (3) leisure time activities, (4) social relationships, (5) general activities, and (6) life satisfaction [17]. For many years, HRQo L in patients with breast cancer has been investigated. Especially in patients with metastatic disease, the measurement of HRQo L is important, as the primary goal of therapy is to afford them a high quality of life during their remaining lifespan [18-20].
J Med Internet Res 2017;19(9):e322
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