Published on in Vol 15, No 9 (2013): September

Online Access to Doctors' Notes: Patient Concerns About Privacy

Online Access to Doctors' Notes: Patient Concerns About Privacy

Online Access to Doctors' Notes: Patient Concerns About Privacy

Journals

  1. Mold F, de Lusignan S, Sheikh A, Majeed A, Wyatt J, Quinn T, Cavill M, Franco C, Chauhan U, Blakey H, Kataria N, Arvanitis T, Ellis B. Patients’ online access to their electronic health records and linked online services: a systematic review in primary care. British Journal of General Practice 2015;65(632):e141 View
  2. Wass S, Vimarlund V, Ros A. Exploring patients’ perceptions of accessing electronic health records: Innovation in healthcare. Health Informatics Journal 2019;25(1):203 View
  3. Wells S, Mahony F, Huang Y, Day K. Perspectives of New Zealand patients and GPs at the beginning of patient portal implementation. Journal of Primary Health Care 2019;11(4):315 View
  4. Flaumenhaft Y, Ben-Assuli O. Personal health records, global policy and regulation review. Health Policy 2018;122(8):815 View
  5. Steele Gray C, Miller D, Kuluski K, Cott C. Tying eHealth Tools to Patient Needs: Exploring the Use of eHealth for Community-Dwelling Patients With Complex Chronic Disease and Disability. JMIR Research Protocols 2014;3(4):e67 View
  6. Gulliver A, Bennett K, Bennett A, Farrer L, Reynolds J, Griffiths K. Privacy Issues in the Development of a Virtual Mental Health Clinic for University Students: A Qualitative Study. JMIR Mental Health 2015;2(1):e9 View
  7. Caine K, Kohn S, Lawrence C, Hanania R, Meslin E, Tierney W. Designing a Patient-Centered User Interface for Access Decisions about EHR Data: Implications from Patient Interviews. Journal of General Internal Medicine 2015;30(S1):7 View
  8. Shen N, Bernier T, Sequeira L, Strauss J, Silver M, Carter-Langford A, Wiljer D. Understanding the patient privacy perspective on health information exchange: A systematic review. International Journal of Medical Informatics 2019;125:1 View
  9. Alaqra A, Fischer-Hübner S, Framner E. Enhancing Privacy Controls for Patients via a Selective Authentic Electronic Health Record Exchange Service: Qualitative Study of Perspectives by Medical Professionals and Patients. Journal of Medical Internet Research 2018;20(12):e10954 View
  10. Adu E, Mills A, Todorova N. Factors influencing individuals’ personal health information privacy concerns. A study in Ghana. Information Technology for Development 2021;27(2):208 View
  11. Mold F, De Lusignan S. Patients’ Online Access to Their Primary Care Electronic Health Records and Linked Online Services: Implications for Research and Practice. Journal of Personalized Medicine 2015;5(4):452 View
  12. Chimowitz H, O’Neill S, Leveille S, Welch K, Walker J. Sharing Psychotherapy Notes with Patients: Therapists’ Attitudes and Experiences. Social Work 2020;65(2):159 View
  13. Lee C, Langlotz C, Elmore J. Implications of Direct Patient Online Access to Radiology Reports Through Patient Web Portals. Journal of the American College of Radiology 2016;13(12):1608 View
  14. O’Neill S, Chimowitz H, Leveille S, Walker J. Embracing the new age of transparency: mental health patients reading their psychotherapy notes online. Journal of Mental Health 2019;28(5):527 View
  15. Harrison T, Wick J, Ahmed S, Jun M, Manns B, Quinn R, Tonelli M, Hemmelgarn B. Patients with Chronic Kidney Disease and Their Intent to Use Electronic Personal Health Records. Canadian Journal of Kidney Health and Disease 2015;2:58 View
  16. Simons R, Fleischman K, Zhan Y, Gao J, Xi B. Patient portals and human values. Proceedings of the Association for Information Science and Technology 2017;54(1):373 View
  17. Mold F, Raleigh M, Alharbi N, de Lusignan S. The impact of patient online access to computerized medical records (CMR) and services for Type 2 Diabetes: systematic review. (Preprint). Journal of Medical Internet Research 2017 View
  18. Brown S, Jouni H, Marroush T, Kullo I. Disclosing Genetic Risk for Coronary Heart Disease: Attitudes Toward Personal Information in Health Records. American Journal of Preventive Medicine 2017;52(4):499 View
  19. Belyeu B, Klein J, Reisch L, Peacock S, Oster N, Elmore J, Jackson S. Patients' perceptions of their doctors' notes and after‐visit summaries: A mixed methods study of patients at safety‐net clinics. Health Expectations 2018;21(2):485 View
  20. Sharko M, Wilcox L, Hong M, Ancker J. Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process. Journal of the American Medical Informatics Association 2018;25(8):1008 View
  21. Adelman D, Fant C, Conner D. Sharing clinical notes with patients. The Nurse Practitioner 2019;44(5):43 View
  22. Nurgalieva L, Cajander Å, Moll J, Åhlfeldt R, Huvila I, Marchese M. ‘I do not share it with others. No, it’s for me, it’s my care’: On sharing of patient accessible electronic health records. Health Informatics Journal 2020;26(4):2554 View
  23. Van den Bulck S, Hermens R, Slegers K, Vandenberghe B, Goderis G, Vankrunkelsven P. Designing a Patient Portal for Patient-Centered Care: Cross-Sectional Survey. Journal of Medical Internet Research 2018;20(10):e269 View
  24. Fox G, James T. Toward an Understanding of the Antecedents to Health Information Privacy Concern: A Mixed Methods Study. Information Systems Frontiers 2021;23(6):1537 View
  25. Sharp L, Carvalho P, Southward M, Schmidt M, Jabine L, Stolley M, Gerber B. Electronic Personal Health Records for Childhood Cancer Survivors: An Exploratory Study. Journal of Adolescent and Young Adult Oncology 2014;3(3):117 View
  26. Wass S, Vimarlund V. Same, same but different: Perceptions of patients’ online access to electronic health records among healthcare professionals. Health Informatics Journal 2019;25(4):1538 View
  27. Thompson M, Reilly J, Valdez R. Work system barriers to patient, provider, and caregiver use of personal health records: A systematic review. Applied Ergonomics 2016;54:218 View
  28. Chan J, Farrer L, Gulliver A, Bennett K, Griffiths K. University Students’ Views on the Perceived Benefits and Drawbacks of Seeking Help for Mental Health Problems on the Internet: A Qualitative Study. JMIR Human Factors 2016;3(1):e3 View
  29. Cocosila M, Archer N. Perceptions of chronically ill and healthy consumers about electronic personal health records: a comparative empirical investigation. BMJ Open 2014;4(7):e005304 View
  30. Schwamm L. Telehealth: Seven Strategies To Successfully Implement Disruptive Technology And Transform Health Care. Health Affairs 2014;33(2):200 View
  31. Jackson S, Mejilla R, Darer J, Oster N, Ralston J, Leveille S, Walker J, Delbanco T, Elmore J. Patients Who Share Transparent Visit Notes With Others: Characteristics, Risks, and Benefits. Journal of Medical Internet Research 2014;16(11):e247 View
  32. Sher M, Talley P, Yang C, Kuo K. Compliance With Electronic Medical Records Privacy Policy: An Empirical Investigation of Hospital Information Technology Staff. INQUIRY: The Journal of Health Care Organization, Provision, and Financing 2017;54:004695801771175 View
  33. Lau G, Ho J, Lin S, Yeoh K, Wan T, Hodgkinson M. Patient and clinician perspectives of an integrated electronic medication prescribing and dispensing system: A qualitative study at a multisite Australian hospital network. Health Information Management Journal 2019;48(1):12 View
  34. Miles R, Hippe D, Elmore J, Wang C, Payne T, Lee C. Patient Access to Online Radiology Reports. Academic Radiology 2016;23(9):1162 View
  35. McCleary N, Greenberg T, Barysauskas C, Guerette E, Hassan M, Jacobson J, Schrag D. Oncology Patient Portal Enrollment at a Comprehensive Cancer Center: A Quality Improvement Initiative. Journal of Oncology Practice 2018;14(8):e451 View
  36. Rendina H, Mustanski B. Privacy, Trust, and Data Sharing in Web-Based and Mobile Research: Participant Perspectives in a Large Nationwide Sample of Men Who Have Sex With Men in the United States. Journal of Medical Internet Research 2018;20(7):e233 View
  37. Wolff J, Darer J, Berger A, Clarke D, Green J, Stametz R, Delbanco T, Walker J. Inviting patients and care partners to read doctors’ notes: OpenNotes and shared access to electronic medical records. Journal of the American Medical Informatics Association 2016:ocw108 View
  38. Fant C, Adelman D. Sharing clinical notes with patients. The Nurse Practitioner 2017;42(10):1 View
  39. Poder T, Bellemare C, Bédard S, Lemieux R. Social acceptance and population confidence in telehealth in Quebec. BMC Health Services Research 2015;15(1) View
  40. Ose D, Baudendistel I, Pohlmann S, Winkler E, Kunz A, Szecsenyi J. Persönliche Patientenakten im Internet. Ein narrativer Review zu Einstellungen, Erwartungen, Nutzung und Effekten. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2017;122:9 View
  41. McCleary N, Healey M, Weng S, Song A, Lederman R, Ramelson H, Wagner A, Abel G. Perceptions of Oncologists About Sharing Clinic Notes with Patients. The Oncologist 2019;24(1):e46 View
  42. Kendrick E, Benson C. Patient Portals in Child and Adolescent Psychiatry. Child and Adolescent Psychiatric Clinics of North America 2017;26(1):43 View
  43. Kisekka V, Giboney J. The Effectiveness of Health Care Information Technologies: Evaluation of Trust, Security Beliefs, and Privacy as Determinants of Health Care Outcomes. Journal of Medical Internet Research 2018;20(4):e107 View
  44. Keough L, Wright J, Watson B, Nixon-Silberg T, Leveille S, Halon P. Student-accessible healthcare records: A mixed-methods study of college student and provider. Health Informatics Journal 2018;24(3):293 View
  45. Wass S, Vimarlund V. The Role of PAEHRs in Patient Involvement. Journal of Medical Systems 2018;42(11) View
  46. Shu S, Liu Y. Looking Back to Move Forward: A Bibliometric Analysis of Consumer Privacy Research. Journal of Theoretical and Applied Electronic Commerce Research 2021;16(4):727 View
  47. Saleem J, Moon B, Bross E, Anders S, Conway B, Wilck N, Frisbee K, Herout J. Understanding Veteran Attitudes, Interests, and Needs around Virtual Care Applications. Proceedings of the Human Factors and Ergonomics Society Annual Meeting 2020;64(1):731 View
  48. Forstnerič S, Fijačko N, Pajnkihar M, Štiglic G. Introducing eHealth solutions in Slovenia to gain time for health education: a case of electronic patient appointment scheduling. Pielegniarstwo XXI wieku / Nursing in the 21st Century 2018;17(1):5 View
  49. Alnobani O, Zakaria N, Temsah M, Jamal A, Alkamel N, Tharkar S. Knowledge, Attitude, and Perception of Health Care Personnel Working in Intensive Care Units of Mass Gatherings Toward the Application of Telemedicine Robotic Remote-Presence Technology: A Cross-Sectional Multicenter Study. Telemedicine and e-Health 2021;27(12):1423 View
  50. Anderson M, Pitchforth E, Asaria M, Brayne C, Casadei B, Charlesworth A, Coulter A, Franklin B, Donaldson C, Drummond M, Dunnell K, Foster M, Hussey R, Johnson P, Johnston-Webber C, Knapp M, Lavery G, Longley M, Clark J, Majeed A, McKee M, Newton J, O'Neill C, Raine R, Richards M, Sheikh A, Smith P, Street A, Taylor D, Watt R, Whyte M, Woods M, McGuire A, Mossialos E. LSE–Lancet Commission on the future of the NHS: re-laying the foundations for an equitable and efficient health and care service after COVID-19. The Lancet 2021;397(10288):1915 View
  51. Cherif E, Bezaz N, Mzoughi M. Do personal health concerns and trust in healthcare providers mitigate privacy concerns? Effects on patients’ intention to share personal health data on electronic health records. Social Science & Medicine 2021;283:114146 View
  52. Petersen C, Edmunds M, McGraw D, Priest E, Smith J, Kemp E, Campos H. A Policy Framework to Support Shared Decision-Making through the Use of Person-Generated Health Data. ACI Open 2021;05(02):e104 View
  53. Schust G, Manning M, Weil A. OpenNotes and Patient Safety: a Perilous Voyage into Uncharted Waters. Journal of General Internal Medicine 2022;37(8):2074 View
  54. Henkenjohann R. Role of Individual Motivations and Privacy Concerns in the Adoption of German Electronic Patient Record Apps—A Mixed-Methods Study. International Journal of Environmental Research and Public Health 2021;18(18):9553 View
  55. Ouyang W, Xie W, Xin Z, He H, Wen T, Peng X, Dai P, Yuan Y, Liu F, Chen Y, Luo A. Evolutionary Overview of Consumer Health Informatics: Bibliometric Study on the Web of Science from 1999 to 2019. Journal of Medical Internet Research 2021;23(9):e21974 View
  56. Cherif E, Mzoughi M. Electronic health record adopters: a typology based on patients’ privacy concerns and perceived benefits. Public Health 2022;207:46 View
  57. Kato-Lin Y, Thelen S. Privacy Concerns and Continued Use Intention of Telemedicine During COVID-19. Telemedicine and e-Health 2022;28(10):1440 View
  58. Bansal G, Warkentin M. Do You Still Trust?. ACM SIGMIS Database: the DATABASE for Advances in Information Systems 2021;52(4):9 View
  59. Henderson C, Nahmias Z, Fossa A, Barnes E, Huang S. Analysis of patient preferences on patient–provider interactions through the OpenNotes online portal in dermatology. International Journal of Women's Dermatology 2021;7(5):793 View
  60. Keuper J, Batenburg R, van Tuyl L, Verheij R. General Practices’ Experiences With Patients’ Web-Based Access to Medical Records: Survey Study. Journal of Medical Internet Research 2023;25:e41832 View
  61. Pratiwi A, Padmawati R, Mulyanto J, Willems D. Patients values regarding primary health care: a systematic review of qualitative and quantitative evidence. BMC Health Services Research 2023;23(1) View
  62. Sarabu C, Sharko M, Petersen C, Galvin H. Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else). Applied Clinical Informatics 2023;14(03):544 View
  63. Beaman J, Miner C, Bolinger C. Quantifying Adverse Childhood Experiences in Oklahoma With the Oklahoma Adversity Surveillance Index System (OASIS): Development and Cross-Sectional Study. JMIR Public Health and Surveillance 2023;9:e45891 View
  64. Kuppanda P, Jenkins J. Evaluation of Experiences and Attitudes of Patients Towards Patient Portal–Enabled Access to Their Health Information or Medical Records: A Qualitative Grounded Theory Study. Qualitative Health Research 2023;33(12):1080 View
  65. UNAL C, SEZER C. Sağlık Hizmetlerinde Bilgi Mahremiyeti Endişesi Ve Korunma Davranışlarını Etkileyen Faktörler. Gümüşhane Üniversitesi Sağlık Bilimleri Dergisi 2023;12(4):1498 View
  66. Nacht C, Jacobson N, Shiyanbola O, Smith C, Hoonakker P, Coller R, Dean S, Sklansky D, Smith W, Sprackling C, Kelly M. Perception of Physicians’ Notes Among Parents of Different Health Literacy Levels. Hospital Pediatrics 2024;14(2):108 View

Books/Policy Documents

  1. Xu R, Zhou J, Zhang Q, Hendler J. Encyclopedia of Social Network Analysis and Mining. View
  2. Xu R, Zhou J, Zhang Q, Hendler J. Encyclopedia of Social Network Analysis and Mining. View
  3. Ramaprasad A, Syn T. Contemporary Consumer Health Informatics. View
  4. Krist A, Nease D, Kreps G, Overholser L, McKenzie M. Oncology Informatics. View
  5. Maina D, Sherifi D. Portable Health Records in a Mobile Society. View
  6. White J, Behrend T, Siderits I. The Cambridge Handbook of the Changing Nature of Work. View
  7. Malvey D, Slovensky D. mHealth. View