Published on in Vol 16, No 7 (2014): July

Social Network Sites as a Mode to Collect Health Data: A Systematic Review

Social Network Sites as a Mode to Collect Health Data: A Systematic Review

Social Network Sites as a Mode to Collect Health Data: A Systematic Review

Journals

  1. Cook N, Mullins A, Gautam R, Medi S, Prince C, Tyagi N, Kommineni J. Evaluating Patient Experiences in Dry Eye Disease Through Social Media Listening Research. Ophthalmology and Therapy 2019;8(3):407 View
  2. Risson V, Saini D, Bonzani I, Huisman A, Olson M. Patterns of Treatment Switching in Multiple Sclerosis Therapies in US Patients Active on Social Media: Application of Social Media Content Analysis to Health Outcomes Research. Journal of Medical Internet Research 2016;18(3):e62 View
  3. Mishra G, Hockey R, Powers J, Loxton D, Tooth L, Rowlands I, Byles J, Dobson A. Recruitment via the Internet and Social Networking Sites: The 1989-1995 Cohort of the Australian Longitudinal Study on Women’s Health. Journal of Medical Internet Research 2014;16(12):e279 View
  4. Wettergren L, Eriksson L, Nilsson J, Jervaeus A, Lampic C. Content Analysis of Online Focus Group Discussions are a Valid and Feasible Mode When Investigating Sensitive Topics Among Young Persons With a Cancer Experience. JMIR Research Protocols 2016;5(2):e86 View
  5. Blanco T, Marco Á, Casas R. Online social networks as a tool to support people with special needs. Computer Communications 2016;73:315 View
  6. Shang W, Chen H, Livoti C. Adverse drug reaction early warning using user search data. Online Information Review 2017;41(4):524 View
  7. Merolli M, Gray K, Martin-Sanchez F. Therapeutic Affordances of Social Media: Emergent Themes From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2014;16(12):e284 View
  8. Moccia M, Lavorgna L, Lanzillo R, Brescia Morra V, Tedeschi G, Bonavita S. The Dress: Transforming a web viral event into a scientific survey. Multiple Sclerosis and Related Disorders 2016;7:41 View
  9. Chung S, Hacker E, Rawl S, Ellis R, Bakas T, Jones J, Welch J. Using Facebook in Recruiting Kidney Transplant Recipients for a REDCap Study. Western Journal of Nursing Research 2019;41(12):1790 View
  10. Wilhelmy J, Serpell J, Brown D, Siracusa C. Behavioral associations with breed, coat type, and eye color in single-breed cats. Journal of Veterinary Behavior 2016;13:80 View
  11. Pössel P, Winkeljohn Black S, Jeppsen B. Does Rumination Mediate the Association of Private Prayer, Stress, and Their Interaction with Depression among Christians? A Cross-Sectional Study. Psychological Studies 2018;63(4):346 View
  12. Safarnejad L, Xu Q, Ge Y, Bagavathi A, Krishnan S, Chen S. Identifying Influential Factors in the Discussion Dynamics of Emerging Health Issues on Social Media: Computational Study. JMIR Public Health and Surveillance 2020;6(3):e17175 View
  13. Farina-Henry E, Waterston L, Blaisdell L. Social Media Use in Research: Engaging Communities in Cohort Studies to Support Recruitment and Retention. JMIR Research Protocols 2015;4(3):e90 View
  14. Merolli M, Gray K, Martin-Sanchez F, Lopez-Campos G. Patient-Reported Outcomes and Therapeutic Affordances of Social Media: Findings From a Global Online Survey of People With Chronic Pain. Journal of Medical Internet Research 2015;17(1):e20 View
  15. Merolli M, Busuttil M, Wåhlin C, Green A. Global communication practices of physiotherapists on Twitter. European Journal of Physiotherapy 2019;21(1):20 View
  16. Sinnenberg L, Buttenheim A, Padrez K, Mancheno C, Ungar L, Merchant R. Twitter as a Tool for Health Research: A Systematic Review. American Journal of Public Health 2017;107(1):e1 View
  17. Kim T, Allan B. Underemployment and Meaningful Work: The Role of Psychological Needs. Journal of Career Assessment 2020;28(1):76 View
  18. Wiggins A, Wilbanks J. The Rise of Citizen Science in Health and Biomedical Research. The American Journal of Bioethics 2019;19(8):3 View
  19. Currin-McCulloch J, Stanton A, Boyd R, Neaves M, Jones B. Understanding breast cancer survivors’ information-seeking behaviours and overall experiences: a comparison of themes derived from social media posts and focus groups. Psychology & Health 2021;36(7):810 View
  20. Merolli M, Gray K, Martin-Sanchez F, Mantopoulos S, Hogg M. Using Social Media While Waiting in Pain: A Clinical 12-Week Longitudinal Pilot Study. JMIR Research Protocols 2015;4(3):e101 View
  21. Tustin J, Crowcroft N, Gesink D, Johnson I, Keelan J. Internet Exposure Associated With Canadian Parents’ Perception of Risk on Childhood Immunization: Cross-Sectional Study. JMIR Public Health and Surveillance 2018;4(1):e7 View
  22. Hu J, Wong K, Wang Z. Recruiting Migrants for Health Research Through Social Network Sites: An Online Survey Among Chinese Migrants in Australia. JMIR Research Protocols 2015;4(2):e46 View
  23. Sterling H, Allan B. Construction and Validation of the Quality of Maternity Leave Scales (QMLS). Journal of Career Assessment 2020;28(2):337 View
  24. Lavorgna L, Russo A, De Stefano M, Lanzillo R, Esposito S, Moshtari F, Rullani F, Piscopo K, Buonanno D, Brescia Morra V, Gallo A, Tedeschi G, Bonavita S. Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach. Interactive Journal of Medical Research 2017;6(2):e10 View
  25. Holton S, Rowe H, Kirkman M, Jordan L, McNamee K, Bayly C, McBain J, Sinnott V, Fisher J. Barriers to Managing Fertility: Findings From the Understanding Fertility Management in Contemporary Australia Facebook Discussion Group. interactive Journal of Medical Research 2016;5(1):e7 View
  26. Marshall E, Oates J, Shoaibi A, Obeid J, Habrat M, Warren R, Brady K, Lenert L, Kuivaniemi H. A population-based approach for implementing change from opt-out to opt-in research permissions. PLOS ONE 2017;12(4):e0168223 View
  27. Bender J, Cyr A, Arbuckle L, Ferris L. Ethics and Privacy Implications of Using the Internet and Social Media to Recruit Participants for Health Research: A Privacy-by-Design Framework for Online Recruitment. Journal of Medical Internet Research 2017;19(4):e104 View
  28. Stanton A, Meston C, Boyd R. Sexual Self-Schemas in the Real World: Investigating the Ecological Validity of Language-Based Markers of Childhood Sexual Abuse. Cyberpsychology, Behavior, and Social Networking 2017;20(6):382 View
  29. Carpenter J, Groves D, Chen C, Otte J, Miller W. Menopause and big data: Word Adjacency Graph modeling of menopause-related ChaCha data. Menopause 2017;24(7):783 View
  30. Tustin J, Crowcroft N, Gesink D, Johnson I, Keelan J, Lachapelle B. Facebook Recruitment of Vaccine-Hesitant Canadian Parents: Cross-Sectional Study. JMIR Public Health and Surveillance 2017;3(3):e47 View
  31. Hunter R, Gough A, O’Kane N, McKeown G, Fitzpatrick A, Walker T, McKinley M, Lee M, Kee F. Ethical Issues in Social Media Research for Public Health. American Journal of Public Health 2018;108(3):343 View
  32. Ali R, Elsayed M, Kaur M, Air E, Mahmood N, Constantinou J, Schwalb J. Use of social media to assess the effectiveness of vagal nerve stimulation in Dravet syndrome: A caregiver's perspective. Journal of the Neurological Sciences 2017;375:146 View
  33. Lavorgna L, Moccia M, Russo A, Palladino R, Riccio L, Lanzillo R, Brescia Morra V, Tedeschi G, Bonavita S. Health-care disparities stemming from sexual orientation of Italian patients with Multiple Sclerosis: A cross-sectional web-based study. Multiple Sclerosis and Related Disorders 2017;13:28 View
  34. Borodovsky J, Marsch L, Budney A. Studying Cannabis Use Behaviors With Facebook and Web Surveys: Methods and Insights. JMIR Public Health and Surveillance 2018;4(2):e48 View
  35. Admon L, Haefner J, Kolenic G, Chang T, Davis M, Moniz M. Recruiting Pregnant Patients for Survey Research: A Head to Head Comparison of Social Media-Based Versus Clinic-Based Approaches. Journal of Medical Internet Research 2016;18(12):e326 View
  36. TOSYALI H, SÜTÇÜ C, TOSYALI F. Patient Loyalty in the HospitalPatient Relationship: The Mediating Role of Social Media. Erciyes İletişim Dergisi 2019;6(1):783 View
  37. Frampton G, Shepherd J, Pickett K, Griffiths G, Wyatt J. Digital tools for the recruitment and retention of participants in randomised controlled trials: a systematic map. Trials 2020;21(1) View
  38. Marshall S, Yang C, Ping Q, Zhao M, Avis N, Ip E. Symptom clusters in women with breast cancer: an analysis of data from social media and a research study. Quality of Life Research 2016;25(3):547 View
  39. Zaman A, Kautz H, Silenzio V, Hoque M, Nichols-Hadeed C, Cerulli C. Discovering intimate partner violence from web search history. Smart Health 2021;19:100161 View
  40. Lynn T, Rosati P, Leoni Santos G, Endo P. Sorting the Healthy Diet Signal from the Social Media Expert Noise: Preliminary Evidence from the Healthy Diet Discourse on Twitter. International Journal of Environmental Research and Public Health 2020;17(22):8557 View
  41. Bour C, Schmitz S, Ahne A, Perchoux C, Dessenne C, Fagherazzi G. Scoping review protocol on the use of social media for health research purposes. BMJ Open 2021;11(2):e040671 View
  42. Bellaiche M, Arnould B, Benmedjahed K, Arnould M, Bocquet A, Leblanc V, Penvern-Cortes S, Tugaut B, Jung C. Assessment of the severity of infant crying and its impact on parents: Development and validation of the ColiQ Questionnaire in France. Archives de Pédiatrie 2021;28(4):264 View
  43. Modanloo S, Dunn S, Stacey D, Harrison D. The Feasibility, Acceptability and Preliminary Efficacy of Parent-Targeted Interventions in Vaccination Pain Management of Infants: A Pilot Randomized Control Trial (RCT). Pain Management 2021;11(3):287 View
  44. Lovell H, Harris J. A survey exploring women's use of mobile apps in labour in the United Kingdom. Midwifery 2021;100:103041 View
  45. Miller E, Woodward A, Flinchum G, Young J, Tabor H, Halley M. Opportunities and pitfalls of social media research in rare genetic diseases: a systematic review. Genetics in Medicine 2021 View
  46. Konradsen H, Kabir Z, Boström A, Årestedt K. Comparison of Swedish nurses’ attitudes toward involving families in care over a decade. BMC Nursing 2022;21(1) View
  47. JİANG Y, TAŞKIN N. How do customers respond to digital banking products and services in New Zealand?. Ege Akademik Bakis (Ege Academic Review) 2022 View
  48. Keightley S, Duncan M, Gardner B. Working From Home: Experiences of Home-Working, Health Behavior and Well-Being During the 2020 UK COVID-19 Lockdown. Journal of Occupational & Environmental Medicine 2023;65(4):330 View
  49. Fu J, Li C, Zhou C, Li W, Lai J, Deng S, Zhang Y, Guo Z, Wu Y. Methods for Analyzing the Contents of Social Media for Health Care: Scoping Review. Journal of Medical Internet Research 2023;25:e43349 View
  50. Ichimiya M, Muller-Tabanera H, Cantrell J, Bingenheimer J, Gerard R, Hair E, Donati D, Rao N, Evans W. Evaluation of response to incentive recruitment strategies in a social media-based survey. DIGITAL HEALTH 2023;9:205520762311784 View
  51. Charles G, Braunstein S, Barker J, Fung H, Coome L, Kumar R, Huang V, Kemp H, Grant E, Bernard D, Barefoot D, Sgaier S. How do psychobehavioural variables shed light on heterogeneity in COVID-19 vaccine acceptance? Evidence from United States general population surveys on a probability panel and social media. BMJ Open 2023;13(6):e066897 View
  52. Sloesen B, O’Brien P, Verma H, Aasaithambi S, Parashar N, Mothe R, Shaikh J, Syntosi A. Patient Experiences and Insights on Chronic Ocular Pain: A social media listening study (Preprint). JMIR Formative Research 2023 View
  53. Karthikeyan R, Al-Shamaa N, Kelly E, Henn P, Shiely F, Divala T, Fadahunsi K, O'Donoghue J. Investigating the characteristics of health-related data collection tools used in randomised controlled trials in low-income and middle-income countries: protocol for a systematic review. BMJ Open 2024;14(1):e077148 View
  54. Khatiwada P, Yang B, Lin J, Blobel B. Patient-Generated Health Data (PGHD): Understanding, Requirements, Challenges, and Existing Techniques for Data Security and Privacy. Journal of Personalized Medicine 2024;14(3):282 View

Books/Policy Documents

  1. Kuyumdzhieva A. Ethics and Integrity in Health and Life Sciences Research. View
  2. Issa T, Isaias P. Sustainable Design. View
  3. López-Fernández A. Business Governance and Society. View
  4. Riley W. Oncology Informatics. View
  5. Issa T, Isaias P. Sustainable Design. View