This paper is in the following e-collection/theme issue:

Personal Health Records, Patient-Accessible Electronic Health Records, Patient Portals (538)

Published on in Vol 15, No 3 (2013): March

Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study

Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study

Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study

Authors of this article:

Susan S Woods1, 2 ;   Erin Schwartz1 ;   Anais Tuepker1 ;   Nancy A Press3 ;   Kim M Nazi4 ;   Carolyn L Turvey5 ;   W. Paul Nichol6
Article Authors Cited by (194) Tweetations (116) Metrics

Journals

  1. Burridge L, Foster M, Jones R, Geraghty T, Atresh S. Person-centred care in a digital hospital: observations and perspectives from a specialist rehabilitation setting. Australian Health Review 2018;42(5):529 View
  2. Or C, Liu K, So M, Cheung B, Yam L, Tiwari A, Lau Y, Lau T, Hui P, Cheng H, Tan J, Cheung M. Improving Self-Care in Patients With Coexisting Type 2 Diabetes and Hypertension by Technological Surrogate Nursing: Randomized Controlled Trial. Journal of Medical Internet Research 2020;22(3):e16769 View
  3. Miles R, Hippe D, Elmore J, Wang C, Payne T, Lee C. Patient Access to Online Radiology Reports. Academic Radiology 2016;23(9):1162 View
  4. Ose D, Baudendistel I, Pohlmann S, Winkler E, Kunz A, Szecsenyi J. Persönliche Patientenakten im Internet. Ein narrativer Review zu Einstellungen, Erwartungen, Nutzung und Effekten. Zeitschrift für Evidenz, Fortbildung und Qualität im Gesundheitswesen 2017;122:9 View
  5. Rounds J, Merianos A, Bernard A. Cardiometabolic risk factors and MyChart enrollment among adult patients. Health Policy and Technology 2017;6(3):302 View
  6. O’Neill S, Chimowitz H, Leveille S, Walker J. Embracing the new age of transparency: mental health patients reading their psychotherapy notes online. Journal of Mental Health 2019;28(5):527 View
  7. Woods S, Evans N, Frisbee K. Integrating patient voices into health information for self-care and patient-clinician partnerships: Veterans Affairs design recommendations for patient-generated data applications. Journal of the American Medical Informatics Association 2016;23(3):491 View
  8. Heyworth L, Clark J, Marcello T, Paquin A, Stewart M, Archambeault C, Simon S. Aligning Medication Reconciliation and Secure Messaging: Qualitative Study of Primary Care Providers’ Perspectives. Journal of Medical Internet Research 2013;15(12):e264 View
  9. Shultz S, Wu R, Matelski J, Lu X, Cram P. Patient Preferences for Test Result Notification. Journal of General Internal Medicine 2015;30(11):1651 View
  10. Shah S, Fitton R, Hannan A, Fisher B, Young T, Barnett J. Accessing personal medical records online: A means to what ends?. International Journal of Medical Informatics 2015;84(2):111 View
  11. Woods S. Going mainstream: Online sharing of health data and test results with patients. Cancer Cytopathology 2015;123(7):387 View
  12. Winchester D, Shaw L. The importance of the patient’s voice in nuclear cardiology. Journal of Nuclear Cardiology 2021;28(4):1519 View
  13. Clarke M, Moore J, Steege L, Koopman R, Belden J, Canfield S, Meadows S, Elliott S, Kim M. Health information needs, sources, and barriers of primary care patients to achieve patient-centered care: A literature review. Health Informatics Journal 2016;22(4):992 View
  14. Erlingsdóttir G, Petersson L, Jonnergård K. A Theoretical Twist on the Transparency of Open Notes: Qualitative Analysis of Health Care Professionals’ Free-Text Answers. Journal of Medical Internet Research 2019;21(9):e14347 View
  15. Caine K. Privacy Is Healthy. IEEE Pervasive Computing 2016;15(4):14 View
  16. Gorman R, Wellbeloved-Stone C, Valdez R. Uncovering the invisible patient work system through a case study of breast cancer self-management. Ergonomics 2018;61(12):1575 View
  17. Wibe T, Ekstedt M, Hellesø R. Information practices of health care professionals related to patient discharge from hospital. Informatics for Health and Social Care 2015;40(3):198 View
  18. Nazi K, Turvey C, Klein D, Hogan T, Woods S. VA OpenNotes: exploring the experiences of early patient adopters with access to clinical notes. Journal of the American Medical Informatics Association 2015;22(2):380 View
  19. Steele Gray C, Miller D, Kuluski K, Cott C. Tying eHealth Tools to Patient Needs: Exploring the Use of eHealth for Community-Dwelling Patients With Complex Chronic Disease and Disability. JMIR Research Protocols 2014;3(4):e67 View
  20. Heyworth L, Paquin A, Clark J, Kamenker V, Stewart M, Martin T, Simon S. Engaging patients in medication reconciliation via a patient portal following hospital discharge. Journal of the American Medical Informatics Association 2014;21(e1):e157 View
  21. Dobscha S, Kenyon E, Pisciotta M, Niederhausen M, Woods S, Denneson L. Impacts of a Web-Based Course on Mental Health Clinicians’ Attitudes and Communication Behaviors Related to Use of OpenNotes. Psychiatric Services 2019;70(6):474 View
  22. Goldzweig C. Opening up to Open Notes and adding the patient to the team. BMJ Quality & Safety 2017;26(4):257 View
  23. Haun J, Chavez M, Nazi K, Antinori N, Melillo C, Cotner B, Hathaway W, Cook A, Wilck N, Noonan A. Veterans’ Preferences for Exchanging Information Using Veterans Affairs Health Information Technologies: Focus Group Results and Modeling Simulations. Journal of Medical Internet Research 2017;19(10):e359 View
  24. Swed O, Sheehan C, Butler J. The Digital Divide and Veterans’ Health: Differences in Self-Reported Health by Internet Usage. Armed Forces & Society 2020;46(2):238 View
  25. Wolff J, Berger A, Clarke D, Green J, Stametz R, Yule C, Darer J. Patients, care partners, and shared access to the patient portal: online practices at an integrated health system. Journal of the American Medical Informatics Association 2016;23(6):1150 View
  26. Kayastha N, Pollak K, LeBlanc T. Open Oncology Notes: A Qualitative Study of Oncology Patients’ Experiences Reading Their Cancer Care Notes. Journal of Oncology Practice 2018;14(4):e251 View
  27. Rief J, Hamm M, Zickmund S, Nikolajski C, Lesky D, Hess R, Fischer G, Weimer M, Clark S, Zieth C, Roberts M. Using Health Information Technology to Foster Engagement: Patients’ Experiences with an Active Patient Health Record. Health Communication 2017;32(3):310 View
  28. Mwachofi A, Khaliq A, Carrillo E, Winfree W. Technology versus humanism: how patients perceive the use of electronic health records in physicians’ offices—a qualitative study. Health Communication 2016;31(3):257 View
  29. Wu J, Yu H, Ho T, Su X, Lin M, Lai F. Tablet PC-enabled application intervention for patients with gastric cancer undergoing gastrectomy. Computer Methods and Programs in Biomedicine 2015;119(2):101 View
  30. Davis S, Roudsari A, Raworth R, Courtney K, MacKay L. Shared decision-making using personal health record technology: a scoping review at the crossroads. Journal of the American Medical Informatics Association 2017;24(4):857 View
  31. Chen J, Yu H. Unsupervised ensemble ranking of terms in electronic health record notes based on their importance to patients. Journal of Biomedical Informatics 2017;68:121 View
  32. Tuepker A, Zickmund S, Nicolajski C, Hahm B, Butler J, Weir C, Post L, Hickam D. Providers’ Note-Writing Practices for Post-traumatic Stress Disorder at Five United States Veterans Affairs Facilities. The Journal of Behavioral Health Services & Research 2016;43(3):428 View
  33. Sabahi A, Ahmadian L, Mirzaee M. Communicating laboratory results through a Web site: Patients' priorities and viewpoints. Journal of Clinical Laboratory Analysis 2018;32(6) View
  34. Huvila I, Cajander Å, Daniels M, Åhlfeldt R. Patients' perceptions of their medical records from different subject positions. Journal of the Association for Information Science and Technology 2015;66(12):2456 View
  35. Gee P, Greenwood D, Paterniti D, Ward D, Miller L. The eHealth Enhanced Chronic Care Model: A Theory Derivation Approach. Journal of Medical Internet Research 2015;17(4):e86 View
  36. Ronda M, Dijkhorst-Oei L, Rutten G, Baradaran H. Patients’ Experiences with and Attitudes towards a Diabetes Patient Web Portal. PLOS ONE 2015;10(6):e0129403 View
  37. DeMeester R, Lopez F, Moore J, Cook S, Chin M. A Model of Organizational Context and Shared Decision Making: Application to LGBT Racial and Ethnic Minority Patients. Journal of General Internal Medicine 2016;31(6):651 View
  38. Vodicka E, Mejilla R, Leveille S, Ralston J, Darer J, Delbanco T, Walker J, Elmore J. Online Access to Doctors' Notes: Patient Concerns About Privacy. Journal of Medical Internet Research 2013;15(9):e208 View
  39. Hogan T, Nazi K, Luger T, Amante D, Smith B, Barker A, Shimada S, Volkman J, Garvin L, Simon S, Houston T. Technology-Assisted Patient Access to Clinical Information: An Evaluation Framework for Blue Button. JMIR Research Protocols 2014;3(1):e18 View
  40. Salsbury S, Goertz C, Vining R, Hondras M, Andresen A, Long C, Lyons K, Killinger L, Wallace R. Interdisciplinary Practice Models for Older Adults With Back Pain: A Qualitative Evaluation. The Gerontologist 2017:gnw188 View
  41. Almklov E, Afari N, Floto E, Lindamer L, Hurst S, Pittman J. Post-9/11 Veteran Satisfaction With the VA eScreening Program. Military Medicine 2020;185(3-4):519 View
  42. Casillas A, Cemballi A, Abhat A, Lemberg M, Portz J, Sadasivaiah S, Ratanawongsa N, Semere W, Brown A, Lyles C. An Untapped Potential in Primary Care: Semi-Structured Interviews with Clinicians on How Patient Portals Will Work for Caregivers in the Safety Net. Journal of Medical Internet Research 2020;22(7):e18466 View
  43. Bourgeois F, Fossa A, Gerard M, Davis M, Taylor Y, Connor C, Vaden T, McWilliams A, Spencer M, Folcarelli P, Bell S. A patient and family reporting system for perceived ambulatory note mistakes: experience at 3 U.S. healthcare centers. Journal of the American Medical Informatics Association 2019;26(12):1566 View
  44. von Esenwein S, Druss B. Using electronic health records to improve the physical healthcare of people with serious mental illnesses: A view from the front lines. International Review of Psychiatry 2014;26(6):629 View
  45. Lee E, Patel J, Fortin A. Patient-centric medical notes: Identifying areas for improvement in the age of open medical records. Patient Education and Counseling 2017;100(8):1608 View
  46. Nambisan P. Factors that impact Patient Web Portal Readiness (PWPR) among the underserved. International Journal of Medical Informatics 2017;102:62 View
  47. Denholm B. Using Informatics to Improve the Care of Patients Susceptible to Malignant Hyperthermia. AORN Journal 2016;103(4):364 View
  48. Pisciotta M, Denneson L, Williams H, Woods S, Tuepker A, Dobscha S. Providing mental health care in the context of online mental health notes: advice from patients and mental health clinicians. Journal of Mental Health 2019;28(1):64 View
  49. Ancker J, Witteman H, Hafeez B, Provencher T, Van de Graaf M, Wei E. The Invisible Work of Personal Health Information Management Among People With Multiple Chronic Conditions: Qualitative Interview Study Among Patients and Providers. Journal of Medical Internet Research 2015;17(6):e137 View
  50. Shah S, Liebovitz D. It Takes Two to Tango: Engaging Patients and Providers With Portals. PM&R 2017;9(5S) View
  51. Lanham H, Leykum L, Pugh J. Examining the Complexity of Patient-Outpatient Care Team Secure Message Communication: Qualitative Analysis. Journal of Medical Internet Research 2018;20(7):e218 View
  52. Bergevi C, Lendahls L, Crang-Svalenius E, Oscarsson M. From passive passenger to participating co-pilot – Pregnant women’s expectations of being able to access their online journal from antenatal care. Sexual & Reproductive Healthcare 2018;15:35 View
  53. Helou S, Abou-Khalil V, Yamamoto G, Kondoh E, Tamura H, Hiragi S, Sugiyama O, Okamoto K, Nambu M, Kuroda T. Understanding the EMR-Related Experiences of Pregnant Japanese Women to Redesign Antenatal Care EMR Systems. Informatics 2019;6(2):15 View
  54. Pittman J, Afari N, Floto E, Almklov E, Conner S, Rabin B, Lindamer L. Implementing eScreening technology in four VA clinics: a mixed-method study. BMC Health Services Research 2019;19(1) View
  55. Wass S, Vimarlund V. Same, same but different: Perceptions of patients’ online access to electronic health records among healthcare professionals. Health Informatics Journal 2019;25(4):1538 View
  56. Caine K, Kohn S, Lawrence C, Hanania R, Meslin E, Tierney W. Designing a Patient-Centered User Interface for Access Decisions about EHR Data: Implications from Patient Interviews. Journal of General Internal Medicine 2015;30(S1):7 View
  57. Mold F, De Lusignan S. Patients’ Online Access to Their Primary Care Electronic Health Records and Linked Online Services: Implications for Research and Practice. Journal of Personalized Medicine 2015;5(4):452 View
  58. Kashyap A, Burris H, Callison-Burch C, Boland M. The CLASSE GATOR (CLinical Acronym SenSE disambiGuATOR): A Method for predicting acronym sense from neonatal clinical notes. International Journal of Medical Informatics 2020;137:104101 View
  59. Shimada S, Brandt C, Feng H, McInnes D, Rao S, Rothendler J, Haggstrom D, Abel E, Cioffari L, Houston T. Personal Health Record Reach in the Veterans Health Administration: A Cross-Sectional Analysis. Journal of Medical Internet Research 2014;16(12):e272 View
  60. Ivanova J, Grando A, Murcko A, Saks M, Whitfield M, Dye C, Chern D. Mental health professionals’ perceptions on patients control of data sharing. Health Informatics Journal 2020;26(3):2011 View
  61. Ramar P, Roellinger D, Merrick R, Ebbert J, Philpot L. Helpfulness of Clinical Visit Summary Content From Multi-Specialty Care: A Mixed-Methods Assessment. Health Services Research and Managerial Epidemiology 2020;7:233339282095090 View
  62. Thompson M, Reilly J, Valdez R. Work system barriers to patient, provider, and caregiver use of personal health records: A systematic review. Applied Ergonomics 2016;54:218 View
  63. Kruse C, Bolton K, Freriks G. The Effect of Patient Portals on Quality Outcomes and Its Implications to Meaningful Use: A Systematic Review. Journal of Medical Internet Research 2015;17(2):e44 View
  64. Irizarry T, DeVito Dabbs A, Curran C. Patient Portals and Patient Engagement: A State of the Science Review. Journal of Medical Internet Research 2015;17(6):e148 View
  65. Pecina J, Duvall M, North F. Frequency of and Factors Associated with Care Partner Proxy Interaction with Health Care Teams Using Patient Portal Accounts. Telemedicine and e-Health 2020;26(11):1368 View
  66. Alpert J, Morris B, Thomson M, Matin K, Brown R. Identifying How Patient Portals Impact Communication in Oncology. Health Communication 2019;34(12):1395 View
  67. Denneson L, Cromer R, Williams H, Pisciotta M, Dobscha S. A Qualitative Analysis of How Online Access to Mental Health Notes Is Changing Clinician Perceptions of Power and the Therapeutic Relationship. Journal of Medical Internet Research 2017;19(6):e208 View
  68. Poss-Doering R, Kunz A, Pohlmann S, Hofmann H, Kiel M, Winkler E, Ose D, Szecsenyi J. Utilizing a Prototype Patient-Controlled Electronic Health Record in Germany: Qualitative Analysis of User-Reported Perceptions and Perspectives. JMIR Formative Research 2018;2(2):e10411 View
  69. Holden R, Cornet V, Valdez R. Patient ergonomics: 10-year mapping review of patient-centered human factors. Applied Ergonomics 2020;82:102972 View
  70. Thorseng A, Grisot M. Digitalization as institutional work: a case of designing a tool for changing diabetes care. Information Technology & People 2017;30(1):227 View
  71. Schmidlen T, Sturm A, Hovick S, Scheinfeldt L, Scott Roberts J, Morr L, McElroy J, Toland A, Christman M, O'Daniel J, Gordon E, Bernhardt B, Ormond K, Sweet K. Operationalizing the Reciprocal Engagement Model of Genetic Counseling Practice: a Framework for the Scalable Delivery of Genomic Counseling and Testing. Journal of Genetic Counseling 2018;27(5):1111 View
  72. Clarke M, Lyden E, Ma J, King K, Siahpush M, Michaud T, Idoate R, Ramos A. Sociodemographic Differences and Factors Affecting Patient Portal Utilization. Journal of Racial and Ethnic Health Disparities 2021;8(4):879 View
  73. de Jong J, Ogink P, van Bunningen C, Driessen R, Engelen L, Heeren B, Bredie S, van de Belt T. A Cloud-Based Virtual Outpatient Clinic for Patient-Centered Care: Proof-of-Concept Study. Journal of Medical Internet Research 2018;20(9):e10135 View
  74. Denneson L, Pisciotta M, Hooker E, Trevino A, Dobscha S. Impacts of a web-based educational program for veterans who read their mental health notes online. Journal of the American Medical Informatics Association 2019;26(1):3 View
  75. Bellucci E, Venkatraman S, Stranieri A. Online dispute resolution in mediating EHR disputes: a case study on the impact of emotional intelligence. Behaviour & Information Technology 2020;39(10):1124 View
  76. Zhong X, Liang M, Sanchez R, Yu M, Budd P, Sprague J, Dewar M. On the effect of electronic patient portal on primary care utilization and appointment adherence. BMC Medical Informatics and Decision Making 2018;18(1) View
  77. Alhuwail D, Koru G, Nahm E. How Can Home Care Patients and Their Caregivers Better Manage Fall Risks by Leveraging Information Technology?. Journal of Patient Experience 2016;3(4):137 View
  78. Belyeu B, Klein J, Reisch L, Peacock S, Oster N, Elmore J, Jackson S. Patients' perceptions of their doctors' notes and after‐visit summaries: A mixed methods study of patients at safety‐net clinics. Health Expectations 2018;21(2):485 View
  79. Chen J, Jagannatha A, Fodeh S, Yu H. Ranking Medical Terms to Support Expansion of Lay Language Resources for Patient Comprehension of Electronic Health Record Notes: Adapted Distant Supervision Approach. JMIR Medical Informatics 2017;5(4):e42 View
  80. Dobscha S, Denneson L, Pisciotta M, Bourne D, Chen J, Philipps-Moses D, Woods S. Predictors of viewing progress notes among users of VA’s electronic health portal who receive mental health care. JAMIA Open 2018;1(1):122 View
  81. Kruse C, Argueta D, Lopez L, Nair A. Patient and Provider Attitudes Toward the Use of Patient Portals for the Management of Chronic Disease: A Systematic Review. Journal of Medical Internet Research 2015;17(2):e40 View
  82. Jenkins M. Personal Health Records Buck Traditional Medical Culture. Proceedings of the International Symposium on Human Factors and Ergonomics in Health Care 2018;7(1):21 View
  83. Risling T, Martinez J, Young J, Thorp-Froslie N. Evaluating Patient Empowerment in Association With eHealth Technology: Scoping Review. Journal of Medical Internet Research 2017;19(9):e329 View
  84. Rathert C, Mittler J, Banerjee S, McDaniel J. Patient-centered communication in the era of electronic health records: What does the evidence say?. Patient Education and Counseling 2017;100(1):50 View
  85. Baun C, Vogsen M, Nielsen M, Høilund-Carlsen P, Hildebrandt M. Perspective of Patients with Metastatic Breast Cancer on Electronic Access to Scan Results: Mixed-Methods Study. Journal of Medical Internet Research 2020;22(2):e15723 View
  86. Wolff J, Darer J, Berger A, Clarke D, Green J, Stametz R, Delbanco T, Walker J. Inviting patients and care partners to read doctors’ notes: OpenNotes and shared access to electronic medical records. Journal of the American Medical Informatics Association 2016:ocw108 View
  87. Zarcadoolas C, Vaughon W, Czaja S, Levy J, Rockoff M. Consumers' Perceptions of Patient-Accessible Electronic Medical Records. Journal of Medical Internet Research 2013;15(8):e168 View
  88. Chen J, Zheng J, Yu H. Finding Important Terms for Patients in Their Electronic Health Records: A Learning-to-Rank Approach Using Expert Annotations. JMIR Medical Informatics 2016;4(4):e40 View
  89. van Kuppenveld S, van Os-Medendorp H, Tiemessen N, van Delden J. Real-Time Access to Electronic Health Record via a Patient Portal: Is it Harmful? A Retrospective Observational Study. Journal of Medical Internet Research 2020;22(2):e13622 View
  90. Jackson S, Mejilla R, Darer J, Oster N, Ralston J, Leveille S, Walker J, Delbanco T, Elmore J. Patients Who Share Transparent Visit Notes With Others: Characteristics, Risks, and Benefits. Journal of Medical Internet Research 2014;16(11):e247 View
  91. Schwarz C, Hoffmann M, Schwarz P, Kamolz L, Brunner G, Sendlhofer G. A systematic literature review and narrative synthesis on the risks of medical discharge letters for patients’ safety. BMC Health Services Research 2019;19(1) View
  92. Haun J, Lind J, Shimada S, Martin T, Gosline R, Antinori N, Stewart M, Simon S. Evaluating User Experiences of the Secure Messaging Tool on the Veterans Affairs’ Patient Portal System. Journal of Medical Internet Research 2014;16(3):e75 View
  93. Hammerer P. Patientenverständliche Arztbriefe und Befunde. Forum 2018;33(2):119 View
  94. Eastway J, Lizarondo L. Experiences of adult patients with chronic non-communicable disease using electronic personal health records for self-management: a qualitative systematic review protocol. JBI Database of Systematic Reviews and Implementation Reports 2019;17(11):2334 View
  95. Chen J, Druhl E, Polepalli Ramesh B, Houston T, Brandt C, Zulman D, Vimalananda V, Malkani S, Yu H. A Natural Language Processing System That Links Medical Terms in Electronic Health Record Notes to Lay Definitions: System Development Using Physician Reviews. Journal of Medical Internet Research 2018;20(1):e26 View
  96. Okpala P. Assessment of the influence of technology on the cost of healthcare service and patient’s satisfaction. International Journal of Healthcare Management 2018;11(4):351 View
  97. Roehrs A, da Costa C, Righi R, de Oliveira K. Personal Health Records: A Systematic Literature Review. Journal of Medical Internet Research 2017;19(1):e13 View
  98. Elers P, Nelson F. Improving healthcare through digital connection? Findings from a qualitative study about patient portals in New Zealand. Australian Journal of Primary Health 2018;24(5):404 View
  99. Gerard M, Fossa A, Folcarelli P, Walker J, Bell S. What Patients Value About Reading Visit Notes: A Qualitative Inquiry of Patient Experiences With Their Health Information. Journal of Medical Internet Research 2017;19(7):e237 View
  100. Woods S, Forsberg C, Schwartz E, Nazi K, Hibbard J, Houston T, Gerrity M. The Association of Patient Factors, Digital Access, and Online Behavior on Sustained Patient Portal Use: A Prospective Cohort of Enrolled Users. Journal of Medical Internet Research 2017;19(10):e345 View
  101. Wass S, Vimarlund V. The Role of PAEHRs in Patient Involvement. Journal of Medical Systems 2018;42(11) View
  102. Emani S, Healey M, Ting D, Lipsitz S, Ramelson H, Suric V, Bates D. Awareness and Use of the After-Visit Summary Through a Patient Portal: Evaluation of Patient Characteristics and an Application of the Theory of Planned Behavior. Journal of Medical Internet Research 2016;18(4):e77 View
  103. Hsieh H, Kuo Y, Wang S, Chuang B, Tsai C. A Study of Personal Health Record User’s Behavioral Model Based on the PMT and UTAUT Integrative Perspective. International Journal of Environmental Research and Public Health 2016;14(1):8 View
  104. Bidmead E, Marshall A. A case study of stakeholder perceptions of patient held records: the Patients Know Best (PKB) solution. DIGITAL HEALTH 2016;2:205520761666843 View
  105. Munten G. Patient experiences with full electronic access to health records and clinical notes through the My HealtheVet personal health record pilot: qualitative study1). Nederlands Tijdschrift voor Evidence Based Practice 2013;11(3):10 View
  106. Haun J, Chavez M, Hathaway W, Antinori N, Melillo C, Cotner B, McMahon-Grenz J, Zilka B, Patel-Teague S, Messina W, Nazi K. Virtual Medical Modality Implementation Strategies for Patient-Aligned Care Teams to Promote Veteran-Centered Care: Protocol for a Mixed-Methods Study. JMIR Research Protocols 2018;7(8):e11262 View
  107. Hu Y. Health communication research in the digital age: A systematic review. Journal of Communication in Healthcare 2015;8(4):260 View
  108. Coorey G, Peiris D, Usherwood T, Neubeck L, Mulley J, Redfern J, MacLure K. Persuasive design features within a consumer-focused eHealth intervention integrated with the electronic health record: A mixed methods study of effectiveness and acceptability. PLOS ONE 2019;14(6):e0218447 View
  109. Tieu L, Sarkar U, Schillinger D, Ralston J, Ratanawongsa N, Pasick R, Lyles C. Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study. Journal of Medical Internet Research 2015;17(12):e275 View
  110. Zhong X, Park J, Liang M, Shi F, Budd P, Sprague J, Dewar M. Characteristics of Patients Using Different Patient Portal Functions and the Impact on Primary Care Service Utilization and Appointment Adherence: Retrospective Observational Study. Journal of Medical Internet Research 2020;22(2):e14410 View
  111. Zanaboni P, Kummervold P, Sørensen T, Johansen M. Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey. Journal of Medical Internet Research 2020;22(2):e16144 View
  112. Byrne C, Mercincavage L, Bouhaddou O, Bennett J, Pan E, Botts N, Olinger L, Hunolt E, Banty K, Cromwell T. The Department of Veterans Affairs’ (VA) implementation of the Virtual Lifetime Electronic Record (VLER): Findings and lessons learned from Health Information Exchange at 12 sites. International Journal of Medical Informatics 2014;83(8):537 View
  113. Jung S, Kim J, Hwang H, Lee K, Baek R, Lee H, Yoo S, Song W, Han J. Development of Comprehensive Personal Health Records Integrating Patient-Generated Health Data Directly From Samsung S-Health and Apple Health Apps: Retrospective Cross-Sectional Observational Study. JMIR mHealth and uHealth 2019;7(5):e12691 View
  114. Lee G, Park J, Shin S, Hwang J, Ryu H, Lee J, Bates D. Which Users Should Be the Focus of Mobile Personal Health Records? Analysis of User Characteristics Influencing Usage of a Tethered Mobile Personal Health Record. Telemedicine and e-Health 2016;22(5):419 View
  115. Huvila I, Enwald H, Eriksson-Backa K, Hirvonen N, Nguyen H, Scandurra I. Anticipating ageing: Older adults reading their medical records. Information Processing & Management 2018;54(3):394 View
  116. Jones R, Hollen P, Wenzel J, Weiss G, Song D, Sims T, Petroni G. Understanding Advanced Prostate Cancer Decision Making Utilizing an Interactive Decision Aid. Cancer Nursing 2018;41(1):2 View
  117. Razmak J, Bélanger C, Farhan W. Development of a techno-humanist model for e-health adoption of innovative technology. International Journal of Medical Informatics 2018;120:62 View
  118. Dobscha S, Denneson L, Jacobson L, Williams H, Cromer R, Woods S. VA mental health clinician experiences and attitudes toward OpenNotes. General Hospital Psychiatry 2016;38:89 View
  119. Wass S, Vimarlund V, Ros A. Exploring patients’ perceptions of accessing electronic health records: Innovation in healthcare. Health Informatics Journal 2019;25(1):203 View
  120. Alpert J, Morris B, Thomson M, Matin K, Brown R. Implications of Patient Portal Transparency in Oncology: Qualitative Interview Study on the Experiences of Patients, Oncologists, and Medical Informaticists. JMIR Cancer 2018;4(1):e5 View
  121. Hirvonen N, Enwald H, Känsäkoski H, Eriksson-Backa K, Nguyen H, Huhta A, Huvila I. Older adults’ views on eHealth services: a systematic review of scientific journal articles. International Journal of Medical Informatics 2020;135:104031 View
  122. Martínez Nicolás I, Lê Cook B, Flores M, Del Olmo Rodriguez M, Hernández Rodríguez C, Llamas Sillero P, Baca-Garcia E. The impact of a comprehensive electronic patient portal on the health service use: an interrupted time-series analysis. European Journal of Public Health 2019;29(3):413 View
  123. Balsari S, Fortenko A, Blaya J, Gropper A, Jayaram M, Matthan R, Sahasranam R, Shankar M, Sarbadhikari S, Bierer B, Mandl K, Mehendale S, Khanna T. Reimagining Health Data Exchange: An Application Programming Interface–Enabled Roadmap for India. Journal of Medical Internet Research 2018;20(7):e10725 View
  124. Sidek Y, Martins J. Perceived critical success factors of electronic health record system implementation in a dental clinic context: An organisational management perspective. International Journal of Medical Informatics 2017;107:88 View
  125. DesRoches C, Leveille S, Bell S, Dong Z, Elmore J, Fernandez L, Harcourt K, Fitzgerald P, Payne T, Stametz R, Delbanco T, Walker J. The Views and Experiences of Clinicians Sharing Medical Record Notes With Patients. JAMA Network Open 2020;3(3):e201753 View
  126. McInnes D, Shimada S, Midboe A, Nazi K, Zhao S, Wu J, Garvey C, Houston T. Patient Use of Electronic Prescription Refill and Secure Messaging and Its Association With Undetectable HIV Viral Load: A Retrospective Cohort Study. Journal of Medical Internet Research 2017;19(2):e34 View
  127. Chen W, Durkin C, Huang Y, Adler B, Rust S, Lin S. Simplified Readability Metric Drives Improvement of Radiology Reports: an Experiment on Ultrasound Reports at a Pediatric Hospital. Journal of Digital Imaging 2017;30(6):710 View
  128. Esch T, Mejilla R, Anselmo M, Podtschaske B, Delbanco T, Walker J. Engaging patients through open notes: an evaluation using mixed methods. BMJ Open 2016;6(1):e010034 View
  129. Kruithof N, Spreeuwenberg M, Kleijkers S, Bruls B, Gurp E. Zorgen om online inzage in het eigen patiëntendossier. Huisarts en wetenschap 2020;63(12):62 View
  130. Blok A, Amante D, Hogan T, Sadasivam R, Shimada S, Woods S, Nazi K, Houston T. Impact of Patient Access to Online VA Notes on Healthcare Utilization and Clinician Documentation: a Retrospective Cohort Study. Journal of General Internal Medicine 2021;36(3):592 View
  131. Wilcox L, Woollen J, Prey J, Restaino S, Bakken S, Feiner S, Sackeim A, Vawdrey D. Interactive tools for inpatient medication tracking: a multi-phase study with cardiothoracic surgery patients. Journal of the American Medical Informatics Association 2016;23(1):144 View
  132. Müller J, Ullrich C, Poss-Doering R. Beyond Known Barriers—Assessing Physician Perspectives and Attitudes Toward Introducing Open Health Records in Germany: Qualitative Study. Journal of Participatory Medicine 2020;12(4):e19093 View
  133. Kelly M, Smith C, Hoonakker P, Nacht C, Dean S, Sklansky D, Smith W, Moreno M, Thurber A, Coller R. Stakeholder Perspectives in Anticipation of Sharing Physicians’ Notes With Parents of Hospitalized Children. Academic Pediatrics 2021;21(2):259 View
  134. Madine M, Salah K, Jayaraman R, Yaqoob I, Al-Hammadi Y, Ellahham S, Calyam P. Fully Decentralized Multi-Party Consent Management for Secure Sharing of Patient Health Records. IEEE Access 2020;8:225777 View
  135. Khan S, Lewis-Thames M, Han Y, Fuzzell L, Langston M, Moore J. A Comparative Analysis of Online Medical Record Utilization and Perception by Cancer Survivorship. Medical Care 2020;58(12):1075 View
  136. Benjamins J, Haveman-Nies A, Gunnink M, Goudkuil A, de Vet E. How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review. Journal of Medical Internet Research 2021;23(1):e17655 View
  137. Luo Y, Oh C, Jean B, Choe E. Interrelationships Between Patients’ Data Tracking Practices, Data Sharing Practices, and Health Literacy: Onsite Survey Study. Journal of Medical Internet Research 2020;22(12):e18937 View
  138. Lalor J, Hu W, Tran M, Wu H, Mazor K, Yu H. Evaluating the Effectiveness of NoteAid in a Community Hospital Setting: Randomized Trial of Electronic Health Record Note Comprehension Interventions With Patients. Journal of Medical Internet Research 2021;23(5):e26354 View
  139. Adams S, Beatty M, Moore C, Desai A, Bartlett L, Culbert E, Cohen E, Stinson J, Orkin J. Perspectives on team communication challenges in caring for children with medical complexity. BMC Health Services Research 2021;21(1) View
  140. Tapuria A, Porat T, Kalra D, Dsouza G, Xiaohui S, Curcin V. Impact of patient access to their electronic health record: systematic review. Informatics for Health and Social Care 2021;46(2):194 View
  141. Ruhi U, Chugh R. Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis. Journal of Medical Internet Research 2021;23(4):e26877 View
  142. Clarke M, Fruhling A, Lyden E, Tarrell A, Bernard T, Windle J. Computer Skills Role in Personal Health Record Adoption Among Patients With Heart Disease: A Multi-dimensional Evaluation of Users versus Non-Users (Preprint). JMIR Human Factors 2020 View
  143. Luo Y, Dozier K, Ikenberg C. Human-Technology Interaction Factors Associated With the Use of Electronic Personal Health Records Among Younger and Older Adults: Secondary Data Analysis. Journal of Medical Internet Research 2021;23(10):e27966 View
  144. Hazazi A, Wilson A. Leveraging electronic health records to improve management of noncommunicable diseases at primary healthcare centres in Saudi Arabia: a qualitative study. BMC Family Practice 2021;22(1) View
  145. Kolotylo-Kulkarni M, Seale D, LeRouge C. Personal Health Information Management Among Older Adults: Scoping Review. Journal of Medical Internet Research 2021;23(6):e25236 View
  146. Fisher K, Kennedy K, Bloomstone S, Fukunaga M, Bell S, Mazor K. Can sharing clinic notes improve communication and promote self-management? A qualitative study of patients with COPD. Patient Education and Counseling 2022;105(3):726 View
  147. Janssen S, Venema-Taat N, Medlock S. Anticipated Benefits and Concerns of Sharing Hospital Outpatient Visit Notes With Patients (Open Notes) in Dutch Hospitals: Mixed Methods Study. Journal of Medical Internet Research 2021;23(8):e27764 View
  148. Pradeep Raj M, Manimegalai P, Ajay P, Amose J. Lipid Data Acquisition for devices Treatment of Coronary Diseases Health stuff on the Internet of Medical Things. Journal of Physics: Conference Series 2021;1937(1):012038 View
  149. Jagde A, Shrivastava R, Feine J, Emami E, Denis F. Patients’ E-Readiness to use E-Health technologies for oral health. PLOS ONE 2021;16(7):e0253922 View
  150. Acholonu R, Raphael J. The Influence of the Electronic Health Record on Achieving Equity and Eliminating Health Disparities for Children. Pediatric Annals 2022;51(3) View
  151. Zanaboni P, Kristiansen E, Lintvedt O, Wynn R, Johansen M, Sørensen T, Fagerlund A. Impact on patient-provider relationship and documentation practices when mental health patients access their electronic health records online: a qualitative study among health professionals in an outpatient setting. BMC Psychiatry 2022;22(1) View
  152. Chandini A, Basarkod P. Patient centric pre-transaction signature verification assisted smart contract based blockchain for electronic healthcare records. Journal of Ambient Intelligence and Humanized Computing 2023;14(4):4221 View
  153. Godier-McBard L, Fossey M. Veterans Universal Passport: a pilot of a health and social care record for UK ex-service personnel. BMJ Military Health 2022;168(1):34 View
  154. Pittman J, Almklov E, Angkaw A, Doran N, Lindamer L, Norman S, Grubbs K, Wolfe W, Afari N. Electronic Screening to Support Measurement Based Care: Examples from the Field. Military Behavioral Health 2022;10(3):235 View
  155. Mahnke M, Nielsen M. eHealth platforms as user–data communication: Examining patients’ struggles with digital health data. Nordicom Review 2021;42(s4):45 View
  156. Bourgeois F, DesRoches C, Bell S. Ethical Challenges Raised by OpenNotes for Pediatric and Adolescent Patients. Pediatrics 2018;141(6) View
  157. Wang N, Chen J. Decreasing Racial Disparities in Preventable Emergency Department Visits Through Hospital Health Information Technology Patient Engagement Functionalities. Telemedicine and e-Health 2023;29(6):841 View
  158. Fant C, Adelman D, Zak C. Post-Cures Act: Implications for Nurse Practitioners. The Journal for Nurse Practitioners 2022;18(10):1102 View
  159. Seo S, Choi B, Choi J. Relationship between Hospital Profitability and Mobile-Based Personal Health Record Adoption. Health Insurance Review & Assessment Service Research 2022;2(1):57 View
  160. Alarifi M, Jabour A, Wu M, Aldosary A, Almanaa M, Luo J. Proposed Questions to Assess the Extent of Knowledge in Understanding the Radiology Report Language. International Journal of Environmental Research and Public Health 2022;19(18):11808 View
  161. Smith C, Kelly M. In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders. Journal of Participatory Medicine 2022;14(1):e37759 View
  162. Abdullahi Yari I, Dehling T, Kluge F, Geck J, Sunyaev A, Eskofier B. Security Engineering of Patient-Centered Health Care Information Systems in Peer-to-Peer Environments: Systematic Review. Journal of Medical Internet Research 2021;23(11):e24460 View
  163. Schwarz J, Bärkås A, Blease C, Collins L, Hägglund M, Markham S, Hochwarter S. Sharing Clinical Notes and Electronic Health Records With People Affected by Mental Health Conditions: Scoping Review. JMIR Mental Health 2021;8(12):e34170 View
  164. Haun J, Melillo C, Schneider T, Merzier M, Klanchar S, Fowler C, Benzinger R. User Testing of the Veteran Delegation Tool: Qualitative Inquiry. Journal of Medical Internet Research 2023;25:e40634 View
  165. Conroy M, Powell M, Suelzer E, Pamulapati S, Min H, Wright T, Kamaraju S. Electronic Medical Record–Based Electronic Messaging Among Patients with Breast Cancer: A Systematic Review. Applied Clinical Informatics 2023;14(01):134 View
  166. Rogers C, Willis S, Gillard S, Chudleigh J. Patient experience of imaging reports: A systematic literature review. Ultrasound 2023;31(3):164 View
  167. Müller J, Weinert L, Svensson L, Rivinius R, Kreusser M, Heinze O. Mobile Access to Medical Records in Heart Transplantation Aftercare: Mixed-Methods Study Assessing Usability, Feasibility and Effects of a Mobile Application. Life 2022;12(8):1204 View
  168. Griesser A, Bidmon S. A Process Related View on the Usage of Electronic Health Records from the Patients’ Perspective: A Systematic Review. Journal of Medical Systems 2022;47(1) View
  169. Leonard S, Zackula R, Wilcher J. Attitudes and Experiences of Clinicians After Mandated Implementation of Open Notes by the 21st Century Cures Act: Survey Study. Journal of Medical Internet Research 2023;25:e42021 View
  170. Lam B, Dupee D, Gerard M, Bell S. A Patient-Centered Approach to Writing Ambulatory Visit Notes in the Cures Act Era. Applied Clinical Informatics 2023;14(01):199 View
  171. Sethness J, Golub S, Evans Y. Adolescent patient portals and concerns about confidentiality. Current Opinion in Pediatrics 2023;35(4):430 View
  172. Conti J, Fix G, Javier S, Cheng H, Perez T, Dunlap S, McInnes D, Midboe A. Patient and provider perspectives of personal health record use: a multisite qualitative study in HIV care settings. Translational Behavioral Medicine 2023;13(7):475 View
  173. Kim H, Lee D, Kim K, Kim S, Park Y. Factors associated with the download and use of mobile personal health record applications in Korean hospitals. Health Informatics Journal 2023;29(3) View
  174. Nacht C, Jacobson N, Shiyanbola O, Smith C, Hoonakker P, Coller R, Dean S, Sklansky D, Smith W, Sprackling C, Kelly M. Perception of Physicians’ Notes Among Parents of Different Health Literacy Levels. Hospital Pediatrics 2024;14(2):108 View
  175. Moon J, Okoro O, Lounsbery J, Swanson S, Schweiss S, Westby A. Promoting diversity, equity and inclusion awareness in clinical documentation through postgraduate year one training. Currents in Pharmacy Teaching and Learning 2024;16(7):102096 View
  176. Matthews A, Steffen A, Burke L, Harris Vilona B, Donenberg G. MiQuit: A Study Protocol to Link Low-Income Smokers to a State Tobacco Quitline. Ethnicity & Disease 2023;DECIPHeR(Special Issue):44 View
  177. Pasat Z, Sinn C, Rahman B, Gayowsky A, Lokker C, Tarride J, Alarakhia M, Costa A, Umer M. The relationship between patient experience and real-world digital health access in primary care: A population-based cross-sectional study. PLOS ONE 2024;19(5):e0299005 View
  178. Meier-Diedrich E, Neumann K, Heinze M, Schwarz J. Einstellungen und Erwartungen von psychologischen und ärztlichen Psychotherapeut*innen gegenüber Open Notes: Analyse qualitativer Survey-Antworten. Psychiatrische Praxis 2024 View
  179. Matthews E, Lushin V, Macneal E, Marcus S. The Impact of Structural Integration on Clinical Outcomes among Individuals with Serious Mental Illness and Chronic Illness. Community Mental Health Journal 2024 View

Books/Policy Documents

  1. Alzahrani S, Daim T. R&D Management in the Knowledge Era. View
  2. Nazi K, Hogan T, Woods S, Simon S, Ralston J. Clinical Informatics Study Guide. View
  3. Medhekar A, Nguyen J. Opportunities and Challenges in Digital Healthcare Innovation. View
  4. Snipes C. Quality Improvement in Behavioral Health. View
  5. Clarke M, Karls K. Advances in Human Factors and Ergonomics in Healthcare and Medical Devices. View
  6. Murphy J, Franz B, Choi J, Callaghan K. Narrative Medicine and Community-Based Health Care and Planning. View
  7. Medhekar A. Handbook of Research on Advancing Cybersecurity for Digital Transformation. View
  8. Medhekar A, Nguyen J. Research Anthology on Improving Health Literacy Through Patient Communication and Mass Media. View
  9. Medhekar A. Research Anthology on Securing Medical Systems and Records. View
  10. Enwald H, Eriksson-Backa K, Hirvonen N, Huvila I. Information Experience and Information Literacy. View