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Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person’s Care
Shared access is different from a health care or medical proxy—which is a person legally authorized to make decisions on behalf of a person who is physically or mentally unable to make their own medical decisions.
Shared access provides portal delegates with legitimacy and information transparency when engaging in health system activities about a patient’s health and their treatments.
J Med Internet Res 2024;26:e49394
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Our analyses of the N3 C Data Enclave revealed a number of facts that are important for researchers to consider when drawing conclusions based on these data. First, “no matching concept” was the second largest harmonized racial group in the N3 C. A substantial portion of the records (20.7%) were in some way nonconforming, including 11.7% of all records that were missing race or ethnicity data (missing data were considered a subcategory of nonconformance in this study).
JMIR Med Inform 2022;10(9):e39235
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In contrast, PGHD is patient-directed and patient-informed and is not collected through clinic tools but through a range of readily available commercial off-the-shelf tools such as mobile phone apps and wearable activity trackers [22]. PGHD is also distinguished from EMA, which is a data collection method where study participants repeatedly report on, for instance, a symptom or behavior [19].
JMIR Hum Factors 2016;3(2):e26
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