Original Paper
Abstract
Background: Patient-centered communication refers to interaction between patients and health professionals that considers patients’ preferences and empowers patients to contribute to their own care. Research suggests that patient-centered communication promotes patients’ satisfaction with care, trust in physicians, and competence in their abilities to manage their health.
Objective: The study aims to explore the role of patients’ use of electronic health records (EHRs) in promoting patient-centered communication. Specifically, we investigated how health information efficacy mediates the association of EHR use with patient-centered communication and whether and how the relationship between EHR use and health information efficacy varies according to patients’ perceived social support levels.
Methods: We conducted mediation and multigroup analyses using nationally representative data from the Health Information National Trends Survey 5 cycle 1 conducted in the United States (N=3285). Among respondents, we analyzed those who received care from health professionals over the previous year (2823/3285, 85.94%).
Results: EHR use by patients was associated with high levels of health information efficacy (unstandardized coefficient=0.050, SE 0.024; P=.04). In turn, health information efficacy was positively related to patient-centered communication (unstandardized coefficient=0.154, SE 0.024; P<.001). The indirect pathway from EHR use to patient-centered communication, mediated by health information efficacy, was statistically significant (unstandardized coefficient=0.008, SE 0.004; P=.04). Among patients with high social support (2349/2823, 83.21%), EHR use was not significantly associated with health information efficacy (unstandardized coefficient=0.038, SE 0.026; P=.15), although health information efficacy was linked to high levels of patient-centered communication (unstandardized coefficient=0.151, SE 0.030; P<.001). The indirect relationship in this group was not significant (unstandardized coefficient=0.006, SE 0.004; P=.11). However, among those with low social support (474/2823, 16.79%), EHR use was positively associated with health information efficacy (unstandardized coefficient=0.155, SE 0.048; P=.001), which in turn relates to high levels of patient-centered communication (unstandardized coefficient=0.137, SE 0.050; P=.01). The indirect pathway was also significant (unstandardized coefficient=0.021, SE 0.010; P=.03).
Conclusions: Patients who use EHRs may build health information efficacy, which seems to promote communication between patients and health care providers. This indirect pathway was not detected among patients with high social support. However, among those with low social support, EHR use seems to enhance health information efficacy, which may in turn facilitate patient-centered communication. Given the nature of the dataset used, the findings of this study are more relevant to the United States than other contexts.
doi:10.2196/50476
Keywords
Introduction
Background
Current health care aims to promote patient-centeredness as a key element of high-quality care [
]. A primary goal of patient-centered care is patient-centered communication [ ]. Patient-centered communication refers to interaction between patients and health professionals that considers patients’ preferences and empowers patients to contribute to their own care [ , ]. Specifically, patient-centered communication is defined by its functions: fostering relationships between patients and health professionals, exchanging information, responding to patients’ emotional reactions, assisting patients in relieving uncertainty, involving patients with medical decision-making, and encouraging patients to manage their health [ - ]. Research suggests that patient-centered communication promotes patients’ satisfaction with care [ ], trust in physicians [ , ], and competence in their abilities to manage their health [ ]. In addition, patient-centered communication plays a crucial role in preventing patients from believing health misinformation [ , ]. Because health misinformation is rampant on social media platforms [ , ] and misinformation is likely to be disseminated more rapidly than corrective information [ ], health professionals today use various strategies to counter patients’ misinformed beliefs [ ].Emerging evidence indicates that patients’ use of electronic health records (EHRs) has the potential to promote patient-centered communication [
, - ]. An EHR is an electronic version of a patient’s personal health information that contains health conditions and medication history [ , - ]. Health care providers generate health records, and patients can access this information from EHRs [ , , ]. To our knowledge, however, no studies have investigated the underlying mechanism between EHR use and patient-centered communication.This study suggests that patients’ confidence in their abilities to obtain health information they want, termed health information efficacy [
], may play a role here. Because EHR use empowers patients to control their health status [ ], we argue that EHR use is positively linked to health information efficacy, which may in turn be related to patient-centered communication. Moreover, we posit that EHR use is beneficial to patients with little social support. Given that EHRs may compensate for patients’ lack of social support, we postulate that the relationship between use of EHRs and health information efficacy might be strong for patients who perceive little social support.The Development of EHRs
EHRs and electronic medical records (EMRs) are the 2 main computerized systems used to share patient information [
]. Although EHRs and EMRs are sometimes used interchangeably, they are distinct from each other [ ]. EMRs were developed to deliver and receive patient information among clinicians within a particular hospital [ , , ]. Unlike an EMR system, EHRs allow health professionals to share patient information with health care providers in other institutions [ , , ]. Moreover, EHRs are designed to be used by both health professionals and patients [ , , , ]. Thus, patients who use EHRs are able to access their health records, obtain health information, and communicate with health professionals [ , , , ].While EHRs and EMRs are typically controlled by physicians, personal health records (PHRs) are primarily managed by patients themselves, and various entities, such as physicians, patients, and pharmacies, could enter information on PHRs [
, , ]. That is, PHRs serve as a compilation of individual patients’ health information over their lifetime [ ]. Although PHRs allow patients to organize their own health information logically, health professionals raise concerns regarding the inaccuracy of health information within PHRs [ ]. Therefore, some scholars argue that EHRs need to be combined with PHRs [ , ].The Relationship Between the Use of EHRs and Patient-Centered Communication
It is not always easy for patients to get useful health information from the media and interpersonal sources. Understanding medical terminologies or jargon that health care professionals use requires basic health literacy and cognitive abilities [
]. Although the traditional media and the internet deliver a wealth of information, patients should spend much time finding proper health information [ ]. In addition, not all patients have friends or family members who could provide useful health information [ , ].However, EHRs enable patients to easily access health information they need [
, , , ]. By granting patients access to their personal medical history, including treatment plans, medications, radiology images, allergy information, laboratory results, and immunization dates [ ], patients who use EHRs can obtain health information tailored to their needs and circumstances [ , ]. In addition, patients can efficiently communicate with health care professionals through the messaging features within EHR platforms [ , ]. For example, patients are able to send quick messages to health professionals and receive immediate responses through EHRs whenever they have questions about their health status [ , ]. Consequently, patients who use EHRs may perceive that acquiring necessary health information is not as difficult.Self-efficacy theory posits that people who experience success develop confidence in their capabilities to attain goals [
]. In a health context, patients who acquire useful health information build health information efficacy, which refers to one’s confidence in their abilities to get the health information they want [ ]. This study proposes that EHR use may enhance health information efficacy. Patients who use EHRs are able to cultivate experiences of successfully obtaining the health information they need by accessing their personal health information, such as laboratory results or medications stored within EHRs [ ]. Through this process, patients may come to realize that it is not as difficult to obtain personal health information from EHRs. Moreover, enhanced confidence may lead patients to believe that acquiring general health information from other information sources, such as the media or interpersonal networks, is also less challenging than previously thought. In other words, continued access to personal health information from EHRs may foster patients’ confidence in their abilities to obtain general health information from various information sources beyond EHRs.Therefore, we advance the following hypothesis: EHR use will be positively related to health information efficacy (hypothesis 1).
Patients’ efficacy beliefs about acquiring health information may be applied to situations where patients interact with health professionals. That is, patients with health information efficacy will have the confidence that they can acquire information from health care providers as well. Such confidence may allow patients to communicate efficiently with health care professionals for the following reasons. First, patients with health information efficacy will seek information and prepare a list of well-informed questions before consulting with physicians [
]. Physicians are likely to offer more information to patients who ask many questions than to those with few questions [ , ]. In the process of asking questions and getting answers, patients will communicate actively with their physicians. Second, patients with efficacy beliefs about obtaining health information may learn about their health while interacting with their physicians. Patients who are well-informed are likely to engage in shared decision-making with health professionals [ ]. Accordingly, it is expected that patients with health information efficacy have patient-centered communication with health care professionals.Hence, we posit the following hypothesis: health information efficacy will be positively related to patient-centered communication (hypothesis 2).
Taken together, it is proposed that health information efficacy will mediate the linkage between EHR use and patient-centered communication (hypothesis 3).
The Moderating Role of Social Support in Using EHRs
Social support is defined as individuals’ perceptions that they have someone to rely on [
- ]. People feel supported when receiving assistance from significant others, such as family members, friends, or coworkers [ , ]. In a health context, supportive significant others provide patients with health information, such as coping strategies for stress [ ] or advice on how to care for infants [ ]. Moreover, social support provides patients with a source of efficacy beliefs about obtaining and understanding health information [ ].Research has shown that eHealth, defined as the use of information and communication technologies to improve health care [
- ], has the potential to assist patients in overcoming deficits in social support [ - ]. In this study, we argue that EHRs, a type of eHealth service, may compensate for patients’ lack of social support.EHRs may enable patients with little social support to build efficacy beliefs about obtaining health information. Patients who lack social support are less likely to have supportive others who offer essential health information and emotional support [
, ]. Those patients may receive useful health information through EHR use [ ] because EHRs provide patients with health information in an edited form that is easier to understand [ ]. In addition, patients can ask questions through EHRs whenever they encounter complicated terms in their medical records [ ], which makes them feel comfortable about their care. Naturally, patients who lack social support will cultivate successful experiences of acquiring health information through EHRs. Such mastery experiences may develop patients’ efficacy beliefs about getting health information. Thus, among patients with low social support, the linkage between the use of EHRs and health information efficacy may be strong.On the contrary, the relationship between EHR use and health information efficacy may be weak among individuals with high social support. Because social support increases patients’ confidence in obtaining and understanding health information [
], patients with high social support may already have a sufficient level of health information efficacy. Therefore, individuals with high levels of social support may gain limited benefits from EHR use when it comes to building confidence in their ability to acquire health information. That is, a ceiling effect may occur.Thus, EHR use may narrow the gap in health information efficacy between those with high and low social support. Accordingly, we suggest the following hypothesis: the association of EHR use with health information efficacy will be stronger among those with low social support than those with high social support (hypothesis 4).
Methods
Study Participants
This study analyzed nationally representative survey data from cycle 1 of the fifth Health Information National Trends Survey (HINTS 5 cycle 1) conducted in the United States [
]. The National Cancer Institute in the United States managed the development of survey questions and survey administration [ ]. Participants received the first mailing and reminder postcard along with a cover letter [ ]. The cover letter states that the survey aims to understand individuals’ use of health information. In addition, the cover letter emphasizes the voluntary nature of participation. The survey was conducted through mail among individuals aged ≥18 years in the United States from January 25, 2017, to May 5, 2017 [ ]. On the basis of the formula of the American Association for Public Opinion Research response rate 2, the overall response rate was 32.39%. In total, 3285 people completed the survey [ ]. Those who had not met health professionals for their own care during the past year, except for emergency room visits, were excluded from the analyses. Ultimately, of the 3285 cases, 2823 (85.94%) were included in the study.Measures
EHR Use
On a 5-point scale (0=0 to 4=≥10 times), respondents were asked, “How many times did you access your online medical record in the last 12 months?” (mean 0.63, SD 1.03) [
]. contains a copy of the survey, which includes all the questions used in the study.Health Information Efficacy
Health information efficacy was measured on a 5-point scale (1=completely confident to 5=not confident at all) by asking participants to rate their confidence levels to obtain health-related advice or information when necessary [
- ]. Responses to the item were reversely coded so that higher scores indicate higher health information efficacy (mean 3.79, SD 0.92).Patient-Centered Communication
Patient-centered communication was operationalized using 7 items adopted by several studies [
, ]. Respondents reported their experiences of patient-centered communication with health care professionals during the previous 12 months. Respondents were asked how often their health care providers did the following things on a 4-point scale (1=always to 4=never): (1) provided them with an opportunity to ask any question they had about health, (2) paid attention to their emotions and feelings, (3) engaged them in making decisions regarding their health care, (4) ensured that they understand things they should do to manage their health, (5) clarified things, (6) spent sufficient amount of time with them, and (7) assisted them in coping with uncertainty feelings regarding their health or medical care. Responses to the 7 items were reversely coded. Then, the recoded responses were averaged (Cronbach α=0.93; mean 3.39, SD 0.65).Social Support
Social support items were adopted from the study by Emanuel et al [
]. Respondents were asked whether they had someone they could rely on for emotional support when they needed it, including talking over problems or assisting them in making difficult decisions. In addition, respondents were asked if they had any family members or friends to discuss their health. Each social support item was assessed on a 2-point scale (0=no and 1=yes). These 2 items showed a high correlation (r=0.52; P<.001). To investigate the moderating role of social support, we combined the responses from these 2 items into 1 dichotomous indicator. Participants who answered yes to both items were considered as those with high social support (2349/2823, 83.21%), while the others were classified as those with low social support (474/2823, 16.79%). Please note that classification into high and low social support groups is based on individuals’ self-perceptions regarding social support.Control Variables
We included 3 types of control variables. First, age (mean 56.99, SD 15.92 years), male or female (1068/2763, 38.65% male), race or ethnicity (2037/2646, 76.98% White), education (1=<8 years to 7=postgraduate; mean 4.98, SD 1.59), income per year (1=<US $9999 to 9=≥US $200,000; mean 5.54, SD 2.25), employment status (1366/2744, 49.78% employed), marital status (1458/2727, 53.47% married), place of birth (2417/2758, 87.64% born in the United States), and having children (637/2574, 24.75% having children aged <18 years) were included as control variables. Second, we controlled for health-related variables: general health status (1=poor to 5=excellent; mean 3.35, SD 0.95), cancer history (471/2801, 16.82% ever been diagnosed as having cancer), regular health provider (2165/2787, 77.68% have health professionals that they see most often), and health insurance (2698/2787, 96.81% covered by health insurance). Third, we controlled for health information seeking from any source (2287/2768, 82.62% ever sought health information) because health information seeking from health care professionals or the media could increase health information efficacy or enhance the perceived quality of communication with physicians.
Statistical Analyses
Mediation Analyses
We first examined whether health information efficacy mediates the relationship between EHR use and patient-centered communication. We conducted path analyses using Mplus (version 7.4) developed by Muthén and Muthén [
]. Our model included control variables significantly associated with endogenous variables at bivariate correlation analyses [ ]: race or ethnicity, education, income per year, employment, place of birth, general health, regular health provider, health insurance, and health information seeking. The skewness and the kurtosis of the variables in the models indicate that all variables were normally distributed [ ]. Unstandardized coefficients were reported following the recommendation of mediation analyses [ ].Following a methodology document made by the Health Information National Trends Survey (HINTS) [
], we used a sample weight and replicate weights. A sample weight corrects for oversampling and generalizes the result to the US population [ ]. In addition, replicate weights allow researchers to recalculate SEs, which lowers the risk of committing a type 1 error [ ].Additional Analyses
One could argue that the directionality of the variables in our model may be reversed. That is, patient-centered communication might increase health information efficacy [
], or health information efficacy could promote EHR use. Through the model comparison analyses, we explored whether our hypothesized mediation model fits the data better than its competing models with different causal orders among variables [ , ]. Although a model comparison result does not support causal links among variables, we can compare the performance of each model.As shown in
, we developed 5 alternative models. Model 2 assumes the indirect pathway from EHR use to health information efficacy through patient-centered communication. In model 3, EHR use mediates the relationship between patient-centered communication and health information efficacy. Model 4 posits that the relationship between patient-centered communication and EHR use is mediated by health information efficacy. In model 5, EHR use is a mediator for the path from health information efficacy to patient-centered communication. Model 6 assumes the indirect pathway from health information efficacy to EHR use via patient-centered communication. All models included control variables significantly associated with endogenous variables in the bivariate correlation analyses [ ]. In models 1 and 2, where EHR use is an endogenous variable, EHR use was significantly related to race or ethnicity, education, income per year, employment, place of birth, general health, regular health provider, health insurance, and health information seeking at a bivariate level. Thus, these variables were included as control variables. In models 3 and 4, where patient-centered communication is an endogenous variable, patient-centered communication was significantly associated with race or ethnicity, income per year, place of birth, general health, regular health provider, and health insurance at a bivariate level. Therefore, these variables were controlled. In models 5 and 6, where health information efficacy is an endogenous variable, health information efficacy was significantly related to education, income per year, employment, place of birth, general health, and health information seeking at a bivariate level. These covariates were controlled in each model. In addition, we used a sample weight and replicate weights following the HINTS methodology document [ ]. provides detailed information about additional models.We used standard criteria for measuring fits to find the best-fitting model: (1) Akaike information criterion, (2) Bayesian information criterion, (3) root mean square error of approximation (RMSEA), and (4) standardized root mean squared residual (SRMR). Chi-square statistics were not used because Mplus does not provide it with replicate weights. We compared models based on each model’s average ranking across all fit statistics. The ranks of the 4 fit statistics of each model were averaged. A model with a high mean fit rank was considered better than its alternatives.
Multigroup Path Analyses
Next, we investigated whether and how social support moderates the linkage between EHR use and health information efficacy. A multigroup path analysis was conducted. We tested the difference of coefficients of the path from EHR use to health information efficacy between those who have high and low levels of social support. If the difference was significant, it was considered that the association of EHR use with health information efficacy differs by social support. We included the same set of control variables: race or ethnicity, education, income per year, employment, place of birth, general health, regular health provider, health insurance, and health information seeking. In addition, a sample weight and replicate weights were applied following the methodology document by the HINTS [
].Finally, we conducted post hoc power analyses of variables (EHR use, health information efficacy, and patient-centered communication) for the comparability of the groups (high and low social support groups). First, we calculated effect sizes (Cohen d) for each variable between high and low social support groups. Then, we used G*Power (version 3.1) software, developed by Faul et al [
], to compute statistical power analyses.Ethical Considerations
This study analyzed data from the HINTS 5 cycle 1 survey. The Westat Institutional Review Board in the United States reviewed and approved the survey on March 28, 2016 (project number: 6048.14) [
]. Westat is a research firm that conducted the survey under contract with the United States Department of Health and Human Services. The survey received a “not human subjects research” determination from the National Institutes of Health Office of Human Subjects Research on April 25, 2016 (exempt number: 13204) [ ]. Participants were invited to take the survey, receiving up to 3 mailings and 1 reminder postcard [ ]. Each mail contains a cover letter, questionnaire, and return envelope. The cover letter informed participants that their participation was voluntary and their responses would not be linked to their names or any other information that could identify them or their households in accordance with the Privacy Act [ ]. Survey data were stored with restricted access. Prepaid compensation of US $2 was provided to all potential participants to encourage participation [ ].Results
Descriptive Statistics
We presented descriptive statistics of all variables in our analyses in
. and also show bivariate correlations of the variables.All respondents (N=2823) | Respondents with high social supporta (n=2349) | Respondents with low social supporta (n=474) | ||
EHRb usec, mean (SD) | 0.63 (1.03) | 0.65 (1.04) | 0.52 (0.95) | |
HIEd,e, mean (SD) | 3.79 (0.92) | 3.85 (0.89) | 3.47 (1.02) | |
PCCf,g, mean (SD) | 3.39 (0.65) | 3.45 (0.62) | 3.12 (0.77) | |
Age (y), mean (SD) | 56.99 (15.92) | 56.93 (16.09) | 57.10 (14.98) | |
Gender (male), n (%) | 1068 (38.65) | 884 (38.24) | 171 (40.91) | |
Social supporta (high), n (%) | 2349 (83.21) | —h | — | |
Race or ethnicity, n (%) | ||||
African American | 486 (18.37) | 396 (17.83) | 83 (21.01) | |
American Indian or Alaska Native | 103 (3.89) | 84 (3.78) | 19 (4.81) | |
Hispanic or Latinx | 328 (12.78) | 265 (12.31) | 58 (14.99) | |
White | 2037 (76.98) | 1725 (77.67) | 289 (73.16) | |
Educationi, mean (SD) | 4.98 (1.59) | 5.03 (1.59) | 4.77 (1.56) | |
Incomej (per year), mean (SD) | 5.54 (2.25) | 5.68 (2.22) | 4.85 (2.26) | |
Employment status, n (%) | ||||
Employed | 1366 (49.78) | 1154 (50.17) | 197 (47.58) | |
Retired | 900 (32.8) | 767 (33.35) | 122 (29.47) | |
Disabled | 218 (7.94) | 160 (6.96) | 54 (13.04) | |
Homemaker | 148 (5.39) | 126 (5.48) | 21 (5.07) | |
Unemployed | 144 (4.15) | 89 (3.87) | 25 (6.04) | |
Marital status, n (%) | ||||
Married | 1458 (53.47) | 1286 (56.3) | 158 (38.44) | |
Divorced | 435 (15.58) | 327 (14.32) | 90 (21.9) | |
Single, never been married | 416 (15.25) | 324 (14.19) | 86 (20.92) | |
Widowed | 283 (10.38) | 233 (10.2) | 47 (11.44) | |
Born in the United States, n (%) | 2417 (87.64) | 2030 (88.03) | 359 (85.68) | |
Having children, n (%) | 637 (24.75) | 534 (24.68) | 98 (25.39) | |
Health statusk, mean (SD) | 3.35 (0.95) | 3.40 (0.93) | 3.08 (1.04) | |
Cancer history, n (%) | 471 (16.82) | 403 (17.23) | 68 (15.96) | |
With health provider, n (%) | 2165 (77.68) | 1841 (79.39) | 294 (69.01) | |
Have health insurance, n (%) | 2698 (96.81) | 2257 (97.24) | 400 (94.12) | |
HISl (seeking), n (%) | 2287 (82.62) | 1924 (83.47) | 326 (77.99) |
aSocial support was operationalized by 2 items. Those who answered yes to both items were considered those with high social support. The others were regarded as those with low social support.
bEHR: electronic health record.
cEHR use was assessed on a 5-point scale: 0=0 to 4=≥10 times.
dHIE: health information efficacy.
eHIE was measured on a 5-point scale: 1=completely confident to 5=not confident at all. Responses were reversely coded.
fPCC: patient-centered communication.
gMean of 7 PCC items. Each item was measured on a 4-point scale: 1=always to 4=never. Responses were reversely coded.
hNot available.
iEducation was assessed on a 7-point scale: 1=<8 years to 7=postgraduate. Responses were averaged.
jIncome per year was measured on a 9-point scale: 1=<US $9999 to 9=≥US $200,000. Responses were averaged.
kGeneral health status was measured on a 5-point scale: 1=poor to 5=excellent.
lHIS: health information seeking.
EHRa | HIEb | PCCc | Social support | Age | Male or female | Race or ethnicity | Education | ||||||||||
HIE | |||||||||||||||||
r | 0.078 | —d | — | — | — | — | — | — | |||||||||
P value | <.001 | — | — | — | — | — | — | — | |||||||||
PCC | |||||||||||||||||
r | 0.066 | 0.242 | — | — | — | — | — | — | |||||||||
P value | .01 | <.001 | — | — | — | — | — | — | |||||||||
Social support | |||||||||||||||||
r | 0.030 | 0.154 | 0.117 | — | — | — | — | — | |||||||||
P value | .23 | <.001 | <.001 | — | — | — | — | — | |||||||||
Age | |||||||||||||||||
r | −0.004 | −0.026 | 0.045 | 0.098 | — | — | — | — | |||||||||
P value | .90 | .50 | .21 | .006 | — | — | — | — | |||||||||
Male or female | |||||||||||||||||
r | −0.050 | −0.008 | 0.002 | −0.019 | 0.004 | — | — | — | |||||||||
P value | .10 | .79 | .96 | .58 | .89 | — | — | — | |||||||||
Race or ethnicity | |||||||||||||||||
r | 0.066 | 0.021 | 0.119 | 0.069 | 0.115 | 0.012 | — | — | |||||||||
P value | .006 | .49 | <.001 | .04 | <.001 | .59 | — | — | |||||||||
Education | |||||||||||||||||
r | 0.199 | 0.066 | 0.063 | 0.126 | −0.058 | −0.038 | 0.166 | — | |||||||||
P value | <.001 | .03 | .06 | <.001 | .13 | .03 | <.001 | — | |||||||||
Income per year | |||||||||||||||||
r | 0.184 | 0.131 | 0.093 | 0.133 | −0.010 | 0.088 | 0.117 | 0.361 | |||||||||
P value | <.001 | <.001 | .01 | <.001 | .79 | .01 | <.001 | <.001 | |||||||||
Employment status | |||||||||||||||||
r | 0.094 | 0.089 | 0.015 | 0.046 | −0.252 | 0.091 | 0.029 | 0.260 | |||||||||
P value | <.001 | .006 | .66 | .22 | .001 | .008 | .30 | <.001 | |||||||||
Marital status | |||||||||||||||||
r | 0.130 | 0.037 | 0.035 | 0.093 | 0.203 | 0.056 | 0.140 | 0.118 | |||||||||
P value | <.001 | .25 | .20 | .003 | <.001 | .001 | <.001 | <.001 | |||||||||
Born in the United States | |||||||||||||||||
r | 0.010 | 0.069 | 0.136 | 0.038 | 0.137 | −0.011 | 0.304 | 0.007 | |||||||||
P value | .70 | .01 | <.001 | .33 | <.001 | .76 | <.001 | .84 | |||||||||
Having children aged <18 years | |||||||||||||||||
r | 0.035 | 0.011 | −0.018 | −0.078 | −0.219 | −0.069 | −0.030 | 0.015 | |||||||||
P value | .18 | .73 | .53 | .05 | <.001 | .02 | .22 | .67 | |||||||||
General health | |||||||||||||||||
r | 0.043 | 0.153 | 0.147 | 0.213 | −0.137 | −0.003 | 0.082 | 0.267 | |||||||||
P value | .12 | <.001 | <.001 | <.001 | .001 | .94 | .003 | <.001 | |||||||||
Cancer history | |||||||||||||||||
r | 0.030 | −0.036 | −0.004 | 0.006 | 0.241 | −0.046 | 0.028 | −0.024 | |||||||||
P value | .19 | .09 | .82 | .79 | <.001 | .03 | .16 | .13 | |||||||||
Regular health provider | |||||||||||||||||
r | 0.192 | 0.034 | 0.194 | 0.063 | 0.217 | −0.040 | 0.157 | 0.044 | |||||||||
P value | <.001 | .25 | <.001 | .05 | <.001 | .30 | <.001 | .13 | |||||||||
Health insurance | |||||||||||||||||
r | 0.101 | 0.030 | 0.192 | 0.024 | 0.096 | 0.007 | 0.070 | 0.140 | |||||||||
P value | <.001 | .56 | <.001 | .50 | .004 | .88 | .09 | <.001 | |||||||||
HISe | |||||||||||||||||
r | 0.166 | 0.138 | 0.035 | 0.077 | −0.010 | −0.029 | 0.109 | 0.261 | |||||||||
P value | <.001 | .002 | .20 | .04 | .81 | .38 | <.001 | <.001 |
aEHR: electronic health record.
bHIE: health information efficacy.
cPCC: patient-centered communication.
dNot available.
eHIS: health information seeking.
Income per year | Employment status | Marital status | Born in the United States | Having children aged <18 years | General health | Cancer history | Regular health provider | Health insurance | |||||||||||
Income per year | |||||||||||||||||||
r | —a | — | — | — | — | — | — | — | — | ||||||||||
P value | — | — | — | — | — | — | — | — | — | ||||||||||
Employment status | |||||||||||||||||||
r | 0.393 | — | — | — | — | — | — | — | — | ||||||||||
P value | <.001 | — | — | — | — | — | — | — | — | ||||||||||
Marital status | |||||||||||||||||||
r | 0.344 | 0.160 | — | — | — | — | — | — | — | ||||||||||
P value | <.001 | <.001 | — | — | — | — | — | — | — | ||||||||||
Born in the United States | |||||||||||||||||||
r | 0.024 | −0.079 | −0.033 | — | — | — | — | — | — | ||||||||||
P value | .41 | .007 | .29 | — | — | — | — | — | — | ||||||||||
Having children aged <18 years | |||||||||||||||||||
r | 0.149 | 0.195 | 0.210 | −0.086 | — | — | — | — | — | ||||||||||
P value | <.001 | <.001 | <.001 | .02 | — | — | — | — | — | ||||||||||
General health | |||||||||||||||||||
r | 0.225 | 0.200 | 0.089 | −0.003 | 0.034 | — | — | — | — | ||||||||||
P value | <.001 | <.001 | .007 | .95 | .23 | — | — | — | — | ||||||||||
Cancer history | |||||||||||||||||||
r | −0.004 | −0.128 | 0.055 | 0.030 | −0.077 | −0.074 | — | — | — | ||||||||||
P value | .85 | <.001 | .27 | .08 | <.001 | .001 | — | — | — | ||||||||||
Regular health provider | |||||||||||||||||||
r | 0.060 | −0.084 | 0.131 | 0.157 | −0.075 | −0.047 | 0.095 | — | — | ||||||||||
P value | .14 | .03 | <.001 | <.001 | .04 | .17 | <.001 | — | — | ||||||||||
Health insurance | |||||||||||||||||||
r | 0.075 | 0.064 | 0.082 | −0.003 | −0.055 | 0.012 | 0.045 | 0.217 | — | ||||||||||
P value | .07 | .03 | .003 | .92 | .25 | .69 | .002 | <.001 | — | ||||||||||
HISb | |||||||||||||||||||
r | 0.164 | 0.124 | 0.099 | 0.022 | −0.017 | 0.070 | 0.057 | 0.043 | 0.074 | ||||||||||
P value | <.001 | <.001 | .007 | .44 | .60 | .04 | .001 | .20 | .12 |
aNot available.
bHIS: health information seeking.
Mediation Analyses
We conducted path analyses to investigate whether health information efficacy mediates the relationship between EHR use and patient-centered communication. Our mediation model fit the data well (RMSEA=0.015, 90% CI 0.000-0.031; SRMR=0.006). EHR use was positively associated with health information efficacy (unstandardized coefficient=0.050, SE 0.024; P=.04). In turn, health information efficacy was positively linked to patient-centered communication (unstandardized coefficient=0.154, SE 0.024; P<.001). The indirect pathway hypothesized in our study was statistically significant: health information efficacy mediated the association of EHR use with patient-centered communication (unstandardized coefficient=0.008, SE 0.004; P=.04).
Additional Analyses
Next, we conducted model comparison analyses. We compared our hypothesized mediation model (model 1) with its competing 5 models (models 2-6).
shows 4 fit statistics (Akaike information criterion, Bayesian information criterion, RMSEA, and SRMR) and the rank of each fit statistic. The average rank of our hypothesized model (model 1) was 1.5, which is the best among the 6 plausible models.Models | AICa | BICb | RMSEAc | SRMRd | Rank, mean (SD) | ||||||||
Values | Rank | Values | Rank | Values | Rank | Values | Rank | ||||||
Model 1e | 68,812.127 | 1 | 69,311.553 | 1 | 0.015 | 1 | 0.006 | 3 | 1.5 (0.87) | ||||
Model 2f | 68,813.358 | 2 | 69,312.785 | 2 | 0.017 | 6 | 0.006 | 3 | 3.25 (1.64) | ||||
Model 3g | 72,461.655 | 6 | 73,044.319 | 6 | 0.016 | 5 | 0.006 | 3 | 5 (1.22) | ||||
Model 4h | 72,461.418 | 5 | 73,044.082 | 5 | 0.015 | 1 | 0.006 | 3 | 3.5 (1.66) | ||||
Model 5i | 72,461.026 | 3 | 73,043.690 | 3 | 0.015 | 1 | 0.005 | 1 | 2 (1.00) | ||||
Model 6j | 72,461.054 | 4 | 73,043.718 | 4 | 0.015 | 1 | 0.005 | 1 | 2.5 (1.50) |
aAIC: Akaike information criterion.
bBIC: Bayesian information criterion.
cRMSEA: root mean square error of approximation.
dSRMR: standardized root mean squared residual.
eOur hypothesized model.
fElectronic health record use→patient-centered communication→health information efficacy.
gPatient-centered communication→electronic health record use→health information efficacy.
hPatient-centered communication→health information efficacy→electronic health record use.
iHealth information efficacy→electronic health record use→patient-centered communication.
jHealth information efficacy→patient-centered communication→electronic health record use.
Multigroup Path Analyses
Furthermore, we conducted a multigroup path analysis to explore the moderating role of social support in the relationship between EHR use and health information efficacy. The model with a total sample showed a good fit (RMSEA=0.030, 90% CI 0.016-0.045; SRMR=0.010). In addition, the model fit the data well in each group: high social support group (RMSEA=0.030, 90% CI 0.015-0.046; SRMR=0.009) and low social support group (RMSEA=0.033, 90% CI 0.000-0.074; SRMR=0.013). The path coefficients of the association of EHR use with health information efficacy were significantly different between high and low social support groups (unstandardized coefficient=0.118, SE 0.058; P=.04).
Among patients with high social support, EHR use was not significantly related to health information efficacy (unstandardized coefficient=0.038, SE 0.026; P=.15). By contrast, health information efficacy was positively associated with patient-centered communication (unstandardized coefficient=0.151, SE 0.030; P<.001). The indirect pathway from EHR use to patient-centered communication through health information efficacy was not significant among those who have high levels of social support (unstandardized coefficient=0.006, SE 0.004; P=.11).
However, among patients with low social support, EHR use was positively related to health information efficacy (unstandardized coefficient=0.155, SE 0.048; P=.001), which in turn was positively associated with patient-centered communication (unstandardized coefficient=0.137, SE 0.050; P=.01). Health information efficacy was a significant mediator for the path from EHR use to patient-centered communication among those with low levels of social support (unstandardized coefficient=0.021, SE 0.010; P=.03). The relationship among variables with unstandardized coefficients is presented in
.Finally, we conducted post hoc power analyses of variables to explore the comparability of high and low social support groups. Results show an effect size (Cohen d) of 0.126 for EHR use, 0.408 for health information efficacy, and 0.512 for patient-centered communication. In addition, findings from post hoc power analyses with a 2-tailed t test and an α level of .05 show that the power is 66.71% for EHR use, 100% for health information efficacy, and 100% for patient-centered communication.
Discussion
Principal Findings
The existing literature pays little attention to the underlying mechanism of how patients’ EHR use is beneficial to patient-centered communication. We found that health information efficacy, to some extent, accounts for the linkage between EHR use and patient-centered communication. The results indicate that EHR use seems to increase patients’ beliefs that they can obtain necessary health information. In turn, patients with health information efficacy have patient-centered communication with health care professionals, probably because these patients receive the information they desire from physicians while asking questions and become informed of their health, and they thus easily participate in medical decision-making. In addition, EHR use was positively associated with health information efficacy, and we detected such a relationship only among patients who lack social support. Patients who feel they do not receive support from others may meet their needs through the use of EHRs.
Prior research in this field, most of which are qualitative studies, reported mixed findings regarding the relationship between EHR use and patient-centered communication. While EHRs enable patients to communicate with physicians effectively [
, ], there is a possibility that EHR use can interfere with patient-centered communication for certain individuals. One of the challenges associated with EHR systems is maintaining the privacy of patient information [ , , ]. Concerns about the confidentiality of health records stored in EHRs may discourage patients from sharing their health status with physicians [ , ]. Such concerns might prevent patients from communicating with health professionals. Furthermore, some patients still struggle to understand medical terminologies or interpret test results in EHRs [ ]. In addition, health care professionals often experience stress due to the high volume of messages they receive from patients through EHRs [ ], which might compromise the quality of communication between physicians and patients. Thus, future studies should adopt a more nuanced approach by considering who uses EHRs in what contexts and what characteristics of EHRs could act as barriers to patient-centered communication. It would be worthwhile to explore further whether the impact of EHR use on patient-centered communication differs according to patients’ levels of security concerns or physicians’ proficiency in managing eHealth technologies.Limitations
There are some limitations in this study. First, we could not establish a causal relationship among EHR use, health information efficacy, and patient-centered communication because the survey was cross-sectional. Second, we measured EHR use and health information efficacy using only 1 item. A single-item measure could result in measurement errors, which may reduce the chances of obtaining statistically significant associations. Third, unmeasured factors, such as patients’ personality traits or medical mistrust, could affect patients’ communication experiences with health professionals [
]. Fourth, this study relies on self-reported perceptions of patient-centered communication. There is the possibility of recall bias in the self-reported measures [ - ]. While self-reported measures of patient-centered communication assess patients’ overall evaluations of their interactions with health professionals [ , , - ], these measures do not allow researchers to investigate what specific types of patients or health professionals’ behaviors influence such assessments of patient-centered communication [ ]. To address these limitations, scholars have suggested the use of observational measures, such as training coders to review video recordings of patients consulting with health professionals [ , , ]. Future research may benefit from using both self-reported and observational measures of patient-centered communication within the same study. Fifth, categorization into high and low social support groups relies on individuals’ self-perceptions of social support. Because perceived social support measures may be influenced by perceptual or judgmental differences among individuals [ ], future studies could use other measures of social support, such as received social support that captures specific behaviors or actions provided to individuals [ ]. Sixth, previous studies referred to questions asking about patients’ web-based medical record use in the HINTS as EHR use [ , - ]. However, the HINTS items did not specifically ask what type of web-based health record patients accessed, specifically whether patients used EHRs, EMRs, or PHRs, which could limit the generalizability of the results. Finally, the findings of this study are relevant to the United States. Future studies could explore how the relationship between web-based medical record use and patient-centered communication varies across countries.Implications
Our study has several theoretical implications. First, we empirically investigated the mechanism through which EHR use by patients could improve the quality of communication between health professionals and patients. Drawing from the self-efficacy theory, we explicate how health information efficacy links the relationship between EHR use and patient-centered communication. Moreover, this study suggests that EHRs can compensate for a lack of social support by enhancing beliefs in one’s ability to acquire health information. Existing studies show that social capital, resources embedded within one’s social network, could increase the use of diverse health information sources [
] and frequent health information seeking [ , ]. This means that the resources that are obtained through social relationships may have differential influences on health behaviors. However, our study suggests that EHR use may help bridge these gaps. Patients who lack social support could derive benefits from EHRs, which might improve the quality of patient-centered communication.This study has practical implications as well. First, it is important for patients to develop efficacy beliefs about health information acquisition. According to the literature on self-efficacy, individuals with a high sense of efficacy set high goals and commit to them [
]. Patients with health information efficacy might aim to acquire health information from health providers and prepare for meetings with them. Thus, enhancing patients’ health information efficacy should be a crucial element in patient education and public health interventions. By boosting efficacy beliefs, health educators and public health professionals may successfully enhance communication between patients and physicians.Furthermore, EHR use is beneficial for patients, especially those with low social support, in building health information efficacy. However, patients’ access to health records on the web remains low, although most hospitals in the United States have already adopted EHRs [
, ]. Similarly, of those who have met health professionals over the past year, 65.3% (1794/2748) of respondents have never had access to EHRs, according to the HINTS data we analyzed. Given that physicians’ recommendation for EHR use is the main factor promoting patients’ EHR use [ ], health care providers should encourage patients to use EHRs.Conclusions
To understand the pathway from patients’ use of EHRs to patient-centered communication, we investigated the mediating role of health information efficacy. We used the data from the HINTS 5 cycle 1, which was a survey with a nationally representative sample, and the statistical weighting makes our results generalizable to the US population aged ≥18 years. Our findings indicate that EHR use by patients appears to promote health information efficacy, which may in turn facilitate patient-centered communication. This indirect relationship was not detected among patients with high social support. However, among patients with low social support, EHR use seems to enhance health information efficacy, which may subsequently promote patient-centered communication. These findings are more relevant to the United States than other contexts. In addition, using a cross-sectional survey prevents us from making strong causal claims about any relationship reported in our study.
Acknowledgments
This work was supported by the National Research Foundation of Korea (NRF-2021S1A5B8096358) and the Institute of Communication Research at Seoul National University.
Data Availability
The datasets generated during and analyzed during this study are available in the Health Information National Trends Survey repository [
].Authors' Contributions
The project was administered by SA and CL. The conceptualization of the study was carried out by all authors. All authors were responsible for the validation process. Data analyses and data curation were conducted by SA. The original draft of the manuscript was prepared by SA and IB. All authors reviewed and made edits to the final manuscript.
Conflicts of Interest
None declared.
Copy of the survey including all the questions used in the study.
DOCX File , 43 KBReferences
- Epstein RM, Franks P, Fiscella K, Shields CG, Meldrum SC, Kravitz RL, et al. Measuring patient-centered communication in patient-physician consultations: theoretical and practical issues. Soc Sci Med. Oct 2005;61(7):1516-1528. [FREE Full text] [CrossRef] [Medline]
- Rathert C, Mittler JN, Banerjee S, McDaniel J. Patient-centered communication in the era of electronic health records: what does the evidence say? Patient Educ Couns. Jan 2017;100(1):50-64. [FREE Full text] [CrossRef] [Medline]
- Trivedi N, Moser RP, Breslau ES, Chou WY. Predictors of patient-centered communication among U.S. adults: analysis of the 2017-2018 Health Information National Trends Survey (HINTS). J Health Commun. Jan 02, 2021;26(1):57-64. [FREE Full text] [CrossRef] [Medline]
- Butler JM, Gibson B, Lewis L, Reiber G, Kramer H, Rupper R, et al. Patient-centered care and the electronic health record: exploring functionality and gaps. JAMIA Open. Oct 2020;3(3):360-368. [FREE Full text] [CrossRef] [Medline]
- Brédart A, Bouleuc C, Dolbeault S. Doctor-patient communication and satisfaction with care in oncology. Curr Opin Oncol. Jul 2005;17(4):351-354. [FREE Full text] [CrossRef] [Medline]
- Saha S, Beach MC. The impact of patient-centered communication on patients' decision making and evaluations of physicians: a randomized study using video vignettes. Patient Educ Couns. Sep 2011;84(3):386-392. [FREE Full text] [CrossRef] [Medline]
- Jiang S, Wu Z, Zhang X, Ji Y, Xu J, Liu P, et al. How does patient-centered communication influence patient trust?: the roles of patient participation and patient preference. Patient Educ Couns. May 2024;122:108161. [FREE Full text] [CrossRef] [Medline]
- Liu PL, Zhang L, Ma X, Zhao X. Communication matters: the role of patient-centered communication in improving old adults' health competence and health outcomes. Health Commun. Apr 2024;39(2):363-375. [FREE Full text] [CrossRef] [Medline]
- Bylund CL, Mullis MD, Alpert J, Markham MJ, Onega T, Fisher CL, et al. Clinician communication with patients about cancer misinformation: a qualitative study. JCO Oncol Pract. Mar 2023;19(3):e389-e396. [CrossRef] [Medline]
- Chou WY, Tiner J, Senft N. Emerging challenges in advanced cancer care: opportunities for enhancing patient-centered communication. In: Steel JL, Carr BI, editors. Psychological Aspects of Cancer: A Guide to Emotional and Psychological Consequences of Cancer, Their Causes, and Their Management. Cham, Switzerland. Springer; Jan 03, 2022.
- Suarez-Lledo V, Alvarez-Galvez J. Prevalence of health misinformation on social media: systematic review. J Med Internet Res. Jan 20, 2021;23(1):e17187. [FREE Full text] [CrossRef] [Medline]
- Vosoughi S, Roy D, Aral S. The spread of true and false news online. Science. Mar 09, 2018;359(6380):1146-1151. [FREE Full text] [CrossRef] [Medline]
- Benjamins J, Haveman-Nies A, Gunnink M, Goudkuil A, de Vet E. How the use of a patient-accessible health record contributes to patient-centered care: scoping review. J Med Internet Res. Jan 11, 2021;23(1):e17655. [FREE Full text] [CrossRef] [Medline]
- Rief JJ, Hamm ME, Zickmund SL, Nikolajski C, Lesky D, Hess R, et al. Using health information technology to foster engagement: patients' experiences with an active patient health record. Health Commun. Mar 2017;32(3):310-319. [FREE Full text] [CrossRef] [Medline]
- Snyder CF, Wu AW, Miller RS, Jensen RE, Bantug ET, Wolff AC. The role of informatics in promoting patient-centered care. Cancer J. 2011;17(4):211-218. [FREE Full text] [CrossRef] [Medline]
- Urowitz S, Smith K, Alkazaz N, Apatu E, Quartey NK, Wiljer D. Patient accessible electronic health records for the chronically ill: a review of the literature. J Hosp Adm. Sep 09, 2012;1(2):64. [FREE Full text] [CrossRef]
- Ndabu T, Agrawal L, Sharman R. The role of access type and age group in the breadth of use of patient portals: observational study. J Med Internet Res. Dec 27, 2022;24(12):e41972. [FREE Full text] [CrossRef] [Medline]
- McGinn CA, Grenier S, Duplantie J, Shaw N, Sicotte C, Mathieu L, et al. Comparison of user groups' perspectives of barriers and facilitators to implementing electronic health records: a systematic review. BMC Med. Apr 28, 2011;9:46. [FREE Full text] [CrossRef] [Medline]
- McMullen PC, Howie WO, Philipsen N, Bryant VC, Setlow PD, Calhoun M, et al. Electronic medical records and electronic health records: overview for nurse practitioners. J Nurse Pract. Oct 2014;10(9):660-665. [FREE Full text] [CrossRef]
- Heart T, Ben-Assuli O, Shabtai I. A review of PHR, EMR and EHR integration: a more personalized healthcare and public health policy. Health Policy Technol. Mar 2017;6(1):20-25. [FREE Full text] [CrossRef]
- Basu A, Dutta MJ. The relationship between health information seeking and community participation: the roles of health information orientation and efficacy. Health Commun. 2008;23(1):70-79. [FREE Full text] [CrossRef] [Medline]
- Garrett P, Seidman J. EMR vs EHR – what is the difference? Health IT Buzz. Jan 4, 2011. URL: https://www.healthit.gov/buzz-blog/electronic-health-and-medical-records/emr-vs-ehr-difference [accessed 2024-10-21]
- Häyrinen K, Saranto K, Nykänen P. Definition, structure, content, use and impacts of electronic health records: a review of the research literature. Int J Med Inform. May 2008;77(5):291-304. [FREE Full text] [CrossRef] [Medline]
- van der Vaart R, Drossaert CH, Taal E, Drossaers-Bakker KW, Vonkeman HE, van de Laar MA. Impact of patient-accessible electronic medical records in rheumatology: use, satisfaction and effects on empowerment among patients. BMC Musculoskelet Disord. Mar 26, 2014;15:102. [FREE Full text] [CrossRef] [Medline]
- Electronic vs. personal health record. Harvard T.H. Chan. 2008. URL: https://www.hsph.harvard.edu/news/magazine/fall08ehrpersonalvshealth/ [accessed 2024-10-21]
- Ruhi U, Chugh R. Utility, value, and benefits of contemporary personal health records: integrative review and conceptual synthesis. J Med Internet Res. Apr 29, 2021;23(4):e26877. [FREE Full text] [CrossRef] [Medline]
- Agarwal R, Kochhar TA. A review of PHR, EMR and EHR integration: personalized healthcare and public health. Int J Inform Commun Comput Technol. 2017;5(2):301-307. [FREE Full text]
- Pieterse AH, Jager NA, Smets EM, Henselmans I. Lay understanding of common medical terminology in oncology. Psychooncology. May 2013;22(5):1186-1191. [FREE Full text] [CrossRef] [Medline]
- Ishikawa Y, Kondo N, Kawachi I, Viswanath K. Are socioeconomic disparities in health behavior mediated by differential media use? Test of the communication inequality theory. Patient Educ Couns. Nov 2016;99(11):1803-1807. [FREE Full text] [CrossRef] [Medline]
- Ahn S, Lee CJ, Ko Y. Network social capital and health information acquisition. Patient Educ Couns. Sep 2022;105(9):2923-2933. [FREE Full text] [CrossRef] [Medline]
- Song L, Chang TY. Do resources of network members help in help seeking? Social capital and health information search. Soc Netw. Oct 2012;34(4):658-669. [FREE Full text] [CrossRef]
- What are electronic health records (EHRs)? HealthIT.gov. URL: https://www.healthit.gov/topic/health-it-and-health-information-exchange-basics/what-are-electronic-health-records-ehrs [accessed 2024-10-21]
- Kuo A, Dang S. Secure messaging in electronic health records and its impact on diabetes clinical outcomes: a systematic review. Telemed J E Health. Sep 2016;22(9):769-777. [FREE Full text] [CrossRef] [Medline]
- Bandura A. Self-Efficacy: The Exercise of Control. New York, NY. W.H. Freeman and Company; 1997.
- Bass SB, Ruzek SB, Gordon TF, Fleisher L, McKeown-Conn N, Moore D. Relationship of internet health information use with patient behavior and self-efficacy: experiences of newly diagnosed cancer patients who contact the National Cancer Institute's Cancer Information Service. J Health Commun. Mar 2006;11(2):219-236. [CrossRef] [Medline]
- Street RLJ. Information-giving in medical consultations: the influence of patients' communicative styles and personal characteristics. Soc Sci Med. 1991;32(5):541-548. [CrossRef] [Medline]
- Street RLJ, Gordon HS, Ward MM, Krupat E, Kravitz RL. Patient participation in medical consultations: why some patients are more involved than others. Med Care. Oct 2005;43(10):960-969. [CrossRef] [Medline]
- Lee CJ, Gray SW, Lewis N. Internet use leads cancer patients to be active health care consumers. Patient Educ Couns. Dec 2010;81 Suppl(1):S63-S69. [CrossRef] [Medline]
- Cobb S. Social support as a moderator of life stress. Psychosom Med. 1976;38(5):300-314. [FREE Full text] [CrossRef]
- Thoits PA. Social support as coping assistance. J Consult Clin Psychol. Aug 1986;54(4):416-423. [CrossRef] [Medline]
- Guan M, Han JY, Shah DV, Gustafson DH. Exploring the role of social support in promoting patient participation in health care among women with breast cancer. Health Commun. Nov 2021;36(13):1581-1589. [CrossRef] [Medline]
- Arora NK, Finney Rutten LJ, Gustafson DH, Moser R, Hawkins RP. Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer. Psychooncology. May 2007;16(5):474-486. [CrossRef] [Medline]
- Leahy-Warren P, McCarthy G, Corcoran P. First-time mothers: social support, maternal parental self-efficacy and postnatal depression. J Clin Nurs. Feb 2012;21(3-4):388-397. [CrossRef] [Medline]
- Borrelli B, Ritterband LM. Special issue on eHealth and mHealth: challenges and future directions for assessment, treatment, and dissemination. Health Psychol. Dec 2015;34S:1205-1208. [CrossRef] [Medline]
- Eysenbach G. What is e-health? J Med Internet Res. 2001;3(2):E20. [CrossRef] [Medline]
- Matusitz J, Breen GM, Wan TT. The use of eHealth services in US nursing homes as an improvement of healthcare delivery to residents. Aging Health. Jan 30, 2013;9(1):25-33. [FREE Full text] [CrossRef]
- Kim H, Faw M, Michaelides A. Mobile but connected: harnessing the power of self-efficacy and group support for weight loss success through mHealth intervention. J Health Commun. May 2017;22(5):395-402. [CrossRef] [Medline]
- Rains SA, Keating DM. The social dimension of blogging about health: health blogging, social support, and well-being. Commun Monogr. Dec 2011;78(4):511-534. [FREE Full text] [CrossRef]
- Rains SA, Meng J. Social enhancement and compensation in online social support among cancer patients: the role of social network properties. Health Commun. Apr 2022;37(4):490-497. [CrossRef] [Medline]
- Han JY, Kim E, Lee YI, Shah DV, Gustafson DH. A longitudinal investigation of empathic exchanges in online cancer support groups: message reception and expression effects on patients' psychosocial health outcomes. J Health Commun. 2019;24(6):615-623. [CrossRef] [Medline]
- Earnest MA, Ross SE, Wittevrongel L, Moore LA, Lin CT. Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences. J Am Med Inform Assoc. 2004;11(5):410-417. [CrossRef] [Medline]
- What is HINTS? National Cancer Institute: Health Information National Trends Survey. URL: https://hints.cancer.gov/ [accessed 2024-10-21]
- Strekalova YA. Electronic health record use among cancer patients: insights from the Health Information National Trends Survey. Health Informatics J. Mar 2019;25(1):83-90. [CrossRef] [Medline]
- Zhao X, Cai X. The role of risk, efficacy, and anxiety in smokers' cancer information seeking. Health Commun. Apr 2009;24(3):259-269. [CrossRef] [Medline]
- Patel V, Beckjord E, Moser RP, Hughes P, Hesse BW. The role of health care experience and consumer information efficacy in shaping privacy and security perceptions of medical records: national consumer survey results. JMIR Med Inform. Apr 02, 2015;3(2):e14. [CrossRef] [Medline]
- Link E, Baumann E, Kreps GL, Czerwinski F, Rosset M, Suhr R. Expanding the health information national trends survey research program internationally to examine global health communication trends: comparing health information seeking behaviors in the U.S. and Germany. J Health Commun. Aug 03, 2022;27(8):545-554. [CrossRef] [Medline]
- Yu L, Zheng F, Xiong J, Wu X. Relationship of patient-centered communication and cancer risk information avoidance: a social cognitive perspective. Patient Educ Couns. Sep 2021;104(9):2371-2377. [CrossRef] [Medline]
- Emanuel AS, Kiviniemi MT, Howell JL, Hay JL, Waters EA, Orom H, et al. Avoiding cancer risk information. Soc Sci Med. Dec 2015;147:113-120. [CrossRef] [Medline]
- Muthén MK, Muthén B. Mplus Version 8 User's Guide. Los Angeles, CA. Muthén & Muthén; 2017.
- Little TD. Longitudinal Structural Equation Modeling. New York, NY. Guilford Publications; 2013.
- Curran PJ, West SG, Finch JF. The robustness of test statistics to nonnormality and specification error in confirmatory factor analysis. Psychol Method. 1996;1(1):16-29. [FREE Full text] [CrossRef]
- Hayes AF. Beyond Baron and Kenny: statistical mediation analysis in the new millennium. Commun Monogr. Dec 2009;76(4):408-420. [FREE Full text] [CrossRef]
- Methodology reports. National Cancer Institute: Health Information National Trends Survey. URL: https://hints.cancer.gov/data/methodology-reports.aspx [accessed 2024-10-21]
- Eveland WPJ, Hayes AF, Shah DV, Kwak N. Understanding the relationship between communication and political knowledge: a model comparison approach using panel data. Polit Commun. Oct 2005;22(4):423-446. [FREE Full text] [CrossRef]
- Slater MD, Hayes AF, Ford VL. Examining the moderating and mediating roles of news exposure and attention on adolescent judgments of alcohol-related risks. Commun Res. Aug 01, 2007;34(4):355-381. [FREE Full text] [CrossRef]
- Faul F, Erdfelder E, Lang AG, Buchner A. G*Power 3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behav Res Methods. May 2007;39(2):175-191. [FREE Full text] [CrossRef]
- Institutional Review Board (IRB) approvals for the Health Information National Trends Survey (HINTS). National Cancer Institute: Health Information National Trends Survey. URL: https://hints.cancer.gov/about-hints/institutional-review-board.aspx [accessed 2024-10-21]
- Stablein T, Loud KJ, DiCapua C, Anthony DL. The catch to confidentiality: the use of electronic health records in adolescent health care. J Adolesc Health. May 2018;62(5):577-582. [CrossRef] [Medline]
- Shenoy A, Appel JM. Safeguarding confidentiality in electronic health records. Camb Q Healthc Ethics. Apr 2017;26(2):337-341. [CrossRef] [Medline]
- Freise L, Neves AL, Flott K, Harrison P, Kelly J, Darzi A, et al. Assessment of patients' ability to review electronic health record information to identify potential errors: cross-sectional web-based survey. JMIR Form Res. Feb 26, 2021;5(2):e19074. [CrossRef] [Medline]
- Lieu TA, Altschuler A, Weiner JZ, East JA, Moeller MF, Prausnitz S, et al. Primary care physicians' experiences with and strategies for managing electronic messages. JAMA Netw Open. Dec 02, 2019;2(12):e1918287. [CrossRef] [Medline]
- Blanch-Hartigan D, Chawla N, Moser RP, Finney Rutten LJ, Hesse BW, Arora NK. Trends in cancer survivors' experience of patient-centered communication: results from the Health Information National Trends Survey (HINTS). J Cancer Surviv. Dec 2016;10(6):1067-1077. [CrossRef] [Medline]
- Zaidi M, Amante DJ, Anderson E, Ito Fukunaga M, Faro JM, Frisard C, et al. Association between patient portal use and perceived patient-centered communication among adults with cancer: cross-sectional survey study. JMIR Cancer. Aug 09, 2022;8(3):e34745. [FREE Full text] [CrossRef] [Medline]
- Nichols HM, Dababnah S, Berger Z, Long C, Sacco P. Can you hear me now? Effects of patient-centered communication with young adults aged 26 to 39. J Patient Exp. 2021;8:23743735211033116. [FREE Full text] [CrossRef] [Medline]
- McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, et al. Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach. Soc Sci Med. Apr 2011;72(7):1085-1095. [CrossRef] [Medline]
- Moser RP, Trivedi N, Murray A, Jensen RE, Willis G, Blake KD. Patient-Centered Communication (PCC) scale: psychometric analysis and validation of a health survey measure. PLoS ONE. Dec 30, 2022;17(12):e0279725. [FREE Full text] [CrossRef]
- Street RLJ. Analyzing communication in medical consultations. Do behavioral measures correspond to patients' perceptions? Medical Care. 1992;30(11):976-988. [FREE Full text] [CrossRef] [Medline]
- Haber MG, Cohen JL, Lucas T, Baltes BB. The relationship between self-reported received and perceived social support: a meta-analytic review. Am J Community Psychol. Mar 2007;39(1-2):133-144. [FREE Full text] [CrossRef] [Medline]
- Anthony DL, Campos-Castillo C. A looming digital divide? Group differences in the perceived importance of electronic health records. Inf Commun Soc. Feb 03, 2015;18(7):832-846. [FREE Full text] [CrossRef]
- Campos-Castillo C, Anthony DL. The double-edged sword of electronic health records: implications for patient disclosure. J Am Med Inform Assoc. Apr 2015;22(e1):e130-e140. [FREE Full text] [CrossRef] [Medline]
- Calixte R, Islam S, Osakwe ZT, Rivera A, Camacho-Rivera M. Pattern of use of electronic health record (EHR) among the chronically ill: a health information national trend survey (HINTS) analysis. Int J Environ Res Public Health. Jul 07, 2021;18(14):7254. [FREE Full text] [CrossRef] [Medline]
- Mahmood A, Mosalpuria K, Wyant DK, Bhuyan SS. Association between having a regular health provider and access to services linked to electronic health records. Hosp Top. Jan 2019;97(1):1-10. [CrossRef] [Medline]
- Chen W, Lee KH, Straubhaar JD, Spence J. Getting a second opinion: social capital, digital inequalities, and health information repertoires. J Assoc Inf Sci Technol. Apr 30, 2014;65(12):2552-2563. [FREE Full text] [CrossRef]
- Parasrampuria S, Henry J. Hospitals’ use of electronic health records data, 2015-2017. The Office of the National Coordinator for Health Information Technology. 2019. URL: https://www.healthit.gov/sites/default/files/page/2019-04/AHAEHRUseDataBrief.pdf [accessed 2024-10-21]
- Johnson C, Richwine C, Patel V. Individuals’ access and use of patient portals and smartphone health apps, 2020. Office of the National Coordinator for Health Information Technology. 2021. URL: https://www.healthit.gov/data/data-briefs/individuals-access-and-use-patient-portals-and-smartphone-health-apps-2020 [accessed 2024-10-21]
Abbreviations
EHR: electronic health record |
EMR: electronic medical record |
HINTS: Health Information National Trends Survey |
PHR: personal health record |
RMSEA: root mean square error of approximation |
SRMR: standardized root mean squared residual |
Edited by A Coristine; submitted 11.07.23; peer-reviewed by L Freise, H Teza; comments to author 01.12.23; revised version received 22.02.24; accepted 25.09.24; published 25.11.24.
Copyright©Suhwoo Ahn, Chul-joo Lee, Inhwan Bae. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 25.11.2024.
This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research (ISSN 1438-8871), is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.