This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (542) Innovations and Technology in Cancer Care (402)

Published on in Vol 17, No 5 (2015): May

Personal Electronic Health Records: Understanding User Requirements and Needs in Chronic Cancer Care

Personal Electronic Health Records: Understanding User Requirements and Needs in Chronic Cancer Care

Personal Electronic Health Records: Understanding User Requirements and Needs in Chronic Cancer Care

Authors of this article:

Ines Baudendistel1 Author Orcid Image ;   Eva Winkler2 Author Orcid Image ;   Martina Kamradt1 Author Orcid Image ;   Gerda Längst1 Author Orcid Image ;   Felicitas Eckrich2 Author Orcid Image ;   Oliver Heinze3 Author Orcid Image ;   Bjoern Bergh3 Author Orcid Image ;   Joachim Szecsenyi1 Author Orcid Image ;   Dominik Ose1 Author Orcid Image
Article Authors Cited by (28) Tweetations (28) Metrics

Journals

  1. Maher M, Kaziunas E, Ackerman M, Derry H, Forringer R, Miller K, O'Reilly D, An L, Tewari M, Hanauer D, Choi S. User-Centered Design Groups to Engage Patients and Caregivers with a Personalized Health Information Technology Tool. Biology of Blood and Marrow Transplantation 2016;22(2):349 View
  2. Ose D, Kunz A, Pohlmann S, Hofmann H, Qreini M, Krisam J, Uhlmann L, Jacke C, Winkler E, Salize H, Szecsenyi J. A Personal Electronic Health Record: Study Protocol of a Feasibility Study on Implementation in a Real-World Health Care Setting. JMIR Research Protocols 2017;6(3):e33 View
  3. Eastway J, Lizarondo L. Experiences of adult patients with chronic non-communicable disease using electronic personal health records for self-management: a qualitative systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 2019;17(11):2334 View
  4. Kunz A, Pohlmann S, Heinze O, Brandner A, Reiß C, Kamradt M, Szecsenyi J, Ose D. Strengthening Interprofessional Requirements Engineering Through Action Sheets: A Pilot Study. JMIR Human Factors 2016;3(2):e25 View
  5. Seidling H, Mahler C, Strauß B, Weis A, Stützle M, Krisam J, Szecsenyi J, Haefeli W. An Electronic Medication Module to Improve Health Literacy in Patients With Type 2 Diabetes Mellitus: Pilot Randomized Controlled Trial. JMIR Formative Research 2020;4(4):e13746 View
  6. Spanakis E, Santana S, Tsiknakis M, Marias K, Sakkalis V, Teixeira A, Janssen J, de Jong H, Tziraki C. Technology-Based Innovations to Foster Personalized Healthy Lifestyles and Well-Being: A Targeted Review. Journal of Medical Internet Research 2016;18(6):e128 View
  7. Tarver W, Robb B, Haggstrom D. Usefulness and Usability of a Personal Health Record and Survivorship Care Plan for Colorectal Cancer Survivors: Survey Study. JMIR Cancer 2019;5(2):e10692 View
  8. Niazkhani Z, Toni E, Cheshmekaboodi M, Georgiou A, Pirnejad H. Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review. BMC Medical Informatics and Decision Making 2020;20(1) View
  9. Geerts P, van der Weijden T, Loeffen P, Janssen L, Almekinders C, Wienhold T, Bos G. Developing a patient portal for haematology patients requires involvement of all stakeholders and a customised design, tailored to the individual needs. BMC Medical Informatics and Decision Making 2019;19(1) View
  10. Ford E, Hesse B, Huerta T. Personal Health Record Use in the United States: Forecasting Future Adoption Levels. Journal of Medical Internet Research 2016;18(3):e73 View
  11. Poss-Doering R, Kunz A, Pohlmann S, Hofmann H, Kiel M, Winkler E, Ose D, Szecsenyi J. Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives. JMIR Formative Research 2018;2(2):e10411 View
  12. Kildea J, Battista J, Cabral B, Hendren L, Herrera D, Hijal T, Joseph A. Design and Development of a Person-Centered Patient Portal Using Participatory Stakeholder Co-Design. Journal of Medical Internet Research 2019;21(2):e11371 View
  13. Schwind F, Münch H, Schröter A, Brandner R, Kutscha U, Brandner A, Heinze O, Bergh B, Engelmann U. Long-term experience with setup and implementation of an IHE-based image management and distribution system in intersectoral clinical routine. International Journal of Computer Assisted Radiology and Surgery 2018;13(11):1727 View
  14. Pohlmann S, Kunz A, Ose D, Winkler E, Brandner A, Poss-Doering R, Szecsenyi J, Wensing M. Digitalizing Health Services by Implementing a Personal Electronic Health Record in Germany: Qualitative Analysis of Fundamental Prerequisites From the Perspective of Selected Experts. Journal of Medical Internet Research 2020;22(1):e15102 View
  15. Weis A, Pohlmann S, Poss-Doering R, Strauss B, Ullrich C, Hofmann H, Ose D, Winkler E, Szecsenyi J, Wensing M. Caregivers' role in using a personal electronic health record: a qualitative study of cancer patients and caregivers in Germany. BMC Medical Informatics and Decision Making 2020;20(1) View
  16. Müller J, Ullrich C, Poss-Doering R. Beyond Known Barriers—Assessing Physician Perspectives and Attitudes Toward Introducing Open Health Records in Germany: Qualitative Study. Journal of Participatory Medicine 2020;12(4):e19093 View
  17. Cordes L, Loukanova S, Forstner J. Scoping Review über die Wirksamkeit einer Screen-to-Screen-Therapie im Vergleich zu einer Face-to-Face-Therapie bei Patient*innen mit Aphasie auf die Benennleistungen. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2020;156-157:1 View
  18. Weinberger N, Weis A, Pohlmann S, Brändle C, Zentek T, Ose D, Szecsenyi J. A New Method for Structured Integration of User Needs in Two Health Technology Development Projects: Action Sheets. Informatics for Health and Social Care 2021;46(2):113 View
  19. Chu D, Schuster T, Lessard D, Mate K, Engler K, Ma Y, Abulkhir A, Arora A, Long S, de Pokomandy A, Lacombe K, Rougier H, Cox J, Kronfli N, Hijal T, Kildea J, Routy J, Asselah J, Lebouché B. Acceptability of a Patient Portal (Opal) in HIV Clinical Care: A Feasibility Study. Journal of Personalized Medicine 2021;11(2):134 View
  20. Sanyer O, Butler J, Fortenberry K, Webb-Allen T, Ose D. Information sharing via electronic health records in team-based care: the patient perspective. Family Practice 2021;38(4):468 View
  21. Harahap N, Handayani P, Hidayanto A. Functionalities and Issues in the Implementation of Personal Health Records: Systematic Review. Journal of Medical Internet Research 2021;23(7):e26236 View
  22. Toni E, Pirnejad H, Makhdoomi K, Mivefroshan A, Niazkhani Z. Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease. BMC Medical Informatics and Decision Making 2021;21(1) View
  23. Huvila I, Enwald H, Eriksson‐Backa K, Liu Y, Hirvonen N. Information behavior and practices research informing information systems design. Journal of the Association for Information Science and Technology 2022;73(7):1043 View
  24. Barbalho I, Fernandes F, Barros D, Paiva J, Henriques J, Morais A, Coutinho K, Coelho Neto G, Chioro A, Valentim R. Electronic health records in Brazil: Prospects and technological challenges. Frontiers in Public Health 2022;10 View
  25. Pimenta S, Hansen H, Demeyer H, Slevin P, Cruz J. Role of digital health in pulmonary rehabilitation and beyond: shaping the future. ERJ Open Research 2023;9(2):00212-2022 View
  26. Schmitt T. New governance of the digital health agency: a way out of the joint decision trap to implement electronic health records in Germany?. Health Economics, Policy and Law 2024;19(2):269 View

Books/Policy Documents

  1. Kaufman D, Mirkovic J, Chan C. Cognitive Informatics in Health and Biomedicine. View
  2. Munshi S, Heinze O, Szecsenyi J, Bergh B. Management von Gesundheitsregionen II. View