Trust Me, I’m a Doctor: Examining Changes in How Privacy Concerns Affect Patient Withholding Behavior

Trust Me, I’m a Doctor: Examining Changes in How Privacy Concerns Affect Patient Withholding Behavior

Trust Me, I’m a Doctor: Examining Changes in How Privacy Concerns Affect Patient Withholding Behavior

Journals

  1. Ploug T. In Defence of informed consent for health record research - why arguments from ‘easy rescue’, ‘no harm’ and ‘consent bias’ fail. BMC Medical Ethics 2020;21(1) View
  2. Zhu P, Shen J, Xu M. Patients’ Willingness to Share Information in Online Patient Communities: Questionnaire Study. Journal of Medical Internet Research 2020;22(4):e16546 View
  3. Yang X, Parton J, Lewis D, Yang N, Hudnall M. Effects of Patient-Physician Relationship on Withholding Information Behavior and Its Trend: Findings From Health Information National Trends Survey 2011-2018. Journal of Medical Internet Research 2020;22(1):e16713 View
  4. Barnett B, Connery H. Implementation challenges of the final rule of Title 42 of the Code of Federal Regulations part 2: can privacy endure in an era of electronic health information exchange?. The American Journal on Addictions 2018;27(1):37 View
  5. Shen N, Bernier T, Sequeira L, Strauss J, Silver M, Carter-Langford A, Wiljer D. Understanding the patient privacy perspective on health information exchange: A systematic review. International Journal of Medical Informatics 2019;125:1 View
  6. Hwang H, Lin Y. Evaluating people’s concern about their health information privacy based on power-responsibility equilibrium model: A case of Taiwan. Journal of Medical Systems 2020;44(6) View
  7. Esmaeilzadeh P, Mirzaei T, Dharanikota S. The impact of data entry structures on perceptions of individuals with chronic mental disorders and physical diseases towards health information sharing. International Journal of Medical Informatics 2020;141:104157 View
  8. Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen H, Scandurra I. Anticipating ageing: Older adults reading their medical records. Information Processing & Management 2018;54(3):394 View
  9. Gille F, Smith S, Mays N. What is public trust in the healthcare system? A new conceptual framework developed from qualitative data in England. Social Theory & Health 2021;19(1):1 View
  10. Clarke M, Lyden E, Ma J, King K, Siahpush M, Michaud T, Idoate R, Ramos A. Sociodemographic Differences and Factors Affecting Patient Portal Utilization. Journal of Racial and Ethnic Health Disparities 2021;8(4):879 View
  11. K. Pool J, Akhlaghpour S. Causes and Impacts of Personal Health Information (PHI) Breaches: A Scoping Review and Thematic Analysis. SSRN Electronic Journal 2019 View
  12. Shen N, Sequeira L, Silver M, Carter-Langford A, Strauss J, Wiljer D. Patient Privacy Perspectives on Health Information Exchange in a Mental Health Context: Qualitative Study. JMIR Mental Health 2019;6(11):e13306 View
  13. Campos-Castillo C, Anthony D. Situated Trust in a Physician: Patient Health Characteristics and Trust in Physician Confidentiality. The Sociological Quarterly 2019;60(4):559 View
  14. Tseng H, Hung W, Hwang H, Chang I. Do Patients’ Privacy Concerns Influence Their Intention toward Medical Image Exchange Consent in Taiwan?. Healthcare 2020;8(1):14 View
  15. DePuccio M, Di Tosto G, Walker D, McAlearney A. Patients’ Perceptions About Medical Record Privacy and Security: Implications for Withholding of Information During the COVID-19 Pandemic. Journal of General Internal Medicine 2020;35(10):3122 View
  16. Davis S. Ready for Prime Time? Using Normalization Process Theory to Evaluate Implementation Success of Personal Health Records Designed for Decision Making. Frontiers in Digital Health 2020;2 View
  17. Onyeaka H, Romero P, Healy B, Celano C. Age Differences in the Use of Health Information Technology Among Adults in the United States: An Analysis of the Health Information National Trends Survey. Journal of Aging and Health 2021;33(1-2):147 View
  18. Grant S, Liao K, Miller C, Peterson S, Elting L, Guadagnolo B. Lower Levels of Trust in the Medical Profession Among White, Younger, and More-educated Individuals With Cancer. American Journal of Clinical Oncology 2021;44(4):150 View
  19. Gregory M, Nyein K, Scarborough S, Huerta T, McAlearney A. Examining the Dimensionality of Trust in the Inpatient Setting: Exploratory and Confirmatory Factor Analysis. Journal of General Internal Medicine 2022;37(5):1108 View
  20. Gille F, Brall C. Limits of data anonymity: lack of public awareness risks trust in health system activities. Life Sciences, Society and Policy 2021;17(1) View
  21. Gille F, Smith S, Mays N. Evidence-based guiding principles to build public trust in personal data use in health systems. DIGITAL HEALTH 2022;8:205520762211119 View
  22. Shen N, Kassam I, Zhao H, Chen S, Wang W, Wickham S, Strudwick G, Carter-Langford A. Foundations for Meaningful Consent in Canada’s Digital Health Ecosystem: Retrospective Study. JMIR Medical Informatics 2022;10(3):e30986 View
  23. Müller S. Is there a civic duty to support medical AI development by sharing electronic health records?. BMC Medical Ethics 2022;23(1) View
  24. Osborne, B.S. M, Boniface, M.P.H. E, Messerle Forbes, N.P. M, Jensen J. OHSU Employees’ Opinions of Receipt of Clinical Care and Participation in Clinical Research at Place of Employment. Accountability in Research 2023;30(6):343 View
  25. Reuland B, Redman C, Kneifati-Hayek J, Fernandes Y, Kosber R, Ortuno-Garcia C, Crossman D, Salmasian H, Chen A, Barchi D, Applebaum J, Green R, Adelman J. Observation and Patients’ Perceptions of Incorporating Their Photograph Into the Electronic Health Record. Journal of Patient Safety 2022;18(5):377 View
  26. Nishii A, Campos-Castillo C, Anthony D. Disparities in patient portal access by US adults before and during the COVID-19 pandemic. JAMIA Open 2022;5(4) View
  27. Cherif E, Mzoughi M. Electronic health record adopters: a typology based on patients’ privacy concerns and perceived benefits. Public Health 2022;207:46 View
  28. Platt J, Nong P, Merid B, Raj M, Cope E, Kardia S, Creary M. Applying anti-racist approaches to informatics: a new lens on traditional frames. Journal of the American Medical Informatics Association 2023;30(10):1747 View
  29. Ajayi K, Olowolaju S, Bolarinwa O, Onyeka H. Association between patient-provider communication and withholding information due to privacy concerns among women in the United States: an analysis of the 2011 to 2018 Health Information National Trends Survey. BMC Health Services Research 2023;23(1) View
  30. Koopman W, LaDonna K, Kinsella E, Venance S, Watling C. Archetypes of incomplete stories in chronic illness medical encounters. Patient Education and Counseling 2023;117:107973 View
  31. Pool J, Akhlaghpour S, Fatehi F, Burton-Jones A. A systematic analysis of failures in protecting personal health data: A scoping review. International Journal of Information Management 2024;74:102719 View
  32. UNAL C, SEZER C. Sağlık Hizmetlerinde Bilgi Mahremiyeti Endişesi Ve Korunma Davranışlarını Etkileyen Faktörler. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 2023;12(4):1498 View
  33. Platt J, Nong P, Smiddy R, Hamasha R, Carmona Clavijo G, Richardson J, Kardia S. Public comfort with the use of ChatGPT and expectations for healthcare. Journal of the American Medical Informatics Association 2024 View

Books/Policy Documents

  1. Lipková H, Landová H, Jarolímková A. Information Literacy in the Workplace. View
  2. Roberts C, Palilonis J. HCI International 2021 - Posters. View